Wrong name for new script!!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 705
   Posted 12/28/2010 12:39 PM (GMT -6)   
I'm sorry, I thought the doctor said he name of the new script I am getting today was something else, for my fibro pain, my doctor is starting me on Namenda...has anyone heard of this? Any luck with it???
 
 
Thanks
Monica

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 12/28/2010 12:48 PM (GMT -6)   
I really don't know much about Namenda except that it is currently marketed as an FDA approved treatment for Alzheimers.

I did do a quick search for its use with fibro patients and came up with where doctors have been prescribing it and the reviews are mixed (from what little I read of them). The most help people seem to report is a clearing of the "fibro fog" but as far as it helping with pain few seem to indicate any improvement there, but some did.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16779
   Posted 12/28/2010 12:48 PM (GMT -6)   
Monica go to drugs.com and look this medication up. I think your dr made a huge mistake, it says there its for alzheimers if I read it right. Then I would be putting a call to my dr ASAP.
Moderator Chronic Pain Forum

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 705
   Posted 12/28/2010 1:00 PM (GMT -6)   
Thanks SD,
 
I think he intended for this medication. He said that it has been used now for pain patients and he has had some good results with it. I'm sorta nervous to try it right now, I have my new patch that is 75 instead of 50 and my break-thru meds, I don't know if I am going to take it now or not, I'm sorta nervous.....

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 705
   Posted 12/28/2010 1:08 PM (GMT -6)   
Stray, Thank You so VERY much for looking out for me!!!
I can't post a link here right? I don't know if I can or not, but I found this I'll just post what someone said about the med's
 
 
, like many of you, take handfuls of drugs just to live thru the day and suffer side effects from the drugs is just as debilitating as the pain.  My doctor allowed me to try Namenda
Namenda
which is a alzheimer drug that works by calming overactive neurons in the brain .  There has been studies to see if it helped chronic pain and most of them showed it did not.  I wanted to try it for myself and she allowed me too.  My shrink also thought it was a good idea to try.  

It did not help my
nerve pain
but it did help my energy level and the overwhelming "weight" of it all.  For 4 years I have done nearly nothing other than sit on the couch, watch tv, sleep, and surf the internet and for some of that time, attempt to work.  Cooking and cleaning were just not ever done.  Since taking the namenda, I have been more active - cook and clean some, have left the house more often but still only to grocery shop and get meds refilled.  I have done some Xmas shopping this year, last couple of years I did none.   I'm about to run out of the samples that the doctor gave me and if my insurance will cover it, I want to stay on it.  If they don't cover it, I will have to see how much it costs to see if I can pay for it out of pocket.  Maybe it is a coincidence that I "feel better" (and I use that term lightly) when I started taking it but I don't think so.

So, I post this so that anyone out there who is emotionally weighed down by this pain may find some help with this drug.  It is not a miracle drug and it doesn't come close to fixing me but its a little step in the right direction and I'll take whatever I can get.

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 705
   Posted 12/28/2010 1:12 PM (GMT -6)   
I really like my PM doctor and he said we could "try" it and see...I still have not found my "sweet spot" yet for my med's so I'm willing to try it if there is a possibilty it can help. I remember being all freaked out with Neurotin and the whole seizure thing, but when I took it, it was fine....
 
I would love to hear if anyone has tried this?????

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 12/28/2010 1:15 PM (GMT -6)   
Don't take it right away. But call your doctor. Confirm that it is really what he wants you to try. Many medications can serve more than one purpose and it could be this medication works well for pain with ur dx as well.

Ie: Topamax is a well known seizure medication
But
Topamax is also a well known preventive medication for migraines

You ask the wrong person, you get "Why are you taking a seizure medication for migraines?"

There is many many medications like this hon. So just simply pick up the phone and call the doctor and ask him/her if thats what they really want you to take. And politely say "I've heard its a alheimers medication, that is why I am questing if it will help with pain. How does it treat pain?" and get some answers :)

Rare, but sometimes doctors make mistakes too. They are only human, like you and me. I've caught some stuff before from my doctor. But he is only human.

There are even depression medication that works well as a pain killer. Its all about the scientific property of the compounds.

My 3 heros: 1. God & Jesus 2. Soldiers 3. Doctors
Don't Care Bout Nuffin No More, Guess I shouldnt even be in this world

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 705
   Posted 12/28/2010 2:18 PM (GMT -6)   
Calling now Smurfy
Left a message so I should get a call back shortly. You are so right Smufy. Even now with medications like Concerta...my son use to take it for ADD, now it is used for fibro patients and other patients to help cope with daily fatigue.
 
I will update shortly!!

Post Edited (hopegirl) : 12/28/2010 12:22:17 PM (GMT-7)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16779
   Posted 12/28/2010 5:39 PM (GMT -6)   
I went back and looked again, I am well aware of many medications are used off label but I could not find anything about pain control with this medication, this is why I suggested you call your dr.. It is always better to be safe than sorry. Drs or not they are human like anyone else and they can and do make mistakes.

Please let us know how you do pain control wise when you take this medication. I have not heard of any of our members being on this at this time. You may well be the first one to try it here.

Keep us posted.
Moderator Chronic Pain Forum

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 705
   Posted 12/29/2010 2:54 PM (GMT -6)   

********************UPDATE**********************

 

Boy am I tired, I am working on 2.5 hrs of sleep, call back from the Doctor, yes this is the medication he wants me to try,  it is primarily used for alzheimers but he has had some good luck with a few of his patients that are taking it right now, something again about the pain reactors. I will let you all know how it goes, I will most likely be starting it Saturday or Sunday.

 

 

 


spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 12/30/2010 4:10 PM (GMT -6)   
be careful, thats a potent brain drug that is only very rarley used iin pain control. i think the theory of it is it is a NMDA antagonist like dextromethorophan or methdone but stronger and helps to lower opioid tolerance. i know one person that was tried on this when all else failed but when he started it after 5 days he was hallucinating and had to go to the ER.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 12:53 AM (GMT -6)
There are a total of 3,005,343 posts in 329,219 threads.
View Active Threads


Who's Online
This forum has 161772 registered members. Please welcome our newest member, MaryAnderson.
257 Guest(s), 2 Registered Member(s) are currently online.  Details
bobmars, kittytalk371