~ Weekly Check-In (stop by when you get a chance)

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Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 12/6/2010 1:37 AM (GMT -6)   
Good Morning Chronic Pain Family!
 
 
 
      It is a beautiful Monday morning! December comes with waaay too many tasks and not enough time to do them all. Despite our packed schedules and sore bodies it is Monday. There are tasks to complete, jobs to do and appointments that need to be kept.
 
      Often times we are so busy supporting others that we forget to update about ourselves. So, before we get too wrapped up in starting out the week... Please, stop by and let us know how you are doing. Give us an update. We want to know how you are doing.
 
What are your major plans for the week?
How are you feeling? What has your pain scale been over the weekend?
(Are you remembering to make time for yourself?)

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
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Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 12/6/2010 5:10 AM (GMT -6)   
This week is packed. It's a long trip to the endo today and an FRA on Thursday. Next week is supposed to be my "new bladder" surgery, but I think I'm going to have to wait to heal from some of these other things first. I just can't deal with everything at one and add in Christmas. Pain has been too high lately, so I'm going to talk to the PM when he does the RFA. Perhaps he'll up the dose a little.

I hope each of you is doing well and that you will have a low pain week with few Dr apts and even fewer copays!
Retired Mom

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 12/6/2010 6:58 AM (GMT -6)   
I too have a packed week. Today a meeting of our Outreach team at church, Tuesday counseling, Wednesday a parent teacher conference, Thursday a new pain management doctor appointment, and then Friday Tim and I may go on a "date" if I am not too tired.

My pain has been so bad lately that things are all beginning to run together. It is just one long blurry fog of pain and pressing through. Every time I meditate, pray, or rest, I fall asleep.

I hope everyone has a good week with low pain.

Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw


Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, 7 pelvic surgeries for pain, ovarian cysts, adhesions, and a kidney stone! Wait, future medial transcriptionist I must say ureteral calculus!

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 12/6/2010 8:39 AM (GMT -6)   

 

       I too have been struggling latley. The mornings are to worst. My last pain med is at 9:00pm, and by 6:00am my back feels like it is broken as I try to get out of bed. I suppose that I sould get in to see the Dr for a long term med, as I think this is the way it is going to be from here on out. My hopes were that the fusion would fix me, but it just hasn't happened.

      My mood has been one of not wanting to do anything anymore, and I hit the bed as soon as I get home from work. I do clean house when it needs it, and cook for us on ocassion, but other than that, I'm down for the count. sad  

  SE


Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 705
   Posted 12/6/2010 10:30 AM (GMT -6)   
Hello,
Hopegirl (AKA) Monica checking in:
I need to start getting my Christmas decorations up. Hubby will get it all out, and its up to me to either tell the boys where to put it or put it myself. I've been in and out of flaring with this weather. Just pain, very fatigued and trying to do day to day chores like work are way difficult. Cooking gets done most of the time, but the clean up does not always get done. When I come home from work...I want my bed and that is about it. Pain scale over this past weekend was about 4.5-5 for me, not too too bad, but not doing kartwheels either.

Hope everyone else is working on a pain-fee week!! Happy Monday
Taking it one day at a time....-Monica

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/6/2010 12:32 PM (GMT -6)   
Well, I haven't been here in a while, mostly hanging out at the Lyme forum. I want to give a positive report, but I'm having lots of new pain issues, new symptoms, becoming more bed-ridden than before. Worst thing right now are my feet, soles are swollen, red, extremely painful. Have no idea why.... sad

Well, that's Lyme disease for ya! Always full of surprises! smilewinkgrin

I'm on 5 different antibiotics right now, still have hope that things will turn around for me though. I've been on abx almost a year now. I've heard of people on treatment for 3 years or longer before serious improvement. There are a few symptoms that are getting better, nor worse. Like my vertigo...I rarely have it badly anymore. I used to have to "wall-walk" but now can walk around without holding on to things most of the time.

We had a great Thanksgiving....I cooked for three days, as much as I could, my daughter Cheryl was there and she helped A LOT. Then I collapsed, of course, but it was worth it! turn

So I know how Dani feels about making all that candy, the pain is worth it because of the pleasure you give to others!

(((((((((hugs))))))))) to all!
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Malarone, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

http://forty-two-joann.blogspot.com/

undetermined_dimension
Regular Member


Date Joined Dec 2010
Total Posts : 38
   Posted 12/6/2010 2:43 PM (GMT -6)   
My prayers go out to all of you! It is so nice to get together and share, heal, and celebrate or at least hope. Blessings and strength to each of you!!

Wow! and I mean WOW! I guess I have really lost looking back because it is so much I haven't really thought about my last week for so long I've just been living nanosecond to nanosecond. We had a late thanksgiving on Monday ( I overdo myself for days and died all week because of it but it was so much fun and my absolute favorite holiday. i love to cook and don't get to make elaborate dishes like i used to all the time so i really spend time planning my thanksgiving (like 4 days drooling over recipes) so very worth it.) Tuesday I had a memorial planned for a friend of ours who committed suicide and they found his body this year but he had been missing for 2 years before this. I am the representative for the family and this has been a really long haul for me. I have custody of the body, and seeking more forensic tests, fund raising to cover all expenses, handling all of his belongings, planned and did the memorial myself. I will be happy when I can get the testing done and have some real closure and the final memorial with his ashes. Thursday my brother in law had to go back to a heavy war zone after being able to come home and stay with us for 2 weeks, very nice to have him here for a bit. This weekend was living hell, i am back to where I was before my last surgery. nothing is helping. I'm right at 8 -9 most of the day and then i hit my 10's and am in agony all night and a few days haven't been able to move before 11. i really really want off these pain pills cause my liver is so sensitive and i'm not elibibal for a new one but i'm in so much pain right now i don't know what else to do. i'm going to try and request some new enzymes and a protein shot that i've been researching. i'm praying it's going to work. also my hormones are out of wack again and i'm having hot flashes all day and feel like niagra falls all night, my husband clings to the edge of the opposite side of the bed just to stay away from me, lol. The cold has got my arthritis in my hands and wrists killing me and i've been in hand supports all week. i tell my kiddos i'm training for a boxing match and that's why i'm so grouchy and wearing my fighting gloves, lol. my poor poor family i'm psycho lately and really really mean on these pain pills. i pray something works out soon.
“Maybe if I share the path I walk then a little more of your pain will vanish. I want you to heal, whoever you are. I don't care what pain you've brought the world, I just want yours to subside. No matter what, your path is yours. Dont follow misery or worry. Devote every moment of your life to improving your dreams. Love your world. Cherish the good you do. Let go of hatred. Dream of love.” ~ ?

southviewgirl
Regular Member


Date Joined Sep 2010
Total Posts : 64
   Posted 12/6/2010 3:25 PM (GMT -6)   
Hello all, It's been awhile.

I have been doing really well. Now that I am on another pain mediation that my doctor ordered my pain is much more under control most days. I still have upper back problems that are really popping up now. It seems as one part of my spine is taken care of another one pops up. That could just be because the other pain was masking that pain.

We had a great Thanksgiving.

I have not been on here much lately. I do miss going to the weekly chats, I will get back soon. I try not to spend too much time thinking about my pain, especially when I'm having a low pain day, and when I immerse myself on pain, it seems my pain gets worse. I am sorry for not being on here much, I do want to be here for support for others as well.

merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 12/6/2010 4:03 PM (GMT -6)   
hi everyone. I havent had a computer or I would be here more often. I am doing okish. I had a scare a bout a week ago and had some biposies and it turned out to be nothing serious. thank goodness.

since then I have been fatigued to no end. I cant shake it. I hate it.
I think maybe it is stress.


hope everyone has a great week
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 12/6/2010 6:10 PM (GMT -6)   
Pain, pain go away
DON'T come again another day....

Don't we all want to sing that? I've been having a lot of knee pain of late. Surgery to remove some cartilage scheduled for mid-Jan, but weather here is bad now and it's only December. When the weather channel is broadcasting from 1/2 hr away you know you're in the thick of it! LOL So this morning woke up and couldn't even straighten out my back in bed. Muscle spasms which I usually don't get, but the knee hurts in bed at night so my positions are even more limited than before. UGH. Just UGH.

oh, and BRRRRR!

PaLady

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/6/2010 7:59 PM (GMT -6)   
The cold weather has caused some flaring in my back and foot.
I spent all Thursday night violently vomiting from a stomach bug, so my back was already giving me issues and my ribs felt bruised.
I'm sitting here with my foot propped up and I'm feeling stabbing pains in the bottom of the heel along with numbing and tingling running all over it.
Went back to work today after being out since Friday. So I was feeling drained all day.
I see the new Orthro specialist on Thursday for my shoulder and foot. They probably won't do anything for my shoulder, because it's getting better on it's on. The foot is now the big aggrevation.
Joy

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 12/6/2010 8:03 PM (GMT -6)   
Shoulder doc says since the injection he gave me in the shoulder bursa a few weeks ago didn't help, I can't have impingement or tendonitis. So my problem must be just fibromyalgia, or else the pain must be from my neck. Go see a neck surgeon. Goodby. There was no use arguing.

I came home crying in pain and called my pain doc who's been treating my lumbar and sciatic pain. He has an opening tomorrow. I'm not asking for meds. I don't think there's much left to even try. The lumbar spinal injections weren't working anymore for the low back and legs, so he's had me on muscle relaxants lately, but I either don't tolerate them or they don't work. It would be nice to have a diagnosis to see if there's anything that can be treated in the shoulders before I get locked up completely.
Alcie
 
 

undetermined_dimension
Regular Member


Date Joined Dec 2010
Total Posts : 38
   Posted 12/6/2010 8:11 PM (GMT -6)   
My deepest sympathy for everyone this week. I pray all of you find comfort and happiness this next week. I wish the gift of a dear friend with whom can share a hot cut of inspiration with you to warm this cold in body and mind.

“Maybe if I share the path I walk then a little more of your pain will vanish. I want you to heal, whoever you are. I don't care what pain you've brought the world, I just want yours to subside. No matter what, your path is yours. Dont follow misery or worry. Devote every moment of your life to improving your dreams. Love your world. Cherish the good you do. Let go of hatred. Dream of love.” ~ ?

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 12/6/2010 10:22 PM (GMT -6)   

 

     This week things should finally be slowing down. All the decorations went up the week after Halloween. All the jewelry gifts were made during the summer. All of the candies have been made at a slow but steady pace for the last few weeks. All that is left is a few last minute "batches". From here on, I get to relax and enjoy the rest of the month.

     My pain has been high, no doubt. My neck isn't so bad. I know there is damage happening there but it just "itches", is sore & tender. No big deal. The area along my spine where my thoracic dextroscoliosis is rather painful most days, but, it is a constant pain so it isn't that bad either. My thoracolumbar levoscoliosis is having a hard time. I cannot stand for very long before I have to sit. Of course, sitting hurts my hips    rolleyes

     My "core" of my hips ache non stop, of course. That is nothing new. What is new, however, is the "core" ache in my left hip is spread to deep within the top of my thigh. Not much down the thigh, but very unusual as I have never felt my "core" area any where but deep inside my hips. The left is the one being crushed by my torso (right is being pulled / extended up), so.. we knew it would get worse. We knew "damage" would result as my spinal deformity progresses. Hopefully I will remember to bring it up when I see my spine specialists in a few weeks. Never the less, it is even more pain and more pain means I am reluctant to sit and lay down. ...bit of a tug-of-war as my back just cannot support my torso for very long amounts of time due to the uneven weight distribution. I seem to be spending a lot of time sitting on my stool in the laundry room with my lower back pressed against the dryer for heat. Plenty of noise to quiet the ringing in my ears so I can read. Good thing I love the smell of fresh laundry   :-)  

    On a more positive note! I called in about my jaw pain. I was asked to come in the same day. When I went in I was given a prescription and asked to pick a day to have my upper teeth taken and sent into the lab. My jaw pain is easy problem to solve. I just have to stop being so scared and call as soon as I have a problems next time. Also, the Endocrinologist is fixing me up for the holidays as well. No big deal, just prescriptions *pew*

     Well, I have been procrastinating for quite some time now.. I guess I should get up and get going........     maybe just 10mins  blush   Then I will get up off my #2.

*hugg*
  dani  


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 12/7/2010 12:02 AM (GMT -6)   
Sending good thoughts out to everyone. I've been praying a lot for everyone here - there just seems to be so much increased pain for all of us and that makes me sad. With the holidays coming up fast, it's my fervent hope and wish that everyone will be feeling well enough to really enjoy the festivities.

Like a lot of you, I haven't been posting much. I've just been feeling crappy overall, with no end to pain and still no appointment date for the surgeon. I've also developed pain in the right elbow joint...like a tendon is snapping over top of the bone. I can feel it and hear it - it happens every time I roll my arm from left to right. It's a real pain in more ways that one - I keep dropping things because when I go to grab them with my right hand, I ultimately roll my arm, the elbow snaps, and down goes whatever I was holding.

And to top off the list, my right knee has been "collapsing" on me when I walk up the stairs - I get a sharp painl on the left side of the knee joint, where it feels like something is caught in there.

It just seems like nothing ever gets better....and I feel less hopeful as time goes by. I'm too busy for the rest of December to do much, but come January, I'll be seriously investigating the Mayo Clinic for treatment.

Sending hugs to all - I truly hope everyone here has a better week than last week.

Pam
DX: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Diabetes (just diagnosed), Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Hard Start for IV's, Unable to vomit due to surgery.

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine + Vitamin D + Multi daily
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