Hello everyone. I am a returning member with a new e-mail address, so had to reregister. I remember, for example, wonderful information from StrayDog. If you are still out there, a special hello to you.
I am at my wit's end here. I had 7 back surgeries, with the prognosis being that I have "failed back syndrome." In other words, my fusion didn't "take." I was told that insted of having another very risky surgery (I'm not sure why they felt it was risky other than my hardware became infected from the fusion, a very serious infection, and the hardware was removed).
I had the neuro stimulator installed and then removed. Now I have an interthecal pump. I am still taking 2 60 mg. oxycontins per day, and I am still in so much pain that I am despondent.
I was told the pump would really take care of the pain. At first it seemed to do so: perhaps it was mind over matter? Now I am in such pain that I feel I would risk another surgery, but I can't find a surgeon who will perform the surgery.
Any ideas out there? Do you have good peiods and bad periods with the pump? I seem to rememeber reading that most people found it really successful.
I'm seeing my pain doctor on Wednesday, and I am at a loss as to what to tell him. He keps increasing the amount of the pump, and the pump contains dilaudid. Is that the best med or is there perhaps another med that would be better in the pump?
I know I have asked a lot of questions here. Any information or encouragement here would be so very helpful to me that I can't even describe it.
Thank you everyone and I hope all of you in pain are still managing to have some joy in this holiday season.
All my love to you all.