New Topic Post Reply Printable Version
[ Missing Key Value : en-US, 709 | Missing Key Value : en-US, 708 ]

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/15/2011 12:50 PM (GMT -6)   
 
  I keep meaning to post an update. A lot has happened. So, I am going to just cut and past emails I sent to Mrs. Susie and Mr. Michael. My fingers are terribly tender and I am unsure if I could type it all out again.
 
*warm huggs*
    dani
 
     I had my MRI. It had to be done in stages. The first stage was last Friday. When I arrived I was told the air conditioning system for the MRI machine was broken and the MRI was reaching 90 degrees. I told him I could reschedule but he said he had called a repair men that would be there any minute. We did get the lumbar done, but when we were finished he said the MRI machine was up to 98 degrees and that he needed to shut it down or he would risk damaging the equipment. He seemed frustrated with the repairmen, but.. I mean we had been in the middle of a freak winter storm system that apparently was effecting many states, not just ours. He wanted me to wait, but I just told him I was tired anyway and we could reschedule. He got me in for early afternoon on Monday.  Monday we got the other 2 done. I did look at the copy of disks they gave me... But I wasn't really sure what I was looking at.
 
    Friday I went into my spine specialist and she had a model spine set up to explain what was happening. My primary Levoscoliosis (the largest one that spans my lower thoracic and all of my lumbar. T10-SI) has increased again. Not by a lot. I am still within the "moderate" classification of cobb angle (45* degrees). Another 10-15 degrees before I reach "severe", so that is good. There is an increase in degeneration that reaches up to the lower thoracic now (T9-SI damage). The new damage is termed "moderate" but none of it is severe (damage because of the angle of the curvature / rotation on the verical axis). My discs all still look good. Narrowing, bone on bone, protrusions.  Stenosis (narrowing) of the lower lumbar canal as well, but it isn't severe. Sclerosis (hardening) at the very bottom of my lumbar but it is mild. The dextroscoliosis (thoracic only T2-T9) has no notable increase (22* degrees). It is classified as "mild" cobb angle. Mild degeneration at the top of the thoracic. The discs look good. Narrowing of disc space of course but that is all. All of the rest of my spine looks okay, either mild or not worth much of note. Secondary compensatory curve has no increase. Those develop as a "defense mechanism" of the spine trying to re align.  It is "normal" for progressive idiopathic scoliosis. So, all in all it does look like my spine is holding up okay, all things considered.
 
     There was something strange that had concerned the radiologist. A "mass" that was picked up in the thoracic MRI. They are unsure where it is exactly. They said that it looked like it was on either my liver or my pancreas. They sent her the film and findings. They included this "mass" in the findings report of the thoracic set of images. She already has an appointment for me to see my Primary Care on Monday afternoon at 1pm. He knows what is happening and will explain more when I see him. She said they are setting up a CT scan as well. When I asked why the rush she said it was a "large mass" that needs to be investigated.
 
    With regards to my spine I can see a surgeon at any point now. It isn't something that I am prepared to do. I told her why. With the girls this young, us needing a new home and needing to have family from ******* help if we did... I would like dodge surgery as long as I can. She completely understands and also feels it is best for me to wait as long as possible. If at any point I change my mind,  she will set it up a consult for me. She does want to increase my meds. She feels that muscle relaxer needs to be increased and that inflammation is also causing a lot of my problems. The unusual wear and angle increases are to blame. I decided to give these med increases a try. If I can avoid surgery for a little while longer that would be good. At this point I am willing to try anything.
 
   Well, this email turned out to be a small novel. Yikes!
 
*hugg*
  dani
 
   Yikes, today is Tuesday the 15th.
 
   I have all the best of intentions of mailing this... then I get busy with another task or appointment. *sigh*  Well, I saw Dr. *****, my primary care, yesterday. They are setting up a CT scan. He isn't sure what all he will scan since I have reached my max out of pocket for the year. He will be able to get me in the new health center near my house for the CT, thank goodness. I have had tenderness just below my ribs on my left side abdomen since last fall. I had been going to him thinking perhaps I had urinary tract problems... Since there was always a small amount of blood in my urine each time, I was put on antibiotics. We were a bit skeptical from the start on the urinary tract problems. My Hypoparathyroidism (it’s a bit rare) effects many parts of my body. My muscles, brain... and my kidneys. In any case, he is on the case! He will get to the bottom things.
 
     I was supposed to get my teeth removed and sent to the lab yesterday, but I was not able to due to the new appointment with Dr. *****. Today, I have to drive into *********** to the ************* ******* center to see my Endocrinologist. I have a massive increase in my Tetanic contractions. They are often in my feet, arms and face. They are frustrating and make the muscles that quiver feel tired. They contract for hours and sometimes days. I look so silly when it happens! In any case, the contractions that happen in my throat are the bad ones. As are the deposit increases in my blood (calcium. It effect brain and heart). I am not sure what he will want to do. With a little luck and a lot of prayer, maybe he can fix it easily. ..also, I have relapsed on soda pop. No one is going to be happy about that. My oral specialist nor my endocrine specialist. I didn’t mean to. At the time, I just thought well maybe one wouldn’t hurt.. Now I'm guzzling 4 to 5 a day.  
 
     Ahh! My teeth! I will have to have them removed and send them off tomorrow morning. Yikes! I will be toothless for a few days. I know! I have more important things to worry about other than vanity.... Still, I hate to be without them for that long. I feel really uncomfortable without them.
 
    All of my meds were doubled or tripled. I am having a hard time concentrating. The baclofen and amitriptyline are the hardest of them all. *** **** amitriptyline is a hard adjustment. The increase in the nabumetone is messing with my tummy, but other wise okay. The baclofen is ....is very gosh darned hard too. I am hoping the increase in steroid, NSAID, muscle relaxers, opioids and antidepressants will work. In the mean time, it is going to be a really long week trying to adjust to it all. There is no slow increases to reach dosage this time. Double or nothing I guess. I hope more than anything the increases will keep down the inflammation and slow down the rate of damage. I am already at 45* degrees cobb angle in my largest deformity. My primary progressive levoscoliosis (T10-SI) is the larger one. We need to slow this down because if we don’t I will have no choice but to have the surgery done.... I am however really glad my dextroscoliosis ( T2- T9) has not progressed. I mean, everything else is changing, but the deformity that has worried me the most is holding steady. On a more vain note, it is nice having the dextroscoliosis because I was never able to get used to putting my purse on my left shoulder and now I get to put it on my right shoulder again.
 
    ...on a side note. It gets frustrating hearing all my doctors (who I care very much for) telling me to, "Take it easy. Go slow. Ask for help, do not push yourself. Do not worry.". Sheesh! They sound like parakeets.
 
*hugg*
  dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 2/15/2011 1:57 PM (GMT -6)   
Oh Dani,

You have so much going on in your life, yet you always find a way to be kind to others here (and I'm sure at home).

It is impossible for me to know what to say, so I will just wish you all the best and leave it at that. Words cannot express what I want to say at all. I really hope things work out for you and your family and that you will find the help you need to keep your pain low and your spirits high.

As always, I will keep you in my thoughs and prayers.
Failed fusion L5-S1, Pituatary damage, HGH Def, Fibro, Bladder surgery failure, Nissen Failure, GERD, OCPD, GAD, MDD, CTS (Bilateral Surgery completed), CFS, TMJ, Migraines, Vit D, A, Magnesium deficiency, Pre-glaucomic (sp?), HBP, Idiopatic Reactive Hypoglycemia, Edema, too many Drug/Food allergies, sensitivites, and current meds to list.

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/15/2011 2:03 PM (GMT -6)   
 
 
      I am just amazed with all that you have going on. All the health issues, and then you find the time somehow to Moderate and with the flair of a Champion! Amazing!
 
        Thanks for the update! We appreciate it greatly! Bless you! Bless you! smilewinkgrin
 
   SE wink

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 2/15/2011 2:21 PM (GMT -6)   
Dani,
Thanks for thinking of us and keeping us posted. I will
send you prayers in hopes the mass is nothing or a false image..
If you need anything hun we'll be there for you...
((((((((((((((((((((Dani)))))))))))))))))))))))))))
Lots of healing hugz, prayers and well wishes...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 2/15/2011 4:36 PM (GMT -6)   
Sweet Dani,

Like I ALWAYS say....you are amazing! So so much going on and you still keep pushing! I hate to be another parakeet...but you do need to slow down and take it easy! Thanks for the update hun, and as always... I am thinking about you and sending healing thoughts your way!!

Hugs,
Beckey
Rheumatoid Arthritis, Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus

Medications - MS-Contin, Plaquenil, Cymbalta, Famotidine and currently Prednisone

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/15/2011 6:38 PM (GMT -6)   
    Thank you all so much! You all mean a lot to me. Your replies touched my heart,  made my day. I was having a hard time it made me feel really good to sit and read such caring replies.  :-)  

      I did go to my Endocrinologist today... He said that for the past 7 months my kidney function testing have been steadily increasing and my creatine levels are not good. He would like further testing and to meet with my other doctors   smhair   Yikes! I wish he would have said something sooner, I could have... umm. Humm, not sure if I could have done anything to help, come to think of it.

     Also, I guess I need standing x-rays anyway. These are full spine profile x-rays that are done while I am holding 10-15lbs bags in each hand. They are the best images needed for accurate cobb angle measurements. They do not anticipate those measurements to be very much different. I was laying down for previous ones.  

    Med increases are going okay, just having incredible difficulty focusing and am very tired.... I usually am tired, but it is a struggle to keep up today. Also..maybe for now I will listen and slow down. I am awfully tired inside and out.

*warm hugg*
     dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

damgalnuna
Regular Member


Date Joined Aug 2010
Total Posts : 77
   Posted 2/15/2011 7:14 PM (GMT -6)   
Thanks for the update. I'm sad to hear that you've been having such a difficult time. You are such a strong person to still be functioning at all despite all that is happening to you.
Scoliosis fusion w/rods (92); herniated disc (96); partial removal of rods (97); microdiscectomy (97); sudden incr. in pain (08); tried various non-pharm treatments and take the following: baclofen, Nucynta, topomax, tramadol, welbutrin, ativan, ritilin. Considering a fourth surgery to extend existing fusion to sacrum. Getting a second opinion from another surgeon on 2/3.

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 2/16/2011 1:22 AM (GMT -6)   
Thanks for updating us Dani. It amazes me too that you keep going with all that's going on with your health. Please take it easy and try to rest as much as you can. Hopefully in the next few days your body will get used to the increase in meds. I will be praying that the mass is nothing serious and just a fluke. Take care you amazing person. God bless you Dani. You are such a big help here. I don't know how you do it.

love you
Loretta

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 2/16/2011 10:23 AM (GMT -6)   
    Dearest Dani , Yes Dani Girl please slow down a little and take care of you . You give so much to everyone and you give from your heart , which is why we love you so very much . But like most of us we have the hardest time giving to ourselves , so I'm happy that you are going to look after yourself more intensely , you deserve the attention for sure . I don't doubt your tired though because your always working on something for someone , plus you don't sleep all that well , so its a perfect time for you to take a nice break and look after you . Please try to enjoy these moments of self attention if you can , you so deserve and merit it , get plenty of rest and relaxation !I'm sorry about the reason you must take this break but God works in mysterious ways and this may be just what you need , just when you need it . love and hugs , Mikel

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/17/2011 11:11 AM (GMT -6)   
 
     Goodness, Thank you so much. I found myself re reading your replies a few times. It feels so good to have people who truly do understand.
 
     For the last couple of weeks I have only been able to do the bare minimum around my home. The last 2 days I have only done basics. I have 3 days of laundry piled up. Yikes! I have not changed the linens for the week or even sorted the mail for the week. I really hate to admit it, but I have not even scrubbed the toilets in 3 days.  shakehead
 
     On a more positive note, my leg did not collapse all day yesterday. I have had very mild "ice" sensations inside my thighs but that is all. Last night I slept for 4 and half hours. I vaguely remember getting up for water and restroom. So, I think only woke 3 times.
 
     Goodness... inside I am having a hard time realizing what is happening to my body. Normally I just roll with it. Right now, knowing things are getting even worse is making me withdraw from everyone. I do not want to answer "How are you doing?". Which is silly. It is a simple question. Nothing more. Inside, the first responses that are coming to mind are very rude. Last night for example I wanted to much to say," I am 30yrs old and I've lost control of my body in 4 years flat! How do you THINK I am doing?!?!?!" Of course, I would never vocalize such things. So, I just do not respond at all. I must seem so rude these past few days.
 
     Tonight I have to go to chorus performance. All the teachers and administrators know what is happening and have watched it all progress. The children of course know and still love me unconditionally. that my "Scoliooses make missus danny special." ... tonight is different. Tonight is hundreds of other parents. Many who have not seen me in 6months. I know it is ridiculous. I know that despite my crooked stance and misshapen body, I look rather good. Long well care for hair. Stylish clothing and well groomed. .... but crooked. With very swollen, dark eyes. I had a friend tell me, "You look exhausted. Your eyes look tired these days." She is right. I know she didn't mean any harm......  Maybe, it is a blessing in disguise that my vision is deteriorating. Still, I feel the stares as I walk lifting my leg and rotating out with each step. Let alone the big curve in my body that I cannot hide anymore.
 
     I am trying hard to adjust to the medicine changes. The Baclofen is still a struggle, but it is a relief to have pain level of 6 after being awake 3hours. Yesterday, I spent a large chunk of the afternoon (think 7 hours or so) at level 5. The others are easing up their side effects. I can tell that others are working rather well even though I have only been on the higher doses a few days.
 
    I have not heard from my doctors but I am relieved they have not called. Maybe I will call and check-in on Friday. Might be best to just wait until Monday though. Until I can give real considerations to my body without feeling overwhelmed.
 
    *hugg*
      dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 2/17/2011 1:42 PM (GMT -6)   
hello, how are doing? could they give you adderall or provigil for the druggy side effects?
L4,L5,S1 bilateral Laminectomies, Foraminotomies 2002
L4-S1 PLIF with instumentation 2008,

current Rx: MScontin 100mg q8hrs. , dilaudid 8mg q6hrs. prn, oxymorphone IR 10mg q6 ,vistaril 50mg prn nausea, Lyrica 150mg 2x,Adderall 20mgs 1x A.M. 10mg PM prn, Soma 350 mg 3X, Elavil 25 HS, diazepam 10mg bid prn, Supplements: CO-Q10 100mg, Vitamin D 1000IU, Fish-Oil1000mg EFA, B-Complex50 3x/day, ALA

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/18/2011 11:12 AM (GMT -6)   

     

    

    I did try to ignore the phone. I just felt very badly because there was urgency in the nurses voice mail. Today I need to run over to the lab and get my kidneys and Creatine levels tested. Then Monday is no food and dye / lab results. Tuesday morning is CT scan. I never ceases to amaze me how fast my doctors are able to set up testing and MRI / x-ray / CT when they want answers right away. Not that I am complaining... it is just that when something is routine I have had to wait up to a month.

      I find it oddly ironic that they are testing Kidney function and Creatine. That is the exact same thing my Endocrinologist was concerned about on Tuesday. I did mention that the endocrinologist was concerned about those same things and that he wanted to speak with my doctors. She said they had received a report and those lab findings in the computer system. So... not sure what all will change once he gets in touch with everyone. I hope my labs turn out to be okay enough for the CT scan. They can do what they want once the CT scan is out of the way.... The last few weeks have been crazy with regards to my doctors and health care.

     It is very hard to focus. Between the pain, exhaustion and the fog my days are rather long. I am pretty sure that this is about as good as it will get with regards to my pain, sleep and medications. I have very heavy fatigue. I did finally get caught up on my chores. I was exhausted by 1 in the afternoon. Everything is done though. I cannot believe I let things pile up that badly. It took quite a bit of time to catch back up. I do have to get things ready for spring and get the house down to basics for when it is time to move. I will start it out this afternoon. Just go slow and take my time. It will more than likely take a few week to accomplish the inside of the house. Another few weeks for garage. The yard is fine though. 

  
  Dear Spine,
      
           I am having a hard time. I am hanging in there though. No, I don't take ADHD medications. I do realize they are sometimes prescribed to people who need more energy.... it is just that they contain amphetamine and that is not good. Mostly because I have many problems with many organs and my body cannot withstand amphetamines.  Also, I am positive they will not be safe with the other medications that I take.
 
*hugg*
  dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 2/18/2011 11:28 AM (GMT -6)   
Dani,
Wanted to say wow, your going to be put thru quite a lot of testing, and
My thoughts and prayers will be with you. I'm lending you my shoulder
to cry on, as I know this has not been easy on you. Make sure to keep
us posted on this. Prayers and well wishes for you.
(((((((((((((((((((((((((((((((Dani)))))))))))))))))))))))))))))
Lots and lots of hugz
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 2/20/2011 12:15 AM (GMT -6)   
Dear Miss Dani, you are going thru so much hon. I don't know how you stay above it all.

You are such an inspiration to so many of us here. i wish I had some of your strength.

You are in my prayers. Keep us posted when you are able to.
SUZANE

One day at a time!!

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 2/20/2011 2:26 AM (GMT -6)   
My sweet friend, Dani...

Words escape me tonight but I do want you to know that I pray for you often. I pray that you have relief from your pain, that your body stops getting worse and that you can have a more normal life. You are an amazing person, Dani and are loved and admired by so many friends that you have.

Warmest and gentle hugs,
Chutz
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.

"Gravitation is not responsible for people falling in love." Albert Einstein

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1560
   Posted 2/20/2011 5:57 AM (GMT -6)   
Dear Dani;

Words cannot express how much respect I have for you. I never knew how much you were going through until now and I can tell you that it has opened my eyes clearly. Comparing the two of us would be like comparing an apple to an elephant! My heart goes out to you and I do hope that taking it easy will help a bit in the days to come. They say that "Prayer is a powerful thing" and I believe it to be true. I will pray for you and pray that your health finally clears a bit.

I know how scary it is when something inside our bodies is teling us that something is wrong. And yet here you are dear girl a contridiction to that. You work hard to show us a side of you that maybe I haven't seen, or have been ignorant to for the past years and for that I am truly sorry. If there were more people like you in this world it would definately be a better place! You and I have emailed each other a few times and I kinda feel like we are friends. When my friends are hurting I don't like it at all. So please take care of yourself and I hope soon you will feel a bunch better.

Hugsssssss

Scarred
I live to "Tame My Pain!" 

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 2/20/2011 8:04 AM (GMT -6)   
Oh Dani, you are always having to struggle so much but yet no matter what you are here for all of us. You are an amazing lady! Your hubby is so blessed to have you. Those beautiful daughters of yours have a wonderful Mom and all of us here have an amazing friend in you!

Please take care of yourself, rest when you need to and just take care of you. I hope things start looking up for you soon. the pain you have on a daily basis is so unfair! As always, you are in my thoughts and prayers. Love you bunches! Take care.
Gentle Hugs,
Shannon

Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Percocet, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 2/20/2011 5:01 PM (GMT -6)   
Dear sweetest Dani I wanted you to know that I admire you very much. I am going to pray that your pain stays at a lower pace like it was when it was 5. Gantle hugs for you Dani.

love ya my friend
Loretta

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/23/2011 1:48 AM (GMT -6)   

 

   I just cannot thank you all enough for being with me through my crazy journey the last few years. The last 2 months have been very hard, no doubt.

     I got the CT and Labs out of the way today. I hope this is the last of the crazy testing. I have got to get to my eye surgeon and I just do not have time to waste on all these tests anymore. I was supposed to see him as soon as the "warning signs" happened. The warning signs began happening right around Christmas. The tissue in my eyes is softening and degenerating. The cells on my lens is stripping (have had many surgeries to restore my vision, I am running out of options).  He was very insistent that I see him as soon as any of the warning signs began. I really hope that I haven't done anything bad to my eyes by putting it off. I really did have the very best of intentions to see him.... it is just that everything has been so crazy. Also my darned teeth! I still have to let them take out my teeth and send them back to the lab for a couple of days!!!! I am hoping maybe next Monday. My doctors have got to stop this urgent testing stuff. I just cannot keep canceling everything at the drop of a dime like this   smhair  

     I was right about my side effects. It is as good as it is going to get. The baclofen kicks my behind. With it being that high, while mixed with my other meds, it is overwhelming. By the time I take my night time meds with everything else... I am dizzy and "lights are on - no one is home". The inflammation seems to have decreased. I have had many afternoons at a level 5 or 6. The high pain waves are knocking me flat, but when I slow down it seems to get somewhat better. My meds seem to catch up with the pain, if that makes any sense. Have had a few problems with my right leg. 2 times, the full blown inability to walk. It is scaring me but if it gets much worse I guess I will tell my specialist about it. I just so afraid of my body and what will happen.

 

   Dear Scarred,

    Do not worry. I just don't talk about my health that much. Mostly because explaining it is hard. Also, because I don’t like anyone to feel like their problems are any less important than mine. I know it sounds crazy, but hear me out.... When I talk about my health, the people around me tend to not talk to me about their own health after that. LIke their problems are not something I want to know about? I hear often, "My problems are nothing compared to yours." or worse "You have more important things happening.". It hurts because I really DO want to know how my friends are doing. I really DO want to talk about what is on their minds or what is bothering them.

   All to often I am quiet about it all until I am about ready to burst. I lay it all out in one big blow to get it all off my chest. ...which isn't very healthy. I have been trying very hard to be open about my health the last few months with those around me. It is important that I keep talking about what is happening. Too often I keep quiet about it all. I just have got to learn to stop worrying about what other people will think when I talk about what is happening. I have got to stop clamming up all the time.

*hugg*
  dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 2/25/2011 5:15 PM (GMT -6)   
Mrs. Dani,
 
First of all let me say sorry about chat last night. I asked how you were and haven't been good about keeping up on the forums. Seems latley I just pop on and go to chat and expect people to give out their life stories without realizing what a "loaded" question that can be! Please forgive me it was thoughtless. So, today I made it a point to come on here and actually read about you.
 
I want you to know it's o.k. to recoil and take a step back. You need to protect your self and family at all costs.  Things can get big really fast. It's a full time job taking care of yourself not to mention the little bees!
I step back from time to time with  friends and family about my illnesses. I know people care but I do get tired of explaining it over and over again. I always feel so self involved. Most of the time I just want to talk about anything but me. Anyway, you volunteer so much of your time here for us our HW family...I'm sure everyone understands.
 
I hope all your tests come back and your able to get some time off for appts. Making a wait n' see decision about back surgery is a good one right now with your new information...I feel.  I had back surgery when my bees were 8 and 11 yrs old.  I was over the young years...and got it in before the teenage years. That time worked good for me...they are more calm at that stage lol and are able to fend for themselves a little more.
 
Amitriptlyene ....gets better over time. My Dr. put me on it about 6 months ago and said he wanted me to work up to 50 mlg I'm at 20 and can't seem to go past it without being tooo tired. It does help knumb the pain though.
 
Keep your chin up and you are in my prayers
Heather
 
 
 
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, July 18, 2018 9:51 AM (GMT -6)
Missing Key Value : en-US, 697
View Active Threads


Missing Key Value : en-US, 703
This forum has 161858 registered members. Please welcome our newest member, miljake.
411 Guest(s), 7 Registered Member(s) are currently online.  Details
torontolyme, Dahlias, YoungSuffererCanada, BillyBob@388, Jim48, sierraDon, iPoop