Some Happy News

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Retired Mom
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Date Joined Feb 2010
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   Posted 12/2/2010 1:45 AM (GMT -6)   
I wanted to let you guys know that I received a letter from the local SS office yesterday (yes, I have yet to receive the one from ODAR ((ALJ Hearing Decision)).   It told me to contact SS immediately regarding my minor child's SS and gave me a direct name to speak with....strange.  I gave the lady a call and the receptionist told me that my ODAR letter was mailed on the 24th and so this office mailed this letter on the 30th.  The Holidays must have screwed up the mail delivery since they were coming from two different cities.
Anyway, I was told by the receptionist that my ALJ decision letter states that I was fully granted SSD from the exact date that I injured my back in March of 2009.  There is a 5 month wait and then the back pay starts from there.  She even started crying when she was telling me because it was so great to be able to give somebody good news.  What a sweet and wonderful person!  So then she sends my call to the person identified in the letter and it turns out that my daughter will receive 50% additional SSD because of my award until she reaches the age of 18.....she's just turned 11.  Also, Medicare kicks in after two years of SSD benefits, so that will help too when it comes to all these horrible medical bills.  I'll still keep my husband's medical coverage, but it will be great to have lower co-pays for meds and lower out of pocket expenses for a while. 
What a wonderful Christmas present this is for my family!
Thank each of you who kept us in your prayers and all of the support and kindness you have given.  You guys mean so much to me!
I also wanted to let you guys know that it can happen if you just keep fighting (and get a good attorney).  Mine earned her money IMHO.
HUGGS GUYS!!!!!!!!!! :-)
Retired Mom

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Date Joined Jan 2010
Total Posts : 197
   Posted 12/2/2010 2:51 AM (GMT -6)   
That is great news! So happy for you!
Fibromyalgia, High BP, Migraines, anxiety, Non Celiac Gluten Intolerant
Current medications: Topamax, Maxalt, Lotrel, Wellbutrin

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   Posted 12/2/2010 6:51 AM (GMT -6)   
    Oh RM , Thats the best news !!! You must be so very happy and releived ! Congrats big time to you and your daughter !! Its so great to see someone who deserves benefits get them , you persevered and you made it happen , thats awesome !!! Mikel

Monty's Mom
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   Posted 12/2/2010 7:06 AM (GMT -6)   
That is wonderful news! Gonna do a gentle happy dance! You must be so relieved! 
Sending happy hugs and prayers of thanks for you!

Veteran Member

Date Joined Sep 2009
Total Posts : 663
   Posted 12/2/2010 7:20 AM (GMT -6)   
I am so happy to hear you got great news! It's about time. I am still waiting to receive my first denial from SSDI so that I can start the appeals process. What a nightmare!

Congrats once again, you deserved this. Take care.
Gentle Hugs,

Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Percocet, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

Screaming Eagle
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   Posted 12/2/2010 8:58 AM (GMT -6)   
     Retiredmom! That is music to my ears! smilewinkgrin   I just love it when one of the members here get approved for SSD.
       SE wink

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Date Joined Jan 2010
Total Posts : 1097
   Posted 12/2/2010 11:04 AM (GMT -6)   
RM, I am so, so happy for you! What a relief that must be, to finally have the financial burden eased, so you're not stressing about the future. Thank you for sharing your good news!

DX: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Diabetes (just diagnosed), Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Hard Start for IV's, Unable to vomit due to surgery.

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine + Vitamin D + Multi daily

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Date Joined May 2010
Total Posts : 594
   Posted 12/2/2010 11:51 AM (GMT -6)   
Retiredmom, I am so happy for you! What a relief and nice surprise!

Rheumatoid Arthritis, Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus

Medications - MS-Contin, Plaquenil, Cymbalta, Famotidine and currently Prednisone

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Date Joined Feb 2003
Total Posts : 16773
   Posted 12/2/2010 3:43 PM (GMT -6)   
RM that is awesome news and I am sure you want to pinch yourself to make sure its really real. Yes, your daughter is also entitled to monetary benefits as a result of you being disabled. I never received an award letter, I just had quite a bit of money show up in my bank acct one day. I just knew the bank had messed up so I called them to tell them to take the money out of my acct that they had deposited someone else money in my acct. The lady said they had not made a mistake that the money belonged to me. I argued with her that she was wrong and she had no answer for me other than that. I waited almost another month thinking eventually the bank would catch it and nothing happened. More money got put in my acct again. By this time I am a complete nervous wreck because I have no idea where this money is coming from and I am not about to spend a penny of it. I called my sister finally and told her about the mess and she immediately said you have been approved for SSD. I said no, I have not received a letter from them however, it is a little past the time I should hear something. By this time I am so paranoid I am afraid to call SSD because I am afraid of hearing I was denied. Finally, I called SSD and yes I had been approved per the lady, I tell her it can't be because I never received an award letter. I asked her to send me a copy of the letter and she said all they could furnish me was a letter stating I was approved on such and such date. It was not until after I got that letter that I would touch that money, lol.

If you are currently insured under your husband's health insurance and he is actively employed, the coverage should stay in effect until you are eligible for Medicare. I was covered under my husbands insurance until Medicare kicked in then I had to switch over to Medicare as a primary and his insurance is my secondary. If you have a script card thru his insurance you may want to consider keeping his insurance as a secondary once you are eligible for Medicare. The reason why, is alot of our meds are not covered under those other plans. Even paying $530.00 for my coverage with that script card is much cheaper than what my meds run a month. My Humira is $1,000 a month just for it. But, you have plenty of time to work thru and make those decisions and stuff is changing all the time.

Again, so glad it worked out for you.
Moderator Chronic Pain Forum

Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 12/2/2010 7:38 PM (GMT -6)   
Thank you guys so much!!!!!! You all mean so much to me!!!

I still didn't receive my awards letter again today so my OCPD self called my local SS office again (the one they had me call yesterday) and they still say exactly the same thing. They are going to send me a copy of the approval letter for my records. I'm still not in the system for pay status, but that will take time and I'm just happy to know that it is going to work out!!! They local SS office was SO nice!

I so hope some of our other members are able to receive benefits too. There has never been a more deserving group of people.

Straydog, I appreciate the info on the insurance. I will be staying with my husband's insurance and will do like you suggested as soon as the medicare kicks in. In our state (he works for the state), we are required to report medicare eligibility as soon as it happens or we loose all benefits. I'll definitely be on top of that!

Again, all of you guys are like family and I really appreciate each and every one of you!!!
Retired Mom

Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 12/3/2010 12:20 AM (GMT -6)   
   Dear RM,
    Gosh I am so sorry I am late to respond to you! Ive been swamped. But, goodness, it was so nice to hear some good news. You have needed this for a long time now! I know 5 months is a long time to wait, but just knowing you will finally get some much needed help really brightens my evening!
*warm hugg*

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator

Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 12/3/2010 6:53 AM (GMT -6)   
Thank you Dani! I am so glad to be able to post something positive for a change.

I did want to correct something because reading you post made me go back and read mine again. The 5 months is from the date of onset of disability (such as 3-23-2009), so the backpay begins 5 months after that day (somewhere in 8/2009). It's just something they calculate that I don't understand too well, but I'm just happy to get it. I "should" go into pay status with in the next few weeks and receive some funds within two months (according to someone at my local ss office). I can hold on that long if I have to.

Thank you all again so much for everything.....all the support, all the information, and all the encouragement were what kept me going (without driving my hubby insane). I appreciate you all!
Retired Mom

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Date Joined Nov 2007
Total Posts : 6795
   Posted 12/5/2010 8:05 PM (GMT -6)   
First of all, BIG congrats to you! I sure know the relief that comes with that approval.

Since I'm just a few steps ahead of you in the process, I will say that I got my initial letter of approval by directly going to my local SSD office. I found out I was approved on the phone - like you - only I was approved for SSI (a different, income based program) because I applied for that at the same time I applied for SSD. The SSI came in first, and I got a call from the SSI caseworker asking me for some info. so she could "get me some money" and I had to ask her if that meant I was approved for SSD and she said yes, but my payment wouldn't start until Dec., so they gave me some SSI until then. (The SSI payments are deducted from your back SSD award.)

I had wanted a copy of the medical records and results of my two IME's, so I had to go my local SSD office to get those (even though I requested them on a release form), and it was that trip to the SSD office that got me a copy of my initial determination letter. She printed it out for me. Some time later I got one in the mail, with other info. like a brochure, etc. Then it seemed every day I was getting something from SSD!

I just got my first SSD automatic deposit and I found that out by calling and checking my back account. I ALSO found out the back award had been deposited on the same day, but I still have not received a notice of much that would be, etc. Like straydog, it just appeared in my account and I want to get it out this week so it's not subject to any creditors or hackers getting it! I also had set up my SSD online account as instructed (I got the instructions in the mail) and when I checked Friday these deposits weren't listed online so best I can tell you is keep checking your bank account if you have automatic deposit set up with them!

If you're not too far from your local SSD office, you could call and see if they could print you out your notice, if you don't receive something in the near future. I've got to make some copies of it because I know I'll need it for other things. I can actually get a partial refund of my property taxes if I apply before the end of the year. So keep an eye out for things you may be eligible for now that you're disabled under SSD rules. I hate to use that word, but sometimes it's a necessary evil.

What a great holiday present for us both - and your daughter!


Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 12/5/2010 8:43 PM (GMT -6)   
I'm so happy for you being able to receive benefits too PaLady. I've worried about you a great deal since you have been gone. It's so nice to see your posts again.

You are right about the Christmas present being so wonderful for my family. I don't mention my husband as much as my daughter, but I'm happy for him too...especially since he has supported me so much during this process.

I'm really glad you didn't have to hire an attorney and go through the hearing process. It was really stresful, but very worth it in the end. I will certainly keep checking that account. I really need that money to drop in soon because what I have is dwindling so quickly right now! I have to go to a Dr apt tomorrow and a friend is going with me. It's an hour drive there and we are going to try to get in a little shopping for Christmas while we can. She is CP too and also receives SSD, so she understands the situation. I hope the deposit will be made soon so that I won't find myself in a real financial bind.

None the less, I realy appreciate everyone's well wishes and congratulations. For those who haven't gotten there yet, please don't give up!!! It is so worth it when it works out! It also feels good to know that I was honest every step of the way.

All my best!
Retired Mom

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Date Joined Aug 2006
Total Posts : 9664
   Posted 12/5/2010 10:27 PM (GMT -6)   
I'm so happy for you! CONGRATS...
So glad something good came your ways, many more blessing to you too....
Lots of healing Hugz
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


Regular Member

Date Joined Nov 2010
Total Posts : 85
   Posted 12/6/2010 9:56 AM (GMT -6)   
That's awesome News, retiredmom!!
back on lyrica and also on imovane. Im seeing my family doctor once a week for the next 4 weeks.
-Bone scan done.
-PM doctor Dec 8th. Results from bone scan
-waiting on cervical facet injections

Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 12/6/2010 8:15 PM (GMT -6)   
Dear RetiredMom and PALady,

Congratulations to you both!! I'm so glad for you!! It's really nice to hear good news!

I should say that I haven't applied yet for SSDI because I'm still working part-time, although I can't go in to the office anymore. I work from home over the Internet.

BUT I've been approved for the part-time CA state disability, and since I paid for long-term disability insurance, I've recently found out that I was approved by the LTD company as well, so when the state money runs out, I will have the LTD. So I will have to apply for SSDI eventually, but I think I will have help from my LTD company.

Congrats again!!!! You go, girls!!
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Malarone, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 12/7/2010 4:57 AM (GMT -6)   
Thank you JoAnn (and everyone else!!!!)

JoAnn, I don't quite know your specific circumstances, but you may want to go ahead and check in to this asap. There is something about having to file within so many quarters of working at a job that pays SS taxes. I won't pretend to be a specialist, because I'm certainly not! I'm just blessed to have received these benefits.
Retired Mom

White Beard
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Date Joined Feb 2009
Total Posts : 3702
   Posted 12/7/2010 11:58 AM (GMT -6)   
I also want to give you my congratulations, (even if it is a bit late!) I am sure  this takes a big load off of your mind and will make your Christmas a heck of allot  nicer, just knowing it is approved! I wish you well and I am extremely happy for you!
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Forum Moderator

Date Joined Feb 2003
Total Posts : 16773
   Posted 12/7/2010 9:48 PM (GMT -6)   
RM one thing I did forget to tell you, is once I was approved for SSD, my daughter told me to contact the appraisal district as I would qualify for an exemption in my property taxes. They mailed me a form to complete and I furnished them with a copy of the generic letter SS mailed me showing I was disabled. It did take a little off of my property taxes, not much but it was worth doing. We have high property taxes here so anything was better than nothing.

Keep on the look out for your money to show up in your checking acct.
Moderator Chronic Pain Forum

Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 12/8/2010 4:13 AM (GMT -6)   
Woah, I will definitely be looking up info on the reduction of property taxes. I JUST paid these for the year and it leaves us too broke to imagine.

Great information everybody!

And......Thank you!
Retired Mom
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