Just talked to WhiteBeard

New Topic Post Reply Printable Version
57 posts in this thread.
Viewing Page :
 1  2  3 
[ << Previous Thread | Next Thread >> ]

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16764
   Posted 11/16/2010 5:13 PM (GMT -6)   
Hello everyone, I just got off the phone with WhiteBeard and he had his surgery yesterday afternoon. It was a 4 hour surgery and the dr told him he had no idea how bad things were until he got in there. He said that it was just worn out in there and its a good thing surgery happened when it did. He is having an enormous amount of pain and he was not expecting this. He said he just had no idea how painful it would be. They messed his medications up royally for one thing, he said with him being on high amounts of daily pain meds the drs really did not want to give him much for post op pain for fear of him not waking up. After a horrible night of pain finally later this afternoon two nurses came to his rescue and called the dr and said look this man is in severe pain and the Fentanyl in his pump is not lowering his pain. He got changed to Dilaudid and they also gave him some IV Toradol. I could tell the Dilaudid was kicking in just by his voice. I asked him if his pain was beginning to subside a little and he said yes. He did not have his machine on last night so he did not get any sleep, he was awake all night in pain. He said he is in a soft collar and he thinks tonight with help they can get his machine on him so he can get some sleep, he is wore out. WhiteBeard says the drs there at the hospital are not use to seeing patients on high daily meds so they did not know how to properly address the post op pain. He said his dr was off today and an associate came in to see and first thing he did was rip the bandage off of the back of his neck, he said if he would have had the strength he thinks he may would have decked the guy. Can you imagine having a dressing ripped off that covers your entire back of the neck, wow. He has been able with help to stand at bedside but the pain is just too much right now for even standing.

Hopefully now with some new pain medication he can get the pain settled down to where he can get some much needed sleep and rest. Initially he was told he would be in the hospital 3-4 days but he is not sure at this time how long his stay will be. He says until the pain is under better control he does not plan on going anywhere. When he is released from the hospital he will go either to a rehab facility or there is a nursing home close to his home that has a great rehab dept and he is hoping he gets sent to that one.

I will not talk to him again until tomorrow. I told him I would post here on how the surgery went and he is doing.
Moderator Chronic Pain Forum

Post Edited (straydog) : 11/16/2010 3:17:55 PM (GMT-7)


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 11/16/2010 5:54 PM (GMT -6)   
Oh Susie, it's so horrible to think of White Beard being in so much pain. Why can't these hospitals get it right for once? I mean surely the surgeon could have worked out exactly what he'd need before hand with WB's input?
It makes me feel really sad. Nothing worse than post surgical pain, hopefully now they have him a bit more comfortable he will manage to get some sleep and the healing can begin.
Tell him I'm thinking of him and sending him a huge gentle hug.
It makes me so cross to hear they can be so unknowledgable about pain meds....
sad
best healing wishes to you WB, golitho

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 11/16/2010 7:33 PM (GMT -6)   
Susie, thank you for the update. I'm sorry that WB's surgery was more intensive than he expected, but at least it's done now and he can focus on getting better.

Thank God for the nurses who took it upon themselves to make sure he got adequate pain relief. I just don't understand how most of the medical profession doesn't understand chronic pain, and the lengths we have to go to, to get relief. I know that I've always had a pre-meeting with the anesthetist before a surgery and I make sure they clearly understand what I'm on, and what will actually help me after a surgery.

I hope that WB is able to sleep tonight - rest is what his body needs, more than anything. Sending good thoughts his way...hope he gets them!

Pam
DX: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Diabetes (just diagnosed), Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Hard Start for IV's, Unable to vomit due to surgery.

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine + Vitamin D + Multi daily

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 11/16/2010 7:47 PM (GMT -6)   
Susie ty for the update, I cried cause they kept our friend WhiteBeard in such pain,
please tell him our prayers are with him and that I hope that hospital can do better
at getting him some relief for the pain...If I could send you some money to buy
our friend a balloon for his room to let him know we care, I would...
(((((((((((((((((((((((((((((((((WhiteBeard)))))))))))))))))))))))))))))))))))))))))
soft caring HUGZ
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 3089
   Posted 11/16/2010 7:52 PM (GMT -6)   
Susie,

Thank you so much for the update! I am glad to hear that the surgery itself went well, but I am so sorry to hear that White Beard is in so much pain post-op! Hopefully the change in meds helps. I'm glad that his nurses are advocating for him. It isn't always easy to be your own advocate (especially when you are feeling so rotten). As always, he's in my thoughts and prayers.

hugs,
Skeye
chronic retrobulbar eye pain, Asperger's syndrome, probable bipolar II, severe depression, & anxiety

recently implanted with a neurostimulator with leads on the supraobrital & infraorbital (ophthalmic) branches of the trigeminal nerve, resulting in a 50% decrease in pain (yippee!)

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/16/2010 8:07 PM (GMT -6)   
Susie,
Please give White Beard my best wishes for as speedy a recovery as possible, although for the moment just some peace and comfort would be ok with him, I'd guess. What a shame such a good person has to struggle like this. Happens way too often, as wel all well know.

Thanks for the update.

PaLady

damgalnuna
Regular Member


Date Joined Aug 2010
Total Posts : 77
   Posted 11/16/2010 10:00 PM (GMT -6)   
White Beard: I wish you the best for a quick and thorough recovery. I'm sorry to hear that your doctors had not been treating your post surgical pain properly, and hope that they are treating it better now.
Scoliosis fusion w/rods (92); herniated disc (96); partial removal of rods (97); microdiscectomy (97); sudden inc. in pain (08); tried the various non-pharm treatments and currently take the following meds: lyrica, baclofen, vicodin, topomax, tramadol, welbutrin, ativan, ritilin.
I design jewelry to distract myself from the pain: www.beadedrelics.com

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 11/17/2010 12:22 AM (GMT -6)   
 
   Dear White Beard,
 
   I am relieved the surgery is finally done. It has been a problem for most of the year and I know the surgery was long awaited. That being said, I am very disappointed in the care you have been receiving. If it wasn't for the nurses you would still be suffering in an immense amount of pain. I do hope you can speak with your regular surgeon regarding his associate and the lac of pain control. Something need to be said.
 
    I do hope you are able to get a bed in the rehab center. It sounds like it will be the best course of action since you have no one to help you at home. With your fighting spirit I have no doubt you will be back on your feet in no time at all. Know you are in our prayers for a speedy recovery and now for better care from your surgeon. Hang in there.
 
*hugg*
  dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 11/17/2010 6:40 AM (GMT -6)   
WB, Dani always says it best! No way I can congure up words like her but I'm thinking and praying for you too! I never experianced pain like I had w/ my cervical fusion so I know you have just been through hell! So sorry they didn't take better care of you! I sure hope the rehab goes better!!!
Man Hugs for you Brother!!!
Pete
When I was young & stupid I broke almost every bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men, both are in the Navy. I'm so proud! My biggest health problem>> I'm a certified Luny~Tune!!

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 11/17/2010 6:52 AM (GMT -6)   
Thanks Susie, I was so glad ro see an update on our dear friend. I am so sad that he is having so much pain, hopefully it will all be worth it. Please send him my love. Take care.
Gentle Hugs,
Shannon

Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Percocet, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 11/17/2010 7:56 AM (GMT -6)   
Thank you for posting about White Beard.....I will keep praying for him to go to rehab that he wants to, and that his pain begins to be addressed well.
My prayers go out to him!

Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw


Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, 7 pelvic surgeries for pain, ovarian cysts, adhesions, and a kidney stone! Wait, future medial transcriptionist I must say ureteral calculus!

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/17/2010 8:21 AM (GMT -6)   
     Wishing you the best White Beard!
 
        I know it is tuff, but you can get through this. The report on you reminded me of my surgery, and I too was not prepared for that much pain. Hopfully, they will get it under control. We all wish the best and a speedy recovery to you.
 
       SE wink

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 11/17/2010 8:32 AM (GMT -6)   
Thanks for the update Straydog , your an angel . When you talk to him again tell him I'm pullin' for him and to hang tough , right after surgery and the healing process can be hard but he's on his way to feeling better already . Wish him the best and tell him we miss him !!! Mikel
HIV+. meds - epzicom, Kaletra . oxycontin as needed , indothemiacin . hip replacement surgery done !!! Staples out , saw the surgeon he says I'm healing really well , I go back in 2 months . Until then its physical therapy galore !!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16764
   Posted 11/17/2010 10:31 AM (GMT -6)   
I will let him know he is in everyone's hearts. Yes, it was really tough hearing how bad the first 36 hours after surgery went. You would think that drs could get it right. But, its like he and his daughter both said, they were just afraid to give him much on top of his normal daily meds because they were concerned about him waking up. This is another reminder for folks on high pain meds when it comes to needing something like surgery, is making sure everyone is on board about post op meds and daily meds. In a way because of being on high pain meds it takes us much, much more in a pain killer than an average person. But getting a dr to wrap his brain around this seems to be difficult at best. They even had his daily meds screwed up and it took forever for him to make them understand what time of day he takes his meds. He is very rigid in his daily schedule of taking meds and they even messed that up. How can you not understand what is written on a label on a bottle is what I want to know. I do know his daughter also called and spoke with his dr and she explained the medications to the dr that he is on and why one more time. Its just crazy and makes me sick.

I will check on him later in the afternoon and post again on this thread rather than starting a new one.
Moderator Chronic Pain Forum

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 11/17/2010 3:56 PM (GMT -6)   
Thanks Susie! We all appreciate you updating us! It makes me so sad and mad when one of us has to have something done and end up suffering so much! WhiteBeard is such a dear man and has certainly helped me a lot here....I hope they keep his pain under better control! I am scared of having to have anything done, because it always seems to turn out the same way!

Anyway, sending him my love and healing thoughts!

Hugs,
Beckey
Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus and Possible RA

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

Chutz
Forum Moderator


Date Joined Jan 2005
Total Posts : 9242
   Posted 11/18/2010 12:52 AM (GMT -6)   
Please pass along my love and prayers for quick healing and less pain. Thanks for posting!

Chutz
Moderator on the Fibromyalgia and Chronic Pain forums

“If you want to live a happy life, tie it to a goal, not to people or things.” Albert Einstein

Splashdancer
Veteran Member


Date Joined Aug 2009
Total Posts : 928
   Posted 11/18/2010 4:13 AM (GMT -6)   
Same here - please let Whitebeard know that I am thinking of him and sending lots of healing thoughts and prayers his way! I get so angry when I hear of someone not getting the pain relief they need, without having to beg and plead - especially after surgery - that is super unacceptable!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16764
   Posted 11/18/2010 6:55 AM (GMT -6)   
An update on WhiteBeard. I spoke with him Wednesday evening and he is still struggling with the post op pain. However, that being said he said that the change in meds has given him some relief. They were in a couple of different times getting him up and he says that when they stand him up he feels like his head is going to blow off. His incision starts at the base of the skull and goes past his shoulder blades. One of the nurses took a picture of it with his cell phone and he said after seeing that its no wonder he is in the pain he is. PT has already told him that the muscles are so traumatized by that type of surgery they just get hard as rocks which in turn causes spasms that feel never ending and the recovery is a long one. The other problem is with the PCA machine unless you stay awake and keep pressing the button for medication if you nod off you wake up in screaming pain then he said its just nuts trying to play catch up with the pain.

The good news is the rehab center will not accept him from the hospital until his pain is under better control. They came by and visited with him and he can expect to be in there anywhere from 1-2 weeks, most likely 2 weeks. Friday is a target date to be released from the hospital but that also depends on his pain levels too. He is not able to use his apnea mask because the straps come across the incision and puts too much pressure on the incision. There appears to be nothing they can do to fix this problem so good rest is not in the future right now for him. He has his laptop with him and I know he has probably been reading some of the posts here from everyone and that lifts his spirits.

Will update yall later today.
Moderator Chronic Pain Forum

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/18/2010 2:14 PM (GMT -6)   
Susie,
I stopped by today specifically to look for an update about White Beard. WB if you're reading this I hope you know how much you're cared about here! I so wish I had a magic wand that I could wave to relieve your pain.

I sure hope they don't release him from the hospital before the pain is under control. I wish his daughter was closer, as I think she's a nurse, but I know she lives quite a distance away. Sounds like she's been in touch with his doctors at least by phone. But there may be an advocate in the hospital he can ask for - a case manager or ombudsman, who can help protect him from being released too soon. And I know those PCA machines have their positive side, but I did the same thing when I was in for my back surgery. Kept forgetting to push it - I mean, how often do we get our pain control by pushing a button? So by the second day they took it out and put me on oral pain meds. Heavens, there are other ways of delivering pain meds, even though it might not be as even a dose as if you were pushing the button every few minutes, but if you forget to push it or fall asleep - what's the point?

Anyway, continue to pass along my best wishes for healing for him - and wishes for good nurses - nurses who treat patients they way he used to treat his - both in the hospital and in the rehab center.

((((((((WhiteBeard))))))))))

PaLady

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 11/18/2010 4:55 PM (GMT -6)   
PALady I know that if WhiteBeard see your posts that'll cheer him up.
Whitebeard was thinking of you hun and I hope these next few weeks pass by
quickly for you and that your pain gets better...
You got quite a lot of people looking out for you...
((((((((((((((((((((((((((((((((((WhiteBeard)))))))))))))))))))))))))))))))))))))))))))
Prayes, healing hugz and lots of well wishes...

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 11/18/2010 6:28 PM (GMT -6)   
White Beard if you're reading this I'm still sending you all my healing energies. It sounds as if you're having such a rough time. I really hope after this first week that your poor spasmed muscles start to settle down for you. How horrendous.
We are all thinking of you, wishing you the best. I wish I could do more. It still makes me feel so furious that they have let you get into this state or don't understand your pain relief needs.
Horrible to hear you can't get your machine on to help you sleep. That must be so exhausting, especially when you need that sleep to help you heal...
Thoughts are with you, golitho

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16764
   Posted 11/18/2010 10:08 PM (GMT -6)   
Another quick update on WhiteBeard. Just got off the phone with him and he is hanging in there. He says the associate in his surgeon's office is the one pushing somewhat about weaning him off the PCA machine so that he can be released. But, WhiteBeard is a smart man and he knows not to push himself too fast in getting off the PCA because he is still needing it. He plans on talking to his surgeon about this tomorrow. Plus, the rehab center will not accept him until the pain is under control. Biggest problem for him now is trying to get up on his feet, it takes everything out of him because the pain becomes so severe when they get him up on his feet. He says sitting in a chair is fine but thats about it. PT comes in and works with him during the day. I think his voice sounded a little stronger tonight and I will take that s a good sign.

Lets keep the prayers and good vibes going his way.
Moderator Chronic Pain Forum

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3702
   Posted 11/19/2010 12:26 AM (GMT -6)   
Hello all my Family! Well this surgery has been an experience! I have an incision with staples that goes down the center of the back of my neck from the base of my skull, down  to just about the middle of my shoulder blades. it looks like a zipper! The pain has been unreal to say the least! Tomorrow will be my fifth day here in the hospital and as of right now I do not have any idea when I will be discharged! I am told I can not go home right away but I have to go to a nursing rehab facility first. To finish up my recovery. This is mainly because I do not have anyone there to help me or be there with me. Anyway I have been trying to read all the post but I mut admit I have a difficult time holding myconcentration because of the pain, and it is very difficult to use my arms right now because of the stress put on the shoulder and neck muscles. I just want you all to know I value each and every one of you, and appreciate all you thoughts and best wishes, it means allot to me! More I think than you will ever know! Please continue to keep me in your thoughts and prayers, I firmly believe this will insure me a complete and successful recovery!
 
May Gods Peace be always with each and everyone of YOU!
 
White Beard
 
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 11/19/2010 1:12 AM (GMT -6)   
It's good to read your post WB, but I'm sorry you're still having so much pain. I hope that starts to settle down, so you can move on to the Rehab centre and really get yourself to the point of independence again.

I'm keeping you in my prayers, and sending all good thoughts and energy your way. We're all here, cheering you along!!

hugs,
Pam
DX: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Diabetes (just diagnosed), Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Hard Start for IV's, Unable to vomit due to surgery.

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine + Vitamin D + Multi daily

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/19/2010 4:02 AM (GMT -6)   
WhiteBeard,
It's good to see you post, but that must have taken a lot out of you! I will keep this short to make it easier for you to read. Just know we are all thinking of you and sending positive healing thoughts your way BIG TIME!

Don't let them rush you either! I know what it's like being home alone after surgery and it's no picnic, so get all the time either in the hospital and/or the rehab facility that you can.

(((((((((WhiteBeard)))))))))

PaLady
New Topic Post Reply Printable Version
57 posts in this thread.
Viewing Page :
 1  2  3 
Forum Information
Currently it is Tuesday, September 18, 2018 8:29 PM (GMT -6)
There are a total of 3,004,471 posts in 329,149 threads.
View Active Threads


Who's Online
This forum has 161740 registered members. Please welcome our newest member, Liz in Colorado.
241 Guest(s), 11 Registered Member(s) are currently online.  Details
mirowpl, notsosicklygirl, Octobergirl, Ss800, levanthai, wednesday77, Girlie, FLBeachgal, kittytalk371, halbert, Steve Smith