Greetings one and all.
I'm fairly new to the forum, though I am not new to pain. For over 3 years now my life has been completely altered, turned up side down if you would, and, as my Doctor said to me, the life I knew is gone.
I was wondering if anyout out there might have some words of wisdom on how to deal with one major issue that keeps coming up between me and my pain doctor.
For the last few years they had had me on Loritab to try and ease my pain, but as time went on and my condition got worse the loritab ceased to be as effective. I had recently had my physician up my doseage but trying to get them to up my pill count is still something they steadfast refuse to do. As the loritab continued to not be as effective they recently switched my perscription to Percoset. However they lowered the doseage. Plus our cold snap finally hit, which adds a whole other layer to my exsisting pain.
You see I have CRPS, stage 2. Basically the nerves in my neck are constantly sending pain signals down my right arm, my dominant arm. I have constant pain with flare ups or spikes throughout the day. In the summer I have horrid swelling so that my hand is twice the size it should be and in winter even inside I wear special crocheted fingerless gloves so I can still somewhat have the use of my hands. With the weather turning cold the pain has gotten to a nearly unbearable level, and for me that's saying something; I have an extremely high threshhold for pain. But of late the pain has become so much my body just shuts down and I end up asleep for a couple hours bundled up in a blanket to try and stay warm at the same time.
I'm only supposed to take 4 pills a day, and my life revolves around my pill schedule. On a bad day I frequently take an extra one, or double up on my doseage. The bad thing about this is it causes me to go through my pills faster, and as most of you are propbably aware given the nature of narcotics they are strictly controlled. Even if you're willing to pay cash and have a brand new perscription if it's been less then 28 days they will not, can not, fill your perscription. This has caught me short once before; I was facing a week without /any/ Loritab. I hate the fact that people like myself, thanks to those lowlifes out there (doctors and people alike), are denied our meds when we need them.
So the arguement has become trying to get my doctor to up my daily alottment. I have tried to tell him for the last year now that my pain has progressed to the point where I simply can not afford to skip a dose, and if I am supposed to use my arm regardless of how much it hurts (a lovely side effect of my conditon -- use it or lose it basically) then I need some way to keep myself from ending up curling on the couch bawling my eyes out and writhing in pain. The last time I tried to skip a dose I was reduced to a mewling child, thrashing about because I couldn't take the pain. So much fo "Cowgirl Up!". But my doctor refuses to give me more pills.
Now I am in that pickle again. I picked up my perscription on the 20th last month, but I only have enough pills, at 4 a day, through the 17th, which is at least when I'm supposed to see him again. How can I convince a man, who's been seeing me for over a year, that may pain is getting worse and that I need him to change my perscription. As it is if I have a bad day between now and then oh well. And as a single Mom I really don't have the option to just curl up and cry when I have an 8 year old little boy relying on me to be there for him.
What can I do? Suggestions? Input? Please... help.
Originally injured 10/26/2007 - Initial diagnosis; Tendonitis
Spent next year seeing specialist after specialist; Bone, Muscle, Hand, Chriopractor, Physical Therapist...
Went through a battery of tests, multiple MRI's
11/16/09 I was finally diagnosed CRPS - Stage 2
Permanently disabled and on Percoset for pain.
Hoping 2011 will see my spinal cord stimulator unit finally implanted.