Worst pain flare so far....depression may be adding to it?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 11/30/2010 8:21 AM (GMT -6)   
Things haven't been going well and have gone down hill for months. I hope this is the bottom and it will be only uphill from now on. Still depressed, still going to a pastor with CP for counseling, but no doctor wants to prescribe antidepressants because of my allergies to SSRI's and my meds. Stupid. Do I have to bawl like a baby at every visit to have pain relief and help with the depression?
 
Speaking of help, I am in such pain all the time that I can't get out of bed. Sorry for the lack of posts. My hands and joints are so bad most days it is too much to type. I hang out under my electric blanket and watch movies or read if I can hold a book. The lack of desire to do anything and loss of all the things I used to enjoy hs gotten me in a bad place. I am in the hole and fighting to climb out, but not succeeding today.
 
I think that the sadness is adding to the pain flare. How can it not be? I see another pain doctor in early December and have to start all over again. Jumping through hoops is ridiculous and he is 2 hours away! Then off to a psychiatrist to get antidepressants. Another new doctor to begin all over again. Are 6 specialists enough or shall I add a few more?
 
Right now my home looks like Christmas, but it feels miles away. All I ever do is whine anymore.
 
Mindy

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 11/30/2010 9:50 AM (GMT -6)   
Hi Mindy,

I am so sorry you are suffering so much right now! Do you think the holiday season could be adding to your depression? I know it is mine!! I used to love the holidays and now I hate them! I am sure the depression is adding to your pain and visa versa! Have you had your vitamin D level checked? Since I found out mine was so low....I have been reading a lot about it and low vit D will add to your pain, to your depression and weight gain! Vitamin D also helps fight cancer, osteoarthritis and helps balance hormones. My rheumy said the level should be around 36-90 and mine was 9....VERY low! So I am taking a prescription mega-dose (50,000 units) twice a week, trying to get me in the normal range! I can't really tell if it is helping yet, but with everything I have read.....it will! Anyway, hun just know that your family here cares about you and you are in our thoughts!

Take care of you!

Hugs,
Beckey
Rheumatoid Arthritis, Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus

Medications - MS-Contin, Plaquenil, Cymbalta, Famotidine and currently Prednisone

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 11/30/2010 10:06 AM (GMT -6)   

 

   Dear Mindy,

     I am so glad you could stop by. I have often wondered how you are doing. I hate knowing you are in so much pain. Between the never ending high pain days, the weather, the depression and a doctor who wont hear your pleas for help... Who could blame you for feeling removed and sad?  I would feel the same way.

     I really hope this new pain doctor can help you. More so, I hope he truly listens to what you have to say and your experiences so far. It would be so nice if you could finally find a good pain management doctor. Do you have all your tests and records ready for the appointment? It might be a good idea to try to track all that stuff down so you don't get stuck starting at square one AND waiting on records to be sent over.

      I am so sorry that everything is so overwhelming right now. Whine?? No, not at all. In severe pain, needing help and overwhelmed .. Yes. NOT whining. *hugg* You are having a hard time right now and judging your self unfairly. You are unable to do the things that you want to do and the things you feel you need to do. It is always hard to admit that we don't have any control over our bodies. You have to stop being angry with yourself. It is taking every ounce of energy you have just to make it through the day. For now, that is all you can do.

     Have you ever tried a kindle? I have one and it is fantastic. My books are ridiculously cheap. I don't have to hold open heavy novels. The font can be changed easily and a nice perk form me is that it can read my book to me while I go about my daily chores.

     Is heat helping your hands at all? If so, perhaps a small electric heater on your bed side table would warm them up enough to work on a craft, hobby, or journal? On a tray table? It must be very hard for you to sit idle. You are usually so busy and about doing things. Goodness, I hope the two new doctors will help!

     I hope you can at least find a few moment to rest today. True rest. Know you are in my family's prayers tonight. Stay strong!

*warm hugg*
     dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 11/30/2010 1:32 PM (GMT -6)   
Hello Mindy,

I'm so sorry you are in so much pain right now. It does indeed sound like a flare to me and boy do I understand those. I don't know your medications or all of you issues and honestly probably wouldn't have knowledge of many of them anyway, but I do have a great deal of experience with pain flares, depression, anxiety, and allergy to SSRI's and most NSAIDS. I have tons of other allergies too and I can understand the issue with the medication.

When I was the MOST depressed ever, and the MOST anxious ever, my psych gave me Xanax (controlled release) and it did wonders for me. I have always used the instant release med to help with anxiety and with muscle spasms (also an allergy to most muscle relaxers). There was a BIG difference in the way I was able to cope when they put me on the controlled release version. Also, I take Ultracet (Tramadol/Tylonal combination) and it helps greatly with the fibro. I know it is a mild med for most, but again...it works. It's even more effective now that they give me dilaudid to help with the real pain. The combination of these meds and the mega doses of vitamin D (already mentioned) made a great deal of difference in the way I felt. My med level is high to people without CP, but honestly very low for real CP patients. They also gave me ambien (not controlled release because it didn't work very well for me) and I have to take twice the normal dose (with Dr instructions of course). That helps some with the sleep.

I hope you will find the solution to your problems right now and that you can find help. All of us need someone to lean on now and again and I would seriously be taking antidepressants if I could, but I can't so I make do with what works best.

All my best to you! I hope you feel better soon!
Retired Mom

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 11/30/2010 1:53 PM (GMT -6)   
Thank you both for responding. Everyone here is always so supportive.
 
Dani, I have all my records ready and waiting to go. I learned the first time since I worked in Radiology for years to keep the originals and give copies to offices because you never know when you won't be able to have the most important things available. I am tired of allergies and doctors. I have an electric blanket and small space heater with me at all times, and my fiance talked about a Kindle for Christmas. Honestly I told him that it is too expensive to spend on me, but I am beginning to change my mind. We have spent so much money on "adaptive equipment" that its staggering. For a single mom used to spending everything on her boys it is hard to swallow.
 
Retired Mom, I have so many allergies to NSAIDS, SSRI's, tape, Percocet, and some additives, binding agents and preservatives in shots. I too have had Ultracet, and then just plain tramadol, and am getting rather tolerant of it, and on a fentanyl patch with tramadol and Vicodin for breakthrough pain. Some days it just doesn't touch it. Then they tell me I have RA, then its osteoarthritis, then RA, so no one knows how to treat me. At times it seems like they dont want to, so why keep going back for them to bounce me around like a rubber ball?
 
Top it off that when I came back from counseling today, I found my kitty Miss bleeding on my bed with part of her intestines hanging out. I rushed her to the closest veterinarian office that had a vet on staff today and she made it through surgery, but isnt safe yet. We must wait 48 hours to see if she will heal, live and to find out what caused it. I shouldnt drive I know, but to see one of my babies bloody and hurting I had to take her. I couldnt wait to find a ride!

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 11/30/2010 4:13 PM (GMT -6)   
   Hey Mindy , I'm sorry your having so much difficulty right now , thats really tough and I applaud your courage and perseverence in dealing with a difficult situation . Hang in there please , things will work out , your doing all you can it sounds like and thats all you can do right now , that and try to stay positive and post here for support . Many prayers and good vibes heading your way from NYC my friend  ! Thinking of you , Mikel

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 11/30/2010 4:44 PM (GMT -6)   
Honestly Mindy the only thing that works for flares like you're describing is IV cortisone in massive doses. They call them pulses and generally give you 3 grams over a few days. It really works, when I was so bad earlier this year like you, incapable of getting out of bed or holding anything, they hospitalised me and gave me, 3 grams of medrol or whatever its called ,basically IV Prednisone, as well as oxycontin and endone to get the pain undercontrol. I was in for 8 days but walked out with my life back, the prednisone in those sort of doses just settles down all your inflammation its a miracle drug for arthritis.
I can't believe you haven't been given any??? Even orally you could take 70mg per day and feel a difference I'm sure.
Some doctors seem so off the beam at times.
No wonder you're depressed! When a flare is that out of control its affecting all your organs too. You feel so sick with it. You poor baby and to find your kitten so injured too, how horrendous.
I really hope you find help soon, maybe you can suggest prednisone and see what they say?
I hope your kitty pulls through, golitho

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 11/30/2010 7:00 PM (GMT -6)   
Mindy,

I am hoping that I did not offend you in some way. I hope that you just missed my response. No big deal not to be recognized personally in a response but you also said thank you 2 for responding! I was ahead of both of them. Anyway, just trying to make sure you missed my reply and that I did not offend you and was ignored on purpose.

I am very sorry to hear about your kitty! Also, I agree with golitho! Prednisone saved me!!

Take care of you!
Rheumatoid Arthritis, Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus

Medications - MS-Contin, Plaquenil, Cymbalta, Famotidine and currently Prednisone

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/30/2010 7:27 PM (GMT -6)   
So sorry for your issues. I have drug allergies too and it gets very challenging trying to find what you can take.
I hope your kitty feels better soon.
Joy

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 11/30/2010 10:21 PM (GMT -6)   
Antbuggey,
 
I am so sorry I flaked on you! I thought I responded to your post before I took the kitty to the vet, but obviously did not hit the send button! I am sorry and I hope that I havent offended you! You have not offended me in any way.
 
I know someone had mentioned Vitamin D deficiency in another post months back (probably you now that I think of it) and I asked both my PCP and rheumatologist who are batting me back and forth for a blood test for Vitamin D and a recheck of my sed rate on my last visits. The rheumatologist refuses to do any more labs and thinks I have osteoarthritis since I am not a text book case. He is the only rheumy in my area that accepts my insurance, and since I was diagnosed in my teens, which is over 15 years ago, he feels that I was misdiagnosed! He is young, and it seems as though he is only interested in collecting a paycheck at this point. He wont prescribe anything, prednisone, injections, nothing. He sends me back to my PCP who is afraid to prescribe RA medications because of her lack of knowledge on it and my allergies and reactions to medications. I have a long list.....So I am stuck. I am trying to get the insurance to approve me seeing an out of network doc at an in network rate so that I can get effective treatment. My philosphy at this point is to treat me for RA since most signs point to that and osteoarthritis treatments do nothing, and if it works then hey I have a diagnosis!
 
Golitho, Joy and Mikel, thank you all for thinking of me and posting! Golitho, I have no clue why no one has tried cortisone in pulses or even prednisone, but I have decided I am going to begin suggesting what treatments I want to try instead of being a beach ball! This is getting ridiculous. The doctor's don't explain that the fatigue and constant feeling of being sick comes along with RA, just that my depression causes that....But I had that way before the depression resurfaced. I will be taking an advocate with me to ALL my appointments now as well.
 
MY poor kitty....Miss is her name. She has prolapsed intestines and rectum and the next 48 hours are critical for her. The vet said she may have IBS (a diagnosis we share) and an allergy to fish and seafood, which would cause all this inflammation and prolapse. I cant believe I drove her to the vet, and just thank God it is close to our home. She is 6, so not a young kitty, but my youngest cat. The vet says there is no telling why it happens without a doubt, but if the surgery to hold it in place doesn't work then she will be put down.  She amazes me though. The whole time she must have been in tremendous pain and she purred when I pet her and cried only when I left. The vet says she is resting comfortably and showed no signs of severe pain, just the bleeding and obvious prolapse. The family is worried and none of the pets are acting normal yet. Part of me feels silly to pray for my cat, but she is like one of my kids....all our furry family members are. Thank you all for your good thoughts and prayers.

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 12/1/2010 6:54 AM (GMT -6)   
You are never silly for praying for someone you love. This cat is a part of your family and has given you love as you have given her love. She deserves prayer too.

I will not pretend that I am a cat person....I'm more of a dog person, but love is love and should not be ignored. You should see the insane things we are doing right now to keep my daughter's chocolate lab from getting in the concrete or eating the builders or their materials while they are putting this addition on my house. It is for my mother....just incase....

Anyway, Grace (or rather Hudini (sp?) can slip any halter ever made and a pen is a joke. There was a major blow out yesterday because she escaped again and was running around when my step-father got here. He freaks out when she's loose, but honestly she loves the builders and only didn't like the paint crew from the other week....they did not appear to be good people anyway, so I think she was right. As I mentioned, Grace is my daughter's dog, but I love her too because of what she gives to our family and I refuse to treat her unfairly....even though she STINKS!!!! and has a bladder control problem. I just say we have something in common and can't blame her for it.

Your kitten loves you. You have done all you can and you must leave the rest to the vet and to your God. I assume you believe or you would not be praying. You were having such a painful day, but stopped immediately doing everything to take this poor animal in to the vet for help. That my friend makes you a wonderful person in my book.
Retired Mom

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 12/1/2010 1:09 PM (GMT -6)   
Mindy,

Not a problem....I have thought I submitted something when I did not! I just wanted to make sure I had not upset you! I had a huge problem with my first rheumy, also! He had all the test results and I reported what was happening and he touched 3 of my fingers and told me he could not "feel" RA in them! He put me on steroids while he went on vacation and told me to call when I went into a flare and they would see me immediately! Now.... when I am in a flare....I can hardly get out of bed, let alone drive to a doctor and his office was 3 1/2 hours away! So a month and a half later when I feel like I am dying....I call and explain that he wanted to see me right away and I am told that the soonest he can see me is 3 weeks! I was so upset and found a new rheumy who was a lot closer and he is wonderful! I am sorry you are having problems with the doctors, too! Having been there, I know how terrible it is!!!

Hang in there! Sending healing thoughts your way!

Hugs,
Beckey
Rheumatoid Arthritis, Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus

Medications - MS-Contin, Plaquenil, Cymbalta, Famotidine and currently Prednisone

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 12/1/2010 5:10 PM (GMT -6)   
Hi Mindy, oh your poor kitty, must be so awful for you. I really hope she pulls through.
I know from my rheumy that if you respond to prednisone its a good indication that it is an inflammatory based problem. Maybe you could suggest a 3 day try of prednisolone, like 50mg per day, if it brings you some relief, surely they'll realise it must be RA or even could be RA???
Could you try an ER? I know when I was really bad my rheumy told me I could have gone to an ER. They would also have put me on Prednisone or prednisolone for the inflammation and pain. Or arn't you covered for an ER either?
I hate to think of you in such pain when it could be so easily treated if it is RA! A 3 day medrol pack surely couldn't hurt?
What power these doctors have over our lives, how dare they leave you in such a state. It makes me furious.
Sorry I'm ranting now... I'm thinking of you both, golitho
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, June 24, 2018 5:22 AM (GMT -6)
There are a total of 2,974,682 posts in 326,199 threads.
View Active Threads


Who's Online
This forum has 161297 registered members. Please welcome our newest member, Fastfreddie.
283 Guest(s), 3 Registered Member(s) are currently online.  Details
Resurrection, JNF, Noggin2u2