Discussing medications, procedures, treatments, etc.

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Jim1969
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Date Joined Jul 2009
Total Posts : 2042
   Posted 1/6/2011 12:01 PM (GMT -6)   
Please forgive me if I seem to be overstepping my bounds as a member and acting like a moderator but this is something that has been bothering me for some time now.

It is when people discuss medications and how effective they are or are not.

Most people seem to be pretty careful and qualify their opinions about medication effectiveness with some thing to the effect of "it works well for me", "it didn't do anything for me", but every so often someone will write something to the effect of "it is worthless" or "it does nothing for......(insert condition).

It is when someone makes a definitive pronouncement of a medications effectiveness that has me bothered as there is no way for anyone to know how that medication will work for another person. What concerns me the most is that someone may come on here looking for something to try and see that and refuse to give it a go because of statements like that.

I have no problems with anyone talking about how a medication works or does not work for them only about anyone writing as if they are sitting in absolute judgment about that medication.

So please, when talking about medications, or any type of treatment or procedure for that matter, please be careful about how you phrase things. Your opinions and experiences are valued, but lets be sure we are expressing them as our personal experiences and opinions and not as general facts.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16006
   Posted 1/6/2011 12:32 PM (GMT -6)   
Jim69, I think this post is very appropriate and I am glad that you have done so. Yes, I too have seen it posted just as you stated and in fact, sometimes people tend to forget that we all metabolize medications differently and can have many different responses to medications. I do think it would be terrible for someone to miss the opportunity to take a medication that could have helped them, but if they saw something negative written by someone here and they declined the medication, now would any of us want that happening to us, absolutely not. So, please before bashing a drug or a procedure, keep in mind it may help someone else and just say this is what happened with me and my experience.

Another thing I am seeing from time to time is medication dosages being recommended to the members here at the forum. None of us are drs here and it is against forum rules to give medical advice, so please we need to refrain from this. There is nothing wrong saying maybe a person needs to ask for an increase or decrease in something, just don't be specific on what you may think they need.

Jim is right the experiences of others are extremely valuable to all of us here at the forum and we need to keep them coming.
Moderator Chronic Pain Forum

Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 1/6/2011 2:04 PM (GMT -6)   
 
    I agree completely with you Jim and Stray, and have noticed this as well from time to time.
 
         I do however, don't think anyone has ment harm by those statements, and maybe they have not looked at the bigger picture of what affect it may have on a persons decision.
 
       We all can react differently to any medication, and that includes corrective surgery's. What works for one may indeed not work for the next person. It is a point worth noting, and we all need to be reminded from time to time in a positive spirit. Thanks for bringing this up! I try to becareful with this, but I admit, maybe we just slip up from time to time, when we have had a bad experience. What I basically read from these post is that we need to becareful in our choices of treatment. We hear many times to get a second and a third opinion. This is always good advice, and anything different should be taken with lots of caution. I would err more on the side of caution if someone told me that any medication or corrective surgery is absolutly the way to go.
 
     Of course we always have the opportunity to seek professional advice first, as should be.
 
      SE wink

Post Edited (Screaming Eagle) : 1/6/2011 1:08:21 PM (GMT-7)


flower123
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Date Joined Apr 2009
Total Posts : 856
   Posted 1/6/2011 5:42 PM (GMT -6)   
Thanks for posting this! It's a great reminder that everyone is very different. What works for one person may not work for another person, but if you don't try a new medication, you will never know!

Thanks and hugs,

Flower

Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 1/6/2011 6:35 PM (GMT -6)   
Excellent info to remember Jim. I'm glad you took the time to remind everyone.
Failed fusion L5-S1, Pituatary damage, HGH Def, Fibro, Bladder surgery failure, Nissen Failure, GERD, OCPD, GAD, MDD, CTS (Bilateral Surgery completed), CFS, TMJ, Migraines, Vit D, A, Magnesium deficiency, Pre-glaucomic (sp?), HBP, Idiopatic Reactive Hypoglycemia, Edema, too many Drug/Food allergies, sensitivites, and current meds to list.

Monty's Mom
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Date Joined Aug 2010
Total Posts : 664
   Posted 1/7/2011 6:50 AM (GMT -6)   
Thank you Jim for this post. It is a great reminder that our words can influence what others try or not and may keep them from the relief they need.
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw


Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, arthritis, kidney stones, depression, 7 pelvic surgeries for pain, ovarian cysts, adhesions. Fentanyl patch, Vicodin, remeron, trazodone, dicyclomine, Miralax, Colace, Multivitamin

Jim1969
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Date Joined Jul 2009
Total Posts : 2042
   Posted 1/7/2011 10:29 AM (GMT -6)   
I am glad that my suggestions and reminder has been so well received. Anytime something like this is brought up there is a risk of people taking it the wrong way.

If anyone has taken what I said the wrong way I do apologize and hope that you can understand that it was not intended as a rebuke towards anyone. It's only intention was and is to give pause to everyone and make them think about how they "say" something is just as important as what they say and in doing so improve upon the wealth of shared information and experiences we have here.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16006
   Posted 1/7/2011 10:37 AM (GMT -6)   
Jim, I do not think for a moment that you need to apologize for a thing. This is an excellent post and an important one. We all need reminders from time to time.
Moderator Chronic Pain Forum

Alcie
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Date Joined Oct 2009
Total Posts : 4978
   Posted 1/7/2011 11:16 AM (GMT -6)   
Thanks Jim, for the post. I totally agree that things posted here are basically opinions, not scientific proof.

I do though, like even the negative posts as concerns patients' outcomes and side effects of drugs and procedures. I appreciate that some people post positive results, but also some have had not such good results. It helps me be wary when I am about to try something new. It's not stopping me from trying new things! In fact this has been a great place to learn of new treatments and hope for relief. It does though, make me think before just jumping into every fad that comes around.

Thanks to all who have posted on this and other threads!
Alcie
 
 

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2317
   Posted 1/7/2011 3:24 PM (GMT -6)   
Jim,
I'm not in the least offended by what you wrote, though I maybe take a sister view of what you wrote. I do agree that the forum is not the place on HW to find cold, hard facts. We are exchanging personal experiences & sometimes that proves helpful -- or at least it has been helpful to me, even when I disagreed or chose another path.

Our words do matter & anyone's words can potentially influence others. But I guess I feel like when people come here for support they should be able to speak (write) their mind. I do agree wholeheartedly that no one should be telling anyone else what to take. I guess I've just always been of the mind that members should feel free to say if they loved or hated something without having to constantly censor or qualify their statements for fear that someone might make an irrational decision based on what some stranger in an internet forum wrote in a moment of weakness/pain/depression/frustration.

Peter does very clearly write out that members/readers should not rely on the forum in making medical decisions, but rather should consult their doctors. So qualifying every statement we make kinda reminds me of the episode of "The Good Wife" where the judge made the attorneys continually repeat "in my opinion" before every sentence in their opening arguments. The counterargument is that everything written here is someone's opinion or personal experience. Why can't readers just remember that it's all opinion and not a prescription for any other person?

Well, anyways, that's my opinion. ;)

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 1/7/2011 6:52 PM (GMT -6)   
Somebody said...
Why can't readers just remember that it's all opinion and not a prescription for any other person?


The one "problem" with that is that people coming here looking for suggestions or opinions may not be thinking clearly/objectively due to pain, desperation, medications, etc. In such a state of mind it would be all too easy for someone to take exactly what is written at face value. Granted someone in such a state may also easily misread a clearly written opinion but IMHO why add fuel to that fire.

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 1/7/2011 6:56 PM (GMT -6)   
Excellent reminder!
Rheumatoid Arthritis, Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus

Medications - MS-Contin, Plaquenil, Cymbalta, Famotidine and currently Prednisone
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