And Welcome to the CP Family. Gosh, I'm so sorry to hear how you've been treated but unfortunately we hear this more often than we care to. I hate to say this but here goes....I'm guessing you are working with state disability/L&I (workers compensation)/or whatever it's called in your state. That is the reason you are getting the poor treatment. I have a very close relative who works for them in our state but at least he's not one of the adjusters, he keeps the computer systems up and running and has nothing to do with claims. But he sees the problems from his vantage point and agrees that often people injured on the job are not treated very well. The people are like Social and Health services workers...swamped with clients and pushed by 'the system' to not use up too much money on any one person. IMHO, it's a very sad state of affairs that our government treats people as if they are numbers and dollars.
But, enough of my ire and opinions...you need some serious help and a good doctor of YOUR choosing should be able to give you that. I have an identical problem to yours...and maybe in the same exact
location. Mine wasn't work related but the pain is the same. My MRI showed the disk at L/5:S/1 was squashed and pinching the nerves that exit the spinal column there. Those are the nerves that run down the legs all the way to your toes. The pain hits like a lightening bolt and you never know when it will happen...other times it hurts like that all of the time. So there are many of us on the forum who have similar issues and can give you ideas from our experiences.
A couple of things I will suggest. The first and I think the best is to keep a pain journal. This is nothing more than a record daily of your pain. Here's a link to a free journal page you can download. www.painfoundation.org/learn/publications/files/TargetDailyLog.pdf
here's another link that gives you help describing the intensity of your pain...www.wemsi.org/painscale.html
Then copy a page for each day of the week and fill it out each day. I did mine at the end of the day, some people keep it handy and put things in all during the day. Whatever works for you. Then comes the next important part of this deal...take your journal to each and every doctor's appointment you have. Show it to them and ask them to review it while you sit there. (ps..don't ever leave it with any doc or you risk loosing it) By doing this many members have found that their doctor took them very seriously about
their pain and need for help. Also, the doctor can get a good picture of your pain levels, when it's worse, etc. It shows how serious and willing you are to do your share of the work to find a solution.
Then, I would suggest you go to a private doctor..not someone working for the state. Your personal doctor doesn't have a vested interest in your care. Be honest with him/her and tell him exactly what you've gone through and with some luck you will get the treatment you really need. We will be here to help and support you all the way!
Moderator on the Fibromyalgia and Chronic Pain forums
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.
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