Results of my second opinion eurodynamics apt today

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Retired Mom
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   Posted 2/8/2011 9:28 PM (GMT -6)   
Well I'm back from my appointment and glad to have that part over.  They found very serious leakage and determined....and I qoute..."your last surgery was a failure".  Ok, now that is funny in a way, because I kind of figured that out when I started leaking urine down my leg and that is why I sought a second opinion.  He was very nice about everything and wants me to go have a CT done to test for a fistual before we schedule the surgery.  It looks like surgery date will be the 14th of March and he will be doing a different kind.  I'll have to stay in the hospital over night for this one and perhaps be released with a catheter, but it should fix the problem.  He thinks one of two things occurred.  One was that the surgery was improperly done and the position of the supports was all wrong or two that the surgery was Ok, but that it popped and has now failed.  I'm inclined to believe a combination of both since I told the last guy exactly when I felt the internal pop and that a gush of urine was immediately released.  He only wanted to give me some kind of overactive bladder medicine, but they determined today that I DO NOT HAVE overactive bladder....just a "really bad leak".  At least the Dr had a good sense of humor about the whole thing and believes he can fix it.  That part makes me really happy.  The new surgery does not!  If it turns out this one was from Dr error, I'm afraid I'm going to have to do something this time to see if I can hold him accountable.  I'm sick of unqualified surgeons giving patients a line of BS and doing surgery that makes them worse than when they started.
 
Please don't get me wrong, I don't blame my back surgeon...he did the best he could, despite the bad outcome.  I also didn't blame others who had little success, but I do blame this guy for not fixing what he knew was wrong.  He has known this was a failure from two months out and he has been charging my insurance company some serious charges for things that were not done or were not done the way he described them.  He also cut away the internal vaginal tissues before sewing me back up and I am furious about that!  I don't believe that was his call to make.  He was supposed to do what he called a simple 15 minute procedure that would stop stress incontinence and leave me feeling like new.....yeahhh right!
 
Ok, so I'll stop fussing now and get on with the next test and the next procedure.  I'm also scheduled to see the cardio dr and the endo within the next couple of weeks, so it will be crammed full of apts and lovely procedures.  I'm also sure I'll be having another upper endo done asap.  I've had a ton of them, but I hate that feeling of groggy with a sore throat that comes later.  Fun, fun, fun!!!
 
I hope everyone else will have a slower dr pace and less going on for the next month or two at least.
Failed fusion L5-S1, Pituatary damage, HGH Def, Fibro, Bladder surgery failure, Nissen Failure, GERD, OCPD, GAD, MDD, CTS (Bilateral Surgery completed), CFS, TMJ, Migraines, Vit D, A, Magnesium deficiency, Pre-glaucomic (sp?), HBP, Idiopatic Reactive Hypoglycemia, Edema, too many Drug/Food allergies, sensitivites, and current meds to list.

Alcie
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Date Joined Oct 2009
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   Posted 2/8/2011 10:33 PM (GMT -6)   
Mom -
For your next endo, if you need sedation ask for propofol and nothing else. That's what I get and I come out of it wide awake and not fuzzy at all. I routinely refuse Versed (midazolam), the drug used most often (aka "a little something to help you relax"), because it does nothing for pain, only gives you amnesia. You hurt but don't remember it. I've heard people getting colonoscopies screaming and been happy I refused the sedative they got.
I would take nothing at all, but I have such an awful gag reflex I can't hold still enough for them to do the procedure. I used to do colonoscopies without anything too, but since my fundoplication I'm afraid of pushing so hard I cause more herniation.
Alcie
 
 

Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 2/9/2011 3:02 AM (GMT -6)   
Thanks Alcie. I had never thought to ask for anything other than Versed. I'm still learning here and, although I've had quite a few of these done, I think they should consider knocking me out as much as possible since my gag reflex is so bad. When they tried to do the last esophogeal motility study, they had to stop because I vomited every time they got near me and even after they had the thing in I couldn't stop. They finally gave up and said it could not be done. Even thinking about it now makes me want to gag.....

I appreciate the advice!
Failed fusion L5-S1, Pituatary damage, HGH Def, Fibro, Bladder surgery failure, Nissen Failure, GERD, OCPD, GAD, MDD, CTS (Bilateral Surgery completed), CFS, TMJ, Migraines, Vit D, A, Magnesium deficiency, Pre-glaucomic (sp?), HBP, Idiopatic Reactive Hypoglycemia, Edema, too many Drug/Food allergies, sensitivites, and current meds to list.

Screaming Eagle
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Date Joined Sep 2009
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   Posted 2/9/2011 11:52 AM (GMT -6)   
 
   Hello retiredmom!
 
          I sure hope this time will do the trick. You have been dealing with this forever it seems.
 
   Good luck to you, and be sure and post the results for us! We want to hear a success story on this.
 
  SE wink

straydog
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Date Joined Feb 2003
Total Posts : 16764
   Posted 2/9/2011 1:55 PM (GMT -6)   
RM, glad to hear the appt went well and you like the dr and feel confident with him. That's half of the battle right there. Hope the rest of your tests all go well so you can get your surgery done and on the road to healing. I am glad to hear they will keep you over night. As bad as we all hate being in the hospital, I am one that believes any time surgery is involved 24 hours in one is a good extra measure. But, they don't seee it that way, they are too busy with cutting costs at our expense.

Keep us posted on how things are progressing along. I, like you, have always had Versed and something else mixed in when having colonoscopies and endos done. I have always done very well and never had a problem with the Versed. Take care.
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Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 2/10/2011 10:30 AM (GMT -6)   
 
    Dear RM,

     Good morning! I cant believe I missed this post  smhair   So terribly sorry I am late responding.

     Goodness, it was good to know you were treated with respect and the doctor is more than willing to fix the problem completely. You know when  you first came out of the hospital after the first surgery you knew something wasn't right. I hard to read how badly you were treated. With such callus disregard. It was like no one wanted to take responsibility or even acknowledge what had happened. It was such a relief to hear that you are finally going to have the mistakes reversed.

     I hope you are able to rest up today. More so, I hope that this time, is the last time, you ever have to go through this. You are in our hearts and prayers.

*hugg*
   dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

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Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 2/10/2011 11:22 AM (GMT -6)   
Thank you all so much for your kind words. I'm really hopeful this will do the trick and I can close that chapter and begin a new one. I'm ready for these medical things to slow down. As I'm sure everyone here knows, when you get one thing under control, it seems another one pops up and of course, the co-pays and deductibles are there to go along with anything new done. At least Medicare will kick in as secondary some time close to the end of the year. That's probably when I'll be able to stop the insanity of my Dr visits.

Either way, I appreciate you all and will keep you up to date on this as something new occurs. I have one more test (a CT with contrast) and then the procedure on the 14th of March. With a little luck, a good surgeon, some Pain Management and a lot of prayer, it should just be a quick recovery and then back into the swing of things with life.


I hope you all have a wonderful day and your pain stays at your lowest level :)
Failed fusion L5-S1, Pituatary damage, HGH Def, Fibro, Bladder surgery failure, Nissen Failure, GERD, OCPD, GAD, MDD, CTS (Bilateral Surgery completed), CFS, TMJ, Migraines, Vit D, A, Magnesium deficiency, Pre-glaucomic (sp?), HBP, Idiopatic Reactive Hypoglycemia, Edema, too many Drug/Food allergies, sensitivites, and current meds to list.
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