On my way to the ER

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BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 11/23/2010 9:50 AM (GMT -6)   
While waiting for my ride, I need distraction so I thought I'd reach out. Been up all night with SEVERE pain which I cannot control no matter what I take. I've had a relapse the past three days and can't get my UC under control--I believe I went to the bathroom 15+ times in the past eight hours. My biggest worry is that I will get hospitalized--again--just got out a month ago after a weeks stay. Can't stop crying from the pain. I feel overwhelmed with how many times I need to go to the MD and ER this past year and am wondering if anyone else has this revolving door to the ER or MD b/c of their condition. cry

BTW: for those who have to go to the ER for severe pain, at what point or how bad does it get before you decide to go (and what kind of treatment do you get, how does the staff react to you as a CP patient). Really not looking forward to this.

Post Edited (BigLucy) : 11/23/2010 8:55:53 AM (GMT-7)


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/23/2010 9:56 AM (GMT -6)   
 
     We are so sorry to hear this Lucy. sad
 
      I hope it is not too serious, and that they will be able to help you.
 
      Prayers for you today!
 
  SE wink

BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 11/23/2010 6:26 PM (GMT -6)   
Thanks SE for your reply, so far you are my one and only response out of approx. 50 who have viewed this post; that always blows my mind, how many people don't respond and it's been consistent for the three years I've been participating. It may be b/c I come off/on to this site and people may have forgotten me and I myself am not a big responder to things I am not familiar with or a specific question. Another thing that intrigues me is all the "newbies" who are all "veteran" members after joining within one to a couple of months--the identifier as a veteran is amusing. I think too much or it may be the injection of pain medication I received in the ER to bring down my levels so I can better manage. The MD suggested hospitalization, but I said if there is any way I don't have to, I would rather stay at home, but if things don't get better soon, I'm headed for another hospital stay--twice in one month, yeah!

Pity party, table for one please!

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 11/23/2010 6:55 PM (GMT -6)   
I hope you feel better quick.

I can give you some insight into your musings about things on the site.

Post count: Just because a post says it has had 50 viewing does not mean it has had 50 real people visit it. There are programs called web bot that visit message boards and other web sites looking for key words. Some of these bots are used by search engines like Google to provide current results as others are used by spammers so they can target their spam efforts. Then of course you do have people who read posts but do not comment on them since they have nothing to say relevant to the discussion.

Member rankings: This really means nothing as it is simply based on a members post count. How many posts a person needs to get whatever ranking is determined by the site owner.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9661
   Posted 11/23/2010 7:43 PM (GMT -6)   
Big Lucy so very sorry your in such agony. I'll send Prayers
in hopes the ER will be able to give you some help.
and I hope your feeling better soon...
Sometimes one of my kitties will just jump up on my chair sit on my
lap and purr away seems like this just helps out a lot, amazing
what a lil purr can do to brighten a moment in a very bad day.
((((((((((((((((((((((((((((Big Lucy))))))))))))))))))))))))))))))))))))))))
Prayers and healing hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

KiwiPi
Regular Member


Date Joined Nov 2010
Total Posts : 31
   Posted 11/23/2010 8:17 PM (GMT -6)   
Big Lucy - I'm sorry I'm responding fairly late in the thread, considering you posted it during a time when you really could have used a response sooner than this, but I wanted to say that I hope the pain medication you got in the ER was helpful. I had a situation about a week and a half ago where I had to make a decision about an ER visit for pain control...it was a tough thing to do, but I decided to go, eventually, when I realized that for over twenty-four hours, I'd basically been unable to do anything. I had a lot of worries about it: I have a fairly extensive psychiatric history in addition to chronic pain, and I was pretty worried that for some reason, they'd just refuse to treat me. They didn't, though. I was treated promptly and respectfully, and I hope that they did the same for you. *hugs*

Kiwi

Vannie
Veteran Member


Date Joined Aug 2010
Total Posts : 795
   Posted 11/23/2010 8:46 PM (GMT -6)   
Hello, Big Lucy. I am so sorry you have been in so much pain. I just came across your post. I know you have already been to the ER, but your post touched me, and I just wanted to let you know that I will be praying for you. Wishing you pain relief soon and happier, healthier days. Peace, V
Fibromyalgia, Inflammatory Arthritis, Osteoarthritis, Asthma

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 11/23/2010 9:56 PM (GMT -6)   
Hi Lucy,

I'm sorry you've been having so much trouble lately, especially with UC. I also have that but I am also very fortunate that mine has been in remission for many years with medication. From what I've seen this isn't the norm.

We hear so many stories of ER trips where the staff treats CP patients like drug seekers. The last time I had to go...last winter...I felt as if the ER were the drug pushers. I went in because I had some sort of viral/flu thing and not only had gotten terribly dehydrated but couldn't keep even water down. Once they finally got to me they gave me something for the nausea and then said...here's your pain medication for the IV! WHAT?!? I never complained about needing pain meds so I said no thanks. A bit later I heard a nurse in the next room bring in the same drugs for that person too. I believe it was Dilaudid they were passing out (sorry, poor choice of words there...lol).

One other time, the year before, I did take up on the offer because my body hurt so bad all over and I couldn't control it in addition to whatever flu I had then. I do hope you found the ER accommodating and pleasant. That's the last place we all need rudeness and more misery.

Chutz
Moderator on the Fibromyalgia and Chronic Pain forums

“If you want to live a happy life, tie it to a goal, not to people or things.” Albert Einstein

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/24/2010 9:04 AM (GMT -6)   

 

     Hey Big Lucy! smilewinkgrin  

      Ok, I have to defend the membership a little here. There are several visitors looking at these post every day, and when they click on the post, it registers a hit. Also, I tend to click on the link several times a day to see if anything was replied to, and often go back and check to see if I stated something correctly. I have a bad habit of making speeeelling errors and my mindset is off a bit with the meds I'm on. smilewinkgrin

      So!....40 of the 50 hits could have been mine! smilewinkgrin   Also, many of our members are either preparing for the holiday's or are experiencing terrible health conditions as yourself. wink

     As you can see, the members really do care about you. I supose that yes, if you are not always present here on the forum, some of them might forget that you have been gone for a while. I had forgotten about Scarred for Life, and she is one of my Kansas buddys! wink

     Please do take care, and we all hope you get some relief soon. And stay out of the Hosipital! wink   That is the last place we want to see you! smilewinkgrin

      Take care!

       SE wink

Post Edited (Screaming Eagle) : 11/24/2010 8:07:33 AM (GMT-7)


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 11/24/2010 10:14 AM (GMT -6)   
BigLucy, I'm sorry you're in such terrible pain, and I hope your trip to the ER helped you.

I do need to comment regarding your complaint that 50 people viewed the post and you only got one (initial) response. I'm hoping it was just pain and frustration that made you comment the way you did, because the way I read it made me feel like you were trying to make people feel guilty.

Quite often, I view posts and don't comment - whether because someone else has already said what I was going to say, or because my fingers are really sore, so I don't feel like typing, to....whatever. It doesn't matter why people don't respond - we all have our reasons. Generally though, when I read a post and choose not to comment, I still offer up a quick prayer to the person who posted.

It's not the number of responses you get that should matter....it's the content of the responses that count. And for people like me, who sometimes prefer to just pray, well you'll just have to accept that as truth and trust that people care, even if they don't say so.

Hugs,
Pam
DX: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Diabetes (just diagnosed), Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Hard Start for IV's, Unable to vomit due to surgery.

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine + Vitamin D + Multi daily

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16020
   Posted 11/24/2010 11:51 AM (GMT -6)   
Hi Lucy, I am assuming the drs kept you at the hospital, if so I hope you are beginning to feel better. I never did see what you take for your UC but wanted to ask if you had ever been tried on Lialda for it? Its a fairly new one, I was put on it right after my scope when I was dx'd with UC in addition to my existing crohns disease. I got lucky and managed to have both. My gi says this only happens to like 5% of the people and I guess I got lucky. Back to the Liadla I have been on it since 06 and it seems to keep thing handled pretty well. it may be something to check into for UC.

Take care.
Moderator Chronic Pain Forum

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/24/2010 3:17 PM (GMT -6)   
Hi, BigLucy,
I haven't check HW for probably a week or more, and post very rarely. Nothing like what I used to - which used to be daily. I just got too overwhelmed with too many things. But I popped in today and just scanned the board quickly and saw your post and wanted to respond. I think some of the older veterans who used to post a lot don't, for a variety of reasons. Please don't take it personally.

I'll try to check back and see if you post again today or tomorrow. If not, I'm guessing you might have been admitted. Either way, please know I'll be thinking of you.

((((((((((((BigLucy))))))))))))

PaLady
p.s. Like Jim said, the designation of Regular or Veteran is based on the # of posts. I think the # for "veteran" label on HW is 500 posts, but I'm not sure. It happens automatically via the computer; not something an individual does. Forum Moderator is a different story; that has to be applied for and decided by the admin, I believe. Take care of yourself!

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 11/24/2010 3:20 PM (GMT -6)   
Hope you are feeling a bit better today Lucy!! I am sending you some healing vibes and some low pain days.

Take care.
SUZANE

One day at a time!!

BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 11/25/2010 4:06 PM (GMT -6)   
In a past post(s) I have stated that I often find this support method to be frustrating due to the impersonal nature of the web and one of the reasons I do not frequent this site that often, but when I do it's b/c I am in terrible shape and need some type of support. So last time I posted I was in a very bad way and frustrated and scared and a bit hopeless and alone; so of course what I wrote looked like criticism rather than desperation (and someone wrote that my post looked as if I was trying to make people feel guilty). I apologize if any one was put off by my comments, they were just musings and it wasn't my intention to pass judgment or make anyone feel bad--honestly I don't have the energy anymore to be a petty person, that is a healthy persons game.

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 11/25/2010 5:29 PM (GMT -6)   
Hi Lucy,

I want to say that I was one who read your post and did not respond. I pulled it up just before a visitor dropped in and then honestly "thought" I had responded. When I looked back today, it showed that there was unopened information and I opened it again to see the update on you. It was only then that I realized I had never posted any support.

I honestly think people get in the middle of things when they are reading....like the phone ringing, a child needing them, a person stopping by the house (I'm having an addition added as a precaution for my mother in case she needs a place to stay.....or better yet, my step-father is having an addition put on my house....I don't have the money at all). In any case, I am sorry for not checking back. I always look for unopened posts and don't realize that I haven't posted until I check back in. I'm sorry for your pain and for you having to go back to the hospital again (even if it was just the ER this time). I so hope you find relief and can stay at home instead of the hospital for the holiday season.

All my best!
Retired Mom

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/26/2010 2:51 PM (GMT -6)   
BigLucy,
I wish I could be more supportive on here to you and many others, like I used to be, but sometimes it's just too much when you're hurting (as you well know), and the "persona" of the CP forum has changed some over the past several months. Such is life, I guess. I know it's hard when you're not feeling well, but try to ignore the comments that are hurtful and just focus on the supportive ones.

I'm not here everyday, but I'll try to come back and check your thread especially. How are you doing? What happened at the ER? If you don't have the energy or desire to post details, that's ok, too.

((((((((BigLucy)))))))))

PaLady

BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 11/26/2010 7:48 PM (GMT -6)   
PAlady--something good happened just as I was on my way to the ER (eh, when do you ever hear that?), my CP MD called me after a nurse contacted him and he fit me in immediately, so I didn't have to go to the ER after all, yeah--I completely dislike the ER. We discussed me being hospitalized again and I decided not to if I agreed to go to the ER immediately within two days if things didn't get dramatically better. I was given a substantial pain shot and I'll tell you, it was just what I needed: came home, relaxed, slept and got up the next day able to manage my pain better and even, wait for it, do some chores! Life is strange indeed. In general, I have been on medical leave for the past two months after being hospitalized, I was unable to eat for three weeks, maintain any nutrition, fun times. Now spending my time trying to rest and get my body back up to "speed."
What do you mean by the "persona of the CP forum has changed some over the past several months." I have to admit I do feel comforted when I see an "old friend" from the site, catching up with new people is exhausting. I'll say it again, I wish we lived in the same town, I would love to sit with you for an afternoon (or many), have tea and discuss why I like Sylvia so much--or just sit in silent support.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16020
   Posted 11/27/2010 4:33 PM (GMT -6)   
Lucy I had asked you in my earlier post of you had ever been tried on a medication called Lialda for your UC? Its one of the fairly new ones and they have a good deal of success with it. Just wanted you to see this particular post on the name of this medication.
Moderator Chronic Pain Forum

Medicalkid2
Regular Member


Date Joined Oct 2010
Total Posts : 147
   Posted 11/29/2010 4:48 PM (GMT -6)   
I probably dont go as much as some to the ER but i draw the line when i cant walk properly, severly constipated and when the pain triggers me to want to cry. I feel like i burden my doctors/insurance company :p but i seriously would not wish this type of pain on anyone. Worse i am not officially prescribed pain medication so i do either end up grinding through it like usual or if its really bad justvlaying down hoping the mix of tylenol and aspirin work, not supposed to take aspirin with bowel disorders but i dont have a prescription for something more safe an effective like roxicodone. So yes i feel like crap going to the ER or doctors because they cant find anything from all the tests yet i have horrible pain, sometimes i feel like they think im crazy haha. But my mother has lupus and RA and they thought it was all in her head and today she just got the official diagnoses.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/30/2010 3:17 AM (GMT -6)   
Hi, Lucy,
I'm fading fast but wanted to pop in and check your thread. I'm glad to read of some positive things happening - we have to take every little bit we get, right?

It's hard to explain my comment about HW without it getting too confusing. Not worth it - just that, as you've noticed, a lot of the older (former?) members don't post much, but I guess I'm in that group now. Maybe sometimes we all need a break.

I, too, wish we could meet. I can't remember where you live, but I think it's quite a distance from western PA. Seems so many people here are quite a distance from me. :-(

Still sending hugs....

PaLady
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