I am sorry but I do not have many suggestions for you....but I did want to welcome you to our forum. My daughter is 22 and has been through most of those same tests a couple of times. It all started around 17 for her. She spent so much time in the hospital and had so many procedures and went so long suffering without any answers. They are calling it IBS now, but not sure if that is really the case! They are pretty sure she has celiac disease also....but when they did the test she had been eating things that were gluten free so it did not show positive on the test! It would not explain the e-coli, but have they checked you for celiac disease. It is an intolerance to gluten and it causes a lot of pain and damage to your lower intestine!
I am very sorry that you are suffering so bad! The one good thing is that you found us! This is a wonderful place with many caring people!
Hoping you get some answers soon!
Rheumatoid Arthritis, Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus
Medications - MS-Contin, Plaquenil, Cymbalta, Famotidine and currently Prednisone