Bad News and Good news

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Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 2/20/2011 5:03 AM (GMT -6)   
The surgery went well, things begin to look up, and then I overdo it and all the progress made goes right back to before.
The surgeon thinks he got every piece of ovarian tissue this time, but he thought that last time too. The bad news is long, so I apologize in advance.
The adhesions in my pelvis are worse than last February's surgery. Doc cleaned all he could out in February 2010 only to open me 2 weeks ago to find more adhesions than last time and going much higher toward my stomach and lungs. Still waiting on pathology tests on the adhesion tissue. He is thinking endometriosis reforming from endo tissue left in the other adhesions. We are running out of laparoscopy incision sites. Each time he goes in the adhesions form behind it badly enough to require a new access point. I will need to have surgery periodically to remove the adhesions or eventually lose function. They don't know how much or how long it will take, but with the rapid reformation I had this past year it is almost certain that the adhesions will continue and solidify if I am not careful.
So I have to go on hormone therapy to buy more time before the ovarian remnant reappears. Which means happy days for my fiance and kids. At least I won't be crying like a baby at commercials and babies crying and craving pickles and peanut butter.
I was doing well in recovery and have had a set back. One incision has caused some nerve issues at a superficial level from the interior incision and stitch. At this point it is unclear if it is from infection or simply the stitch did not dissolve from adhesion formation. It feels like being burned when clothing touches it. I succumbed to a cold 3 days postop and it became an upper respiratory infection and I have antibiotics for that. Coughing and sneezing after abdominal surgery stinks.
 
Enough complaining now and getting to the good news! Online school is improving, and I got 99% and 98% on my last 2 tests! Mary Kay is beginning to pick up without me having to do any parties, and the wedding plans are coming along nicely. I have begun the crocheted silk shawls for my nieces and friend who are bridesmaids. One is just about complete, and I have 4 more to go! We are all wearing matching styles in different colors. Mine will be last and is in white. I am trying to behave and filling my hours with projects that can be done while resting. Then comes a weekend like this one where everything hit at once. It seems like we packed a months' worth of activity into one weekend. I am hurting too much to get more than an hour or two of sleep, and I still have today to get through. I am sure there are many who are in the same boat, and keeping up with my family is getting harder and harder.
The prospect of repeated surgeries is a hard one to swallow. Each time it seems like my recovery takes longer and I feel unlike myself for a longer period of time. I am being reminded by many that my job right now is to heal, but  I think that for some with CP who feel or know that they will never "heal", that is a struggle. It is difficult to explain to someone that I will never be normal again and that each day is filled with pain and making decisions on what I can or cant do. I hate the saying that the only reason you can't do something is because you told yourself you can't. Whoever came up with that has never been in so much pain that lying in the fetal position is the only thing possible and simply going to the bathroom is enough to exhaust you.
 

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1560
   Posted 2/20/2011 5:31 AM (GMT -6)   
MM;

I am so glad that your surgery went well. Sorry to hear that you are having problems with pain and setbacks, but at least that is out of the way right? Just trying to cheer you up a bit here. Hey, great news! You and I seemed to cross paths with our posts around the same time. And both have good news in them. that's a good thing.

Anyway, keep resting and I hope you have a low pain day.

Hugs

Scarred
I live to "Tame My Pain!" 

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 2/20/2011 6:49 AM (GMT -6)   
I am glad to hear that the surgery is over and went good. So sorry to hear that the pain and other things are out of control. It's good that you have alot of things to do to keep your mind off of the pain (if that's possible) Keep us posted on your recovery. Take care.
Gentle Hugs,
Shannon

Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Percocet, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

damgalnuna
Regular Member


Date Joined Aug 2010
Total Posts : 77
   Posted 2/20/2011 11:14 AM (GMT -6)   
I'm sorry to hear that you may need to have repeated surgeries, but glad to hear that this one went well. It sounds like you have a very optimistic attitude, which I believe can help a ton with respect to recovery and how you feel overall. It certainly can't fix everything, but it has a very noticeable effect.
Scoliosis fusion w/rods (92); herniated disc (96); partial removal of rods (97); microdiscectomy (97); pain worsened (08) when my kid was 15mo old; tried many non-surgical treatments with limited benefit; surgery scheduled for 3/1/11

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 2/20/2011 11:49 AM (GMT -6)   
MM,
seems like the others posted nicely what I too was thinking so my post will be short.
Prayers, well wishes and lots of soft gentle healing hugz being sent your ways...
Hope you won't need more surgeries, can at least hope it for you...
((((((((((((((((((((((((((((Monty's Mom))))))))))))))))))))))))))))))))))
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

misterkatamari
Regular Member


Date Joined Jan 2011
Total Posts : 374
   Posted 2/20/2011 11:54 AM (GMT -6)   
Yuck, I'm sorry about the fact that you may need more surgery. Honestly, I don't even know what half the stuff you mentioned even means, but sounds awful! When my mom had surgery on her colon, she had soreness and pain for a long time during recovery. When you get a coughing spell that you can't control it's really awful for that kind of stuff. She actually ended up getting cough suppressant because as a past smoker--yeah ick---she was coughing a lot, and it was actually really painful! (And I imagine it isn't helpful for recovery!)

The online school sounds great. I'm not sure what type of school/classing you are taking, but I'm really glad you're doing well in them! And with all these issues affecting you as well, it's really impressive. I'm sure you'll keep it up on your way to recovery too. :)

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 2/20/2011 12:15 PM (GMT -6)   
Congratulations on the good things and wishing you well on the ones that need improvement. At least the surgery is over and you are feeling a little better in that area. :)
Failed fusion L5-S1, Pituatary damage, HGH Def, Fibro, Bladder surgery failure, Nissen Failure, GERD, OCPD, GAD, MDD, CTS (Bilateral Surgery completed), CFS, TMJ, Migraines, Vit D, A, Magnesium deficiency, Pre-glaucomic (sp?), HBP, Idiopatic Reactive Hypoglycemia, Edema, too many Drug/Food allergies, sensitivites, and current meds to list.

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 2/20/2011 1:11 PM (GMT -6)   
Very Happy for you that the surgery went well! And I am sorry for the setbacks! I know you do not need to hear this anymore.....but take care of you!!!!!

Healing Hugs,
Beckey
Rheumatoid Arthritis, Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus

Medications - MS-Contin, Plaquenil, Cymbalta, Famotidine and currently Prednisone

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 2/21/2011 6:29 PM (GMT -6)   
I had the same nerve thing from a surgery, it felt like someone took a potato peeler to my skin. My shirts burned but going without a shirt isn't an option at work. I found that a snug fitting spandex tank top under my tee shirt helped. The constant touching was less painful than the occasional touching from a loose shirt. I don't remember how long it took to heal but it was a while. The skin gradually became less sensitive.

I've had 4 abdominal surgeries with tons of adhesions removed each time. My last surgery was about 19 months ago and I know I am already filled with adhesions. Unfortunately, the surgery to remove adhesions also causes adhesions. My docs won't go in to remove the adhesions unless they are already planning to go in to fix something else. Since I seem to always have something that needs to be fixed, this hasn't been an issue.

I find that yoga helps keep my middle flexible so I can actually move around. I do twisty poses at least 3 times/day stretching my middle as much as I can. I also have one of those huge exercise balls. I lie on it on my back, stomach, and sides a few times a week stretching as much as I can tolerate.
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