Everyone convinced pain will be gone from Hytorectomy

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 2/13/2011 7:02 PM (GMT -6)   
Hello,  New to Forum..Have chronic pain and everyone is convinced that if I have a hysorectomy that my pain wil magically dissapear, I am not convinced,have had rectum and vagina reconstructed 6 times, have Chrons desease, interstitial cystitis, pelvic floor tention myalgia and severe, severe scoliosis and a colostomy.. I think the Hystorectomy will help with the pain and pressure but I do not believe that all my pain will disapear after 10 yrs!  My pain Doctor is talking about taking me off everything after the surgery! What is going on?

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16788
   Posted 2/13/2011 7:45 PM (GMT -6)   
Hello and welcome to Healing Well's chronic pain forum. Wow, sounds to me like you need another opinion with another dr. What kind of dr is telling you that you will be pain free if you have a hysterectomy? Just what is he basing this thought on too? Does all of his patients become pain free after having this surgery? I doubt it. Sometimes, a hysterectomy can decrease back pain but to make it totally go away no, it didn't mine. I am really surprised that your pain mgt dr is in agreement and wanting to take you off of all of your meds. Have you had any problems with these drs that would warrant them wanting you off of medication? I am just asking questions because I really do not know what to think. For whatever reason they seem to think they have the magic cure for you.

I am sorry that you are going through the stress of now having to deal with this issue, but I think if it were me, I would be lining myself up with another opinion as soon as I could. Please keep us posted on how you are coming along. Take care.
Moderator Chronic Pain Forum

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 2/13/2011 8:40 PM (GMT -6)   
Thanks guys for response. This pm I have seen for a year and he has been pushing hysterectomy the whole time, thinks it is what I need, am also convinced need new doctor but am under contract as some of you may understand
To answer Veteran member as far as what I am on, to you all it may be alot but I came down from 200 mg of fentynal to 100mg and percocet as needed 5mg. I was on 30 mg 6 times a day! I and pm wanted to decrease me to prepare me for surgery. But he is ready to take me off everything after surgery! It scares me because at least the dose I am on I can function, if surgery does not take pain away will not be able to! I do not know, just stressed and scared of pain. I have been with dr for a yr and have not done anything in past to warrent him to remove me from all meds, I followed all the rules. He just feels I am on too much when I think back over the last 10 yrs I was on so much more, I feel that I have triumphed by cutting meds in half.

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 2/14/2011 5:52 AM (GMT -6)   
Hi ljb,

I don't have an answer because your area of pain is very different than mine. I do have bladder issues, but then again, many (if not most) women do after having children or even after just getting older. This is such a tiny thing compared to what you having going on.

I don't understand the "I can fix it all with surgery" philosophy because we never know what the outcome of surgery is until it is done and the healing period is over. Even my carpal tunnel surgery left lasting pain in the hands. I think it will mostly heal within a year or two, but pain remains. It's the same with the back surgery that left other pain. It stopped the nerve pain, but the pain left requires way more meds than I took before.

Please be careful of these Dr's who say they can fix it all with one surgery. That is the time to get a second opinion for sure. If I had done that the first time instead of listening to the man who said how simple it would be to do my bladder surgery, perhaps I wouldn't have been left with doing it again next month by a specialist.

I'm sorry I can't give more helpful adivce, but I did want to take the time to respond and give you some support. I'll be looking for your next post to see how you are doing and what your decision is.

All my best!
Failed fusion L5-S1, Pituatary damage, HGH Def, Fibro, Bladder surgery failure, Nissen Failure, GERD, OCPD, GAD, MDD, CTS (Bilateral Surgery completed), CFS, TMJ, Migraines, Vit D, A, Magnesium deficiency, Pre-glaucomic (sp?), HBP, Idiopatic Reactive Hypoglycemia, Edema, too many Drug/Food allergies, sensitivites, and current meds to list.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16788
   Posted 2/14/2011 1:01 PM (GMT -6)   
Normally the contract states that you will receive pain medication from one dr only, use one drug store and that sort of thing, it should not prevent you from having a second opinion. I can tell you right now, if surgery is ever recommended a person should always get at least a 2nd opinion and maybe even a third. You just cannot be too careful when it comes to surgery.

When a dr comes across as yours has with this fix it attitude I would run as fast as I could away from him. Jeesh, if hysterectomies fixed all back pain they would be operating 24/7 fixing a lot of people, lol. I am not making light of this, I just think the dr is too full of himself and because you signed a contract does not mean he has total control over you. Does he also have a surgeon in mind to do the hysterectomy?

Kudos to you on the reduction in pain medication. Take care.
Moderator Chronic Pain Forum

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 2/14/2011 2:19 PM (GMT -6)   
Surgery is set for Friday, have gone to 4 colorectals to do surgery but because of so many complications this is the only dr that would do it...But they all agreed I needed surgery..

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16788
   Posted 2/15/2011 1:51 PM (GMT -6)   
Wow, I don't think any of us was aware you had already had all of these different opinions. I do hope that after your surgery you will come back and let us know how you are doing. Do these 4 surgeons feel like having the surgery will take away all of your pain? Best of luck on Friday. Please take good care of yourself.
Moderator Chronic Pain Forum

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 2/15/2011 8:58 PM (GMT -6)   
Hey Staydog, thanks for response..still learning to use forum, hope I was not too personal just really nervous about surgery. To answer your question, all the doctors I have seen believe the surgery will help, they are doing not only a hystorectomy but "cleaning up" from all the previous surgery's, scartissue etc. I think it will help but do not believe will take all the pain I have away, I am looking now for a new PM, if I stay with this one I will not be able to function w/o some pain relief, Sorry, tylenol just aint gonna cut right?

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 2/17/2011 3:50 PM (GMT -6)   


Welcome LJB....and first things first....You are never to be forced into surgery....EVER!! If you decide to do it then fine, but just because a Dr. says so doesn't mean it's right for you... So don't worry..and if you don't want the surgery tell them

And second....it won't magically take the pain away...not with all of your pain...WOW!!! What a life you've had so far...it will get better...you have been through so much...physically and I'm sure emotionally too....So don't beat yourself up...You are very BRAVE...

I look up to you for all that you have been through and here you are...still strong....looking for answers and help...Amazing....

If you need to talk I'm here....my email is on my profile...

Rhonda

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16788
   Posted 2/17/2011 5:57 PM (GMT -6)   
Hey LJB, I am with you, I do not think Tylenol will cut it either. By chance is the surgery that is set for Friday can it be done by laproscopic or will they be doing a full blown incision? Our thoughts and prayers will be with you Friday and when you are up to it and feeling better, please let us know how you are doing.

Don't worry you will get the hang of it getting around the forum, you are doing fine so far.
Moderator Chronic Pain Forum

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/19/2011 11:06 AM (GMT -6)   

 

   Hi LBJ,

   Just stoping by to let you know that we are thinking of you and hoping you are doing ok. Please know, you are in our hearts and prayers!

*hugg*
  dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 2/21/2011 1:47 PM (GMT -6)   
Just got back from Hospital and as I had thought, pain was hard for them to get under control, Finally was given upperderal? and daulaudid every 10 mins, but only have small amounts of meds at home, so just tring to deal with that. But all and all feel pretty good, actually slepa ll night only got up oce! that is a good sign! Thasnks for all the support and sorry so dramatic, I just hate surgery

6 reconstuctive surgers on rec/cag
interstitial cystitis

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16788
   Posted 2/21/2011 2:55 PM (GMT -6)   
I am so glad to hear from you after surgery.I am sorry you had such a rough time at the hospital in getting the pain under control. You say you have a limited amount of pain medication to use at home, please don't let yourself run out and your pain get out of control. Its just not fair your drs pulling this stunt. Please don't let yourself run out of pain medication, call your drs office and tell them you are in pain and need a refill.

Please keep us posted on how you are doing.
Moderator Chronic Pain Forum

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 2/21/2011 3:01 PM (GMT -6)   
I agree but my PM is such a jerk, he is new..I am just going t gto back to my old one he is closer..I went to this guy because he is my shrinks brother and they share an office. His secretary said he is like this to everyone even her and she also stated was surprised he had a business. very possible will run out of painmeds, not sure what to do then...

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16788
   Posted 2/21/2011 3:05 PM (GMT -6)   
Hey can you call your prior PM dr and get in ASAP? What about your PCP would he cover you with enough meds till you can get in with your old PM dr? This is just not right you need help. Try to make some phone calls on this.
Moderator Chronic Pain Forum

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 2/21/2011 3:07 PM (GMT -6)   
I hope so. That is my plan...to beg and beg! very good at it ya know!

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 2/26/2011 4:49 PM (GMT -6)   
Finished surgery all, pain does not seem to be better, but still early!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16788
   Posted 2/26/2011 5:07 PM (GMT -6)   
Hi, glad to hear from you. Were you able to get any pain medication from your dr? Please keep us posted on how you are doing. Take care.
Moderator Chronic Pain Forum

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 2/26/2011 6:53 PM (GMT -6)   
no I was nt able to, I am going to have to find new PM.

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 2/27/2011 12:39 AM (GMT -6)   
You had surgery? But the Dr. wouldn't give you any pain meds????? That doesn't sound right....Sorry..but I just can't believe a Dr. would leave you hanging after surgery...

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 2/27/2011 3:33 PM (GMT -6)   
I got my regular dose just no more..see PM for last time on the 8th..

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16788
   Posted 2/27/2011 3:43 PM (GMT -6)   
That is just nuts. It sounds like your current PM dr is one of those that only wants to do injections and procedures-no medications. There are two types you know, so when looking for the new one, be sure to call and ask if the dr will write scripts for meds if he feels they are warranted. This is a perfectly good question to ask when calling, it will not make you look like a druggie. Check with your insurance to see who is available in your area.

Take care.
Moderator Chronic Pain Forum

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 2/27/2011 3:52 PM (GMT -6)   
Thanks Staydog, doing better, just trying to control pain..I admit a bit of the pressure is gone but not that chronic pelvic and back pain. I really did have hidden hopes over surgery, but low expectations. Will call around and find a new doctor and ask what you suggested..
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 22, 2018 12:08 PM (GMT -6)
There are a total of 3,005,679 posts in 329,251 threads.
View Active Threads


Who's Online
This forum has 161796 registered members. Please welcome our newest member, Crispy Mango.
240 Guest(s), 8 Registered Member(s) are currently online.  Details
Michelejc, Titanium-Girl, BossJ, mibella, sebreg, Hoagie, F8, kittytalk371