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Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 1/10/2011 2:35 AM (GMT -6)   
I am not sure if I am complaining or just letting out steam.... 
 
I am exhausted. Since October I have battling bouts of intense pain, swelling, sleeplessness, strange "sensations" and mounting problems. Starting this month, lasting through the end February I will be seeing them all. I mean every one of my specialists. Some of them were already planned out this way. Others, well 2, because we had to help out a family member financially on very short notice so those two were rescheduled for February. I am glad because if I wasn’t already seeing them all I would be making appointments to as we speak.
 
   The sleeplessness has always been a problem, but it seems I have a few good four hour nights, then back to three. The same roller coaster is happening with the pain in my spine and hips caused by my spinal deformities. I am usually at about a 6 to 7 everyday. It is the best we can do under the circumstances. Believe me when I say I have very active doctors. They care for me a great deal and work together, as a team, to care for me mentally, emotionally, physically and financially. They try their hardest to take care of me. I do need have a number of "smaller issues" addressed, but nothing major I don't think. Nothing big. Well I cant see very well, but that is nothing new. I love my eye surgeon as he has taken care of my eyes since he implanted a synthetic lens. He takes care of all my eye surgeries since then. Some of thw warning signs he told me to watch out for have been happening for the last few months. Hearing well.. not much I can do but measure it. The Hypoparathyroidism isn't that big of a deal its controlling and treating the complications that is tricky. At some point my teeth are being taken out to send to the lab to be refitted. Nothing major. All of those problems that will be taken care of. I do have to speak to my GP about some problems that started over the summer. No big deal just an intense pushing sensation behind my eyes and headaches. He said we would check out with a number of other specialists to just to be sure and then I would get images of my brain. Nothing overly problematic. Just frustrating and time consuming. I already sought out the other doctors he wanted me to see, each one had something they wanted to "fix" for me, but none of it was in relation to the things I was seeing them for. No big deal, its time for those pictures of my head. Maybe now I can prove to my husband there is more than just air in there.     nono   So, a busy start to the new year, no doubt.
 
    The first though, that I will be seeing, is the specialists that care for and monitor my spine. I am frightened to my very core. Back in October I started having a "pulling" sensation in between my shoulders. It came with immense pain but it had only happened once. It was happening in the exact same area that I had been experiencing intense "itching" for almost a year prior. It wasn’t anything to be alarmed at, at the time. We already knew I was forming another curve in that area and it was suspected that the "pain & sensations" was because I was progressing in the new curve. Meaning the rotation of my spine on the vertical axis was progressing (this is what happens in each curve). That particular curve was progressing. It wasn’t that big of a deal, we felt it could wait until it was time for new images of the length of my spine after the holidays. I have regular x-rays for cobb angle measurements of my curvatures (levoscoliosis, dextroscoliosis, compensatory secondary tilt). Sometimes, not as frequent, MRI updates. This is done regularly for the entire length of my spine to keep track of the progression of my deformities and and measurements of my cobb angles. ...but it happened again. The intense pain and "pulling". Only it lasted for 3 days before Thanksgiving. Then a week after that the same thing. Only lasting 4 days. Now, it is January and it has happened about 8 or 9 times. It is happening again as I sit here. It started again Thursday of last week. The times when this happens is coming closer and closer together. I am barley recovering by the time it starts all over again. It is hard, mostly because I already have an immense amount of pain from the other deformities and hips.  Add in this new problem and goodness, I can barley hold a conversation. It is hard, even for me. I am very accustomed to pain, and still... it certainly exhausts me rapidly. But that isn't what has me frightened.
 
    At this point, in the 4 short years (well, will be 4 years in February) since this all began, I have progressed very rapidly. I hear my case is rare. I am no longer surprised about my progression. What is scary though is a problem with my leg. Around the same time I was experiencing the "pulling & pain" in between my shoulders where my new curve is.. I also began experiencing "ice" sensations on my legs. Little silver dollar sized areas that felt like ice. I would touch them, and weren't cold. The ice didn’t hurt at all. When it first happened I did tell all of them about it. They all seemed concerned and took notes. At one point two of my doctors were discussing with each other about me seeing a neurologist of some sort. Due to the numbness, sensations and the "quivering" along my spine in the lumbar region when I stand. I just never thought much of any of it until two weeks ago. Two weeks ago I had a period of time where for about 3 days the "ice" sensation was back. The same areas. Only it lasted 3 days instead of just a few minutes. Then I sat down because I was tired (pulling and pain "flare" wears me out and I have to rest quite a bit) and while I was sitting on my stool my entire right leg went cold. "ice". Was very confused so I stood up. I could feel my leg just fine (I have had a "surface" area of my upper right thigh and upper left calf go numb off and on for over a year, this was not that sensation) It didn’t feel cold to the touch. Then I went to do something and the moment I put weight on my leg to walk to.. can't even remember what I had gotten up to do.. my leg "jerked" repeatedly, the whole thing, and I barley had time to grasp the door frame to the laundry room to slow the fall. Fell right over. Inside my leg felt like it needed to "stretch". I literally could not put any weight on the leg. I could feel it just fine. It wasn’t numb at all. about 5 or 6 minutes later it felt normal again and I was able to walk. I was shaken a bit but not hurt at all. I just thought "oh great. Last thing I need. Well, Ill have to remember to tell doctor". I went about my day fighting the pain and fatigue, no problem. Then through the rest of the week the whole "leg cold/ice" happened multiple times, no where near as strong, but enough to make my foot and ankle "unstable" for short peroids of time, if that makes sense. Spasm my foot in word. Make my foot curl to the inside. Then Thursday..... jeeze. Just what I didn’t need. I was cleaning the girls rooms. I was tuckered out (again this "ice" stuff is happening during the same times as the "pulling and pain"!) after cleaning my youngest room so I sat down on my oldest daughters bed to rest a moment. When I went to stand holy goodness it was happening again. Only stronger. Sickeningly. My right leg is doing it again. I thought "no problem" I will just make the bed first. So, I made the bed, careful not to put any weight until it passed. Only it wasn’t done by the time I was done making the bed. Well no problem I will just clean up her desk. I had been meaning to get on to her about her scrapbooking supplies being a mess. Only.. when I was done it was still going on. I tried to make it to her laundry basket and since my leg wasn’t working I had to grab a hold of the bed again as I went down. So, I just sat there on the floor until it passed. Organized her new doll house and petted the cat. It lasted about 20 mins or so all total, I think. Once I could finally get up I just did quick cleans of the rest of the house. Then I turned on the dishwasher to drown out the ringing in my ears so I could nap on the sofa. I was so very tired and spent.
 
      I see my spine specialists this coming week. I am just plain frightened to tell them what has been happening. The "what ifs.." are tearing up my thoughts. All the questions that I cannot help but ask myself. How bad is my progression? Is the pain / "pulling" in between my shoulders and my leg not working due to the same problem? They happen at the same time together. Is that possible? What will happen? Is this leg problem going to continue? The logical part of my brain tells me it will do me no good to sit a fret over it all. Yet, there I am. Questions and questions racing through my mind over and over. Yikes!  ..reguardless, my "images" will take a while to get done. My x-ray day takes hours. MRIs are nightmares. You would be suprised how long it takes to get images of your enitre spine and hips in all those different positions. Hopefully I will be able to reign in my racing thoughts and worries. At best it will take a few weeks to get all my images updated and some answers. I just gotta remind myself to relax.
 
     Oh gosh, and thanks for listening to me go on and on.   smhair  
 
*warm hugg*
      dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

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MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 1/10/2011 7:52 AM (GMT -6)   
   Dearest Dani  , Thank you so much for updating the family , I think one of the best things you can do is talk about what your feeling , and talk about it as much as you feel you need to . Your fears are normal to feel Dani Girl , but I think you overwork yourself at times too , you give and give and we all love you for this . But I must say I'm glad you'll be attending to yourself in the coming week , and letting your medical professionals look after you . You are a great and good woman/friend/Mom /wife and on and on .You've have done something macnificent with your life , raising wonderful children and partnering in a great marriage with an awesome guy . You have changed my life and the lives of many others with your honesty and caring ways , your very , very special Dani Henson , please give yourself the attention you so deserve , I pray you will hear positive things for your medical team .You always have the most brave outlook , but expressing your fears is a good thing , you deserve the same caring support you give everyone else . I'm thinking of you my friend . Love You Lots . Mikel

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 1/10/2011 8:57 AM (GMT -6)   
 
      WOW! There is now way I can keep track of what your problems are, but I know that you are overwhlemed with them. I hear the worry in your writting, as should be, but pleasae know that we are always here for you. You are a rare gem of a woman to say the least. Your daily efforts to get through the days would put most of us to shame.
      I just don't know how you do it, but I admire you for it, as many of the members do as well.
 
          Take care, and we will be praying for some good news on all your Dr. visits.
 
       SE wink

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/10/2011 9:29 AM (GMT -6)   
Dani, Dani, Dani! Sometimes friends & fams here on H/W tell me that I overdo it sometimes and usually the outcome is me whining about what body part I hurt this time. Thats kinda why I don't post as much as I used to as it must get pretty old reading the same thing day after day and week after week! I'm very much like Lily, our old mare who Lisa lets out of the barn so she dosen't get cabin fevor. But then she tries to be young and runs around chasing El and ends up reinjuring herself again! Then it's back to squar one again! Just like me!!!!
Anyway what I'm trying to say is that if I could do near as much as you do I'd be happy!!! You totally amaze me! With your back problems and everything else> the dr. apts, the kid's school work & projects, your beautiful jewlery, and so many other things some how you manage to get done> "Did I ever tell you your my Hero???" Member dat song? Well thats what comes to mind when I think of you!!! Please get some rest!!! That cold thing in your leg scares me, make sure you remember to tell your doc> Please!!!
Well gota git! There's tons of poop in the lower 40 as Lisa has been overwelmed w/ woerk since her vacation over the hollidays w/ the boys!!! She's burried so I have to help w/ the poopy field!!!
Love You!! Please tell the kids I love them and miss them!!!> Hubby too!
Pete 

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/10/2011 10:04 AM (GMT -6)   
Wow, Dani,
If I had the problems you have I'd might be curled up in a chair somewhere. You are a strong woman!
Joy

solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 1/10/2011 10:17 AM (GMT -6)   
Dear Dani, I'm a bit overwhelmed by just reading of your troubles. Having to live with them is beyond what I can imagine myself being able to handle. But you keep plugging along through it all so bravely and with so much grace that it is an inspiration to all of us. Thank you for caring about us so much. Please remember that, through it all, we care about you too.

Lee
Hope and attitude are everything. Never, never, ever give up.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 1/10/2011 1:22 PM (GMT -6)   
Dani,
It's easy to get scared with all the new aches and pains, but I would wait and see what this spine doctor thinks,
Hopefully it's might just be the cold making you hurt more, but please do get an appointment with the neurologist to get
the nerve testing scheduled... will say a pray for you and hope nothing new shows up...
try not to let this worry you, worry can make things worse and I know how hard that can be, we'll be
waiting to hear back from you what your doctors says...
((((((((((((((((((((((((((((((((((((Dani))))))))))))))))))))))))))))))))))))))))
Prayers, well wishes and healing hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

misterkatamari
Regular Member


Date Joined Jan 2011
Total Posts : 374
   Posted 1/10/2011 8:20 PM (GMT -6)   
Hi there!

I'm sorry for all your problems and challenges. I'm glad to hear that you have such great medical help, however. I would tell them everything your experiencing, because it helps fill in all the puzzle pieces until they have a clearer picture of the entire situation. Sometimes (and hopefully) it's nothing, but other times it is something major--or, more importantly, something they can help with!

I hope you feel better in some way, and I wish you the best. :)

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 1/11/2011 9:07 AM (GMT -6)   
Dani,

I am with everyone else here and must tell you, you are a strong woman! Like so many others here at HW, we learn to live and cope with the pain that we have daily (and there are others here who are just as strong!) A new pain is a scary thing, especially in progressive issues. I will be praying for you, that your doctors will be able to help you, and will be guided to help do what you feel is best. In the meantime, please keep us updated on your progress.

Gentle, hopeful hugs to you Dani!
Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw


Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, arthritis, kidney stones, depression, 7 pelvic surgeries for pain, ovarian cysts, adhesions. Fentanyl patch, Vicodin, remeron, trazodone, dicyclomine, Miralax, Colace, Multivitamin

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 3089
   Posted 1/11/2011 10:37 AM (GMT -6)   
(((((Dani)))))). Hang in there! You are one of the strongest people I know. No matter what the docs have to say, you're going to get though this!

Skeye

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 1/11/2011 11:54 AM (GMT -6)   
 
    
    I have to say I don’t feel so strong at all. I feel small, weak and betrayed by my body. I have to see my spine specialists tomorrow. I was hoping this would have eased up by now. This is first time I have had it longer than 3-4 days. I was finally able to fall asleep about 330 am. I woke about every 45mins though. I finally gave up by 620. It just wasn’t working out. I hate for anyone to see me like this, but there isn't much I can do. Maybe some under eye cream will help. I hate looking like this. When I am in this much pain, trying to force my walk to look normal is almost impossible. My walk reverts back to the exaggerated hip lift & and leg shuffle on my right leg. Very obvious walk for people with spine and hip deformities.
 
     I am hoping we can get the ball rolling on updating my images quickly. I am having a hard time. I know there are far more important, urgent patients but inwardly I am hoping they can make someone squeeze me in for X-rays. It is terribly selfish for me to hope for this. I am trying very hard to adapt to this, but it is hard, even for me. Also, I must, must! Remember to talk about my balance. It is getting too bad for me to compensate for. I had to walk up and down 4 flights of stairs yesterday as the elevator didn’t work at the university. Going down was a nightmare. I nearly fell many many time. Between my right leg and the balance problems I am becoming quite frightened. There are many many other seemingly small tasks that only require very little balance that I am no longer able to do this last month. I just wish my body would realize that help is on the way and it needs to calm down already!
 
*hugg*
   dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
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tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 1/11/2011 12:53 PM (GMT -6)   
Oh my dear sweet Dani. You are having such a hard of it lately. And no sleep does not
help matters at all. You need sleep to give you strength to get thru your day. I know that as
I have been there with no sleep for such a long time. And Yes you are a strong person. I
have read your posts about what you have had to endure and my oh my, it is so much.
I always tell my husband I am not strong, but he says oh yes I am. Remember he says, I have gone thru ten
years of this headache pain. But I still don't think so because I complain why do i have to go
thru this, I hate my life, my body, i cry a lot etc....... so yes Dani you are a strong and caring individual.
I hope you will get news from your docs that they can help you and also figure out something for you have
some good sleep.
Please keep us up to date on the results of your doctor appt.
We all love you dani and we are praying for you honey.
Remember, one day at a time.

Love
Suzane
SUZANE

One day at a time!!

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 1/12/2011 9:01 AM (GMT -6)   
Sweet Dani,
I am so sorry to hear what is going on with you! You are stronger then you know, but it is okay, at times, to allow yourself to be scared or need help! This does not mean you are weak....it means you are human! I am honored to call you my friend and my heart hurts when you are struggling! I am glad that you are seeing your docs soon!! Hang in there hun and don't overdo it! REST sweetheart and take care of you!

Hugs,
Beckey
Rheumatoid Arthritis, Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus

Medications - MS-Contin, Plaquenil, Cymbalta, Famotidine and currently Prednisone

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 1/12/2011 6:03 PM (GMT -6)   
  
      Well, I am glad today is over with. The appointment took a bit longer than I thought it would. I was re assesed. My hip angles and shoulder hump angles. Visually I have progressed a great deal. They have decided to skip the x-rays. Instead would like full spine MRI done. The MRI will do just fine for cobb angle measurements too?? She needed more information about what was happening than the x-ray would provide. They will get me in with the new MRI lab here in my small town. They are hoping to get me in within a week. I was surprised to hear the facility up and ready for patients. It will make things much easier as I have normally had to travel about 45min to get them done in the past. It will take a long time to do my whole spine. So, I suppose I should pack a lunch on appointment day.
 
      I talked about my leg going cold.  I was told to sit down, no matter where I am, as soon as I feel my leg going cold. If I could please delegate my tasks to others. ...then from that point on it was more her and my husband talking about scenarios where I should wait for help and ask someone else to do tasks for me. After that we took care of my meds.  I was asked to come back in a couple of week but that she might need me sooner and would call.
 
      And now the long wait for information begins...
 
      Also, it is hard to wait on someone who works night shift to help me. Its not like most tasks can wait that long and I felt a little ganged up on. I guess I could try the suggestions though. I suppose it would not hurt anyone to haul their own laundry baskets in to the laundry room or let someone else take out the trash... *sigh*
 
*warm hugg*
       dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

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couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/12/2011 7:20 PM (GMT -6)   
Yes, you can have everyone chip in to help you more.
You sound like my mom. She doesn't like to ask for anyone to help her.

Tell your kids and hubby what day you want to do laundry. Have them carry all of the laundry down to the laundry room the day before. That day wash clothes and lay them out in separate piles for each family member. They need to come and retrieve their clothes at the end of the day.
Teach your daughters how to clean the bathroom. I was cleaning the toliet at age 6, thanks to my mom and her job jar.
Hubby can carry out the trash before he goes to work at night when he goes to the car.
Everything shouldn't be on you.
Joy

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 1/13/2011 10:42 AM (GMT -6)   
Dani,
you have wonderful children and they'd probably be happy to help...Your still you,
it's just that your children are old enough to help out more...My hubby takes the trash
out at nights some days, like Joy said these things you just need the help...
I hope you can get in soon for the spine MRI...
Prayers, well wishes and healing hugz...
((((((((((((((((((((((((((((((((((Dani))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 1/14/2011 11:27 AM (GMT -6)   

 

   Well... the first day of trying to delegate tasks didn't go as well as I had hoped. Perhaps today will be a bit better. I found myself frustrated and still ended up doing the tasks myself because they were not completed fully or done incorrectly. Perhaps it will be a bit harder than I thought it would be. I will try again today.

     The fatigue is wearing me down. I am already exhausted and it is only 9:30am. Not good. I have been taking 2 small naps a day and it seems to help. about 30-45min is enough to get me back up for a few hours. I sure do hope we can find some answers soon. This is getting harder and harder.

*hugg*
  dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
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couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/14/2011 6:23 PM (GMT -6)   
Be patient, Rome wasn't built in a day and your family won't be use to helping right away.
Good luck.
Joy

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 1/17/2011 11:25 AM (GMT -6)   
Dani,
did you get your mri/scan scheduled?? sure hope that can be done soon.
Prayers and healing hugz...and like Joy said it'll take time for
you to get used to the chores being done differently, from what
your used to...maybe one new chore for each child for now..
start slowly...
Prayers, well wishes and healing hugz, hope you get a low pain day soon,
((((((((((((((((((((((((((((Dani))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 1/17/2011 12:41 PM (GMT -6)   
Hi Dani. How are you doing today?

Thinking of you.

Flower

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 1/19/2011 12:00 PM (GMT -6)   
 
     Gosh Flower, I am tired. Inside and out. I am trying hard to push past the pain, fatigue and my drained emotions. The high levels of pain and sensations are still happening. I had thought all the craziness would have stopped after a few days like it had the other times. I had hoped it would ease up by day six or even seven. I must admit I had a feeling that it was here to stay. It is always so hard to ride the level 8-9 pain express for days and days in a row.

     Strangly I am becoming accustomed to it. It is still very hard. I have my heating pads set up around the house and my stools in "common" rooms. When I am doing tasks as soon as the task is too painful, I stop what I am doing. Switch tasks. Then go back to the original task a few minutes later. Because it is taking me so long to do daily tasks, I have had very little free time for "me" stuff. Like jewelry, reading or games with the girls. On the plus side I have many sketches of jewelry ensembles for when I can get my body to work with me a little better.

     I have been doing more and more 3hr sleep nights until last night... last night I was so heavy, hot and throbbing and tired. I went to sleep and woke up 6hrs later with my body screaming in agony. But! My mind is a bit sharper and goodness, it is welcome! Hopefully, my body will ... get a little better through the day. Even if it doesn't, it is nice to think clearly and for now I willing to trade. My leg numbness seems to have a "pattern". When I am sitting, I will feel the little "silver dollar" sized cold spots on my legs. If I stand up as soon as I feel it, only my foot is effects for a few minutes. The longer I sit after the "ice/cold" sensations, the more of my leg that is effected and the longer it is before I get control of my leg again. So, I have been standing as soon as I feel the ice. That way my foot curls in and feels like ice only for a few minutes. So far, it has worked out well. There is no pattern to how long I sit in relation to the leg problems though. Well sitting hurts my hips terribly but.. I can sit for 5 min or even 10mins. The "ice/cold" comes when it wants. But! I can control how much my leg is effected. It is a start. I will have to be sure to let my doctor know what I have learned about it.

     After getting frustrated about trying to give tasks to everyone... I have decided to just have them do "weekend helper" tasks through the week. On the weekends they need to bring their own laundry to the laundry room. Pick up their own laundry off the floors. Take out their own trash. Clean up "surface" areas twice daily. So, instead of doing these tasks for them during the week.... They can make sure their own laundry is off the floor / bed and baskets delivered to laundry room each morning. They can put their own trash in the halls too, so all I have to do is walk down the halls bagging and fresh liners. They cake sure their old nighttime water cups make it to the kitchen. Also, instead of "dumping" everything when they get home in the entry way for me to sort and clean when they get home... everyone can hang up their own jackets. Put their shoes in the cubby and put their backpacks in the bag and purse cubby. Put papers in the school work and mail containers themselves too. Small steps. I don't think I am asking too much. Everything has a place that it goes and everything has to get cleaned each day... I am just asking for a little help along the way. So far, so good. A few reminders about jackets and shoes and bags. But really, everything has had the same areas to get put away for years now. I will just take a little practice..

*warm hugg*
       dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
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Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 1/19/2011 5:30 PM (GMT -6)   
Dani,
I think sometimes just getting thru at a day at a time, is enough. The chores
will get worked out...Wish I could tell you your pain will go away, but I sure hope
your able to get out and talk to a professional (Psychologist) cause that will help.
especially in these darker winter months...Make sure to spend some part of your day for you.
Sure hope you can get a low pain day soon, will be thinking of you.
(((((((((((((((((((((((Dani))))))))))))))))))))))
Healing Hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 1/20/2011 7:36 PM (GMT -6)   
Dear Chart,

    They are getting better. Its slow going, no doubt. No one seems unwilling to make the changes, they just keep forgetting. They are a good bunch. Just a touch spoiled. humm... okay, maybe more than a touch. I just love them and taking care of their needs is one of the way I show them love. I still put "Love you" notes in their lunchboxes. I can't help it    smhair   There have been times where I wished I was going through all this while my children were a bit older, but despite their young age they are great helpers.

     I don't have plans to see my Pain Psychologist for 3 months I think. This month and next are jam packed with tests, images and specialists. All of them from the eye surgeon to the endocrinologist to the oral surgeon. Even have to get my teeth taken out and re fitted at the lab. I just have to take a deep breath and get through this month and next. I have no doubt my doctors will get to the bottom of things. I will mention what has been happening at my next "check-up assessment" with my pain psychologist. (I was released from active care a year ago)

     I was kinda hoping I could carve out an afternoon tomorrow for relaxing things. We will see how that goes.

*warm huggs*
       dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

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