Bad day / venting

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cogito
Veteran Member


Date Joined Oct 2010
Total Posts : 926
   Posted 3/2/2011 10:07 PM (GMT -6)   
Please excuse the venting, but I need to distract myself.

I usually work from home, but have to go in to my office a few times a week. Typically, I'll be there for just a few hours. But today, I had a lot to do and a late meeting. So I was there from about 9-6.

So, I got home, went straight to bed. After about 2 hours, I had a quick dinner and returned to bed, mostly channel surfing. And in addition to my standard array of pain (Neck, back, arm, hip, sciatica), my chest hurts (left side, around heart!). That's been going on for about a year happening once every few weeks -- and it is really annoying! I'm fairly confident that it is either referred pain from the scoliosis or mitral valve prolapse syndrome (which I have plus supraventricular tacycardia).

I can't take any pain meds in the evenings as they prevent me from sleeping. For example, if I were to take 15mg of hydrocodone or 7.5mg of oxycodone (my standard BT doses) at 5pm, I would not be able to fall asleep until 2am or so, and then, be more in a twilight state for most of the night. Even if I take an ativan, the opioids will still prevent me from falling asleep and staying asleep. The kicker is that even if I don't take any opioid and just take the ativan, I can't take more than a tiny dose (.25mg). If I take more, I'll end up sleeping for 10 hours and feel like crap for another 4. So, most nights, I endure the pain for the sake of being productive the next day.

But right now, it feels like a wrench compressing my heart while I have a burning spear shoved into my back. We're our own medieval torture chambers !
C4-T4 Scoliosis (disk degeneration, stenosis, narrowed neuroforamen, bone spurs)
RT hip and SI joint damage from car accident
Current meds: Ultram ER 300mg daily, breakthrough - hydrocodone 10-15mg, or oxycodone 5-7.5mg. .5mg ativan as needed for sleep.

desert
Regular Member


Date Joined Feb 2011
Total Posts : 93
   Posted 3/2/2011 11:55 PM (GMT -6)   
You know I think this forum has some of the calmest venting I've seen on the Internet. I'm sure that means something, although I have no idea what.

I am sorry you're having a lot of pain tonight Cogito. I hope that you feel better quickly and have a great day tomorrow.

-Jeff

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 3/3/2011 3:02 AM (GMT -6)   
Cogito I'm sorry you're having so much pain. Boy you can't take pain meds because they keep you awake and if you take Ativan you sleep too much. That really sucks. I agree we are our own torchure chamber. Ouch. I hope you are in less pain and are able to get some sleep. My heart really goes out to you. Bless your heart. Take care.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1560
   Posted 3/3/2011 4:52 AM (GMT -6)   
Cogito;

I am so sorry that you're going through all of this. My mom was having what she called "growing pains" for years before she had a heart attack and had to have one of her valves replaced two years ago. Be careful with chest pains hun. I really care about you and don't wanna see anything happen to one of my friends.

Gentle hugss

Scarred
I live to "Tame My Pain!"

Rhaevin
Regular Member


Date Joined Jan 2011
Total Posts : 230
   Posted 3/3/2011 9:37 AM (GMT -6)   
Cogito, I'm so sorry that you're having to live life this way; it's not right. Have you talked with your doctor about this problem? Can he recommend anything? Is there any way you can take a mild sleeping aide with your pain meds to help negate the wakefulness your meds cause? Maybe something like Tramadol strictly for bedtime? They've got all sorts of wonderful sleeping pills out there, everything from Valerian root to Lunesta, and some stuff you can only get with a perscription.
 
Also, please, please, please don't take that chest pain lightly! *hug* I know our pain becomes a constant companion, we get used to it, in our own weird masichistic ways, but that is not the kind of pain to try and tune out or ignore as it could signify something far more important. sad I'm sure you're aware of all of this, but sometimes it takes the voice of someone who cares to remind us.
 
I wish I could make the hurting stop so you can have a good, solid 8 hours sleep.
Originally injured 10/26/2007 - Initial diagnosis; Tendonitis
Spent next year seeing specialist after specialist; Bone, Muscle, Hand, Neurologist, Chriopractor, Physical Therapist...
Went through a battery of tests, multiple MRI's
11/16/09 I was finally diagnosed CRPS - Stage 2
Permanently disabled, on Percoset.
February 2011 successful SCSU trial
No surgeon willing to do my SCSU Implant

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 3/3/2011 10:33 AM (GMT -6)   

 

 

  Dear Cog,

    Vent away! *hugg* I have to agree with Jeff, that was one of the nicest vents I have ever read! I do hope you were finally able to rest. I can relate to your chest pain all to well (hoping it isn't a heart problem) my secondary dextro causes me quite a bit of pain these days and there are times where it just doesn't let up  shakehead   I often refer to my spine pain as "the Express". Each stop it piles more and more symptoms on. First the spasms, then the "pulling", then the stabbing hot / hardness muscle groups... next thing you know the inflammation is rampant! Sure enough it will be a battle to get it calmed down over the next 1 - 3 weeks. I hope that it does loosen its grip on you though. I can tell plain as day that you are exhausted. Know you are in our hearts here!

*warm hugg*
       dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
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cogito
Veteran Member


Date Joined Oct 2010
Total Posts : 926
   Posted 3/3/2011 10:46 AM (GMT -6)   
Thanks for the support!

I fell asleep at about 11pm then awoke at about 2am. At about 3am, I took another .25mg of ativan and fell asleep around 4am. It is now 10:30 and I've been up for about 1/2 hour and am hankering for a second cup of coffee. Sadly, if I took a whole .5mg of ativan last night, I probably would have had a more solid night's sleep and have been able to get out of bed earlier.

Rhaevin, I've tried lunesta, ambien, etc. as well as some natural sleep aids. Ambien might help, but none of the others do. But with ambien, it is a best 50/50 and I may just be falling asleep regardless.


I'm torn as to whether to see a cardiologist as I saw one about 16 months ago and had an EKG and ultrasound then. I presume nothing has changed with my heart in that time and I'll be told what I already suspect: mitral valve prolapse syndrome and/or referred pain. Supposedly, people with mitral valve prolapse have a lower risk of heart attack and coronary artery disease (perhaps because MVP occurs more often is very thin people -- as I am). I'll tell my wife that I dropped my life insurance policy ;) and then see whether she thinks I should see a doctor about my heart?
C4-T4 Scoliosis (disk degeneration, stenosis, narrowed neuroforamen, bone spurs)
RT hip and SI joint damage from car accident
Current meds: Ultram ER 300mg daily, breakthrough - hydrocodone 10-15mg, or oxycodone 5-7.5mg. .5mg ativan as needed for sleep.
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