It has been a very long week. I find myself sore and tender all over. Pain in general around both of my progressive spinal deformity curves is peaking up to 7 and 8 regularly in the evenings. The morning are much less pain. about a 4 to 5 overall, so very very good. My sleep is right at about 4hrs with only 5 to 10 waking peroids *sigh of relief* thank goodness! The 3 hours, waking 10+ times was wearing me down. I am glad to be back on track with my sleep.Oddly enough, even though I know there is "Moderate degeneration" in my cervical area, it doesn't hurt as much as it is just sore, tender.
My hips are doing rather well, all things considered. The deep ache is somewhat mild, but constant.
My vision... well, it isn't getting any better. I will talk with the optical surgeon after the holiday. It seems the degeneration of my eyes is progressing and some of the "warning signs" that he told me to watch for have begun to happen. Flashes, watery greyness, increase in amount of dots and unable to "focus" for very long. I am don't think I have developed another cataract in my left eye (Inherited Hypoparathyroidism). I already had lense removed in the right eye due to cataracts / replaced with synthetic lens. Both eyes have needed minor lazer procedures to break up "hardened protien build-up" in both eyes. I suppose that all of these things are par for the course when you have genetic problems causing cataracts / tissue is degenerating while the cells of the lenses are stripping.
Thankfully the ringing in my ears hasn't been so annoying. I have to wash so many dish towels and rags and glass dishes that it seem the dishwasher and clothing washer are running non stop. Very good for my ears because the "noise" makes the "ringing" more easily tolerated.
I have come to find that I have some very tender spots on my jaw and am a bit scared that I will need to visit the oral surgeon again. Not that he isn't a very gentle and caring soul. He is. Gifted no doubt. I just shudder at the thought of anything surgical needing to be done to my jaw *shiver*
Just as an after thought. More like a mental note: I cannot reach the switch to the garbage disposal. I have to put down what I am doing and walk around the dish washer to reach it. Also, I have to open a cabinet door and step upto open the windows. I can no longer reach the lock mechanism either. My oldest daughter climbs up and unlocks it for me. I should probably sneak over to one of the girls rooms and measure myself on one of their "Growing Tree". I am pretty sure I am getting shorter again. Now, if my memory would just cooperate and let me remember these small things without writing them on the dry erase board, that would be fantastic!
The candy making is going surprisingly well. I will have to up load the latest batch of pictures to my Facebook album. My little Bees love it when it is time for dipping candy canes. They race to the bathroom to put their hair up and pin it back / wash their little hands and arms. Put on their cute little aprons. Gosh, it just tickles me to no end! I lay long strips of parchment and dip the candy canes. Once I lay them on the parchment one or the other will come behind me with their little dish of sprinkles and hourdouvers spoon and sprinkle them. Goodness, my little Bumblebees just warm my heart to no end. After today, all that will be left is 4 batches C&C Truffles. 2 more batches of fudge. One more set of 130 candy canes. I can't believe I am nearly done making candy.
One other thing I just have to share. My daughters write a letter to Santa each year telling him "hello" and making a list of what they want for Christmas. This year their letters are too cute! I have to share them with you.
My oldest daughter wrote:
"...The best gift I ever wanted in my whole life is wings that can make me fly with controls and colored remote just for me."
My youngest daughter wrote:
"...I want a hoorsi sat che you."
(When I asked her what that was she told me, "Mom! It says a horsey statue. "
I don't know what I did to be so blessed, but goodness I am enjoying every minute of it!
One miracle I thought I should share. A few weeks ago I got a letter from the insurance company. They were disputing yet again another medical necessity. My husband had enough, our debt was too much! How could our insurance only cover 20 - 40% when we pay so much?!?!?! When we were promised November, December 2009 that "Everything would be taken care of. Do not worry.". So, he called HR. They were shocked. They said they would get back with us a.s.a.p.. Well, they did alright. It turns out there was extra payments made by his company to ensure I only paid a certain amount per year for my medical care and that I was to be allowed to continue seeing my "group of specialists" at my hospital chain due to my circumstances. I wasn't supposed to be charged any of the bills. That is 18,000+ this year still owed, credits for bills already paid and a few thousand from last year. You heard me right. I am no longer in medical debt. They were supposed to cover it all at 100% after I reach a certian amout due to an agreement from my husbands company and the insurer. The company has been paying out of their own pockets for my care all this time. All I could do was cry. I knew 2 years ago I signed many release of information to my husbands company and the insurance. All I was told at the time was "Don't worry about anything, they would take care of my needs. Realize the importance of my care continuing within the same medical group" I just never realized to what extent. SO! I need to gather all my bills. It will take quite a few days. I will hop on it first thing next week after the chocolates are made. I will try not go into hysterical laughter when/if my insurance company says they are "sorry". Also, I think I should make a large "sampler" platter of chocolates for the ladies in HR.
Well, it is time to get in the kitchen and cook. Today is the day we get to finally celebrate Thanksgiving
* And an exhausted hugg too*
TWO roads diverged in a yellow wood And sorry I could not travel both And be one traveler, long I stood Chronic Pain ModeratorMail