Thanks Straydog and Chartreux, sorry for not responding sooner. Okay here is the story, I have had several surgeries since 2002 in regards to my back. First was a disksectomy, which was suppose to take the pressure off the spine. NOT, so the next was a fusion, (not the car), L4, L5 and S1. Almost immediately after the surgery I told the surgeon that it felt like he left a golf ball in my back was very painful to sit, like there was a golf ball in there. Well that is the scare tissue, OK!! Then was put on several different medications to include narcodics. So, now comes the pain management saying I need a neuro sitmulator, yes first was the test phase, ya it worked. So they implanted it. For the first four years worked great, no medication no narcodics. Then came the day this year that it stopped working all together. Representative said that the two leads shorted and it turned itself off, battery was fine. Next visit, well maybe it is the battery they say. Oh in the mean time I had switched PM's because of a paying issue with the last one. This new guy is great, he was very hesitant about
doing any further surgeries on me. But with this device not working was not the answer, so they replace the battery. Well once they plugged it in I had stimulation, it felt different, yes the rep says there is only one of the two leads working. I said will that cover the pain that I need. Oh why yes it will. I am here to tell you no it does not. And pulling the leads out and replacing them is too much of a risk for me, in that it could paralize me because they are for a better word fused in, and when pulling on them it could lead to major complacations and my doc just does not want me to go through that. The company says oh no that will never happen.
So what am I doing about it, well back on narcodics, how lovely.
Yes it was the company representative that told me to live with the pain. Yes I had a trial period and it worked. Yes the SCS only mask the pain, but it masked it enough to give me the relief that I needed. Now because of the absence of the SCS working as designed, they belief that Spinal Stenosis that they belief was there prior but the SCS was masking the pain enough to not notice it as much. With his help we have convinced this major medical facility to stop using this brand both in heart defibulators and stimulators, and that is what my doctor thinks of it. He is a Navy man, trained at Walter Reed in DC.
The old Pain management doctor implanted the trial one and this current one.
With help from my Senator, we have people in Washington DC, very concerned that the company is not offering me anything to help out. I fact has turned me into collections for this last battery. Oh did i tell you that after telling them with witnesses to save the battery for further testing, they have no idea where the old battery is. Ya, DC really liked to hear that. I am after they (Washington DC) returns from Christmas break, will be going to DC to tell my story before the health committee and the committee for the FDA. My senator is very upset, as well as the person that investigated for the FDA, and was one of the invidiuals that approved this stimulator company.
So that is my story, and what I need from all of you is very important, I need to hear from you if you are having trouble with you NeuroStimulators. Such as the battery. And the battery does not last for nine years as they will tell you. I have documented evidence that the doc who implanted it told me the battery would last nine years. Don't believe everything that you are told, ask questions, get things in writing from the company, it could mean the world to you later.
Thank you all and have a very Merry Christmas and your new year pain free.