Thanks everyone for the advice and well wishes! I STILL have NOT heard back from my doc so I am livid! I have called them 2 times now. I am going to call again today and refuse to leave another message...I want to talk to him now! I am also now experiencing numbness in the very tips of my fingertips...I'm about to lose my mind. I am currently only taking the Neurontin at bedtime now, he had originally wanted me to take it 3 times a day, but I want off this horrid drug ASAP! On top of these issues, this particular drug makes me a zombie and I hate that feeling. I am just beyond frustrating and I GREATLY appreciate every single one of you for all the support!!! Thanks so very much!
I am a 29 yo female, Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck