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gmmaddox
New Member


Date Joined Feb 2011
Total Posts : 4
   Posted 2/7/2011 2:23 PM (GMT -6)   
Hello, I am new to this forum. I would like some input about the role of Pain Spesialists in treatment of chronic illnesses and Chronic Pain Syndrome. My conditions are Chronic Hep C, insulin dependent diabetes, fibromyalgia, cirrhosis, degenerative disk disease, bulging and slipped disk, advanced osteoarthritis of spine, knees and hands. I am about to have a total knee replacement(as soon as it can be scheduled).  I also suffer from severe neuropathy that is totally destroying my quality of life. In 2006, a General practitioner sent me to a Pain Specialist. He(pain specialist) was actually amazed that I was even able to be on my feet. He wanted to start me on Fentanyl patches. He sent my GP that recomendation. My GP(who promised me that whatever the Pain specialist said would happen for me, never even went over the report. Last week, I asked him to read the report, and he read it, and then looked at me,and still denied me anything for pain. Every now and then he trys to give me Tramadol, but because of the cirrhosis, I am hesitant to take, He also trys to give me NSAID's, which caused an esophogeal bleed, and I even told him my hepatologists said they are bad for my liver. It is like my Dr. here, just isn't getting the picture. I am at my wits end, and am getting depressed about this. I am still trying to work part time, even though I am in constant pain. What should I do? The only meds I take are Synthroid, Insulin, and Lyrica.
 
 
 
(added a title to your topic)

Post Edited By Moderator (Dani Henson) : 2/8/2011 10:59:21 AM (GMT-7)


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 2/7/2011 2:32 PM (GMT -6)   
Wow, you have an awful lot going on! First, welcome to the board. Second, it sounds like you may need some new Dr's. I can't even imaging not having any pain relief. Perhaps a Pain Management Clinic can help. They do not need to go through your GP to prescribe meds and can manage your meds for you.

If your last pain specialist visit was in 2006, it is WAY past time to go see someone. They will need to reassess your situation and go from there.

I wish you all the best.
Failed fusion L5-S1, Pituatary damage, HGH Def, Fibro, Bladder surgery failure, Nissen Failure, GERD, OCPD, GAD, MDD, CTS (Bilateral Surgery completed), CFS, TMJ, Migraines, Vit D, A, Magnesium deficiency, Pre-glaucomic (sp?), HBP, Idiopatic Reactive Hypoglycemia, Edema, too many Drug/Food allergies, sensitivites, and current meds to list.

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1560
   Posted 2/7/2011 4:07 PM (GMT -6)   
I also want to welcome you to HW. It's sad that you have to join us here and while this group is as diverse as the changes in the weather, we all have one thing in common....Chronic Pain. It's strange how one complete change in a person's life can make them totally dependent on our families and each other for answers.

Anyway, though I have nothing to offer for answers....I just wanted to stop in and tell you to hang in there things will hopefully get better and also wanted to welcome you to the family.

Scarred
I live to "Tame My Pain!" 

gmmaddox
New Member


Date Joined Feb 2011
Total Posts : 4
   Posted 2/7/2011 7:43 PM (GMT -6)   
Thanks for the input. I live in a very remote area in Canada and I have to travel 10 hours (one way)just to see my specialist. We only have Doctors in my little villege, that are from South Africa, and they rotate amongst themselves-only staying for 3 months at the time, and then the next group come here. There is no continuity of care. My neurologist wants me to be in traction and see if physio would help my back, but it has been 4 months since she asked for that, and Physio has not even started, and I can't even get a call back. Today I started a 5 Monday workshop entitled "Self Management of Chronic Illness" in hopes of picking up some useful information. Although I am terribly sorry that any of us need this site, it is really good to have a forum with people that understand. At the workshop today, everyone was asked to tell what their chronic illnsee was. When my turn came, I was so overwhelmed to say it all out loud, but I did as asked. It seems as if when I say it all out loud, that it becomes more real. It feels like I am stepping outside of myself, and listening to "some stranger" say all these conditions that I have. It is so surreal. Everyone asks me how I keep on going, and I really don't know myself. But really, what choice does a person have in this situation? I get up every day in gratitude that I am still able to carry on. My faith in God is strong. God Bless you all.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16787
   Posted 2/8/2011 12:15 AM (GMT -6)   
GM I think I responded to your initial post in another thread. Thank you for making your own post so everyone could see it and respond to you. I am so sorry to hear that getting medical care is a real problem for you. It is terrible that anyone this day and time cannot have good access to medical treatment.

I am assuming it would be next to impossible to get referred to a specialist that could oversee your care. I do hope something can be done for you soon. Take care and keep posting to us here at the forum.
Moderator Chronic Pain Forum

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/8/2011 11:20 AM (GMT -6)   

 

    

Dear Maddox,

     Good morning. My name is Dani and it is very nice to meet you. You have come to a great place for friendship, support and knowledge. As you can see, we have many people, from many walks of life. Each suffering from disabling chronic illnesses of some kind. What brings us together is pain. So, welcome to the forum.

     One thing that many struggle with is finding the right doctors and specialists to meet our needs. Many of us (myself included) have to travel hours to see our physicians. If there is any way at all that you can see a doctor in a stable clinic, it would be worth the travel time. You have many conditions that require a heck of a lot more care and attention than you are getting. Is there anyway for a pain specialist to keep you on as a patient, instead of sending a recommendation? Many here see pain management doctors long term to manage all aspects of their pain.

     It was very hard for me to read through everything you have wrong physically. I am shocked you are not given access to proper pain control. Any one of your conditions would bring a grown man to his knees. Let alone so much for one person! I do not know how you deal with so much, yet remain optimistic. I think we could all learn a lot from you.

     Again, it was very nice to meet you. I hope you are able to rest somewhat today. I can imagine you days must be very hard.

*hugg*
  dani

     


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

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