Horrible Pain Flare

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Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2317
   Posted 11/23/2010 3:27 PM (GMT -6)   
Well, I guess it was only a matter of time. At least I made it 30 days, but now I'm in horrible pain & lost my good insurance. The lousy policy I have right now doesn't cover much of anything. My back is hurting some, but my neck is driving me crazy. My stupid SCS is doing me exactly no good at all. The cold weather is making things worse & I found out the hard way that even though my muscles tense up in the cold, I cannot wear scarves or turtlenecks or anything that touches my neck without setting off nauseating waves of pain that continue until I take off the scarf or top. And there's still quite a bit of pain for several days after even if I only put it on for a short time.
Even drying my hair hurts. I got it cut off real short so that my hair doesn't touch the back of my neck anymore b/c even my own hair was causing me sharp pains. It felt like someone was poking me with a hundred sewing needles at once.

I'm thinking it must be nerve pain b/c the back of my neck is all red but I'm not sure about that. What little money I had saved up to see my PM is gone b/c my car broke down a few days ago. So I fixed it & wouldn't you know it now something else, much more expensive, is wrong with it. Maybe I can get it fixed next week.
I got a holiday job that will keep me busy, busy, busy starting tomorrow & I don't even know how I will manage (at least I only have 3 hour shifts most days) b/c the pain is so bad even on meds. I just feel like everything is going wrong & I don't know how to turn things around.

Normally ice helps my neck, but it is just too dang cold to be applying ice and plus I can't stand the cold washcloth or bag of ice touching me. Heat makes it worse (it feels good when I have the heating pad on, but afterward it hurts like the dickens). I just hate the cold weather. Still, usually the cold weather reduces my pain so why is my stupid neck getting worse now?

Oh, I just am so unhappy right now. I think I'm gonna skip hanging out with my awful family on Thursday. I just can't deal with their negativity. But even if I take that day off to rest I am still really stressed about work & looking for a real job & trying to get everything organized and together and so on. Part of me just wants to crawl under the covers & rest. But I know that will make my back weak & then it will be in pain too.

Other than heat or ice or prescription cremes, does anyone have any ideas about how to strengthen my neck muscles or get them to relax or stop hurting so much or whatever? I have a soft collar but I can't stand to wear it right now b/c I can't have anything touching my neck. I just want to cry. What do it need to do to get this pain to go away? cry

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/23/2010 6:22 PM (GMT -6)   
Frances, you might try some of the PT exercises to stretch the muscles, but from what you describe, it sounds like you have surface pain, so I'm not sure that will help. I basically lower my chin down as far as I can to my chest and it helps some.

I also have an exercise to stretch the upper back muscles tied to the neck. That would be to find a pole of some type or a tall bed post and take hold of it and pull with your body. You will feel the pulling of the muscles across your upper back and across your shoulder blades.

I hope you get to feeling better, as it sounds like your having a very hard time of it.

SE wink

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16796
   Posted 11/23/2010 6:44 PM (GMT -6)   
Frances sorry to hear you are doing so bad right now. I think you have probably tried everything that most would do if they were in your shoes. Rotten insurance so that means having a cervical RF is out of question. By chance are you using moist heat, I find it works much better than dry heat. Do you have a good muscle relaxer to take? If not perhaps your pain mgt dr can call you in one. I am with you on the cold, we have dipped into the 40's and some 50's and it was awful what that temp change did to my body. Somehow we are back into the 70's and it helps.

Hope you can get some relief soon. Take care.
Moderator Chronic Pain Forum

BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 11/23/2010 7:34 PM (GMT -6)   
I don't have suggestions on relieving pain b/c if I did I wouldn't be here--just wanted to say I hear you. As for Thursday, even w/o a chronic neck condition that day usually gives a lot of people a pain in the neck, so I say, do what you want on that day and don't feel guilty at all (I'm just assuming you may feel guilt b/c most of us have been programed for this emotional early on by well intentioned relatives, but unfair none the less).

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 11/23/2010 7:48 PM (GMT -6)   
hey there, i think soma helps me in the severe times. zanaflex relaxes muscles very well but, it causes dizziness pretty badly. baclofen may be a real good option, it works on the GABA1 receptor like benzo's and soma. when the nausea happens 25-50mg of hydroxyzine pamoate or promethazine can help if it's not to bad and they can help potentate pain meds. i was stuck where your at until i started lyrica. i can't explain it but it seemed to turn off my brain telling my body to flare. probably neurontin could do the same thing. good luck, i hope you feel better.
L4,L5,S1 bilateral Laminectomies, Foraminotomies 2002
L4-S1 PLIF with instumentation 2008,

current Rx: morphine sulfate ER 10OMg q8 , roxicodone 30-60mg prn,vistaril50mg prn nausea, Lyrica 150mg 2x,Adderall 20mgs 1x A.M. 10mg PM prn, Soma 350 mg 3X, Relafen 1000mg 1x, alprazolam o.5 mg, Supplements: CO-Q10 100mg, Vitamin D 2000IU, Fish-Oil1000mg EFA, B-Complex50 3x/day, GABA 750mg,

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 11/23/2010 8:33 PM (GMT -6)   
Can you try using a topical cream or lotion (aspercream). the cold
weather sure hurt a lot, but put a call into your PM doctor to let them
know your pain is bad, maybe they then could prescribe a stronger muscle relaxer
(agreeing with susie/straydog on that). Could be all the stress of
being with your family on Thursday is adding to the pain, so maybe staying
away and taking the day for yourself, tell everyone your ill...
Sure hope your feeling better soon, with lower pain levels.
((((((((((((((((((((((((((((((((((((((Frances))))))))))))))))))))))))))))))))))))))))))))
Prayers and healing hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 11/24/2010 11:27 AM (GMT -6)   
France, I am sorry your pain is so bad. As the others have said, you might want to try some muscle relaxers from your doctor, if you're not already taking one. It could help enough to relax the neck so you could rest a bit.

Here's a silly question for you - you said your neck hurts if anything touches it at all - so I know that light touching hurts. What about a very firm touch on your neck? I had nerve pain that was agony if touched lightly, but a very firm touch (like a strong massage) actually helped. I'm not saying it will for you, but maybe worth a try.

Thinking of you and sending good thoughts!

hugs,
Pam
DX: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Diabetes (just diagnosed), Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Hard Start for IV's, Unable to vomit due to surgery.

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine + Vitamin D + Multi daily

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 11/26/2010 7:18 PM (GMT -6)   
Hello Frances,

Somehow I missed responding to your post too. I'm very sorry it took so long, but I hope you are feeling better by now.

I wish I had suggestions for the neck pain, but my pain is more in the lower back and I am blessed not to have to deal with the neck at this time. I can send healing prayers and huggs, though.

I hope you are feeling much better soon!
Retired Mom

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 11/26/2010 8:07 PM (GMT -6)   
Dear Frances
I am sorry for all your suffering. I just wanted to check in with you to see if you are feeling a bit better?

How was Thanksgiving?

Sending you healing vibes and big hugs.

TAke care
SUZANE

One day at a time!!

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2317
   Posted 11/29/2010 11:39 AM (GMT -6)   
thanks, guys. I took as many of your suggestions as possible. My neck bothering me a little less, though perhaps it's just relative b/c my low back is killing me. Wish I had insurance so I could go for another epidural. :( Hopefully I'll find permanent work soon.

blessings,
frances

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16796
   Posted 11/29/2010 2:11 PM (GMT -6)   
Frances glad you checked in I have been wondering how you were getting along. Hopefully things will start to settle down somewhat for you. My body seems to think it needs to be in high gear and I am thinking of going in to hibernation till winter is over.

Take care.
Moderator Chronic Pain Forum

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2317
   Posted 11/29/2010 3:32 PM (GMT -6)   
Susie,
Hibernation sounds good. Maybe until I get a job. Do you think that would work? ;)

I need to buy groceries & do laundry today since I have put them off really for WAY too long & now I don't have any choice. The last epidural I got just before my insurance ran out worked very well & for once I didn't get a spinal headache. yea. But it's been 5 weeks now & my poor little tailbone is coming out of it's drug-induced bliss.

I just keep trying to hang in there. At least the holidays are over. Now if I can just find a job, I should be good for long enough that the smart people in this world can find a way to get rid of my pain for good. *sigh*

catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 12/1/2010 10:43 AM (GMT -6)   
Frances-
I can't offer any other suggestions other than those mentioned but will say I prayed for you and hope that helped. You are such a positive member of this group, its awful that you have to endure this.
I send you healing hugs and can only hope things get better for you.
Catahoula
sick and tired of being sick and tired

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 12/1/2010 11:42 AM (GMT -6)   
Frances,

I am so sorry that you are going through such a tough time. It is hard to remember in the midst of pain that at times we must take it one moment at a time and build to a day at a time when necessary. I have been praying for you since you posted this and will keep praying for you everyday.

Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw


Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, 7 pelvic surgeries for pain, ovarian cysts, adhesions, and a kidney stone! Wait, future medial transcriptionist I must say ureteral calculus!

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2317
   Posted 12/2/2010 2:30 PM (GMT -6)   
Cat & MM,
Thank you both for your posts. I have been feeling quite a bit better yesterday & today. Course, Murphy's Law, my poor little sickly car broke down. I don't really know how I will manage in the frigid weather without a car, but if I get it fixed, there goes my meds money. Man alive, I'm so frustrated with everything. My unemployment is running out at the worst possible time. Kinda wish I would've not taken any temp work. Then I would still have 40 weeks of unemployment benefits remaining instead of only 10. Seems like fuzzy math to me, but that's how it all works. So... no job, no car, no money, no meds. Looks like it's gonna be a long, cold, dark, dark winter. :(

I really appreciate everyone's support. I'm especially grateful for the cheap-cheap fixes. They're not as good as seeing a doctor, but they're a WHOLE LOT BETTER than nothing. I hate to think about where I'd be without all the wonderful people here. **hugs**

peace,
frances

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 12/2/2010 4:45 PM (GMT -6)   
Frances,
It is difficult to understand why someone who worked as they could would get less benefits than someone who sits on their hiney's at home all day, but if life was fair cars would never break down, people would never disappoint us or be disappointed in us, and none of us would have chronic pain. Still, I completely understand how you feel. Our system can be ridiculous. I hope you get some help with your meds. Have you tried the medical assistance programs offered by your state? What about the medication assistance programs some pharmaceutical companies have?
So sorry about the car too. I will be praying it wont be long, cold, or dark for you.
soft hugs,
Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw


Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, 7 pelvic surgeries for pain, ovarian cysts, adhesions, and a kidney stone! Wait, future medial transcriptionist I must say ureteral calculus!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16796
   Posted 12/2/2010 4:53 PM (GMT -6)   
Frances do you get penalized on your unemployment even when its temp work through an agency? Oh, wow, I am floored. A friend of mine lost her job recently and did a 2 week stint thru a temp agency. They tried to cut off her unemployment totally, and its like she said, how do you get fired on a temp job. They said at unemployment that she quit the job, idiots. She finally argued enough and they reinstated her unemployment. Something will happen good here it just has to for you, you have had too many lemons handed your way no more lemonade for Frances. Hugs.
Moderator Chronic Pain Forum

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2317
   Posted 12/7/2010 2:19 PM (GMT -6)   
Susie,
Sorry I was so long to respond to you. I lost my internet until late yesterday. The good news is that the bill that was just passed yesterday gives me unemployment benefits through July (if needed) so at least that is a bit of a relief.

Gosh, I feel badly for your friend. Temp agencies can be such a scam. Once you start with one, you have to call them once a week every week to ask for work. The one way I found how to handle it -- from DES itself -- was that a temp can put whatever restrictions on what kind of job she wants with no penalty. She just needs to be consistent. So, if temp work is really not what your friend wants to do, she can say she will only accept jobs that are 40 hours per week, within 5 miles of her home, paying at least $35/hour, with a chance to go temp-to-perm. She can also say she wants to talk to the client before accepting a job [they may or may not let her do that, but by saying "temp-to-perm" that gives her a reason to say she wants to talk with them] and then use that time to verify everything except the pay. Then, get the pay in writing -- fax or email -- from the agency before accepting anything.
I learned this after getting cheated on a job -- told it would be full-time and then got there and it was 16 hours/week meaning slightly less income than UI and I had to pay for gas, parking and dry cleaning to boot. It was 2 hours of round-trip commute time 3x a week -- time when I couldn't look for permanent work, or even full-time temp work. What a waste. If I quit the assignment or the agency, I would lose UI for good. So now I know. Unless it's a really good deal, I don't bother with the stupid little temp jobs. They tell you whatever they can to rope you in (apparently my agency is one of the better ones -- some of them lie 100% of the time). Then they basically own you.

So, let your friend know that though she has to keep calling in until they cut her (which they never will unless she does something awful and gets fired) or she finds other work, she can set basically totally unreasonable demands on what kinds of assignments she'll take. Then, she just calls in once a week, keeping a record of her calls, and asks if they have a job that meets her criteria. Yeah, it's a bit sneaky & awful but apparently it's the only legal way to handle the lies and harmful behavior many agencies engage in. So sad.

Thanks again for everyone's posts. I'm feeling a bit better about at least knowing I have UI for several more months. I'm off to apply for more jobs now.

Hope you all are doing well & not in too much pain!
frances
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