New to Forum, Pain after accident, July 2009

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santanita13
New Member


Date Joined Jan 2011
Total Posts : 2
   Posted 1/12/2011 6:17 PM (GMT -6)   
Hello, have been reading thru different post today, and I would probably fit under different categories, but, the pain has had the most impact on my life, so I will start off here.
 
In July 2009 I had a car accident.  My car was totalled, although, I walked away with no visible injuries.  A few days later, I started with neck pain, and very bad headaches, tingling, numbness, weakness in hands and arms, sometimes even legs and burning sensations on shoulders and neck..I have been thru 20+ session of chiro care, pt, accupuncture..visited my PCP, Chiro finally said, I can do nothing more. Orthopedic surgeon said no surgery needed you need to live with the pain, Neurologist said more PT, we have tryed tramadol, Fioricet, currently I take Paxil, Norco, Xanax, and Daypro. I began having panic and anxiety attacks..which I never had, so was very scary the first time.  I've had X-rays, CT scans, and I don't remember having an MRI but probably did, although, I now have a lot of issues with short term memory. He refered me to a Rheumatologist..the referring statement said Cervical Spondylosis.  Rheumatologist gave me trigger point injections, which only last a day or two...I have many tender spots in my head, behind my ears, and at the base of my skull..
I went back to him about this..he seems to not know what to do..I do feel as though he is not listening to the gravity of my symptoms, and is trying different things to rule out. Now I am getting pain in my legs, arms, I seem to be having more weakness..then last week he gave me two packets of Savella saying this drug has worked miracles on many people with unexplained pain, where nothing else has worked...well, three days later I was in the E.R. having hallucinations, nightmares, sweating, elevated heart rate, pounding headache, vomiting, nausea, and diahrrea. Drs. said were the severe side effects of Savella...my head is still pounding, cant keep much food down...I feel worse than ever, plus I am having mood swings, agressivenes and crying much of the day.  I feel as if I can't function, but yet, I need to be at work.  this is interfering with my life, my family, im making everyone misearable.  I feel helpless and hopeless, and needless to say, I hate my neurologist now...

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/12/2011 6:23 PM (GMT -6)   
Ouch!
I say time for a second opinion. See a new doctor. Maybe a back specialist?
Joy

santanita13
New Member


Date Joined Jan 2011
Total Posts : 2
   Posted 1/12/2011 6:30 PM (GMT -6)   
I am seeking a second opinion, but I need to get a referral from the first neurologist to try a second. I did see a physiotherapist, which also recomended the trigger points, and a tens unit, which has not been approved by the insurance yet...Ive gone to about 30+ sessions of PT and he still wants me to try some more...easy to say, when he's not paying in copays..which, really do add up.
Depression, Anxiety, Cervical Spondylosis, chronic back pain,neck pain, Fibro?, Migraines,

XANAX, Paxil, DAY Pro, Fioricet, Gapapentin, Norco

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 1/12/2011 8:31 PM (GMT -6)   
I would suggest seeing a spine specialist. I am not talking about a neurologist or a neurosurgeon or even an orthopedist but a doctor who specializes in treatment and disorders of the spine only.

If by any chance you live close to Champaign IL I could find the name of the one I seen I pass it on to you. He does not prescribe medication but he is probably the most thorough doctor I have seen in a long, long time. He is also quite honest and talks to you not at you or down to you.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5004
   Posted 1/13/2011 8:45 AM (GMT -6)   
So sorry you are feeling so bad -
I would suggest first getting copies of all the tests you've had, since you are unsure what they were. Get the CDs of x-rays, CTs, MRIs as well as the paper reports. Then make copies for each doctor you've seen and each new one you see - to avoid repeating unnecessarily. (You can make copies of the CDs on your computer.)

The radiology and medical records departments will make one copy of each test, usually free if you are taking them to a doctor.

Write up a list of dates, what doctors you've seen, what tests and meds were prescribed, and any diagnoses. You can group the PTs.
Keep a food journal, including meds you take and your reactions. Although it sounds like you seem sure some of your pain is from your spine, you can have all sorts of intolerances that can give you symptoms too. A journal helps keep track of what meds you've taken for your medical log too.

As a fellow fibro sufferer, I sympathize with how hard it is to find treatments that work. I found I felt better off most of the meds (neurontin, Lyrica, Savella, Cymbalta, antidepressants ... The only pain meds that help me are tramadol 4xday for fibro muscle pain, Vicodin for surgical pain - but it stops working too soon. I'm currently trying Feldene (piroxicam - another NSAID).

My allergist has me on Diflucan and Bactrim for a chronic sinus infection that has had me going downhill since my wreck - a month before yours - where the airbag broke my nose. I'm also using a saline wash I make up with 500ml water, 1 tsp salt, 1 tsp baby shampoo to try to get rid of a possible biofilm in the sinuses. The sinus infection gives me all sorts of head and neck symptoms and causes extreme tiredness, etc.

My best treatment so far for fibro pain has come from my pain doc. I haven't been able to get an appointment with my rheumatologist for a year and a half because he's been ill. Other ones I've called are just too busy to bother with me.
Alcie
 
 

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3695
   Posted 1/13/2011 9:10 AM (GMT -6)   
Find out if you have had an MRI, you would know if you have had one, as they are different than all the rest of the test!  They are noisy and you are put into a tube, so they can be uncomfortable, and they usually take a little while to do! But they do not involve any X-rays and they ar the best for showing soft tissue injuries! Such as herniated disk and spinal cord injuries.  If you have not had one of these test, you really should get one. This is especially important to have of the head and neck, as allot of your symptoms sound like those of trauma of the upper spine.  I would definitely be having a really good neurologist  be  evaluating you, do you have a major university near you with a medical school? That would be the first choice to be looking for a second oppinion! Until you know what is going on, I would be careful about having my spine manipulated by a chiropractor!
 
Good Luck to You
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!
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