Help....I'm scared to start my new med!!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 12/19/2010 12:30 PM (GMT -6)   
As many of you have read, the PM added Oxy IR 5 to my med schedule for breakthrough.  I needed it terribly before and directly after the RFA, but now that I have been able to fill it, the pain is somewhat better and I'm so scared to start a new med....especially if I don't HAVE to have it now.  I really wanted them to up the Dilaudid from 2mg to 4mg 4 x day, but he just wouldn't.  I have such horrible med reactions and the Opana trial was a nightmare, so I'm a chicken to add anything new. 
 
I talked to the pharmacist and he said it was basically the same thing as the Dilaudid (perhaps a little less strong), but was synthetic and worked on slightly different receptors.  I'm still scared of some insane reactions like I have had before with med changes.  I don't ask for specific meds (unless I know the Dr very well) because I don't want to sound like a druggie, but it so hard when you've had as many reactions as I have.  They can be very bad and do really horrible things to the BP and anxiety.  I'm also scared of getting "hooked" on something.  I do understand dependance vs addiction, and maybe this med will work even better, but I'm a chicken.
 
I want to introduce this med slowly, but it is not "breakable" and has to be taken whole.  I also don't want to introduce it when I have something very important to do (drive) or when I am alone. 
 
So, what is the best way to introduce a BT med and should I leave off the Ultracet or Dilaudid when I try it.  Also, what to you think about the ambien with it?  I take double the "normal dose" so that is 20 mg each night, along with 3 mg Xanax XR, Ultracet x 4, Dilaudid x 4 and a ton of other things from BP meds to HGH.
 
Any insight would be greatly appreciated.  Please help this nervious nellie make it through transition.  They are really hard for me.
 
Thanks HW friends!!!!
Retired Mom

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 12/19/2010 1:07 PM (GMT -6)   

 

       Hello retiredmom!

           When I am miserable, I have no problem trying a new med, but I can see where it may be scary for you if you have had some bad reactions to some of them. No one likes taking them, but if it is needed to give you some quality in your life, dont worry about being scripted what you need.

      I used to be scared of becoming addicited to a med, especially since I had the hope that one day I would no longer need them, if my healing progressed to that point. Now I realize that Chronic Pain will be a part of my life from here on out, so I dont worry about it as much.

      I don't know why, but I have never really suffered, what most people decribe as a withdrawl, when I have taken myself off for a while. (7 days at the most). All I suffered was the return of my pain to the max.

     If it is something you need, ...sooner or later I would think your going to have to try them. What did your Dr say in reguards to taking it? Also I'm a thinking that a breakthrough med is just what it says it is, and should be taken when needed. If you don't think you need it, then dont take it.

    It would be nice to know though if it will work and not leave you with a bad reaction, just in case you do need to take it.

     I don't know that I helped you here, but maybe someone will have a better suggestion for you.

        SE wink

 

 


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/19/2010 3:42 PM (GMT -6)   
I'd take it when someone is home to help you if you have an reaction. Just try it when someone's there with you to watch you and take you to the doctor if you need to. Then you can be sure of the reaction.
I have several drug allergies and I don't try anything without someone available near me.
Joy

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 12/19/2010 5:58 PM (GMT -6)   
Thanks guys. I'll probably wait until Tuesday when my husband is off and has a Dr's apt. This way my daughter and I can go with him and she will be able to help if there is a problem. She's gastro, but she is my gastro as well. I haven't seen her in a while, but we got along really, really well and I know she is a wonderful Dr. in every way......very blunt, but wonderful none the less.

I appreciate the advice. You know I would give the same advice if someone else asked, but when it's me I'm thinking about, I second guess every decision and I don't want to risk those nasty reactions. I've had a couple that made me feel like I was going insane and I don't ever want that to happen again!!!!! The worst was one while I was in the hospital after I reported a nurse who was charting meds she wasn't giving me (IV Dilaudid). I complained and next thing I know I was given a shot of haldol (sp?). It made me INSANE feeling for many, many hours and I was by myself. She was the only nurse who did that and I'll bet she has been caught by now, but she made my life awful while I was trying to get over the pain of fusion surgery. I even asked the charge nurse and my hospital case worker (everyone has one in this state when they are hospitalized) to keep her out of my room or to move my room if they could not do that. It was scary and when I got out and went back to my psych, he freaked out that they did something like that to me. He was furious because he said that med was so dangerous and should never have been given to me....ever!!!

I've had lots of other reactions, but they don't compare to that one and it honestly still haunts me when I think of it. I hope this new med will be a Godsend and not a frightening experience.
Failed fusion L5-S1, Pituatary damage, HGH Def, Fibro, Bladder surgery failure, Nissen Failure, GERD, OCPD, GAD, MDD, CTS (Bilateral Surgery completed), CFS, TMJ, Migraines, Vit D, A, Magnesium, deficiency, HBP, Idiopatic Reactive Hypoglycemia, serious Edema, too many Drug/Food allergies, sensitivites, and current meds to list.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16793
   Posted 12/19/2010 10:53 PM (GMT -6)   
RM I understand your fears as I have a big problem with medication and a wacky system too. I think the best way to see if this medication is going to work is take it alone, with your usual long acting pain medication. That way if you have a problem to arise you will know what is causing the problem. I certainly would not mix it with Ambien until you see how you tolerate it. So, it sounds like it may be a bit before you can try this medication out if your pain levels are dropping somewhat and thats good news. I would also take it when there is an adult in the house with you just in case.

Good luck.
Moderator Chronic Pain Forum

SadSickTired
Regular Member


Date Joined May 2009
Total Posts : 99
   Posted 12/20/2010 5:02 AM (GMT -6)   
Hey Mom!
I hate taking new medicines! First off- every side effect possible (even the ones they say less N% of people will experience..) I get! In fact it was so worrying that I stopped looking at the side effect part of the pamphlet or on the internet until I started experiencing them just to make sure I wasn't manifesting them! And nope I got em anyway (whew at least I felt better about that!). So even though each time I get a new medicine I believe the doctor that this could be "the one". And part of the overall upset is that it never seems to be the one. I just started cortisone injections, and I was in bed for a week after the second set. I was bright red, sweaty and couldn't sleep but was always tired (and a few more unsavory side effects I won't mention here regarding my bathroom!) But here is my point, since pain is a part of our life- and probably always will be- we have to be brave and take every chance we get to try and find something that works for us. Even though the only thing that has worked for me was a combination of Vicodin and Robaxin (Vicodin is very hard to come by where I live and my doc makes me call every month for my refill and then they call it in so I only get one month at a time). But we soldier on in hopes of finding the one- or the combination of the one. I guess what I am trying to say is that we are all scared to start any new med but the payoff might be there in the end! You have to be brave to have made it this far, we are all behind you! Do everything in your own time and trust your gut. Good Luck and let us know what happens!

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2317
   Posted 12/21/2010 12:25 PM (GMT -6)   
I'd take it at home when someone else is around. Also, unless my doc has told me otherwise, I try to take a new med 4 hours apart from one I've been on (e.g., when I started Dilaudid, I took it 4 hours before my Lunesta -- and again 4 hours after Lunesta b/c, of course, I woke up in pain in the middle of the night). If you're still kinda out of it after 4 hours, you may want to skip the Ambien for a night.

Make sure you take it with a full glass of water the first few times you take it & if it's bothering you you can always drink some more water with it. I also keep a can of caffeinated soda in the house in case it is too strong and slows my breathing down too much. If I notice that's a problem, the caffeine will speed my breathing back up to normal. Usually if that happens, after a week of mixing meds and caffeine, I'm accustomed to it & can drop the caffeine [which is good since caffeine give me hives -- ick! still, better to be ugly & be able to breathe ;)].

take care,
frances

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 12/23/2010 5:40 AM (GMT -6)   
Whenever I take a new medication I make sure that my husband or someone in my family who understands how severe my allergies are is with me. I make sure to have my Epi-pen and inhaler close by.

I make sure to take a shower beforehand. That may sound strange, but I get hives out of the blue sometimes. Sometimes I react to seemingly nothing. It's often tough to find the trigger. So I take a shower so I know that there's no pollen, etc. on me. It gives me less of a chance of reacting to something that isn't my medication. And I never try new foods, etc. while starting a new med.

But my case is severe because of my allergies. Also, if the tablet is breakable, I try only a tiny piece.

Hugs,

Flower

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 12/23/2010 5:41 AM (GMT -6)   
I want to add that I know how scary it is, but you will be okay. I hate trying new meds. too. Please keep us updated.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16793
   Posted 12/23/2010 12:16 PM (GMT -6)   
RM have you tried out your new medication yet??? Just checking on you.
Moderator Chronic Pain Forum

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 12/26/2010 1:35 PM (GMT -6)   
Thanks for checking on me. I tried my new med a couple of days ago and was pleasantly surprised how well it worked on the first dose. The second did not have the same effect, but it will take a while to get the doses and times correct. I am afraid that the 5's will be a little low, but he did not seem to think we would have any problem increasing that one as often as necessary. We'll see.

I kind of feel strange taking so many pills so many times a day. I honestly thought BT meds were for the pain that broke through when you were taking long acting meds. I don't take LA meds, so I have all three pain meds prescribed for four times per day and the Dr is well aware of the way that I was taking them. That may be way he gave me the new BT med (as he called it). It's all so strange when you are mixing meds.

I really do appreciate you guys checking on me!!!!!!!!!1
Failed fusion L5-S1, Pituatary damage, HGH Def, Fibro, Bladder surgery failure, Nissen Failure, GERD, OCPD, GAD, MDD, CTS (Bilateral Surgery completed), CFS, TMJ, Migraines, Vit D, A, Magnesium, deficiency, HBP, Idiopatic Reactive Hypoglycemia, serious Edema, too many Drug/Food allergies, sensitivites, and current meds to list.

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 12/26/2010 5:26 PM (GMT -6)   
you said something about an Opana Trial....was it Opana ER? what happened? why was it a disaster? I take Oxycodone 30 mg. up to 5 times a day along with Methadone 120 mg. daily..... I was thinking about changing from Methadone to Opana

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 12/26/2010 6:31 PM (GMT -6)   
Actually you can break it in half...it's an instant release pain med so breaking it won't really do anything...if it were a timed release med I would say not to do it... I have broken my 30 mg. Oxy Ir's before and it didn't do anything bad....Good Luck.

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 12/27/2010 6:29 AM (GMT -6)   
Thanks Me! I was typing back to you last night when I had to leave the computer and never finished it. I did try my med and it's OK. I was actually surprised by how little med was is in it, but at least I can tolerate it.

Ok, as far as the Opana....yes, it was the ER and I did have some awful reactions. I do have a friend taking it though and he is fine. He never had any problem with taking it, so I wouldn't judge much by my reactions.

Anyway, I took the med and felt WONDERFUL for the first 6 hours. It was honestly the only truly pain free time I have had since surgery. Then then next "release" of med happened and it seemed if the entire rest of the dose released at the same time. I thought I was overdosing and then it took hours for the med to wear out of my system. I was shaking and my teeth were chattering, I was hot, I was cold, I was sick to my stomach, I was SOOOOOO anxious. I was doing some paraniod thing where you look from side to side like somebody is after you......NEVER again for me!!!!!

Now I'm positive this is not a normal reaction or they wouldn't prescribe this med. So many people are helped by it, but I just happen to be sensitive to something in it. That's why I was so scared to try anything with Oxy in it.....because the Opana ER is Oxymorphone and I can take the hydromorphone with no problems. I do take it, in fact, every day and now I take it with the Oxy IR. I just can't seem to get me med schedule right with all three pain meds. It would be so much easier if I could take an extended release and then just a bt med, but apparently he does not feel I can (and I wonder too after that last experience).

I hope it goes well for you!!!
Failed fusion L5-S1, Pituatary damage, HGH Def, Fibro, Bladder surgery failure, Nissen Failure, GERD, OCPD, GAD, MDD, CTS (Bilateral Surgery completed), CFS, TMJ, Migraines, Vit D, A, Magnesium deficiency, Pre-glaucomic (sp?), HBP, Idiopatic Reactive Hypoglycemia, Edema, too many Drug/Food allergies, sensitivites, and current meds to list.

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 12/27/2010 2:01 PM (GMT -6)   
Wow...that sounds way too much like Withdrawls to me....That's what I'm afraid of...the Dr. that I was seeing was going to keep me on Methadone at a lowered dose then slowly up the dose of Opana ER until I was off the Methadone and not having W/D's...but she left...now the new Dr. wants to wait until Spring...then totally cut me off the Methadone, put me on Opana ER with Klonadine in between doses for the W/D's....NO Thank You!! The last time I tried to change from Methadone to Morphine was a disaster....I think I might have to stay where I'm at...but it just doesn't seem to help me as much...i've been on this medicine for years...almost 10 now and I think my tolerance is up there....

Taking pain meds never bothered me before now....but with my pain still being at a 7 most of the time I don't think there's anything out there that will help....

Thanks,
Rhonda
Spinal Stenosis, DDD, DJD, HBP, Type 2 Diabetes

Methadone 120 mg. X daily
Oxycodone 30 mg. 5 X daily
Lisinopril HCTZ 10/12.5 2 X daily
Metformin ER 500 mg. X 2 @ bedtime
Novolin 50-0-50-50
Novolin R 0-50-0-0

That's all....but OMG!! isn't that enough?
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 22, 2018 10:13 PM (GMT -6)
There are a total of 3,005,776 posts in 329,263 threads.
View Active Threads


Who's Online
This forum has 161801 registered members. Please welcome our newest member, kissel123.
317 Guest(s), 2 Registered Member(s) are currently online.  Details
scifigal2k, straydog