Scared--advice

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songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 1/4/2011 8:25 AM (GMT -6)   
I just saw a new doc yesterday..pain mgmt. He took over all the pain issues from my primary care. I used to take pills for pain, but he has now switched me to 25mg Fentanyl patches. I am scared to death. I put the patch on last night at 6pm. I am not in pain (which is great) but have researched this drug and am so scared about if and when I get better, coming off. I am only 30 and do not want to have drugs not work on me in 30 years. Was this a good move on his part? I have severe malabsorption, but still I am just so frightened. I want to feel good about not being in pain, but according to the web, this drug is the strongest. Any advice would be great?

Should I call my doc?....he wrote the script like it was nothing...He said people with your condition have very high pain tolerances, and the amount of meds you take now, this will be much better, steady, and you will get better relief.

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 1/4/2011 8:58 AM (GMT -6)   
  Hey Song , I used Fentanyl patches 50mg , didn't work for me , But I used to take 6 - 80mg oxycontin , plus 8 percocet a day . I now take one a day if needed afyer hip replacement surgery . I wouldn't panic , enjoy your pain-free time .I think you'll be ok , your under Doctor supervision and your meds are working , that sounds good . Best of luck ! Mikel
HIV+. meds - epzicom, Kaletra . oxycontin as needed , indothemiacin . hip replacement surgery done !!! Saw the surgeon and I'm really healing great ! Been in physical therapy for almost 2 months now and I can walk pretty well , only going up and down stairs is still a little tough so one step at a time , but that's because of my knee not my hip , but I can walk again , no cane , just me !!

songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 1/4/2011 9:13 AM (GMT -6)   
thx Mikel...I have never been scared of a med prescribed before...I was taking 10-12 tabs a day, and they had stopped working. Do you think this was an appropriate step up?
Psalms 9:18
But the needy will not always be forgotten, nor the hope of the afflicted ever perish.

Finally awarded disability after 4 long years! Thank God for attorneys!
Dx'd with Crohn's colitis May 05, spread to ileum as of 08'-- Currently on Humira every 2wks, Pentasa, Entocort, Phenergan,Zantac, Ambien

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 1/4/2011 12:30 PM (GMT -6)   
Songstress,
I too am on the fentanyl patch, and at this point have not had any issues. I had several months of the 12.5 mcg patch, then the 25 mcg, and my insurance would no longer pay for 2 months. I had little to no withdrawal symptoms in the 2 months without the patch, just my normal pain levels. My pain management doctor has told me that each person is different, but that on the smaller doses it is a bit easier for the body to wean itself off. If at any time you do decide to discontinue it, it is reccommended that you taper down to the 12.5 mcg patch step by step.
Have you spoke to your pain doc about your fear? Also, I had to learn just to enjoy the lower pain time without taking the 10-12 pills a day also. For the longest time it felt wrong not to take pills for pain relief.

Hope your fear subsides soon!
Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw


Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, arthritis, kidney stones, depression, 7 pelvic surgeries for pain, ovarian cysts, adhesions. Fentanyl patch, Vicodin, remeron, trazodone, dicyclomine, Miralax, Colace, Multivitamin

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16295
   Posted 1/4/2011 12:52 PM (GMT -6)   
Songstress I was on Fentanyl patches for awhile and then had to move on to something else. I think its awesome that you have a PM dr that knows something about CP and is willing to help his patient not suffer. The patches are also used for people with CP, not just with cancer. You indicated that you took quite a few pills a day that did not help, so why would you want to stay on those I am not understanding that. I would be glad that a dr took my pain serious and was willing to treat it. If you read this forum much there are far too many on here that their pain is under treated so kudos to your dr for having the knowledge that quality life issues are involved with CP patients. You are on a low dose and when I was started on them it was the 25mcg. It is scary reading up on any medication, even Tylenol is scary reading it. You have to understand if one person reports a problem it has to listed as a potential side effect.

Enjoy having some low pain days you deserve it.
Moderator Chronic Pain Forum

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 1/4/2011 3:23 PM (GMT -6)   
  Hey Song , yeah I think its definetly appropiate , because it works for you and thats a blessing ! Your right to be cautious about what your prescribed but if you don't have to take the pills anymore it sounds like this not only works , but its easier as well .Its sometimes hard to find a med that works for the individual , but it sounds like you've found an effective one , congrats !!! Mikel

songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 1/6/2011 5:22 PM (GMT -6)   
Yeah I feel much better after reading all of your comments, so I really appreciate the feedback. I feel 100% better, except for some headaches, my pain is GONE. I feel like an entire new person. This is my 4th day on the patch and it is wonderful. No more pills, no more remembering, no more ups and downs. Thank you all for your advice. I think the internet scared the crap out of me! There are so many horror stories about this patch on google. I really should stick to listening to my doctor and gaining that trust. It is hard when you have so many docs undertreat you for so long.
Psalms 9:18
But the needy will not always be forgotten, nor the hope of the afflicted ever perish.

Finally awarded disability after 4 long years! Thank God for attorneys!
Dx'd with Crohn's colitis May 05, spread to ileum as of 08', AS, arthritis all over-- Currently on Humira every 2wks, Pentasa, Entocort, Phenergan,Zantac, Ambien

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16295
   Posted 1/6/2011 9:31 PM (GMT -6)   
Songstress double check your box of patches, they should be a 72 hour patch not 4 days unless they have changed them.
Moderator Chronic Pain Forum

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1235
   Posted 1/7/2011 3:01 PM (GMT -6)   
Fentanyl is a wonderful pain medication when it is used for the right patient, in the right dosage, for the right condition.
Don't let the internet horror stories scare you, most of them are simply someone who has read a story somewhere and repeats it, and they were based on some problems with the old delivery matrix of alcohol and fentanyl and problems with the consistency and manufacturing problems with the design of the old forms of the patches.
Fentanyl has a new delivery method, the fentanyl is in the glue matrix that adheres the plastic to your skin. With the new matrix, there is much better consistency in the blood plasma levels and a smoother delivery of medication to the blood stream over the course of 72 hours.
Most of the horror stories related to the old delivery method, not the new one.
Stray is right, you should check your box to see how often you are supposed to change the patch. The standard is every 72 hours.
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