Hi Jimm, I am no doctor or nothing, but I went through something similar after my son was born. My arms and legs went numb and I had a bad prickling feeling and burning sensation at times in them. What helped me the most (believe it or not) was steroids!!! They tried a slew of other things at first and quite by accident found out that gave me FULL relief... I don't know if this would help you or not, but if they haven't given it a shot yet, I would see... it could also help to figure out what the problem was. It took me almost 2 years now to realize that I had Lupus... and the symptoms were very UN-lupus-like at first and there are a host of other autoimmune disorders that often start with that prickling, tingling, numby feeling. Have you had an H1N1 vaccine recently? If so, what you are describing sounds very close to CIDP or Guianne-Barres Syndrome which the vaccine can induce (in fact, that is what they first thought was wrong with me last year as I did not have any real pain--just the frustrating pricky feeling, numbness and all that)... but they can do a nerve-muscle test for that. I would get a good neurologist involved and possibly a rheumatologist or endocrinologist if you cannot get any answers soon. I would hate for you to have to go through this many years as I have trying to find out what is wrong.
Are you tired a lot by any chance? Do you feel a pricky feeling? Is it worse at night when you lay down (even start itching real bad?) Do you have any urinary symtoms (real thirsty, frequency..etc..?) Do you have a lot of unexplained numbness in your hands/feet or other areas at times? chest pain? Dizzy? Ringing in your ears? Low potassium??!!! Do you have any unusual rash or sores anywhere? (Scalp, mouth, face, chest?!) (Rash on face may even just look like a bad sunburn across your cheeks and nose especially and possibly chest). Do you have bruising for no reason anywhere on you? Swelling in your lymphnodes? Swelling in your hands/feet, wrists, ankles or anywhere? do you have any abdominal pain? If you are answering yes to a lot of these questions--GET A RHEUMATOLOGIST before you go through all the things I have over the past 2 years not knowing!!!! It will only get worse. Pain meds help a lot, but real relief comes from steroids if you are experiencing what I have!!! (not low doses either--higher doses of steroids)... you may have to get them to give it to you IV in ER or doc's office to start with if so... You may not have this at all... but want to be helpful as a lot of what I saw you describe is very similar to what I have gone through recently!!! Feel free to answer/or ask more (you don't have to answer all those questions to me but ask yourself... ) and if you have more questions I will keep an eye on this thread and try to answer what I can from MY own experience--not that it is what everyone else goes through or any kind of real medical advice. But I would sure like to help if I could.
Either way, I really hope you get some relief soon. It is miserable to feel bad for so long--and I am with you on all those meds--I can't stand anything not natural unless I have to.. and I sure had to recently break down and take 2 things: steroids and pain meds so that I can get over this!!! All the best, Nicki