I feel your pain, Mom. *hug* I bundle up and look like an eskimo in my own home while the rest of my family goes about more comfortably. Thankfully they are supportive, they don't tease me for wearing half-finger gloves so I can type, they ignore my curses when my hand fails me and I drop, yet again, another cup of something warm to drink.
I think we all have days like this. Days where we want a refund, or the classic do-over. Days where we want a break from our pain and hurting. I know I've hit that point where trying to skip a dose of my meds is no longer an option, but I am so tired of the fog I live in ... watching my memory slip through my fingers like grains of sand. Or the complete system crash that happens when I push myself to long and to hard. My family watches it. I'll just suddenly lay down and I'm out for about two hours; my body to tired and sore to go on.
I try not to let the little things get to me much anymore. The day to day stuff. So I didn't get that load of laundry done, it's not like it's going anywhere. Didn't get to the store today? Well, it'll still be there tomorrow. There are days when everything feels like it backs up because of this, so I just reprioritize my list (if I don't make a list I frequently forget what I'm supposed/need to do) and go from there. Yes it makes it feel like a never ending list, but it's actually kinda satisfying every so often to look at my list and shove it aside. "Ta heck with it!" I'll declare, "I aint worryin' bout none of this today!" And sometimes the mental mindlessness of Bingo (played on a computer so I don't have to daub paper) is a fun distraction; watching the little squares light up, or not, and the ocassional jovial yell of "Bingo!". Doesn't happen to often, but it is the upside to living in Nevada.
Silver linings, Mom. Try not to think of what you can't do, but what you can do. Think not of those foolish girls/women who we all wish we could be -- don't I know I wish I was rail thin still and still riding competitively in the horse circuit!! -- but instead think of the things that matter, the things that count. And always remember most importantly ... no matter how far away all of us are, we'r only seperated by the internet.
You're not alone.
Originally injured 10/26/2007 - Initial diagnosis; Tendonitis
Spent next year seeing specialist after specialist; Bone, Muscle, Hand, Chriopractor, Physical Therapist...
Went through a battery of tests, multiple MRI's
11/16/09 I was finally diagnosed CRPS - Stage 2
Permanently disabled and on Percoset for pain.
Hoping 2011 will see my spinal cord stimulator unit finally implanted.