Susie - Pain Pump Question

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Retired Mom
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   Posted 12/2/2010 1:17 AM (GMT -6)   
I was just reading in Chart's thread and did not want to hyjack, but I saw where you mentioned you could not use an electric blanket with the dilaudid in the pain pump.  I am considering asking about the pump on my next visit to the PM on the 9th (for RFA) and dilaudid is one of the meds I already take.  It helps me greatly and I don't want to risk loosing something that works.  I don't do so well with most of the others.  Anyway, I NEED my warming blankets and throws to keep joint pain at bay (especially at night) and had never heard about the problem with the dilaudid in pump form being a problem.
 
Could you please give me more info on it?
 
 
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straydog
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   Posted 12/2/2010 4:12 PM (GMT -6)   
RM, as you know many of the pain meds we take can cause us to sweat as a side effect of the medication. Dilaudid is my main pain medication in my pump and it makes me sweat, not perspire, lol, I mean sweat. So, because of this I really have to work at keeping myself on the cool side. I would drench my bed if I were to put an electric blanket on the bed. I also did this when I used Fentanyl patches. If you are on oral Dilaudid and having no problems with sweating then I would think you would be ok. Its just one of those things that happens. I will put up with it because it does help my pain so much. I am not brave enough to want to try something different in my pump, why rock the boat. Seriously, if you are not having this side affect with oral Dilaudid, I think you should be fine. By the way, did I put in that thread that Codman has a pump that runs on gas and you never have to have it replaced, which means no more surgeries to replace a pump. My PM dr has already said my next one will be a Codman and I am so excited about that. Medtronics pumps runs on batteries that last around 7 years then everything has to come out and be replaced. Now, you know why I am excited. I have COPD and I am on oxygen 24/7 and putting me under is risky business.

If you have any questions about a pump feel free to ask and my email is listed here too. I tend to get pretty lengthy talking about pump and really prefer emailing when talking one on one. Take care and good luck with your dr.
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Retired Mom
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   Posted 12/2/2010 4:49 PM (GMT -6)   
Thank you so much for the info! I do remember you posting about the pump and that you were excited about changing, but I honestly know so little about them that I didn't pick up on everything. Sorry for not looking closer:(

I also appreciate the info on the Dilaudid. I am a person who sweats too and like you mentioned....it's not perspiring, it's sweating! Yuck! Thank goodness for DO. Anyway I didn't realize that Dilaudid could make it worse. Knowing that kind of explains a few things. I don't want to change though because I don't like to "rock the boat" with meds either. It takes too long to get back on track,

Thanks again for all the info! I really appreciate it!
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straydog
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   Posted 12/2/2010 5:00 PM (GMT -6)   
RM I have to ask this question because I know I have a weird body, lol. But, do you sweat really bad for a while after taking a shower? I take a rather tepid shower, hot water has always ran my BP up, but the sweating I do after showering is almost like what was the point of the shower. Especially, my head, my head sweats terrible after a shower. I have short hair and it is a real trick trying to blow it dry.

Go to Medtronics.com they have a really good website on pumps and you can learn a lot there about them. They have a list of medical conditions listed for people that may be needing a pump in the future. Honestly, now that I have an excellent PM dr, I would take nothing for my pump, and I will do it again when its time to be replaced. But, that is the key to a pump, you must have a dr that knows all about them and knows all about the different medications that can be used in the pump. A dr can either make your pump a success or a failure.
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Retired Mom
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   Posted 12/2/2010 7:22 PM (GMT -6)   
Ok, now that is strange because I do sweat really bad after a shower. I have to keep a fan in the bathroom blowing directly on me to even stand to dry my hair (which is also very short). My scalp starts to itch horribly from my own sweat, especially if I don't wash it every day or even twice a day. The dehumidifier helps a great deal!!!

It's quite embarassing when I go anywhere with my family or friends because they are wearing long coats and I'm still sweating. I honestly don't know why. It's been that way as long as I can remember.

Also, thanks for the info on the Medtronics site. I'm getting another RFA on the 9th and am going to have to discuss my meds then. We may have to discuss the pump at the same time.
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straydog
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   Posted 12/2/2010 9:34 PM (GMT -6)   
I hate to hear you have the wet head too after the shower. I thought I was the only one that did that and it is just awful trying to dry your hair with sweat dripping. I had not thought of putting a fan in the bathroom but you can bet I will from now on. I know all about being embarrassed to go out when it is cold and everyone is bundled up and you stand there with several paper towels folded wiping sweat that is running down you face from a wet head. Seriously, my dr & I have talked about this many times and its the Dilaudid. But, I will put up with being drippy for the pain relief I can get. Strange what some of these meds can do to us.

Good luck with the RFA hope it brings relief.
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Retired Mom
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   Posted 12/3/2010 7:56 PM (GMT -6)   
If you don't mind, would you tell me the strength of dilaudid you are taking and the schedule? I am on 2 mg and I take one about 10:00 am and then then another about 1:00 pm. The other two are between about 2:00, 3:00, 4:00, or 5:00. I don't think my strength is near high enough or I wouldn't need so many in the afternoon and I really want to discuss it with my PM the day of the RFA. They have cancelled my regular three month apt because of this procedure and I won't be actually seeing the PM until another three months. In between, I pick up my refill scripts. I'm also on the Ultracet for pain relief too. I use two in the am as soon as I wake, then another at lunch and the last one some time in the afternoon. I don't want to add any more of these because of the Tylonol in them. Of course, I'm taking a host of other things for other issues, but the dilaudid works in 15 minutes to give some relief and the Ultracet takes an hour.

I'm kind of concerned about approaching him again for an increase. My last increase was not in strength, but to add one additional dilaudid a day and that was done at my last RFA in December a year ago. I have tried the Opana and CANNOT take it. It was wonderful for the first six hours and then seemed to "dump" the balance of the med into my body. I thought I was going to OD on it and only took it that one day. I also don't do well on CR or XR meds due to the release mechanisms. I'm a chicken about changing kinds of meds because I have so many med reactions.

On the note of the sweating.....I did this even before the Dilaudid, so I can't attribute it to that, but an answer would be nice. With the fan, the best kind for me has been a circular fan that pushes the air around at about body height (while sitting). I have a very good one that I have on a small step stool in the vanity room beside my chair. I don't stand to do make-up or hair anymore, so the 12" or 14" one is pretty good. Without it I would sweat off any make-up before I ever even got it on my face. There's nothing like wet make-up brushes....yuck!!!!
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antbuggey
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   Posted 12/3/2010 9:31 PM (GMT -6)   
OMG.....both of you.....I am sooooo glad you both confessed to the sweathead!!! LOL I sweat so much on my head and my face around my hairline....it is embarrassing! And after a shower it is BBBBAAAADDD! It feel like, until my hair is try....I will just keep sweating! It is weird! Anyway, just wanted to say thanks for letting me know I am just not a gross sweaty pig!

Hugs,
Beckey
Rheumatoid Arthritis, Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus

Medications - MS-Contin, Plaquenil, Cymbalta, Famotidine and currently Prednisone

straydog
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   Posted 12/3/2010 9:42 PM (GMT -6)   
RM you are on a very, very low dose. I have 8mg for BT pain to take orally every 6 hours. My prior PM dr had me on 2mg and I filled only one script and never bothered getting anymore from him. I got better relief off of Tylenol than I did the 2mg of Dilaudid. My current PM dr agreed with me when I told her this too. She laughed and said I was on nothing for BT pain. She did not know it it came in such a low dose, she thought 4mg was the lowest. But, please keep in mind I have Dilaudid in my pump and its in the concentrated form meaning much stronger than a tablet.

Yes, I have always had problems with the heat waves after being spayed and taken off of HRT's by my dr. My cardiologist chewed on me for three years before I finally gave in and gave them up. But, the Dilaudid & Fentanyl really does a number on me in that dept., lol.

Becky, you are not alone after all, lol. Its terrible but hey I will put up with it before changing medications.
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