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New Member

Date Joined Mar 2011
Total Posts : 4
   Posted 3/2/2011 2:38 AM (GMT -6)   
My pain began Fall last year after receivng a flu shot...it hurt durng the shot "never happnd b 4"a week went by and the pain got worse. I began going to ER...from 1 hospital 2 the nxt...after trying to get help where it happnd and couldnt I had 2 go elsewhere...
From Oct-Dec I was treated like an idiot, spoken to as some insane person, I had a doc tell me she couldnt see the enlarged areas in my arm...Finally I saw a specialist "Neurologists"...he ordered a series of meds...very costly I have no health insurance...I pay evthng out of pocket...but finally they began 2 C what I saw since early fall...My arm had knots in it & they move..gettng larger & smaller...movng up & dwn
So far I have been on more than 15 diff meds(for pain) & nothing works...Im on somethng for a week or two & off...then on 2 the nxt prescriptions...this is crazy...Finally made it 2 PM Doctor He was amazed at how I described my injury & what I feel daily...How intense it is...I feel fire "like gasoline has been poured inside my arm and left 2 burn non-stop"! The pain is so bad I cry allnite evnite except when @ work...I am now on several diff meds again and awaiting my appt later 2day...I had a Stellate Ganglion Block 3wks ago...My doc was so hopefeul that this wld wrk..."it did not"!
I am so upset had 2 wait another 3wks 4 my next appt...
I thought this would b over in Dec, I hoped & prayed it wld run its course & fade back 2 normal...unreal this is! I have chronic back pain but this TOPS ALL!
I have sevral fam members & frends who r greatly concerned about the Neurostimulation Therapy & now that I have found this site so am I...I knew there had 2 B more info out there...please excuse any type O's...Im @ wrk & need 2 get back
I am not online daily as I do wrk & also volunteer PT 7dys per wk...I will try 2 follow U ALL via my berry if possible...smooches & Best Wishes 2 U ALL & again I am Happy 2 have Found You All

Regular Member

Date Joined Feb 2011
Total Posts : 93
   Posted 3/2/2011 9:29 AM (GMT -6)   
Hello Pain23OMG and welcome. I am glad you found this place. I found it myself only a short while ago and the support and information it has provided has been valuable beyond measure to me. I hope that you find it as helpful and understanding of a place as I have.

I am sorry to hear that you're in such pain. I'm happy though that you've finally found a doctor or two who will listen to you and who are working to help you. That makes such a huge difference.

You may have already found it, but if not, I recommend reading the sticky post at the top of this forum called Chronic Pain 101. There is a lot of really great information in there.

I hope your appointment goes well today and that you end up with a treatment that will help you.

Regular Member

Date Joined Jan 2011
Total Posts : 230
   Posted 3/2/2011 9:33 AM (GMT -6)   
I'm so glad you found here, though I'm terribly sorry for your pain. I've also had the Stallate Ganglion Nerve Block done, with no success.... twice. Does your doctor have any idea what you might have?
You said you've been on all sorts of pain meds. One of the big things is to remember to take your meds consistantly so you maintain a constant level. Have they just tried narcotics, NSAIDs? Have they tried Cymbalta or Lyrica?
You mentioned NeuroStim Therapy. Are you talking the Spinal Cord Stimulator Unit, or SCSU? Or are you refering to something else? If you're refering to the SCSU I know there's alot of scary stories out there, but I'm one of the more positive ones, though I can only vouch for my trial.
You're not alone, that's the big thing to remember. I spent over 2 years going from doctor to doctor trying to find someone who could figure out what was wrong with me. MRI's showed nothing. Xrays showed nothing. They did a Neroulogical test and it showed that everything seemed to be fine. I was sent to one pain doctor through Workman's Comp, and not only did he treat me like an idiot but he said the most insulting thing; "I can't find anything wrong with you, there for you're fine."
I pray your doctor finds an answer for you soon as to what's going on, that they can give you the treatment you need to hopefully make it go away for good.
Originally injured 10/26/2007 - Initial diagnosis; Tendonitis
Spent next year seeing specialist after specialist; Bone, Muscle, Hand, Neurologist, Chriopractor, Physical Therapist...
Went through a battery of tests, multiple MRI's
11/16/09 I was finally diagnosed CRPS - Stage 2
Permanently disabled, on Percoset.
February 2011 successful SCSU trial
No surgeon willing to do my SCSU Implant

New Member

Date Joined Mar 2011
Total Posts : 4
   Posted 3/7/2011 4:33 PM (GMT -6)   
Good Afternoon Ev1...Thank U so very much 4 yor warm welcome
UPDATE: I have 2 laugh bcause I will scream and throw out a few steamywords...I showed up 4 my appt thinking "my trial" wld begin..only 2 find out "WE" the doc & I were only going 2 discuss my start date...hellooooooo..."WE" could have done that over the phone
I left work @ 7am..sat n the waiting room til my appt time...10am altho they saw me a few minutes earlier BIG help...only 2 speak w/me for 12min....grief! what a clown...so many of you already know next theres an appt for a full physical, ekg & stuff...then we set a date 4 the trial....I think im prob lookng @ late march...That gives me more time 2 think it over
Im gettng my dinner ready 4 work 2nite & I must try 2 settle down...To answer a few ? "yes" I tried Cymbalta & Lyrica still on Lyrica,Percocet,Diladid...I cannot take Narcotics while working or driving as this is against the law...but the pain meds do not help my pain anyway, but I still take the Lyrica 3tms/daily...smooches ALL
wishing u a wonderful evening & 4giv me in advance sometimes I 4get Im not textng or tweeting & I abrev...lol
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