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Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 3/7/2011 1:12 PM (GMT -6)   
Good Afternoon Chronic Pain Family!
     It is another beautiful Monday afternoon! The sun is shining, the birds are singing and spring is on the way. Some of you are already getting daily rain storms. Hopefully, those rain showers are not effecting your joints too badly. Regardless of how we feel today... There are still tasks to complete, jobs to do and appointments that need to be kept.  
      Often times we are so busy supporting others that we forget to update about ourselves. So, before we get too wrapped up in starting out the week... Please, stop by and let us know how you are doing. Give us an update. We want to know how you are doing. Even you old time veterans who are lurking.
How are you feeling? 
What was your pain scale over the weekend?
What are your major plans for the week

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator

Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 3/7/2011 2:03 PM (GMT -6)   

Hello my HW friends. I hope you are getting some time with low pain.

I have not been doing well at all. My husband had to take me to my general physician as I had been having

anxiety attacks all week. She increased my antidepressant/anti-anxiety med. And my mom came to help for

this past week. My pain is still out of control so I will be discussing that when I see my pain dr. on Wed. I hope we

can increase the Methadone. And sleeping is all over the place as well. So I hope to get a few things figured out

on Wed. with my pain doctor and then i am heading to my mom's for a week. There's nothing better than a

mother's tender loving care.


Regular Member

Date Joined Jul 2010
Total Posts : 416
   Posted 3/7/2011 6:22 PM (GMT -6)   
Hello Everyone,
My week is not starting off great. We just found out my 18 year has Chrohn's disease and he passed out at work on Saturday and had to have an ambulance come. I was so worried about him.
Today I had my Rhuemy app. and found out I will have to start Methotrexate this week if my liver function test comes back ok. My rotator cuff that I was going to physical therapy for is not any better and the physical therapist wants me to go to an orthopedic surgeon to talk about surgery. It's going to turn better tomorrow I just know it. I hope you all are ok, and Suzane I am sorry you are having a rough time. Hang in there! (((HUGS))) Heather
Big Hugs, Mama6

DX. with Fibromyalgia, Narcolepsy, Rhuematoid arthritis and Osteoarthritis, Herniated disc 3x in last 7 months
Meds: , Cymbalta, , Hydrocodone 5/350,Hydrocodone 7.5/Nabumetone,thyroid med, vitamin D, Iron,methocarbamol,muscle relaxer,

Mother to 5 wonderfull kids.
Allow me to be strong just another day.

Veteran Member

Date Joined Apr 2010
Total Posts : 2265
   Posted 3/7/2011 7:35 PM (GMT -6)   
Hi everyone

This week started off a little better than the weekend. The sun was shining today, so I wasn't hurting as bad as I was during the weekend. I'm still have the pain in my left thigh and tonight my right one decided to join in too :( I'm going to have to call the dr. and stop procrastinating. I just don't like going to the dr. so much. Right now I would just rather go to bed and pull the covers up over my head and stay there. I've had a lot of anxiety the last few days with this crazy pain.

Suzanne. i'm sorry that you're having such a hard time with the pain. Have you thought about getting your home checked for things that you might be allergic to? Just a thought. I am not understanding your pain being gone while you're on vacation and then you come home and it comes right back. That's why I think it may be something that you're allergic to or something like that.

Everyone take care. I hope you're all having a low pain night and have a good night sleep.

love and gentle hugs
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees

Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 3/7/2011 9:10 PM (GMT -6)   
 Thank you Mama6, I will hang in there. One day at a time.
Loretta, thank you for your thoughts. That is something we are just looking into. I have been to other places, such as my mom's for a week but had no changes in pain. i feel like it is the tropical sun and southern distance as this has happened while on two other southern trips. Thank you for your concern, it means a lot to me.

One day at a time!!

Veteran Member

Date Joined Apr 2010
Total Posts : 2265
   Posted 3/7/2011 9:48 PM (GMT -6)   
Your welcome Suzane. Take care and God bless.

love and hugs

ps. I have to remember "take it one day at a time". Sometimes I forget.
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees

Regular Member

Date Joined Feb 2007
Total Posts : 98
   Posted 3/7/2011 10:56 PM (GMT -6)   
Hello All.
I'm so glad today is over. My name is Sue and I am in a downward spiral. Next week I have an appt with an Orthopedic Spine Specialist/Surgeon for pinched nerves, herniated disks, and stenosis in my neck. It appears I will need surgical intervention. So right now I am feeling a bit overwhelmed as I feel like I am falling apart.

I think my whole body is beginning to spasm in response to my weak arms/shoulders. I have been trying not to think about it, but each day seems worse. Can this be? Sometimes when I am walking around I stagger and feel almost drunk. I had to bring my son with me grocery shopping today and I wanted to cry each time I had to reach a high shelf.

Work just got a bit more stressful as we may be looking at layoff's soon. Not the best time for a medical leave (oops). My pain levels and spasms are making everything there take longer. I pray that my track record will save me (Associate of the year 2010). Right now I have the favor of the executive management team, but I am also behind on a bunch of projects (long story). The sooner I get this taken care means I can move forward not back. As is normal with our brains under this amount of stress I am thinking of all the things that can go wrong. Bad recovery, I fear that when I go for my 6 month follow up mammo that something will show up and I will be out of medical leave....

I have bad luck. Thanks for giving me the chance to vent my fears. Hugs to all....Sue
Hypothyroid, Chronic Pain associated with Abdominal Adhesions(ARD)with Nerve Damage, Multiple Herniated Disks in Cervical Spine, Anxiety, High Cholesterol, GERD, Diverticulosis, Carpul Tunnel, Abnormal EKG(past mild heart attack?). Surgeries: Hysterectomy, Gallbladder Removed, Bladder Sling, Sinus. On Dilaudid, Flexiril, Xanax, Trazodone, Synthroid, Anatara and Simvastatin

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 3/7/2011 11:23 PM (GMT -6)   
Hi all,
Things here are going along ok... each day is LONG and exhausting... but I'm feeling more sane now that the girls are sleeping longer at night.  They are now 5 months old - I can't believe it.
My pain meds are in a good place.... so I'd say my pain is as good as it gets for me - a 6/7 out of 10 on most days.  My heart rate has been way up, though and my blood pressure remains way too high.  I know my heart meds need more adjusting.
Right now, though, it's just day by day - survival :)
Suzane - I e-mailed you earlier today.... :)
Heather - I'm so sorry about your son and sorry you are struggling...hope it IS a better tomorrow...
Loretta - I'm glad today was better than the weekend...I have anxiety, too, and it's awful...hang in there...
Sue - I can tell how overwhelmed you are...I've been there and I'm sorry you are going through so much....but glad you shared w/ us here...
Thinking of all my HW friends tonight.... --Tina (with a new screenname)
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

Veteran Member

Date Joined Aug 2005
Total Posts : 617
   Posted 3/7/2011 11:58 PM (GMT -6)   
Hey Gang,
I've been away so long, my signature info has disappeared from my profile...LOL!!!  Might as well laugh...nothing else does any good these days.  Currently still on SSDI for Chronic Bad Back/knees and Migraines, w/ Moderate depression and anxiety/panic disorder.  Yeah, who wouldn't cranky and depressed if your back hurt all the time and you had to fight getting a migraine every time the weather changed slightly? 
Now I seem to be having repercussion of having a gastric bypass eight years ago.   In the past three weeks, my stomach has been really out of whack...  I'm seeing my PCP in the AM, and I'm really afraid of what I'm going to go thru, trying to straighten out my problem.  Unfortunately, I had stomach problems prior to my GBP, so I know what kind of procedures I'm in for already.  UGH.

Veteran Member

Date Joined Mar 2011
Total Posts : 1276
   Posted 3/8/2011 2:16 AM (GMT -6)   
Hi all - my thoughts to all of you not doing well at the moment, and I truly hope that tomorrow brings a 'less pain' day for you all.

I am struggling right now as well. My upper body CRPS has been stable for months, then decided to flare a few weeks ago. Between my arms and legs, the extra oedema from this flare has given me nearly 10kg extra to carry around. Also pretty certainly up for an op to fix my spinal cord stim. Very minor surgery compared with what some of you here have been through, but I have major hospital anxiety, don't handle anaesthetics well and the whole procedure is going to be pretty traumatic for me.

Upsides - got approval for a few things to help me out as I said in the other thread I started. Also have a date with a radio station on Monday morning to talk about CRPS and CP...wish me luck!


Regular Member

Date Joined Jan 2011
Total Posts : 230
   Posted 3/8/2011 2:23 AM (GMT -6)   
Hello my family, and gentle hugs to you all this evening.
I'm not sure what's causing the spike in my pain lately, but it's been unbearable. My body is doing alot more shutting down to cope. My family suggests more pain meds to help cope, but unfortunately I will run out if I do so. Instead I do what I can, and give in to the need to collapse and rest as possible.
I've an appointment with my Pain Doc next Monday. Time to get my perscription refilled and discuss four pills versus three to get through the day; 3 a day just isn't doing it most of the time lately. I was also planning to talk to him about extended release stuff and how the hunt for a surgeon was going when they called today.
So tomorrow I'm to call this Orthopedist they've sent my file to. I guess he does SCS unit implants; I mean that's the only logical reason I can see for sending me to him. Only thing I'm nervous of is I've seen this guy before. Granted it was two years ago back when Workman's Comp was still handling my case and they were refering me to specialist after specialist in hopes of trying to figure out what was wrong with me. It wasn't the nicest meeting with him. I remember it was a long drive and he was way behind schedule. After 45 min in the waiting room I finally got to see him and his surly comment was (after reading my file), "Why are you here? I don't see any problems with your bones in your x-rays. I'm a bone specialist. So why did they send you to me?" He really was surly, and I was very put off by him. I was upset that I had to apologize and explain why other doctors sent me to him, but there it was. "I'm not sure why I'm here. I was refered to you in hopes you could figure out what was wrong with me." Needless to say, it was a short visit, and I left feeling very upset. You can imagine I'm not all that excited to see this guy again, let alone let him do surgery on my back. However at the same time if he's my only current lead on a doctor that would be willing to do my risky surgery..... As I reminded my family, just because I have a surgeon now doesn't mean I'm committed to having the procedure done. I have alot of questions to ask this guy before I can fully make up my mind and say yes or no. I also have to trust my Pain Doctor and know that he wouldn't send me to this guy if he didn't think I should see him.
I did get a letter today from someone a few states over; now I just need to do some research on this person and the doctor they work with and maybe have a conference call with them to discuss if taking a road trip would be worth it. At least I now have more options then I did a few days ago.
Still not sleeping the greatest even when I don't take an afternoon nap. And I've been plagued by mirgraines lately. And when I get a migraine I'm down for the count for the day. Obviously I'l be mentioning these things to my Pain Doc when I see him next week, along with discussing anti-depressants to help with other issues.
Between pain and depression as well as lack of sleep ... well, there's other things as well, but I'm sure it's just the depression talking. It's just right now with everything going on it's so hard to have an optimistic outlook for the future.
Originally injured 10/26/2007 - Initial diagnosis; Tendonitis
Spent next year seeing specialist after specialist; Bone, Muscle, Hand, Neurologist, Chriopractor, Physical Therapist...
Went through a battery of tests, multiple MRI's
11/16/09 I was finally diagnosed CRPS - Stage 2
Permanently disabled, on Percoset.
February 2011 successful SCSU trial
No surgeon willing to do my SCSU Implant

Veteran Member

Date Joined Oct 2010
Total Posts : 932
   Posted 3/8/2011 10:38 AM (GMT -6)   
Not to bad for the past few days. I've not had to use any BT meds since Thursday. However, I spent much of the weekend in bed, taking it easy, so that I could take a break from my BT medication. Last night, the wife and I even went out for dinner! That's something we rarely do lately since sitting through a meal is so difficult for me. But we made it through soup, salad, entrees. However, that was it for me and wanted to head out rather than having desert. I brought some meds with me to the restaurant, just in case, but made it through the pain and didn't take any. Today, I've been up for about a hour and it is raining. We'll see what happens.
C4-T4 Scoliosis (disk degeneration, stenosis, narrowed neuroforamen, bone spurs), RT hip and SI joint damage from car accident. Also, Supraventricular tacycardia and mitral valve prolapse syndrome.
Current meds: Ultram ER 300mg daily, breakthrough - hydrocodone 10-15mg, or oxycodone 5-7.5mg. .25-.5mg ativan as needed for sleep, Verapamil 240mg SR (for tachycardia).

Regular Member

Date Joined Feb 2007
Total Posts : 98
   Posted 3/8/2011 10:04 PM (GMT -6)   
Hugs and prayers for all that are feeling good and those of us struggling. Well my crappy luck continues. My boss the confirmed that there will most likely be cuts at the end of this month. AND I get home and there is a message at home from the Surgeon's office and they have an opening tomorrow morning at 8:30 if I wanted to move up my appt a week....

ARGGGGGG. They didn't call my cell phone so by the time I got home, the office was already closed. I am no longer giving out the home number. I don't understand when they know you are working, have a cell phone, provide your work phone number, they leave a message where you are guaranteed not to be at during the day.

Oh well. I will have to suck it up and carry on.
Hypothyroid, Chronic Pain associated with Abdominal Adhesions(ARD)with Nerve Damage, Multiple Herniated Disks in Cervical Spine, Anxiety, High Cholesterol, GERD, Diverticulosis, Carpul Tunnel, Abnormal EKG(past mild heart attack?). Surgeries: Hysterectomy, Gallbladder Removed, Bladder Sling, Sinus. On Dilaudid, Flexiril, Xanax, Trazodone, Synthroid, Anatara and Simvastatin

Regular Member

Date Joined Feb 2011
Total Posts : 93
   Posted 3/9/2011 6:46 AM (GMT -6)   
I'm hoping this week brings low pain and good times to all my friends here.

This past week has been a bit of a roller coaster for me. I just cannot seem to get anything to stay constant long enough for me to adapt. But I've had a couple of days with lower pain. So I don't have reason to complain too much. It's all a waiting game until I can talk to the surgeon.


Regular Member

Date Joined Aug 2010
Total Posts : 215
   Posted 3/9/2011 12:56 PM (GMT -6)   
This weekend was pretty rough. I had engaged in some physical activities that I knew would bring some pain the day after (I went out dancing), but I didn't expect to literally have to be assisted out of my own bed. I couldn't even stand up straight when I woke up Saturday morning, and I sat back down on the bed. Finally with help, I was able to walk to the bathroom, and with some ice packs, 600mgs of alieve, a steaming hot bath, a muscle relaxant, and a break through pain dose of nucynta, I was able to walk without assistance and limp down to the car in order to see the doctor.

I was put on presnidone 60mgs tappering to 20, and its really helping A LOT. I really don't like being on cortizones because I know they can only be prescribed a few times a year for urgent situations and that they affect the body's own ability to fight infection and reduce inflamation. Regardless, they are helping a ton! I do however feel extremely excited after I take them, and the feeling is a bit anxiety provoking.
MRI revealed disc bulge and test injections revealed RA. Radio Freq procedures have decreased the severity of pain by about 1/3rd. currently on 75 mgs of Nucynta (tapentadol) 3 time per day. Works as well as 10 mgs of hydrocodone, less addictive, no tylenol, but schedule II. Also take Alieve OFTEN, much better than Ibu.

Veteran Member

Date Joined Apr 2009
Total Posts : 856
   Posted 3/9/2011 6:55 PM (GMT -6)   
I'm a little late, but...pain was very high today, and I'm exhausted. Hoping that the weekend brings some much needed relaxation.
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