Bladder Surgeon finally agreed to do new surgery!

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Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 11/16/2010 7:54 AM (GMT -6)   
Hi all,
I guess you may remember my having bladder surgery about three months went perfectly....until it failed two months later and I mean really failed.  The Dr/Surgeon has been giving me the run around about the problems and I finally hit my breaking point yesterday and called in with some fairly strong words about the problem. 
Well the nurse called last night and told me they were sending me an hour away to see a specialist (Uro-Gyno) who I've never even heard of.  I was NOT happy and expressed that without any reservation. Why should I have to go through testing and additional medical expense and travel for what we already know is wrong?  The surgery WORKED for two months and then failed.....obviously something came loose and needs to be tacked back in place.  It doesn't seem like rocket science to me because my dr/surgeon already goes in and "fixes" other dr's surgeries that have failed for one reason or other.  Sooooooo, I politely (but very firmly) explained to the nurse that the referral was simply not acceptable and that I trust the Dr to fix the problem and want it done as soon as possible.  She kind of didn't know what to say so I further explained that I would not be incurring any additional medical expenses to fix this problem and that I wanted it fixed by my Dr...period.
Later last night, the Dr. called from his cell phone with his newest proposal.....he'll be having his scheduling nurse call me today to set up my new surgery and he'll be using a slightly stronger type of mesh and a different "tacking" point.  He will also make sure the stitches are in place well.  I may get stuck with a catheter for a few days after this one, but I'll get the antibiotics I need and hopefully the oral meds for the yeast that won't die!!!  I'm allergic to diflucan, but can take the oral nystatin without any problems.
So now I wait for my new surgery and see what happens.....wish me luck!!!! 
Retired Mom

Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 11/16/2010 9:32 AM (GMT -6)   
    Hello retiredmom!
       You should have not had to go through this, but I'm glad you stuck to your guns on this. Lets hope this is properly done this time and gives you the outcome you have been looking for. Please do keep us informed, and I have been following your post ever since you had the first one done.
        Good luck to you! wink
 SE wink

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 11/16/2010 9:53 AM (GMT -6)   
Many good luck and well wishes coming your ways in hopes that this will be able to be fixed for you.
Keep us posted on this...
Healing Hugz
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


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Date Joined Jan 2010
Total Posts : 1097
   Posted 11/16/2010 12:27 PM (GMT -6)   
Hi RetiredMom.,

Good for you for sticking up for what you believe in. I can't believe the runaround you've been getting over your failed surgery (I've had the same surgery as you). Praying for a fast surgery date and a complete repair and restore of your bladder function.

DX: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Diabetes (just diagnosed), Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Hard Start for IV's, Unable to vomit due to surgery.

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine + Vitamin D + Multi daily

Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 11/16/2010 2:21 PM (GMT -6)   
I appreciate the words of encouragement!!

The office called today and we made a schedule to have the procedure about mid December. This way I can still have my SSD hearing and my nerve ablation done without conflict. I also called the PM and they will allow the NA to stand for the "regular" three month apt, so I could have this done (the dates were directly conflicting) I'm seriously busy for the next month or two, but should slow down by the end of the year. Either way, at least I won't have the additional medical expenses to pay.

Thanks for the support guys. I means a great deal to me!
Retired Mom

Veteran Member

Date Joined Sep 2008
Total Posts : 1670
   Posted 11/16/2010 6:04 PM (GMT -6)   
You go girl!!! I can't believe how much they messed you around but I'm so glad the surgeon is owning up to his mistake, surgeries do fail, he just has to deal with it!
I really hope this works for you, it sounds as if he will be more aware of your problem this time and do a stronger procedure. I really hope everything goes well.
Best , best wishes, golitho

Veteran Member

Date Joined Mar 2008
Total Posts : 3089
   Posted 11/16/2010 7:55 PM (GMT -6)   
Hi RM,

Good job sticking up for yourself! That isn't easy to do!
Hopefully this time, the surgery really works!

chronic retrobulbar eye pain, Asperger's syndrome, probable bipolar II, severe depression, & anxiety

recently implanted with a neurostimulator with leads on the supraobrital & infraorbital (ophthalmic) branches of the trigeminal nerve, resulting in a 50% decrease in pain (yippee!)

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 11/16/2010 8:14 PM (GMT -6)   
I echo what others have said - great job sticking up for yourself, although I know that takes a lot of energy. And to be juggling all this with SSD and other issues....I guess we all get better at that than we think (necessity is the mother of invention?) which doesn't make it right.

I hope your SSD goes well for you. If there's any way you can read any reports that have been written by SSD docs (I.M.E.'s) try to do so before the hearing. I had to fight to get a copy of all my stuff - and it came in the form of a CD after my decision had been rendered. Most of it was info. from my doctors, but I found it interesting to read the IME reports, especially the psych. eval. She didn't even ask me several of the questions she should have, yet reported as if I had responded. It's no wonder these things get so screwed up.

Good luck to you with your surgery and everything else on your plate!


Pete trips again!
Veteran Member

Date Joined Nov 2006
Total Posts : 1899
   Posted 11/17/2010 6:50 AM (GMT -6)   
RT, So sorry you have to get this fixed again! I am so happy that you told that nurse & doc how you felt about the whole mess! So many people just goalong w/ the doc and never question them. They make mistakes too just like everyone else!
I'm so glad you have your upcoming SSD hearing, I'm sure you will win that too w/ your strong will and determination!! You are my Hero!!! GO RT!!!
Big hugs from your Buddy and asmirerer!!
When I was young & stupid I broke almost every bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men, both are in the Navy. I'm so proud! My biggest health problem>> I'm a certified Luny~Tune!!

Veteran Member

Date Joined Apr 2008
Total Posts : 605
   Posted 11/18/2010 3:46 AM (GMT -6)   
Hi RM.
Just make sure if you have any history of pelvic adhesions that you do not want the teflon mesh sling but cadaver tissue.  I have had a hell of a time because my surgeon used the teflon even though he knew I had pelvic adhesions.  The teflon can get all tied up with the adhesions and the surgeon said later he can put them in but I would have to see a specailist to have it removed.  The specialist said she would not even think of doing that unless the sling preforated the bladder and all she could do for me was treat me for the horrible pain unless I wanted to become incontinate having it removed.

Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 11/18/2010 10:01 PM (GMT -6)   
First I want to thank you all for responding and for you well wishes.

Second.....QTKaren......please give me some additional information if you can. I have terrible problems with adhesions and they used the mesh on the first surgery. I know I have adhesions because of abdominal surgeries and because of problems with the adhesions not "breaking" when it was time to have my daughter. When the adhesions on the cervix finally "burst", I went from a 3 to a 10+ in 36 minutes. Nobody ever even discussed the mesh with me....just said that was the way they do it. Now I'm thinking I need to have some additional discussion directly with this surgeon before the procedure just to make sure everything is safe. I've already got the mesh inside and perhaps it can still be removed before adhesions take over.

PALady... thank you for mentioning the medical reports from SSD. I have read my reports and have also found several problems. Strangely enough, however, their own MH professional said I did not need to go back to work. His report was very supportive for SSD, but they decided to ignore the report I guess. My lawyer feels that I should not have too many problems, but I'm not so sure. Judges have seen it all and I'm still awfully young (40's) and have that Masters. It's going to be an uphill battle no matter what. I'm going to keep my fingers crossed and say my prayers, but I'm trying very hard not to get my hopes up because I don't want to get crushed next Tuesday if it doesn't go well.

Again, thank you all!!!
Retired Mom
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