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undetermined_dimension
Regular Member


Date Joined Dec 2010
Total Posts : 38
   Posted 12/3/2010 2:18 AM (GMT -6)   
Hi. I found your site today and by a miracle there was a chat this eve that I attended. I really needed to hear from some other people who were in the same boat that I am in right now.
 
I'll try to keep my story short and sweet but like all of you I've had a very hard road my whole life. I was born with no skin on my abdomin and all my organs falling out. I was wrapped in plastic wrap and flown to Denver Children's Hospital where they were still learning about my genetic deformity so they did the best they knew how and shoved it all back in all at once. Children now a days have fake skin put over and the organs are slowly reintroduced to the body and they have much better luck. Actually most of the children born the way that I was don't have near the number of problems I have so I got the short end of both sticks, lol. After many surgeries putting me back together and getting me working again I then suffered from low immunity getting phenomia 2 or 3 times a year bad enough to hospitalize me, had braces put on my legs and feet and started pt to straighten me out and help the horrible pain in my legs (couldn't play or run very much or often), had constant abdominal pain and intestinal trouble, almost constant uti's, then i had hernia surgery in 6th grade, 11th grade my gastrostomy site from birth reopened and nobody would believe me so they gave me 60shots of novicane and dug around for a "infected stitch" and sent me home my mom and I went out to eat and I felt the strangest sensation, went to the bathroom and all my food was on the gause so got rushed back to ER, then I turned 18 and still had lots of pain but was on tons of rx then got kicked off my mom's insurance so i went through withdrawls at a friends house, they told me right before the insurance lapsed that they wanted to go in and scrape out the scar tissue which was wrapping around my organs and continue to do so every 4 yrs. I told them no and they told me to go home and die then if I didn't want to live bad enough to have the surgeries. After no meds i started researching natural ways to heal myself and help with the pain. Over the years it got worst and worst and I couldn't get insurance so I signed up for indigent programs and medical studies to get treatments. I have never looked sick and have an amazingly high pain threshold so when I did need pain meds I always got accused of drug seeking and I never liked being on them anyway so I never even thought it an option until recently and am now trying to get off them again. My next major issue popped up when I was 26 and they could not figure out what was wrong with me so I tried all sorts of natural remedies and went gluten free and finally got my pain just under intolerable again. Two years later I was back in ER constantly they finally did a ct and mri and compaired them to the ones I had done at 26 and found a piece of a cyst that had tripled in size. they have a hard time seeing inside me anymore with any kind of imaging due to my intestines being everywhere, surrounding my other organs and even extending into my lower chest where they are now wrapping off the bottom parts of my lungs. They went in for surgery not knowing what they would take out. I ended up having golf ball sized cysts from my pelvis up to my lower abdomin. They took those out along with scar tissue, infected tissue (part of which was the mesh they put in during my hernia surgery, so i had had infection growing that whole time), abnormal tissue, and my uterus, overies and cervex. They said my uterus was so full of nasty stuff only a dime size opening was left and I found out i had a heart shaped, oversized uterus. This was just the second year my husband and I decided to start trying for children. I felt awesome after the surgery, I hadn't felt that way since I don't know when. We began taking classes to adopt a special needs school age sibling group. The lady that was to do our homestudy and represent us at counsil for the state hated me, i don't know why because everyone loves me, and told me that since i had been abused as a child it was certain that i would continue the cycle and abuse my child in the future. I have had a special bond with all children since I was still a child and had just opened a family home daycare because my friends could not find safe, loving care for their children and i was taking care of them during my time off work. that adoption lady said that i couldn't run a daycare and adopt but that is why i started it so that i could stay home with my children, especially since we were looking into getting a special needs group that would need so much extra attention and devotion. plus i know several people who foster and do daycare and have eventually adopted. so we decided that she would never reccommend us to the counsil and we can't afford a private agency so we gave up. a close friend has offered to have our child for us and we pursued it for 6 months until i got really sick again and back through a year of testing until this last sept when they removed a piece of undeveloped bowel that got lodged at the base of my spine. i did wonderful with this surgery and it was the shortest time ever in the hospital and quickest recovery time ever! Until 3 weeks out and then i started going down hill again, thought it was just me overdoing it but i'm still not getting any better only worst every day. i consented to be put on pain pills a few months before the surgery because I could not move at all anymore but now I still need them to function at all. I'm on 3 tabs 15mg oxycodone a day and it bearly cuts the pain enough to let me move around and do the very basics and if i push to hard one day i'm down for the most part for three or four. so needless to say i do one big project every 3 -4 days then drag myself through the very basics until i can push it again. i know if i stop moving my scar tissue will silidify and that will be the end of me so i push and push and push. i still run a low income daycare and have a soft spot for special needs children. My husband is the greatest man in the world and he blows glass. my best friend has moved in with us and basically does all the labor for my daycare and lets me still think i'm important enough to have around. she and her son (who is special needs) have greatly enhanced our life as much as we have theirs. we have become quite the family in the last year and we needed eachother very much and now she has a home and help raising her son, i saved my house and daycare which without my poor kiddos would not have a place to go and be safe and loved, and we all love and support eachother. she is also a chronic pain sufferer, we both have fibro.
 
Well so much for short and sweet huh? lol. sorry. it really helped to get it out though. I looked for introductions to get to know some of the people I met in chat today better but could not access the really old posts. are they just not avaliable or am i missing something. really hate pain meds i'm so stupid, moody, and just not me on them. so on that note any help locating those posts or info on strong natural remedies for pain are greatly needed and appriciated.
 
Very happy to be here and meet all you wonderful, strong, blessed people!
 

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 12/3/2010 9:48 AM (GMT -6)   

 

 

  Don't worry about your post length! This is a very short introduction believe it or not! I will come back after Bus Patrol and read your post. I just wanted to say your post is very short and do not worry about your post length. Were talking about "quoteing" or posting extremly lengthy posts. 10 - 15+ paragraphs and quoting 10 - 15+ paragraphs, topics over 3 pages. Topics over three pages just need to start a "New continue topic" to keep talking about the same subject.

*warm hugg*
     dani



TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 12/3/2010 10:52 AM (GMT -6)   
Undetermined,
 
I must say I really like your name! I am sorry for the pain that brought you here, but joyful of the fact that you found us! This is a wonderful forum. I haven't been here long compared to some, but have found such healing and support here that I would not be able to function without it.
 
I too have a pelvic and abdominal cavity filled with scars (adhesions) from surgeries and miscarriages. I had a hysterectomy a year and a half ago after suffering for 9 years with chronic pelvic pain and ovarian cysts. Mine was undiagnosed endometriosis and adenomyosis, along with rheumatoid arthritis and depression. So I understand some of your pain. My bowels too are up at my diaphragm and forever tied to it by scars. I faint and vomit from the pain almost daily since nerves are being affected. I too have been told if I stop being mobile the scars willl solidify and eventually cut off my ability to digest food and cause death. So I too push myself many days to stay mobile.
 
I admire you for your courage to carry on, and your dedication to your kids. I have 2 boys, ages 11 and 12 and am 30 years old. If I hadn't had them as young as I did, I would never have had children. I am engaged to a wonderful man who supports us, loves us, and cares for me in everyway. You know its life long love when he holds your hair back when you vomit, and catches you when you faint, trying to lower me carefully and keep me from hitting my head or hurting myself more. Many of us are lucky to have loving spouses and companions, but some of us are struggling alone. Don't lose your dream of having children. I wanted a girl with my fiance and am still devastated that I am less of a woman now, but my friends children love me and see me as their "Mimi" and are always welcome at my home. They replace the ones I can no longer have.
 
I hope that you find some comfort here as I have. Please don't be offended for I will pray for you as I do for all of us here at HW. I pray a lot!
 
It is so nice to meet you.
 
Mindy

undetermined_dimension
Regular Member


Date Joined Dec 2010
Total Posts : 38
   Posted 12/3/2010 4:46 PM (GMT -6)   
it is so nice to meet the both of you and thank you for taking the time to read my story. I am sorry for your pain as well but very grateful that we have found a place where we all can come together and find strength to overcome it.

Mindy, I really feel your fear about scar tissue it is such an added burden but also I find it gets me up and pushing myself harder than if I didn't fear being mummified.

I'm so happy to hear you have such a wonderful family Mindy! I am very blessed with a husband like yours. He has been with me through a lot and knows how to move me while causing the least amount of pain, he wakes at the slightest movement from me to see if I'm hurting. We have a very close friend who has offered to be a surrogate for us and we were trying up until a few months before my last surgery and my hubby is really ready to start trying again but I am afraid and still finding things to buy, put aside, or worry about. I am having a very hard time taking care of my daycare kiddos and would not have been able to keep them this long if my bf hadn't have moved it, but i know that is not a permenant situation, she is now seeing my nice brother in law (yea!!!) and will want a home of her own, complete with a new baby (hopefully so mine will have a cousin their age, lol, i got this all planned and still stalling) when he comes home for good from the army. I just know that some days (ok, most days right now) I'm really glad to see my daycare kiddos go home so I can just lay down and die, I don't know what I would do if I had one that didn't go home. but i'm still trying to figure it out and hope I get the courage to start trying again soon, until then i love these kiddos to death and all of my nieces, one brand new nephew, and friends kids.

next tuesday i go in to talk to my dr about trying some new enzymes that will help with my fibro, scar tissue and tummy trouble as well as a experimental protein shot i want to start taking to see if i can't get off these pain meds. this is a brand new year for me and i'm going to do my best. i worked really really hard and finally got a break and into a farm house so we have a big place to play and grow. we are starting a community garden here to help our family, friends and daycare parents and i'm going to have a canning circle to teach everyone how to can for home use so we all can be as healthy as we can. I am negotiating with my hubby for llamas and chickens as well, lol. chickens for eggs and meat. llamas for protecting our property from wild animals and also i want to train them to pull a cart and help me by either carrying stuff I can't or helping me move about the property when i'm not doing so good. we got a dog that we were going to train but bless his heart right after we got him we went into the ER the same day and had our surgeries very close together. it took me awhile to figure out what was wrong with him and get him back on track but he is now on my diet and takes a lot of my supplements to keep him going. definitely my dog, lol. but he will never be healthy enough for a work dog and as long as his life is happy we will fight together.

Best of luck to both of you and I look forward to getting to know everyone better along our journeys!
Make me strong in spirit
Courageous in action
Gentle of heart
Let me act in wisdom
Conquer my fear and doubt
Discover my own hidden gifts
Meet others with compassion
Be a source of healing energies
And face each day with hope and joy

Post Edited (undetermined_dimension) : 12/3/2010 2:50:07 PM (GMT-7)


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 12/3/2010 7:56 PM (GMT -6)   

 

  Dear Undetermined,

   Good evening *hugg* I wanted to tell you that it was nice to relax in the chat room with you last night. It is always nice in chat and it gave me a chance to get to know you better. I can tell you will fit right in.

     I did read your introduction after Bus Patrol this morning, but then I had get a bunch of stuff done. I just now have a chance to truly take a break (other than sitting next to the washers and dryer for little 10 min breaks, hehe).

     The first thing I noticed after last night and this morning is that you are a fighter without a doubt! I admire your strength a great deal. You have been through quite a bit in your life so far and you have faced everything head on.

      I think as time goes by you will notice that many of the Chronic Pain members share this aspect to. For what ever the reasons it seems that the majority of us have had to deal with tremendous struggles in our lives. What helps the most is knowing that there are people who truly do understand and want to know how your week went. Even if it was a bad week or series of bad weeks.

     I hope you enjoy it here! I look forward to knowing you better as time goes by! Hang in there and stay strong!

*warm hugg*
       dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 12/3/2010 8:05 PM (GMT -6)   
Hello,

I wanted to welcome you to HW and to tell you that you will find the support you seek with our members. I had multiple PG losses before having one child 11 years ago. She is a blessing to me and I understand your yearning to care for others. There are so many "parenting" options out there and your love of children shines through in your post. I don't need to know what you plans in this are are and am not trying to pry, but I think you will bring love to a child as noone else can. I'm not sure if it will be through your daycare or what, but I feel like you have a special gift there.

I look forward to getting to know you better!
Retired Mom

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 12/3/2010 8:59 PM (GMT -6)   
Undetermined,

I already welcomed you, and I am very glad you did an introduction! Wow.....you have been through hell and back hun! I am very happy you found us....your strength and determination is going to fit right in here! But remember we are here when you need to be weak too! That is the best part of this group....they have helped me through soooo much! Hang in there and take care of you!!

Hugs,
Beckey
Rheumatoid Arthritis, Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus

Medications - MS-Contin, Plaquenil, Cymbalta, Famotidine and currently Prednisone

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 12/3/2010 9:01 PM (GMT -6)   
Hello UD
It is so nice to meet you and welcome to our home here. You will love the people that you will meet.
We are all here to help each other, thru good times and difficult times.
I a glad you found us, but of course so sorry you are having so much pain.
That is quite the story you have. But my oh my, you have so much courage and strength.
I am happy that you have such a wonderful husband to support you as well.
I look forward to chatting with you here.
 
 
SUZANE

One day at a time!!

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 12/3/2010 9:15 PM (GMT -6)   
 
 
  Oh yes. Before I forget. We do have a topic for past and present members to share their story. I did one a long time ago. I will look for it and bump it up when I find it :-)
 
*hugg*
   dani
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

undetermined_dimension
Regular Member


Date Joined Dec 2010
Total Posts : 38
   Posted 12/4/2010 12:20 AM (GMT -6)   
Oh Dani, I really needed to hear that. I am at a point where I really need some other strong people around me so that I can stay strong. I guess I am new to chronic pain in the fact that I just recently admited to myself that this is my life. Pain is me and is my filter which I must adapt to in order to make anything else work. Always before I had been determined to fix it or fianlly admit I was crazy and there was nothing really wrong with me. I know now that I am certainly not crazy, something is terribly wrong but I might not ever be able to fix it. I feel like Pinnoccio except that my fairygodmother told me that all she could give me was the will to live like a real girl and that I will stay wooden, different, and tied up with strings forever. I have always had the will and I will never give up taking whatever steps nessisary to fullfill my destiny and my place in life but now I am forced to also be humble and learn my life's lesson of bringing people together to attain a better future instead of focusing on making my own future better. I have always loved people and devoted my life to helping anyone and everyone I could now I am also learning to accept help and bring many of us together to benifit us as a community. That is also what keeps me going; knowing that we all serve a very nessisary part in eachothers life no matter what our limitations are and if we put our strengths and talents together we can create a better life for ourselves. It was the best thing in the world for me to start a daycare. I have never been more involved with my community in my whole life. I am also learning to be a childbirth education teacher and doula to help the teens and in need mothers in my area. I think this group will give me that extra strength I need to make it over this next hurtle of shedding my skin and letting somethings go so that I can be happy and successful. Thank you for reading my post and taking the time to write to me. I would love to hear more about you! What you love, what life gives to you, what hurts you and all your successes! take care

Chutz
Forum Moderator


Date Joined Jan 2005
Total Posts : 9245
   Posted 12/4/2010 2:01 AM (GMT -6)   
Hello and Welcome to the CP family.

Your story is absolutely amazing! I can only imagine what you have gone through and still you have a great outlook and plans for a wonderful future. Many people would turn their backs on life and fold but you not only look forward but want to help others with physical and emotional problems. Like I said...you are an amazing woman. Your post is an inspiration to me and many others who 'live' here.

Thanks for sharing and keep us up to date on your day to day life..OK?
Chutz
Moderator on the Fibromyalgia and Chronic Pain forums

“If you want to live a happy life, tie it to a goal, not to people or things.” Albert Einstein

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 12/4/2010 8:01 AM (GMT -6)   
Hi Undetermined, I am sorry I am so late in welcoming you. Wow, you have been through some horrible things for a long time. I can't even imagine! I hope you continue to post here and get some much needed support and venting time. Take care.
Gentle Hugs,
Shannon

Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Percocet, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 12/4/2010 9:33 AM (GMT -6)   
Welcome! It's great to meet you. It's wonderful that you keep pushing on with all of the pain that you have.

Hugs,

Flower

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 12/4/2010 12:41 PM (GMT -6)   
Hello and welcome to our family, sure wish it could've been under better
circumstance in which we are meeting,,,'
Is there any chance that maybe you've gotten another infection? Wish I could
help you out more. The juice of sour cherries is supposed to help with RA, might help,
ginger is supposed to help too and sometimes it does help me some, I get the
altoid Ginger...can you use any topical lotions like aspercream...
Others will come by with better advise..Well wishes in hopes you can get a low pain day soon.
(((((((((((((((((((((((((((((((((Undetermined_Dimension)))))))))))))))))))))))))))))))))))
Healing Hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

undetermined_dimension
Regular Member


Date Joined Dec 2010
Total Posts : 38
   Posted 12/4/2010 4:09 PM (GMT -6)   
Retired Mom,
My happiness for the child that you have after so many heartbreaks. It really fills my heart with joy to hear a mother who loves her child so much. I really really really want a baby or a child and so does my hubby. We didn't know I couldn't have a child and were trying for year then hear the news of my niece. I have never felt so devastated my whole life watching my sister in law be pregnant with a child that she did not want and complained to me constantly. I had just started my home study to be a childbirth education teacher and doula with the dream of helping teens and mothers in need. I had my hysterectomy almost a month after I had come home from my first workshop and I was on fire with my dreams. I had a very hard time keeping hold of that dream because I was very very resentful and angry. But after I made the choice to continue I found my peace. I tried really hard to start a class and contacted everyone in my area who were in my field and had finally started a class (that turned out to be only one mother from my daycare, but I was terribly excited and really proud of the classes I had planned for us) then I got really sick again and couldn't finish and even had to take off time from doing daycare because I had to finally give in and start taking pain pills because I could no longer get out of bed for long and then I had my last surgery in Sept. I was so far behind in my home study that I called my mentor and asked if I could start over and attend the first workshop all over again when it came to my area, she thought it was a very good idea but now nothing is coming close to me anytime soon (but that could be a blessing as well because I'm very financially devastated over this whole thing). My best friend moved in and has helped me save my house and daycare. I am so blessed to have her in my life!! But now I am worried about filling the slots in my daycare because the state has upped all my parents co-pays and some of them are going to lose benefits so my slots went empty and have not filled. my bf is basically working for room and board until we fill more slots but she needed us too as a single mom with a high needs special child, whom we love and are really happy to have our lives filled with such wonderful people! my bf has fibro too and together we focus on what we can do and help each other so life is good even when its bad. but i'm afraid to start trying again because of the debt I have accumulated in these last 6yrs of being so sick, i have never been able to catch up and am still fighting to make it. I want to so bad to start trying again but i feel so selfish for even wanting one right now but i want to have one soon because i want to still be able to play and enjoy them and am afraid i won't be able to much later in my life and i at least want to have the first 18yrs or i think that i'm just not being fair and that there was a reason that we shouldn't have one and forced our own will rather than just be happy with what we have. it is a very very difficult thought for me.

I would love to hear your story as well. thank you for taking the time to talk with me and for your courage and strength in helping others while you are hurting. I hope that in the future we will be a great comfort to each other.
Make me strong in spirit
Courageous in action
Gentle of heart
Let me act in wisdom
Conquer my fear and doubt
Discover my own hidden gifts
Meet others with compassion
Be a source of healing energies
And face each day with hope and joy

undetermined_dimension
Regular Member


Date Joined Dec 2010
Total Posts : 38
   Posted 12/4/2010 4:37 PM (GMT -6)   
Becky,
thank you for your message. this is just what i need, i think, i do not allow myself to be weak and am reaching a point of breaking or maybe the right word would be bursting. i feel like i have come to a fork in my road and have a lot of hard decisions to make. i call it my shedding of skin because i have to decide what to let go so that i can be happy and move forward. but my rule is i have to let it go completely and these have been my most precious dreams for a very long time and i have come to the realization that i just can't do them all and am never going to be well and it might be that i'm never good for very long periods at a time so i need to really appreciate those times and back off and let myself off the hook so that i don't hurt so bad everyday but still i'm having a hard time letting go.
thank yo so much for your word and i hope we can be great support for each other and everyone else here!
Make me strong in spirit
Courageous in action
Gentle of heart
Let me act in wisdom
Conquer my fear and doubt
Discover my own hidden gifts
Meet others with compassion
Be a source of healing energies
And face each day with hope and joy

undetermined_dimension
Regular Member


Date Joined Dec 2010
Total Posts : 38
   Posted 12/4/2010 4:45 PM (GMT -6)   
SUZANE,
thank you and i look forward to getting to know you better as well. Blessings!
Make me strong in spirit
Courageous in action
Gentle of heart
Let me act in wisdom
Conquer my fear and doubt
Discover my own hidden gifts
Meet others with compassion
Be a source of healing energies
And face each day with hope and joy

undetermined_dimension
Regular Member


Date Joined Dec 2010
Total Posts : 38
   Posted 12/4/2010 4:53 PM (GMT -6)   
Chutz,
Thank you. i don't feel very amazing right now so it helps so much to hear it, lol. I love your quote and i wanted to share with you my new motto song i thought you might like it:
Lyrics to The Cave :
It's empty in the valley of your heart
The sun, it rises slowly as you walk
Away from all the fears
And all the faults you've left behind

The harvest left no food for you to eat
You cannibal, you meat-eater, you see
But I have seen the same
I know the shame in your defeat

But I will hold on hope
And I won't let you choke
On the noose around your neck

And I'll find strength in pain
And I will change my ways
I'll know my name as it's called again

Cause I have other things to fill my time
You take what is yours and I'll take mine
Now let me at the truth
Which will refresh my broken mind

So tie me to a post and block my ears
I can see widows and orphans through my tears
I know my call despite my faults
And despite my growing fears

But I will hold on hope
And I won't let you choke
On the noose around your neck

And I'll find strength in pain
And I will change my ways
I'll know my name as it's called again

So come out of your cave walking on your hands
And see the world hanging upside down
You can understand dependence
When you know the maker's hand

So make your siren's call
And sing all you want
I will not hear what you have to say

Cause I need freedom now
And I need to know how
To live my life as it's meant to be

And I will hold on hope
And I won't let you choke
On the noose around your neck

And I'll find strength in pain
And I will change my ways
I'll know my name as it's called again

it really sums up my feelings for everything right now. thank you for taking your time and putting energy into this wonderful space that is so deseratly needed for people to find a smile and some strength! I look forward to getting to know you! Blessings!!
Make me strong in spirit
Courageous in action
Gentle of heart
Let me act in wisdom
Conquer my fear and doubt
Discover my own hidden gifts
Meet others with compassion
Be a source of healing energies
And face each day with hope and joy

undetermined_dimension
Regular Member


Date Joined Dec 2010
Total Posts : 38
   Posted 12/4/2010 4:55 PM (GMT -6)   
thank you shannon and flower i am very happy to have found this place. i needed it so. it was very nice to meet you in the chat room flower! take care i look forward to getting to know you! blessings!
Make me strong in spirit
Courageous in action
Gentle of heart
Let me act in wisdom
Conquer my fear and doubt
Discover my own hidden gifts
Meet others with compassion
Be a source of healing energies
And face each day with hope and joy

undetermined_dimension
Regular Member


Date Joined Dec 2010
Total Posts : 38
   Posted 12/4/2010 5:51 PM (GMT -6)   
Chartreux,
Awe, another herbal person! I love another source of knowledge! we will have much to talk about.

yes i have thought about the infection possibility. when they went in this last time they just opened up right above the mass and didn't look any further. i healed more quickly and did amazing even right out of surgery (my first one that hasen't completly made me bedridden for awhile!!) but they can't see beyond my intestines very well anymore and they never know what they will find but i can't handle such major surgeries anymore so now we have to guess. i take propolis to help my immune system and it works wonders, i'm not sick constantly!! but it seems my body makes cysts at the drop of a hat so very possible. I am sooooooooo done with pain pills but i'm in so much pain i will be bedridden if i don't have something to take that edge off and let me limp around. i cannot stand not doing things and the depression will kill me so i'm going to try VitalzymX ~ Fibromyalgia is caused by many factors. But when I believe my primary cause of the pain is caused by excess fibrin in the muscles, and this isa fibrinolytic typed enzyme therapy. ibrinolytic enzymes digest this excess fibrin in the muscle, so your pain can be reduced or even relieved and you can increase your flexibility. They start and speed up the chemical reactions in each cell for detoxification and to produce the energy needed in rebuilding the cells, tissues, bones, nerves, muscles and glands. They also help to balance the hormones, regulate the body immune system, relieve pain, reduce the inflammation, speed up the healing process and many more. So i want to try and figure out how to afford them and see if they work for me. Also I want to try injecting prostatic acid phophatase (PAP) as PAP was shown to suppress pain as effectively as the opioid analgaesic, morphine, but with an effect that lasted much longer (3 days vs 5 hours). this is not an approved treatment yet though so i'm going to have to fight for it.

i will look into the sour cherries, definetly. i take msm powder and cream off and on but the powder is so nasty i have trouble taking it but it does help too.
ginger i like and i drink fresh tea with it and cook with it and i use tiger balm. i also have a tens machine that helps a lot! I'm really trying to find somthing that works that won't be worst for me in the long run. any advise is very needed and welcome!!

thank you so much. blessings!!
Make me strong in spirit
Courageous in action
Gentle of heart
Let me act in wisdom
Conquer my fear and doubt
Discover my own hidden gifts
Meet others with compassion
Be a source of healing energies
And face each day with hope and joy
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