Has anyone had or know about Neurostimulation devises?

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patsy123
Regular Member


Date Joined Sep 2009
Total Posts : 41
   Posted 1/20/2011 11:00 AM (GMT -6)   
I've been seeing a PM Dr. for what they belive is RSD in my right knee. I've had the nerve block injections in my lower back for the knee pain without any relief. Now they say I'm a good canidate for this stimulator and it might help the pain in my knee. I sure would love to hear from anyone who has had this implanted and how it worked or not for them. Thanks for any info. you might have.

straydog
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Date Joined Feb 2003
Total Posts : 16408
   Posted 1/20/2011 1:26 PM (GMT -6)   
Hi Patsy I am very sorry to hear of the dx of RSD in your knee, we have several members here at the forum that has also been dx'd with it. I am sure at some point today others will come by and say hello.

I would like to suggest that you use the search feature at the top right of this page and type in SCS units and you will get a ton of current info on these devices. These units have been discussed many, many times here at the forum. It can be a much quicker way to get info using the search rather than waiting on someone to come along that has a unit, or someone that has the time to sit down and write about it.

Your dr will schedule a trial for you with the unit to see how well it works. Does your dr have this scheduled yet? I am sure he has told you that some people get some relief and some don't. You will get a very mixed review of the units here at the forum. The units do not take your pain away, instead it creates a different type of sensation that is suppose to kind of over ride the pain signals. In the event you decide to have the unit implanted keep in mind once the leads are surgically implanted as a rule they can not be taken out if you or the dr decide to take the unit out. The surgery would be too extensive because of all of the scar tissue that has built up around the leads to keep them in one place. Its really something to do your homework on and not make a fast decision about either, weigh out the pros and cons.

Good luck and take care.
Moderator Chronic Pain Forum

patsy123
Regular Member


Date Joined Sep 2009
Total Posts : 41
   Posted 1/24/2011 10:14 AM (GMT -6)   
Straydog, thank you so much for your advise. I really appreciate your time and good advise. I really didn't think twice about having this scs done till I read what you wrote about the devise not being able to be removed. I did (at your advise) do some reading on this devise and I'm pretty sure I'm NOT going thru with this. I have an appt. at PM Dr. this Thur. and I'm going to see if there is anything else they can do for me besides having this devise implanted. Thanks again,.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16408
   Posted 1/24/2011 12:27 PM (GMT -6)   
Patsy please do discuss this further with your dr. I do hope nothing I said swayed your decision but I have learned when it comes to medical devices drs tend not to tell us patients everything we need to know about them. Now, whether it is an oversight or not I do not know. I have found some make it sound like its a piece of cake and something that is greater than sliced bread when in fact that is not always the case at all. There are some people on here that are happy with their devices and some that are not. It is very much an individual thing.

Please do let us know how you appt goes with your dr. Take care.
Moderator Chronic Pain Forum

emeraldkimmy
New Member


Date Joined Jan 2011
Total Posts : 9
   Posted 1/25/2011 1:53 AM (GMT -6)   
By neurostimulation I'm assuming you mean a TENS? If so, yes, I do have one. The company that makes the unit you take home should let you rent it for 30 days with an option to buy it if it's helpful for you. Basically it scrambles the pain messages sent to your brain from the stim site (your knee) so you aren't in pain. Depending on what is causing your pain, they can be very effective. Also, they're great to take to work unless you work in a place where you can't wear a device like that. Mine comes with a belt clip and key lock and most are pretty small and portable.

Take care, and good luck!

KBH
Chronic back and neck pain - car accident, degenerative disc disease, chronic kidney stones, uninsured.

mary3
Regular Member


Date Joined Jan 2011
Total Posts : 35
   Posted 1/26/2011 1:35 AM (GMT -6)   
I actually had the trial for the Medtronic, Neurostimulator done back in November. I was very reluctant, but needed some relief. I was supposed to have it in for 7-10 days, and I didnt last 2 days. I must say, it did feel very good in my legs, very good...BUT, I have a lot of nerve damage in my back so the leads caused a lot of pain in my back. I cried uncontrollably and went back in the next day and the pain dr. said this just isnt the best option for me. I was devastated that something else failed, but, I wanted that thing out! I would say, it doesnt hurt to try the trial. You can see if it works for you, if it does you know, if it doesnt, then, at least you know. I really wanted it to work, like I said, just to be able to 'fool my nerves' but, it just wasnt meant to be. I have heard great things from others who have said it is life changing. I do pray that you find relief.

Take care!

patsy123
Regular Member


Date Joined Sep 2009
Total Posts : 41
   Posted 1/29/2011 11:36 AM (GMT -6)   
Straydog and all. Well the Tens unit is not an option right now afterall (maybe it s blessing, don't know yet). I went for my appt.,with PM Dr. to discuss this and ask the Dr. before I have this done is it possible to MRI my knee first (I had my knee scooped 1 yr,ago and was told I had bone on bone and artritis, about 3 weeks after surgery I was out trying to walk around the block and something happened in my knee and I couldn't walk any more). Knee Dr. told me to get therapy on it and all would be well. Well. PM Dr. did the MRI on Tues., and when I went back on Thurs. she told me that I have a frayed Munistec (can't spell that one), I have no cartlidge left in the knee and they sent me the next day (friday) to have a Cat scan because I have tumors in one of the bones going down from my knee and I still have RSD. Sooooo, they set me up with a new Knee Dr. (he is suppose to be good). I see him Wed., for the results of the Cat scan. My PM Dr. did tell me that with the RSD I would have a hard time finding a Dr. that would do any kind of surgery on me, even knowing that I need a knee replacement. She said it could be years before the RSD is under control if ever. So I quess I'm suppose to just live with this. Thanks for listening, not sure what to do now.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/29/2011 11:57 AM (GMT -6)   
So sorry to hear about this. Did they give you anything to help it out?
Joy

patsy123
Regular Member


Date Joined Sep 2009
Total Posts : 41
   Posted 1/29/2011 12:20 PM (GMT -6)   
Thanks Couchtater, I also have FM, RA, lower buldging disc. in back, ect....(to darn much to list all). I'm at that trial and error point with meds. Currently I started on Suboxone about 3 weeks ago. PM Dr. says that they have found that Suboxone is great for FM symptoms. Jury still out for me. I find the Sub., is great for the "not feeling like you've been run over by a truck felling", but not so good for pain relief. I see the PM Dr. Monday and am hoping for something different.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16408
   Posted 1/29/2011 12:26 PM (GMT -6)   
Hi Patsy, I hope the appt goes well with the knee dr. I would think since you have RSD in this knee the possibility of surgery on it would set the RSD out of this world. Many times that is how people end up with RSD is having surgery on a body part and wham next thing you know RSD has set in., Really does put you in a bad spot for sure. But, who knows this knee dr may know something none of us know. That is my next step with my knees is new ones. I have had 4 surgeries on the left knee and 1 on the right and they are just worn out. I am not looking forward to it and I plan to put if off as long as I can. What do they think these tumors are you were speaking about? You know RSD can go away as quick as it shows up, no one ever knows how long a person will be afflicted with it. It is a very strange disease.

Let us know how the appt goes with the new dr. Take care.
Moderator Chronic Pain Forum

patsy123
Regular Member


Date Joined Sep 2009
Total Posts : 41
   Posted 1/29/2011 1:47 PM (GMT -6)   
Hi Straydog, your completely right about there not being a possiblity for me to have surgery.  They said I got the RSD from having that knee scoped last year.  I have no idea what so ever what the tomures in my leg bone is all about.  I'll find out Wed.  I'm sorry about your knees as well.  I use to love walking and I really miss it.  When do you think you will break down and have your's done?  My Mom did hers both at the sametime and swears it's the best way to go.  I just keep telling myself that God won't give me more then I can handle.  :)  I'll let you know on Wed. if I find anything out.  Thanks for responding.
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