PUDENDAL NEUROPATHY QUESTION

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TTaylor
Regular Member


Date Joined Nov 2010
Total Posts : 102
   Posted 1/31/2011 1:58 PM (GMT -6)   
I have severe rectal and perineum pain. Have been through a robotic prostatectomy with disappointing results and now I have severe lower pelvic pain. Been to 2 urologist, 1 gastroenterologist and now a neurologist that specializes in pain therapy. I have studied the symptoms of pudendal neuropathy and I have every symptom. I also understand there are few surgeons that do this type surgery. I am wondering if someone out there has a similar circumstance and can make any recommendations.
TTaylor

Chutz
Forum Moderator


Date Joined Jan 2005
Total Posts : 9249
   Posted 2/1/2011 1:20 AM (GMT -6)   
Hi T!

Obviously I can't reply from experience wink but I do know that your type of pain can be unbearable. My father had pc and his pain broke my heart. Even with pain patches we could barely control it.

Are you on pain medications? IMHO, you should have the full benefit of any pain therapy that's out there. Another thing we mention to people who join in our Chronic Pain family is that sometimes going to a pain psychologist can be helpful. Dealing with pain 24/7 can easily push any of us to the brink. Often having someone to talk to who has other ideas on how to handle the pain can help.

Another thing...do your doctors understand the amount of pain you have? If not there are good ways to get across to them.

I will ask in my prayers that you find some relief...and soon!
Chutzie
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.

"Gravitation is not responsible for people falling in love." Albert Einstein

TTaylor
Regular Member


Date Joined Nov 2010
Total Posts : 102
   Posted 2/1/2011 1:26 PM (GMT -6)   
Chutzie
How thoughtful of you to respond. I am currently seeing a neurologist pain specialist and he gave me a lower spinal injection that took away the emergency room pain, however, the regular pain still exists and I take hydromorphone and valium for that. Hopefully I can get to the bottom of this delima and get on with living. I really question whether or not my drs know how much pain I am having but I have tried to express it to them. One thought it may be psychological but I assure you it is the real thing. Looking for brighter horizons.
TTaylor
Age 67. Robotic prostatectomy 10/26/2010, due for RT in Janury 0f 2011. Eight of 12 lobes positive. Gleason Score 4+4=8, Margin envolvement was present with adipose tissue invasion and perineural invasion, glandular and stromal hyperplasia present,pT3 pNO and no evidence of metastatic adenocarcinoma. 1st psa after surgery Nov. 24, 2010 was .3
HT started Nov. 24, 2010.
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