Posted 1/24/2011 6:26 AM (GMT -6)
I have Stage III Arachnoiditis. I never thought that the body could experience so much pain. I take 3-60mg of Morphine a day and 3 5/325mg of Oxycodone a day. I get 90 of the Morphine and 120 of the Oxycodone as I can take two of them if needed, but I don't do it. f I am having a good day, I don't think about taking any of them, but late on in the day, I pay for not taking them, as I try to do things I cannot do on a bad day. My doctor said not to take them that way and not to wait until the pain starts getting bad. I never have a complete day without pain. There is no cure for Arachnoiditis. I do not get good care as I go to the VA for treatment and because there is only one way to get Arachnoiditis, they won't recognize it. I have Arachnoiditis, Neurogenic Bladder, Cauda Euina Syndrome, Gastro Paresis, Paresis in my legs, Incomplete Paraplegia, Paralytic Ileus, Loss of Female Function. Before they found I had Arachnoiditis, everything was going with my body and I wound up having 7 major surgeries, then they realized I had this horrible incurable disease after everything is gone or affected. Now they are pretty sure that I have Lupus and am going through a very bad outbreak of these hive like bumps. I am also now a Diabetic . I have these funny shaped tumors or cysts growing on my body and most right along side of my spinal cord, from my head, neck and dow n to the talbone. I have complained about them but nothing has been done to even see what they are. Like I said I go to the VA.
I just hope that none of you have this disease and condition. My story goes back to 1972, but I did not want to bore anyone with all the awful details of what the doctors did to me.
I wish for all of you a blessed day.