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Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/19/2011 8:47 AM (GMT -6)   
 
 
         For all of you new, and or our newer members, I would like to invite you to read the "Chronic Pain 101" located at the top of our forum page. There is a lot of valuable infromation there! wink
 
       If you are strugglig with receiving correct dosage, or lack of, to control your pain, I would then, strongly advise you to print out the "Daily Pain Journal". It can be a quick and handy reference to show your PM or PCD's.
 
    I have started using the "Daily Journal" myself, and it is surprising to see it graphed out on paper.
 
        These articals are there for your benefit, and are full of information and tools to assist you.
 
     Please do take the time to read them! I assure you, it is well worth reading! wink
 
           I also believe that there is a Pain Scale Chart for you to view. It might be well worth telling your PM or PCD which scale you are using for reference as well. They should be familiar with it. I would even take a copy with you on your visit.
 
       SE wink

Post Edited (Screaming Eagle) : 2/19/2011 8:12:31 AM (GMT-7)


stumped by pain
Regular Member


Date Joined Feb 2011
Total Posts : 23
   Posted 2/19/2011 9:08 AM (GMT -6)   
 Thanks for info. visited that hot topic 1st thing as im lookin for help -suggestions an exprerince. thanks again

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 2/20/2011 1:49 AM (GMT -6)   
SE,

Thanks for posting this great reminder. I too used the pain journal for a while and it's quite revealing. We think we know all about our pain but when it's down in black and white it's interesting to see how much we don't know.

Hugs,
Chutzie
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.

"Gravitation is not responsible for people falling in love." Albert Einstein

misterkatamari
Regular Member


Date Joined Jan 2011
Total Posts : 374
   Posted 2/20/2011 11:49 AM (GMT -6)   
Thanks so much!

I've started a pain journal. Aside from being helpful in demonstrating your condition and what helps and hurts it, it also sort of gives me something to do while I am waiting for appointments and such. Makes me feel like I'm doing 'something' to help. lol

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/24/2011 12:37 PM (GMT -6)   

 

       Bumpy time! smilewinkgrin   Hope this helps some of the newer members!

 

         SE wink


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/26/2011 7:26 AM (GMT -6)   

 

     Bump! smilewinkgrin  

  I can see from the high viewing ct, that maybe this would be appreciated on the weekends, when things are a little slower.

         SE wink


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 3/6/2011 3:32 AM (GMT -6)   
Thought it best to bump this on the weekends.

If you are a new member, please do introduce yourself on a new post, and tell us a little about yourself.

The weekends are a little slow, so please be patient for a reply from our regular members.


Take care, and Welcome to the Forum!

SE wink

Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 3/8/2011 8:33 PM (GMT -6)   
Ok buddy, my dear friend SE!! I'm present and accounted for. Now I told you those would turn a key, didn't I?? Hmm... I am so thankful that you keep speading this word for all to know. The moment Chutz advised me to really go over Chronic Pain 101 and I downloaded those remarkable little sheets, presented them to my doctor, things changed and they may not have me on the very best dose, but at least I'm better! So, keep on keeping on my friend. Now if I can get the depression out of my BI part of the Polar! I will have it made. Maybe I'll make a journal for Bi Polar disorder and maybe even one for migraines! I'm going to text you in a few, but I'm off to the hospital to get an injection for the migraines that are robbing me of brain cells...no really. Brain damage in an otherwise healthy invalid really bites, but life goes on until it doesn't. Thanks for all the times you've been there when I needed a pick me up.
Catz4
Stac/Catz4
DX’d-Syringomyelia C-1 to T-1, DDD, Diabetes Type II, Migraines and resulting apparent brain damage, Chronic Muscle Spasms, IBS, Panic Disorder, ICC, Hypothyroidism, Bipolar Disorder, CFS, Fibromyalgia. Emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06. Repair Frozen Shoulder and Torn Rotator Cuff in Left Shoulder.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 3/12/2011 5:53 AM (GMT -6)   
 
    Bump!
 
          New Members! We welcome you to the forum!
 
    The weekends can be slow at times to recieve responces to your request, so please be patient, and keep checking back for Welcomes and answers to your questions.
 
      SE wink

Dimpled Delta
New Member


Date Joined Mar 2011
Total Posts : 2
   Posted 3/13/2011 1:36 AM (GMT -6)   
Thank you. I am a new member here. I have suffered from Chronic Pain for nearly 20 years. After years of hospitalizations for migraines a benign brain tumor was discovered in 2000. I admit in the beginning I over took medication for my pain trying to alleviate my pain, it took me and my doctors approximately 3 years to find the correct medication for my pain. My marriage ended, I had lost my parents in the months immediately before my diagnosis, my friends left, all assuming I was an addict. I did over take my meds initially. But, in the last 4 years I finally found my "cure" duragesic patchs. They have allowed to function despite the pain. Now that I have finally found the happy medium, how did the rest of you deal with the world not understanding your pain and the difference between pain relief/dependence and addiction? I have a urine screen run every month with levels of all medications, for those who are skeptical. I need to know how to live anew.

Dimpled Delta
New Member


Date Joined Mar 2011
Total Posts : 2
   Posted 3/13/2011 1:39 AM (GMT -6)   
to clarify....when I say I lost my parents they both died from cancer and I was their caregiver. My marraige ended because my husband had an affair for nearly 2 years My friends left because they thought I was an addict.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16295
   Posted 3/13/2011 2:28 AM (GMT -6)   
Hello Dimpled Delta and welcome to Healing Well's chronic pain forum. I am sorry that you have to be here but very glad that you found us.

I am going to ask you to start your own intro thread so that the members will see it and be able to give you a proper hello. Otherwise, I am afraid most will not see your post. All you have to do is click Post New Topic on the left.

Again welcome aboard and take care.
Moderator Chronic Pain Forum

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 3/19/2011 12:30 AM (GMT -6)   
bump!

nvrthesame98
Forum Moderator


Date Joined Jun 2008
Total Posts : 6706
   Posted 3/19/2011 2:28 AM (GMT -6)   

Thanks Screaming Eagle, I have gave several new folks the advice this week that were seeing new Docs or their old ones not taking proper care of them to start a pain journal. I forgot that there was one in that thread!

I am a huge advocate of keeping them. Even though I have good care at this time there have been periods when that wasnt so and these diarys or journals put out there for the new Docs in a way that I cant due to anxiety,pain,fear of not getting treated again,just whatever.

I truly believe it is one of the best diagnositc tools we have right up there with MRIs and labs. I know you run across some Docs that shrug it off but I would ask that a copy be inserted in  my chart anyway as those very records may one day be a part of the SSD decision. I have found that the majority are interested in looking at it.

Pleaase all of you struggling with undertreated or non-existent treatment grint one out and start it today.

And thanks to those who bought that chronic pain 101 to the forum as it is a very indepth look into what our lives are about.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 3/19/2011 11:20 AM (GMT -6)   

 

~~>  Pain Journal

*hugg*
     dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

chatters
New Member


Date Joined Mar 2011
Total Posts : 17
   Posted 3/19/2011 11:29 PM (GMT -6)   
Dimpled Delta said...
Thank you. I am a new member here. I have suffered from Chronic Pain for nearly 20 years. After years of hospitalizations for migraines a benign brain tumor was discovered in 2000. I admit in the beginning I over took medication for my pain trying to alleviate my pain, it took me and my doctors approximately 3 years to find the correct medication for my pain. My marriage ended, I had lost my parents in the months immediately before my diagnosis, my friends left, all assuming I was an addict. I did over take my meds initially. But, in the last 4 years I finally found my "cure" duragesic patchs. They have allowed to function despite the pain. Now that I have finally found the happy medium, how did the rest of you deal with the world not understanding your pain and the difference between pain relief/dependence and addiction? I have a urine screen run every month with levels of all medications, for those who are skeptical. I need to know how to live anew.


Welcome Dimpled Delta. I am by no means a medical expert, so this is just my opinion. I have looked up a lot of information on long term pain use for treatment. As I am sure most people do who suffer with chronic pain. They say that addiction can be a side effect of taking the meds long term, in my case, I have been on them for 6 years now. I do not watch the clock for my next dose (fix). I find that I only take it when I am in a lot of pain. I have run out before several times do to insurance company changes one month they pay for it then next month it is not covered so have to switch to something similar. I never craved it or went through withdrawl. I just had pain. My muscles did cramp a little and I yawned a lot, but it was nothing major. That is a natural response a body has when it goes through any change of adding or taking something away. It would do it with anything you have taken for a long time. Cigarettes, coffee, soda pop, and lots of non pain related meds will cause the body to respond this way. I personally do not think people in pain get addicted they just take it so they don't hurt as much. People who become addicted, take it for other reasons. They do it to get a buzz or to take away emotional pain of some sort. Just like drinking alcohol. It is fine to have one or two because you are thirsty or like the taste, but if you drink ten or 20 you do it to get drunk. So taking a a prescribed amount daily is very different than taking ten or twenty at a time. Addiction is an illness too, and does not make you a bad or evil person. If your friends left you because they thought you were an addict, in my opinion, they were not a true friend. Some people will change and act differently, but not because of the meds, they simply do not know how to deal with seeing you ill or in pain. It can be very hard on a loved one, a spouse or parent, because they feel they should be able to help you and they can't. It can sometimes hurt worse to watch someone suffer than to be the one who is suffering. As far as the world not understanding my pain, it doesn't bother me at all. Some people just like to talk about others and create drama just because they can, so it wouldn't matter if you are taking too many pain pills (in their opinion) or wore too short of a skirt to church, people are going to talk about it. Just hold your head proud and high and if you need friends or someone to talk to, then I think you are in the right place. I have met some very wonderful, unique, and caring people on here. I am very sorry you are going through this. You will be in my thoughts.
dx: Malabsorption disorder causing severe vitamin deficiencies, osteoporosis,osteomalacia,14 broken/fractured bones,anemia,hyperparathyroidism,hypertension,IBS,kidney stones,abdominal adhesions,immune supressed,23 surgeries to date
Rx:must be liquid or patch form,massive vitamin supplement fentanyl,percocet,protonix,clonidine,klonopin,phenegran,synthroid,pain pump implant april 4th
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