New here and Suffering

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rhondamac
Regular Member


Date Joined Feb 2011
Total Posts : 58
   Posted 2/16/2011 8:16 PM (GMT -6)   
Hi everyone,
I stumbled on this website surfing the web for answers to my problems. It's nice to see a forum for people to share experiences with illness and pain.
I am not sure at this point what is exactly wrong with me. I went to see a Rheumy last week after my PCP did blood work that came back positive for some type of connective tissue disease. I have been suffering with alot of pain for just over a month now. It has gotten very bad! I have had some level of pain for years but all of the sudden it has gotten much worse.
I know the frustration of chronic pain that all of you seem to experience on a daily basis.
We don't realize how important our health is until it is taken from us.
I am hopeful that the Rheumy will be able to tell me what it is that is wrong with me in a week or so. After 13 vials of blood taken ... surely they will figure it out! confused
 
I wish you all the best and hope you find relief.
 
(((Hugs)))

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 2/16/2011 8:34 PM (GMT -6)   
Hi Rhonda

Welcome to Healingwell. This is a pretty good site and we have a lot of great members. I am sure I can speak for everyone when I say that we are sorry that you are having problems that made you seek us out but we are also happy that you have joined us.

Hopefully you will get some answers soon as to what is going on and what has been causing you pain and hopefully your doctor(s) can then develop a successful treatment plan for you.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 2/16/2011 9:57 PM (GMT -6)   
Welcome to HW! We're a really great, very diverse group of people who can help with emotional support and can give personal experiences on a great number of chronic pain issues. I hope you will find HW the "home" that so many of us have.

Good luck and God bless!
Failed fusion L5-S1, Pituatary damage, HGH Def, Fibro, Bladder surgery failure, Nissen Failure, GERD, OCPD, GAD, MDD, CTS (Bilateral Surgery completed), CFS, TMJ, Migraines, Vit D, A, Magnesium deficiency, Pre-glaucomic (sp?), HBP, Idiopatic Reactive Hypoglycemia, Edema, too many Drug/Food allergies, sensitivites, and current meds to list.

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 2/16/2011 10:21 PM (GMT -6)   
Welcome to the chronic pain forum Rhonda. I wish you good luck in finding out what is causing all of your pain.

hugs
Loretta

rhondamac
Regular Member


Date Joined Feb 2011
Total Posts : 58
   Posted 2/17/2011 9:43 AM (GMT -6)   
Thank you all for your welcoming posts! It's nice to see people that really care about others! I'm glad to be a part of this community!

Have a great day!

Rhonda

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 2/17/2011 1:14 PM (GMT -6)   
I wanted to say hello,
don't place to much faith in the blood work, as mine showed nothing, it took a
mri to reveal the damage from RA, for me, everyone started with blood work but only the
rheumy pushed it to the next level with a hand mri, so if nothing shows up ask
your doctor maybe about getting some mri's done..Hope you can get a low pain day soon.
(((((((((((((((((((((((((((((((((((((((((((Rhonda)))))))))))))))))))))))))))))))))))))))))
Well wishes and healing hugz
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Chutz
Forum Moderator


Date Joined Jan 2005
Total Posts : 9249
   Posted 2/17/2011 11:44 PM (GMT -6)   
Hi Rhonda!

I too wish to welcome you to the CP Family. This community has helped save my sanity on more than one occasion and I'm grateful that it exists.

As far as your pain is concerned, I sure do hope they get your some answers and soon! Do you know what type of connective tissue disease they said it was? There are several kinds. I'm not well versed on this disorder but I do know it can cause intense pain and misery. One other thing that crossed my mind ~~ is it possible you might have fibromyalgia or another similar muscular disorder in addition to the connective tissue disorder? Fibromyalgia can look like a lot of other disorders but it's hallmark is muscle pain and lots of it. Often it is triggered by some sort of trauma to the body, not necessarily physical. We have a lot of people in the fibromyalgia forum who had fibro crop up when they went through serious health issues, intense surgeries or prolonged illnesses. Just a thought and the doctor most often called upon to diagnose fibro is a rheumatologist. If you are interested in learning more then go to the Fibro forum and check it out.

I do hope you find answers and quickly. Hard to treat something when you don't know what it is you're trying to treat.

Warm hugs,
Chutz smilewinkgrin
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.

"Gravitation is not responsible for people falling in love." Albert Einstein

stumped by pain
Regular Member


Date Joined Feb 2011
Total Posts : 23
   Posted 2/18/2011 6:19 PM (GMT -6)   
Hello Ronda,
I hope you get some anwers soon. waiting for me is sometimes the hardest part.
I am new to CP myself found it last nite as well. Know an can understand about pain getting worse. I have what is kwen as FBSS so i wish u the best .

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/19/2011 12:16 PM (GMT -6)   

 

 

  Dear Rhonda,

      Good morning! I am terribly sorry to be so late in welcoming you! I hope you like our support group. We are fun, caring and a little crazy.

      I am sorry you are being hit with chronic pain for over a month now. I think we can all agree that the first year our pain began was the worst. We didn't have answers. We had to go through countless doctors and testing.....  yikes! I remember my first year.. time went by very slow. There were a lot of tears and I felt very angry with my body.

     I hope your rheumatologist is able to get to the bottom of things. Here is some info I found....

~~>  http://www.mayoclinic.com/health/mixed-connective-tissue-disease/DS00675

    ".......It isn't clear what causes your immune system to attack your body. Doctors believe a complex mix of viruses, chemicals and genetic factors may be involved...."

    After learning more about what you are facing one thing become very clear. You are in a lot of pain. You are going to have to fight this for rest of your life. I hope you are able to find out more about what is being effected and what is happening as a result of the auto immune disease. Many things are factors common with the disease. Which is probably why you have had so many blood tests.

     If you can, let us know how your appointment goes. I know you must have a lot going on. But if you are able to, rest as much as possible too. KNow we are thinking of you here.

*hugg*
   dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
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rhondamac
Regular Member


Date Joined Feb 2011
Total Posts : 58
   Posted 2/21/2011 1:02 PM (GMT -6)   
Thank you all for your welcoming and thoughtful posts! What a wonderful group of people!!! I will most certainly keep you posted after I get to the dr on Friday. I am scared but am hopeful that we will have answers soon. Rheumy just put me on Mobic and Tramadol for inflamation and pain. So far it is helping a little. I suspect that nothing will take the pain away completely but any relief is better than none!
I wish you all lots of love and relief from your pain as well!
I am so grateful to have found this forum!

Hugs to all of you!

Rhonda

rhondamac
Regular Member


Date Joined Feb 2011
Total Posts : 58
   Posted 2/21/2011 1:07 PM (GMT -6)   
And... to answer your question Chutz... I dont know yet what type of CTD I have. I do know that I had a positive ana and RNP which I have read can mean Mixed Connective Tissue Disease a combination of a few CTD's. I had a Dr. tell me that they thought I had Fibro as well. Not sure. Hopefully Friday I will know for sure. And thanks for the info Dani! I will check that out!

Hugs!!

Post Edited (rhondamac) : 2/21/2011 11:12:51 AM (GMT-7)


desert
Regular Member


Date Joined Feb 2011
Total Posts : 93
   Posted 2/21/2011 1:21 PM (GMT -6)   
I just found this place last night as well. It's great to find such a wonderful group of people to help and support. Even though I've only been registered a few hours myself, I wanted to say welcome as well. And I hope you find everything you need, both here on the forums, and with your doctors on Friday.
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