C-Spine MRI report questions.

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mentalcompass
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Date Joined Jan 2011
Total Posts : 127
   Posted 1/20/2011 5:09 PM (GMT -6)   
Hi everyone. Can anyone look at this report and tell if the problems I'm having could be this c-spine issue? I've posted before that I get nerve pain down my left arm, muscle twitches (random), sensory problems in my legs and arms, I've had twitches in my neck too. I'm exhausted by this. The EMG was clear but we're closing in three months of this. I'm wondering if I should go back to the osteo and ask that he do an MRI of my entire back. I know my midback hurts but I've done a lot of specialist visits to find out what's going on. The first doctor I went to see said my problems were most likely from the C-Spine but I've had a hard time accepting that I went to bed Ok and then this develops so quickly. Plus, I had some arm tingling and calf cramps six months before this. The precursor to all these problems was me falling asleep with my hands over my head and feet hanging nearly to the floor (wearing heavy boots) back on Nov. 4. I woke up with a migraine, took an Imitrex and Vicodin, next day all these nerve issues flared. I'm wondering if I should just back to the osteo. The EMG didn't show any pinched nerves so I'm not sure what to think:
 
Here's the MRI findings:
C3: Minimal bulging and uncinate spurring without significant stenosis. CSF maintained around cord.
C4-5 shallow protrusion and bony ridge contact cord without flattening.
C5-6 protrusion and bony ridge with cervical stenosis and minimal cord impression.
C6-7 right paracentral protrusion with uncinate spur with core impression and compromise right C7 nerve root.
 
I asked my left side was so messed up when the herination is on the right. They said it could be referred pain.
 
Does that sound right?

Tirzah
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   Posted 1/20/2011 5:38 PM (GMT -6)   
Yes, you can definitely have referred pain. The nerves are all interconnected & also if you are favoring one side the other side can develop pain from having to compensate.

As for treating the migraine & then feeling pain in your back, that is all to familiar to me. My PM jokes (well, actually it's pretty accurate) that managing pain is like trying to play whack-a-mole. You treat the pain in one area & all the sudden you have pain in another. This happens even without medicine, though. When I had an auto accident & was feeling pain in my shoulder, I iced it. As that recovered, I began to feel increasing pain in my hip. Your brain/spinal cord will prioritize what is most important message to listen to at any given time. How it prioritizes those signals is beyond what I can understand, but somehow it does. So all that likely means is that your headache was effectively treated by the Imitrex & Vicoden.

As for what your MRI report means, I couldn't say. There are always things labeled "incidental findings". All that seems to mean is that the results are not related to your complaints. Plenty of people have stuff that shows up on an MRI but causes no symptoms. Only your doc, knowing your own medical history & complaints, could tell you what is important and what isn't.

good luck!
frances

mentalcompass
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Date Joined Jan 2011
Total Posts : 127
   Posted 1/20/2011 6:17 PM (GMT -6)   
He did say the arm problems, numbness and tingling, could for sure be caused by the cspine problems. I didn't buy it because my leg was bothering me too. I questioned him. On the report, it says findings and then it says impression, below that are the major findings. I didn't see anything that said incidental findings. I might ask for an MRI of the back, thoraic and lumbar and see if he finds anything there. I know I have midback pain, and have for years, but all these strange symptoms, I just couldn't conceive how my current problems would be related, then I read that my herination with cord impresion and right C7 nerve root compromise would impact my arms. But, if it's on the right, why then am I suffering on the left. Referred pain, he said. This all seems so weird. Yeah, whack-a-mole is a great way to put that, I'm playing that game now. All this time my right leg was just fine, yesterday I started having nerve pain there too. But, I'm painting a 2000 square foot house right now and I'm suffering. I actually feel better when I work but that left arm just can't keep up. I don't have any strength loss, just muscle soreness galore. I'm right-handed so I'm guessing that the nerve pain there is more intense because it's the arm I don't use as much. This is all very fustrating. I just really need an answer that makes sense to me. I'm all about logic in this area, it has to make sense to me or I don't trust the comment. I'm driving myself nuts here.

SmurfyShadow
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   Posted 1/20/2011 7:40 PM (GMT -6)   
Consider having a neurologist looking at the reports. There are some Neuro factors there.

Mods, this is not from my medical training (ok some of it is but mostly derived of personel experience)

Any numbness, tingling, twitching is neurological. For clarification, I had numbness in my middle arm after the car accident, and it was discovered neurological.
Don't Care Bout Nuffin No More, Guess I shouldnt even be in this world

mentalcompass
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Date Joined Jan 2011
Total Posts : 127
   Posted 1/20/2011 8:37 PM (GMT -6)   
I showed the neuro the report, he ran the EMG, he didn't find anything, that's why I'm so confused. The pain is clear and real, I wish to God it wasn't, I just want to wake up and have this gone. I don't know what to do next.

What's the MRI really saying? Does anyone understand how it impacts the arms and legs? I'm just wondering if I should go back to the osteo or some other doctor.

mentalcompass
Regular Member


Date Joined Jan 2011
Total Posts : 127
   Posted 1/20/2011 9:04 PM (GMT -6)   
I found this, it's interesting:
 

Myotomes & Dermatomes

Spinal nerves have motor fibers and sensory fibers. The motor fibers innervate certain muscles, while the sensory fibers innervate certain areas of skin. A skin area innervated by the sensory fibers of a single nerve root is known as a dermatome. A group of muscles primarily innervated by the motor fibers of a single nerve root is known as a myotome. Although slight variations do exist, dermatome and myotome patterns of distribution are relatively consistent from person to person.

Spinal Cord Segmental Myotomes

VIEW IMAGE

Myotomes - Relationship between the spinal nerve & muscle
Dermatomes
- Relationship between the spinal nerve & skin.

Each muscle in the body is supplied by a particular level or segment of the spinal cord and by its corresponding spinal nerve. The muscle, and its nerve make up a myotome. This is approximately the same for every person and are as follows:

C3,4 and 5 supply the diaphragm (the large muscle between the chest and the belly that we use to breath).

C5 also supplies the shoulder muscles and the muscle that we use to bend our elbow .

C6 is for bending the wrist back.

C7 is for straightening the elbow.

C8 bends the fingers.

T1 spreads the fingers.

T1 –T12 supplies the chest wall & abdominal muscles.

L2 bends the hip.

L3 straightens the knee.

L4 pulls the foot up.

L5 wiggles the toes.

S1 pulls the foot down.

S3,4 and 5 supply the bladder. bowel and sex organs and the anal and other pelvic muscles

 

http://www.apparelyzed.com/myo-dermatomes.html


SmurfyShadow
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Date Joined Dec 2008
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   Posted 1/21/2011 2:21 AM (GMT -6)   
I can not medically say if I understand the test results or not, as it is against Healing Well's policy.. I am sorry.

I can say, you can have as many second medical opions as you wish. Including maybe a chiropractor that has their own equipment for MRI's, XRAYS, etc.
Don't Care Bout Nuffin No More, Guess I shouldnt even be in this world

mentalcompass
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Date Joined Jan 2011
Total Posts : 127
   Posted 1/21/2011 6:05 AM (GMT -6)   
My sister keeps telling me to see the chiro, at this point it can't hurt to try one. My brother has a great accupuncture guy too, I'll give both a try and see what happens. I'm getting tired of seeing doctors. I said in another post that at this point, I'm looking like a nut when I see a new doc and go over all the stuff that I've been through. They don't like complicated cases, as I'm learning. :)

straydog
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   Posted 1/21/2011 6:08 AM (GMT -6)   
Mental if you have problems in the c-spine then you will have upper extremity problems, lower extremity problems come from the lumbar spine, as in hips, legs all the way to the feet. Its how the nerves and the dermatone patterns works. Looking at what you have written as your c-spine results upper problems you speak of could very well come from the neck problems showing on the xray, your legs no. Mid back pain can come from cspine issues and thoracic spine problems too. My orthopedic explained this to me years ago, so I am passing it on to you. Many times people can have neck when in fact its a shoulder problem and not the neck, those two areas can be tricky.

Sounds like you do not trust this dr much so maybe a 2nd opinion should be considered. Good luck.
Moderator Chronic Pain Forum

mentalcompass
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Date Joined Jan 2011
Total Posts : 127
   Posted 1/21/2011 7:58 AM (GMT -6)   
Thanks Straydog. I'm not sure if that's I don't trust him or just the fear that this is something worse. It didn't make sense to me that all this would happen as it did, just so suddenly like that. When I looked up the dermatone patterns (didnt' even know what that was until last night) I started thinking that all this fear might be silly, he's probably right. I think I'll ask him to check the mid and lower back too, maybe the shoulder as well. If he finds problems there, I'll accept that this the problem. The guy is a seasoned doc and since the neurologist didn't see anything at all, I'm guessing this back problem has to be the case. My bloodwork is all normal, I don't feel sick, I'm in pain. The sensory stuff is the worst, that part I just wish would go away, I can deal with pain but the numbness, tingling, weird electric feeling, I friggin hate that. I'm on neurotin now but it's giving me a constant sore throat

straydog
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   Posted 1/21/2011 2:23 PM (GMT -6)   
Its crazy some of the things our bodies can and will do no doubt. Nerve pain is just about one of the worse ones I think to have to deal with. Finding the right meds for it is tricky too, regular pain medication has little affect on nerve pain, you needs something like Neurotin, Lyrica and Cymbalta. Another medication that has been used for years is Amitriptiline which is the generic of Elavil, a very old drug but can be affective for some. It has some side effects like the drowsiness for a couple of weeks and it has to build up in your system. They start people on low doses & slowly increase it.

You should let your dr know about the sore throat business, first time I have heard anyone complain of that, will have to keep that in mind. Hopefully you can get things calmed down soon and start to feeling better. We all have the fear of the unknown and it will about drive you nuts until you can start getting some answers. Take care.
Moderator Chronic Pain Forum

mentalcompass
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Date Joined Jan 2011
Total Posts : 127
   Posted 1/21/2011 3:01 PM (GMT -6)   
Yeah, it has been driving me nuts ! I think Neurotin's side effects, one of them, is a sore throat, it's not bad, I can live with it. I went to accpuncture today and oh man did that help. That lady is great, she worked on my neck and arm and it feels a hell of a lot better, there's an area she called brother support that has been throbing since she took the needle out of it, first time that has ever happened to me. My muscle twitches are a bit more obvious today, I'm guessing it's like a dam that just broke. I'm going to keep seeing her. When this pain started, it was in the right arm, she fixed that and then it moved to the left arm, down the left leg and now is bothering the right leg (not too bad compared to the other side of me). I wouldn't let her touch my neck the last time I was there and she said that's why the pain moved to the other side. Whatever she's doing, it's working, but the problems are still there. Yeah, that nerve pain can be off the charts, nothing works on it but Xanax for me. I think the Neurotin helps but the Xanax just calms it all down to a tolerable level. I have to say, this really sucks and I'm getting mighty tired of it. I think I'll go ahead and ask the doc for a closer examination of the spine all the way down. Fear of the unknown is the greatest fear of all so I'd be happy to have an answer as to the cause of all this. I hope I get one soon. I will just keep plugging away until I find someone who can find the issue. You don't really know what to work on if you don't know the reason.

White Beard
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   Posted 1/22/2011 12:27 AM (GMT -6)   
mentalcompass

Please, Please, Please, be careful about going to a chiropractor and letting anybody manipulate your back or neck! I cringed when you mentioned that your sister suggested that you go to one. If you have a herniated disk in your neck manipulation of that area could cause you irrepairable damage. I will not let a chiro or and accupuncturist near me. Bad disk in the neck can be tricky, and vertebra too! I would be getting your cervical spine really checked over thoroughly, but not by a chiro, unless your Doctor recommends it.

I was looking at that post with the dermatones, and myotomes, I find it interesting that I have problems with shortness of breath, and infact the beginning of February I am suppose to start Pulmonary Rehab therapy, now looking at that post I have had a articular joint fusion at C-3/4 as I have had some major problems in that area. Now I am wondering if this could be causing some of my shortness of breath problems????

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

mentalcompass
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Date Joined Jan 2011
Total Posts : 127
   Posted 1/22/2011 8:12 AM (GMT -6)   
I would think for sure there could be a connection. When I started reading about what c-spine issues can do to your body, I was amazed (and shocked). It can impact numerous areas, breathing included, we know that from accident victims, yes, but it was really surreal to read just how far reaching this can be for anyone with disc issues or cervical stenosis. Ask you doctor about this because i'm interested to know if that's contributing to your breathing problems. I haven't been to the chiro for the reasons you mentioned, that's why I've held out so long. I went to one about two weeks before all this happened, he did the neck crack, it hurt, and I've wondered all these months if that kicked off my problems. I asked the osteo if I could see one again, he said it didn't matter how many times I was twisted, turned and cracked, the problem wouldn't go away. Now, I love accpuncture; however, I'm wicked sore where she put the needles. I've seen her a lot and never had that happen. When I get up and leave, I'm never sore. That area on the left side of my neck, what we'd think of as where the structural support is for our head, hurts so bad today that I can't touch it. There's another area over the shoulder, same side, that is also very sore. I trust this lady and I think she did good work, she tapped into a major source of nerve pain for me. I'm going to give her a try for awhile to see if she can work this out. She does not use electricity in her session, just the needles. I moved around a lot on the table yesterday and might have caused this too, kept turning my head to change the music on my ipod, she got very excited and said: "no, no, no, you can not move, very dangerous." I moved anyway. I think I know why she said that now. I'll let you know how it goes with her. And I am going back to the osteo to have him take a closer peak at my entire spine, just to know.

What type of breathing problems are you having?

mentalcompass
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Date Joined Jan 2011
Total Posts : 127
   Posted 1/22/2011 8:34 AM (GMT -6)   
Whatever is going on in my neck has to be involved in this pain. My complaints, the arm arm, the muscle twitches, feeling like my ulnar nerve is on fire, shoulder thingling, wrist pain, etc., if you read the report and what these areas cover, it's a match. It doesn't explain the all-over twitching and leg pain. But, it's my guess that the doctor's assumption that I had similar problems lower in my back was probably right. I'll ask for an MRI of those areas and let you know what they found. If this is the case, I'll soon be a veteran member on this chronic pain forum. By the way, I did have two previous episodes of breathing problems myself, I thought it must be anxiety but I wasn't really anxious, more like I couldn't get my diaphram to relax and work right. I had a similar problem when I was sick last year too. I didn't make much of it.

By the way, I read that c-spine MRI reports often don't show the true extent of structural problems and how they impact the spinal cord because we take them lying down and everything sort'a falls back. When you stand, the placement of spurs and herinations could have a more dramatic impact. I'll ask the doctor of this is true. I'm curious.



C3: Minimal bulging and uncinate spurring without significant stenosis. CSF maintained around cord. (C3,4 and 5 supply the diaphragm (the large muscle between the chest and the belly that we use to breath).


C4-5 shallow protrusion and bony ridge contact cord without flattening. (C5 also supplies the shoulder muscles and the muscle that we use to bend our elbow).
C5-6 protrusion and bony ridge with cervical stenosis and minimal cord impression. (C6 is for bending the wrist back)
C6-7 right paracentral protrusion with uncinate spur with core impression and compromise right C7 nerve root. (C7 is for straightening the elbow)

White Beard
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   Posted 1/22/2011 9:54 AM (GMT -6)   
mentalcompass
 
One thing you must remember that the nerve dermotones often overlap, and they are not  necessarily precise. Since the the nerves meet and form nerve bundle plex's the impingement of one nerve root can often affect the others that is why the pain might not exactly co-inside with where the damage is really located. I know when I had my first Diskectomy and fusion at C-6/7 my pain was like when you hit your crazy bone really hard in your elbow! You know how that goes down into your hand and makes you hand burn and hurt really bad? Well I had that in both my forearms and hands! and it was 24/7!!! I just could not stand that pain, and I also had trouble swallowing. I was in the military at that time stationed up in Alaska near Fairbanks. I spent close to two or three months like that before they finally found out what was wrong with me, and then they had to take me to a civilian hospital in Anchorage and I had to have emergency surgery!  My one PCP was a Osteopath and he manipulated my back and neck while this was going on, he had me laying flat on my back on a table, and then he took my head in his hands and quickly jerked or twisted to one side!  When he did this it felt like a bolt of lighting had went through my body! I honestly heard  like thunder and my whole body lifted off the table, it was like a was like a gigantic shock that went from my head to my feet, it hurt so bad. Anyway the doctor actually jumped back, and then he said he would never do that to me again. I guess I really scared him! Anyway it wasn't till 3 or 4 weeks after that, that I finally had a mylogram done done at the Air Force base in Anchorage that they finally found what the problem was, I had a massive herniated disk at C-6/7 that was actually broken up and I had free floating fragments of the disk floating around in my spinal canal! The surgeon said that he did not know why I wasn't a quadriplegic the damage was so bad! Anyway since that time I will not let anyone manipulate my spine! In 2009 I again started having similar pain in primarily my left arm and hand, I went to my pain doctor who sent me for test MRI, and EMG studies, and he did Epidural injections, and also made me an appointment with the surgeon. Well my neourologist did not see any reason for me to see a surgeon nor have the epidural injections  and he told me that nothing could be done. I got in a big arguement with him, and I told him I thought he was blowing me off. Well he called my pain doctor, and of course my pain doctor did not agree with him at all!  he also gave me the epidurals, and it gave me about 4 weeks worth of relief, but that was all. I seen the surgeon, and he took on look at the MRI and he said he could help me. That I needed to have a diskectomy and fusion at C-5/6. I had the surgery and as soon as I woke up in my room at the hospital, the pain in my left arm and hand was gone! The surgery worked! And here my neurologist said surgery would not help me!  Not everyone gets the results I did, my first ACDF  in 1985 left me with permanent paralysis of my right vocal cords.  I found that out with my second surgery in 2009!  
 
You are right mentalcompass the cervical area can affect allot of different things in your body, and it is nothing to be taken lightly!  So from my experiences I tend to maybe, be a little over cautious,  but as they say an ounce of prevention  is worth a pound of cure!  And I do incourage you to be very, very, careful  with your neck, as even the professionals can screw your up!
 
I do wish you luck..........White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

finallyreallycrazy
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Date Joined Mar 2010
Total Posts : 105
   Posted 1/22/2011 12:42 PM (GMT -6)   
I have very similar problems....My neck is a disaster zone, but a large part of my pain is in my lower back.  According to my Neurosurgeon, it is because all the nerves that control all the different areas of your body start in the neck.  My neurosurgeon actually "reads" my MRI's himself, not relying on a dictated typed version.  On Feb 3 I am having a corpectomy (removal of the vertabrae and discs with a plastic piece to replace what is removed).  I strongly suggest you see a Neurosurgeon and not a neurologist.  My neurosurgeon is my hero!!!  I have some compression in my lower back, and when I asked him about that and the pain I have in my lower back, he said it was, in his opinion, that it was all related to the problems in my cspine.  I doubted him at first, but when he did my fusion, it really helped the lower back pain as it released the nerves that travel from the brain to the lower back.  Now with this next surgery, he is hopeing that it will give me more relief.  One thing to keep in mind is that if you let it go until you have spinal cord damage (as I did), there are certain things that you will be unable to "get back".  Surgeon told me that the spinal cord will not repair itself.
 
Seriously tho----you should consider the Neurosurgeon approace, they usually can tell you more than a Neurologist....that has been my experience anyway.  They seem to be better educated in what can and can't be done to relive different areas of pain.  I have a godsend of a Neurosurgeon...he explains everything in detail, and it makes sense.  All your nerves do get messages from the brain, so if they are constricted at c level, it very well could be from your neck, not a different area of the spine
 
Michelle








straydog
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   Posted 1/22/2011 3:37 PM (GMT -6)   
I have to agree with WhiteBeard about the chiro treatment. I am not against them, but they seem to do better if this was a muscle type problem which it isn't. If you had a pulled muscle one may help you or he could hurt you further. Its a real crap shoot with those guys. But considering you do seem to have nerve involvment I would steer clear of them at this time.

Some people like neurologists and some don't. I never had any luck with one. A good PCP can order the very same tests that a neurologist can order. Something else I wanted to throw out too, is I have seen specialists review an MRI and say nothing significant showed up on the test and in fact the person had several bugling disc!! But, because there was no nerve encroachment going on in that drs eyes that person was not a surgical candidate he said the MRI was insignificant. I have seen this happen more times than I can count. So, when a person has any type of scans done they should always get a copy of the written report along with a copy of the film. This can be done at the facility where the scan was done at. I have also seen films be read incorrectly too.

Anyway, my 2 cents, lol.
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finallyreallycrazy
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Date Joined Mar 2010
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   Posted 1/22/2011 7:49 PM (GMT -6)   
I have also had plenty read incorrectly at the clinic where the tests are actually done, but that is why I like my Neurosurgeon.  He actually looks at the films himself.  He has had 30+ years experience and has taught many.  I personally really like my Surgeon, but some people may not be as lucky as I have with mine.  I know there are good and bad of every kind of doc.  the first neurologist I had was a joke...my Neurosurgeon actually referred me to the Neurogolist I use now....I really don't know (or at least have't figured out) what a Neurologist is for....I haven't really ever found out any info from one!   If is wasn't for my wonderful PCP and Neursurgeon, lord only knows where I would be today!








mentalcompass
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Date Joined Jan 2011
Total Posts : 127
   Posted 1/22/2011 8:35 PM (GMT -6)   
great advice everyone. i thought they were one in same. i would gladly call the neurosurgeon. What do you think about me going back to the osteo and asking that he order an MRI of my entire back. Or, should I just see the neurosurgeon and ask him? I don't know if the neurologist actually reviewed my MRI himself but I recall he said he did. I know the osteo reads his own reports, I think he did. I'll find a good neurosurgeon, sounds like they know a hell of a lot more. I don't even have a copy of the MRI or the EMG, all I know is that he said he didn't find anything wrong. Clearly there's something wrong and I was shocked that it didn't at least show my herinated and bulging dics, the c-spine MRI showed it. You now, the osteo recommend that I could have some nerve blocking shots if this was bothering me still. Has anyone had those done? Just wondering if they actually work. At any rate, I'd feel better seeing the neurosurgeon. I also get this weird heartbeat thing, curious if anyone else had that. I sometimes get what feels like a surge discharge from the head (could be the neck) that fires through my body. When this first happened, I was lying down and thought someone kicked the back of the sofa. I jumped up and looked around, no one was there, it was actually my body. Sometimes I get twitches that actually move the joint, my left index finger and thumb, it's werid to see. I don't have any loss of strength, I'm working to rennovate a house, but darn does that nerve pain kick in the left elbow and throws the function of my entire hand off. I work around it but it's crazy painful. All this has upped my fear, mainly because I don't know what the hell is actually wrong. My muscles are very stiff and sore. Of all this, I hate the twitches the most, they seem to freak me out beyond reason. I guess it's because I can control pain but I can't control those twitches. I think I'll steer clear of the chiro on everyone's good advice. Something inside me told me to avoid that, otherwise I would have tried it months ago. I'm so anxious to find some answers.....it'd be great to know the source and then I can live with whatever needs to be done to fix it. I wonder why the Xanax works so darn well. I know this pain isn't anxiety, I know the difference between anxiety and real pain. I wonder if it's the impact on the brain or the muscle relaxing quality. Anyone else have good luck with that drug?

mentalcompass
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Date Joined Jan 2011
Total Posts : 127
   Posted 1/22/2011 8:52 PM (GMT -6)   
I have to say Whitebeard, I feel better having everyone's feedback now. I think this neurologist didn't see any motor neuron disease and just blew me off as being a nervous person. That's what he said, he said his staff told him that I seemed like a nervous person. No crap I'm nervous, I'm being tested for motor neuron disease and I'm the main gal for a 5-year-old who needs me very, very much. Who wouldn't freak out in that situation. And I was even freaked out, I was hyper, depressed and anxious to just get the results. I consider that a normal human reaction to a very distressing situation. I just bought an old house that needs a grip of work too, our business is slow and I've been living with family where I get help each day. When I move, I don't get that help anymore. With all these medical things hanging out unresolved, my stress level is high, naturally, I'm only human, I have got crap coming at me 24/7 from every direction. All I wanted was an answer that would ease my mind and give me a clear course for forward movement. I can tell you one thing, the problem isn't getting any better, it's not getting worse, at least I don't think so, but it's here to stay and I am worried that this is doing permanent damage. I'm three months into this and it can't be good for the long-term function of my extremities, in particular that left arm. I'll find a neurosurgeon and I'm going Monday to get a copy of my file from the neurologist. Whatever is going on here is abnormal and I know it's causing long-term damage, I can tell by my new physical limits. I can't tell you all how much I apprreciate the support. And as far as I could tell from my c-spine MRI, the results were significant: cervical stenosis and cord impression, bone spurs with nerve compromise. How can that NOT be something that requires intervention?

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3695
   Posted 1/22/2011 11:11 PM (GMT -6)   
mentalcompass
 
I know this is a frustrating and trying time for you, not to mention a painful one. But as trite as this might sound,  hang in there mentalcompass, and keep fighting to find out exactly what is going on. If your not satisfied with a doctor go to another. And come here and vent your frustration, and know that you are not alone, we are all here for you.
 
I do wish you well mentalcompass
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

mentalcompass
Regular Member


Date Joined Jan 2011
Total Posts : 127
   Posted 1/23/2011 8:14 AM (GMT -6)   
Thanks again Whitebeard. I won't give up, I can't really until I get answers. I come home after working on that house so sore and tired, shower and jump on here and vent, it does feel good. No one who doesn't have pain wants to hear about yours so I don't say anything, I just act normally and don't complain. I appreciate you letting me come here and blow off steam.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16295
   Posted 1/23/2011 1:14 PM (GMT -6)   
Mental now is a good time to start getting copies of all of your records so you don't forget someone you may have seen. If you are ever asked why you want copies just say that you keep a personal file of your own at home. You can call where you went for the MRI and alert them you need a copy of the report and the film and they will get those ready for you and tell you when they can be picked up.

You mentioned injections, yes a lot of us have done the injection thing and there are many different kinds of those too. You will get a mixed bag in results from various members if they help or not. Its a crap shoot sometimes they work and sometimes they don't. There is no guarantee they will work. Its kind of like the medication thing, what may work for me may not do a thing for you. I have done trigger points which work great for me on severe muscle spasms. I also had the radio frequency nerve ablation done for both my neck and my back. It worked great for my neck but did little for my back. But, before going there you need to know what is wrong with you first. You mentioned seeing an osteo is that correct? Wasn't he the one that mentioned injections?

You do appear to have a lot spurring on your MRI and yes it will cause a lot of pain. Some neurosurgeons will not do surgery on a patient with spurring going on unless there is nerve related problems. I saw at one level stenosis which is narrowing. I have seen people with stenosis have a herniation not picked up by the scan because of the stenosis. I would not worry about the EMG not showing anything, that happens a lot, in fact I have seen more normal EMG reports than I ever saw that were positive for findings, they are not a 100 percent accurate test either.

I think I would find myself another neurosurgeon for another opinion. Don't stop looking a WhiteBeard says. He would probably be dead by now if he had not been persistent in getting medical help. He too was told there was nothing wrong with him when they were so far from the truth. I would do my homework on picking out a new one. A lot of times hospitals will have a referral line that you can call and they will give out names and numbers of specialists.

Keep us posted on how you are doing.
Moderator Chronic Pain Forum

mentalcompass
Regular Member


Date Joined Jan 2011
Total Posts : 127
   Posted 1/24/2011 8:42 AM (GMT -6)   
I'm going to make an appointment with a guy named Dr. Eric Trumble. He sees kids and adults and he has 5-star rating (only from 11 patients) on healthgrades. There's a few other choices too. By the way, the neurologist I told you about, he has a 2-star rating on healthgrades! I'll call to get copies of my records today. Going to accpuncture at 10:45 and then back to work on the new house. I actually feel better if I'm moving, not sitting, which seems pretty strange but I'm guessing it has something to do with circulation and keeping my mind busy with distractions, probably the later. :)
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