Pain is not better after hystorectomy

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Lasardo
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Date Joined Jan 2011
Total Posts : 373
   Posted 3/8/2011 11:07 AM (GMT -6)   
I have Crohns disease, Pelvic Floor tension, Interstitial Cystitis, Pelvic adhesions, have had several surgeries to correct fistulas after child birth, fibromylia, colostomy, gallblader and appendix out,severe scoliosis. My pain Dr is convinced that after hystorectomy pain would be better, I am in my 3rd week and the pain is worse, not better. I am seeeing PM today and am sure he plans to lower my dosage.. (He has been riding me for a year to have surgery) has anybody  had postitive results after surgery? How was pain managed after procedure? Can anyone share thier experience with me?

Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 3/8/2011 11:37 AM (GMT -6)   
I'm sorry I have no info on this one at all, but I offer you support and a prayer for your apt tomorrow.

All my best!
Failed fusion L5-S1, Pituatary damage, HGH Def, Fibro, Bladder surgery failure, Nissen Failure, GERD, OCPD, GAD, MDD, CTS (Bilateral Surgery completed), CFS, TMJ, Migraines, Vit D, A, Magnesium deficiency, Pre-glaucomic (sp?), HBP, Idiopatic Reactive Hypoglycemia, Edema, too many Drug/Food allergies, sensitivites, and current meds to list.

Monty's Mom
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Date Joined Aug 2010
Total Posts : 664
   Posted 3/8/2011 11:49 AM (GMT -6)   
I am having a really bad day in a string of bad days, but I just had to talk to you.

I had my hysterectomy to correct severe chronic pelvic pain, and I had very little relief for a few weeks and then it came back. I am praying for you, for relief from your pain, for your doctors to be more open. Most of all, you need to give it time to see if that will help you.
Right now, do not be afraid to tell your doctor how badly you are hurting. My pain was managed with tramadol and Vicodin for years, simply because that was all the doctors would give me. Now I am on fentanyl patches with Vicodin for breakthrough. I can't say that every woman who has a hysterectomy does not get relief. I can say that I listened to doctor after doctor telling me things would be better after that surgery, and for myself, they were wrong. There is hope though! Remember that you are only 3 weeks post op, and are still healing from major surgery. Take things easy, slowly, and at your pace.

It may be time to find a new Pain Management doctor, gynecologist, etc. Try to find doctors who are sympathetic and open to hearing what you are saying. Not every doctor works well with every patient. I worked in a cardiology pulmonology office with a few docs who were excellent physicians. There was one who could see all the patients and handle the different personalities well. There was another who would literally tell us never to schedule certain patients with him again, because he just couldn't relate to them and provide good care because of it. They just didn't fit.

I will be praying for you during your appointment today. Please let us know how it goes. Even if you don't get successful relief from the hysterectomy, you have a caring family here that will be with you every step of the way. Feel free to email me if you need to.
Mindy

straydog
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Date Joined Feb 2003
Total Posts : 16779
   Posted 3/8/2011 1:23 PM (GMT -6)   
Hi, I think you have posted about before your surgery and this was not long ago and I posted to you in that thread. I was thinking you were going to get another PM dr since this one and all of your other drs are so adamant about cutting off your pain meds. I know you said something about him not giving you anymore pain meds after the surgery. I would not waste my time and money with him. Sometimes, we do have to advocate for our own care to get the treatment we need and thats ok to do that.

Is your health insurance available online? If so, I would go there and see about getting another PM dr. Even if you have to drive a little distance a good dr is well worth it.

Take care.
Moderator Chronic Pain Forum

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 3/8/2011 7:12 PM (GMT -6)   
Thanks Montys mom, was glad to hear from you, I know your pain has been bad over the last few daysso thankyou for taking the time out to write. I saw PM today but took everyones advice and I have an appointment with a new Pm in 2 weeks, it is a female dr, I think she will be more sympathetic...
Thanks straydog also, I just had hoped alot of my pain would decrease after surgery from what this PM told me, He did not stop my meds, just kept them the same and was happy I had surgery, but today will be my last appt with him, he just does not understand nor really care about pain.. and he is a "pain managment" Dr!! He is in the wrong business, he is just so rude. So hoping with ony 3 weeks into post-op will feel better and new Dr will be a great relief. Thankyou

Post Edited (ljb) : 3/8/2011 5:15:17 PM (GMT-7)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16779
   Posted 3/9/2011 5:24 PM (GMT -6)   
I am so glad to see that you have a new dr in the near future. Perhaps this new will have the time to really see what is going on with you. In CP101 is a pain journel you may want to look at and use it to give to the new dr in three weeks. It would give her a good idea what is going on with you. Also, be sure to make a list of all medications that you have taken and whether they helped or not. That way she will not want to try you on something that you have already tried in the past.

Hang in there.
Moderator Chronic Pain Forum

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 3/10/2011 12:21 PM (GMT -6)   
Thankyou so much for information. Was able to print pain scale (which was very informative) but unable to locate pain Journal.  Would really like to locate it, I know it would be very helpful. Thanks again.

Post Edited (ljb) : 3/10/2011 10:24:42 AM (GMT-7)


Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 3/10/2011 12:58 PM (GMT -6)   

 

      Try this link! smilewinkgrin

 

         http://www.painfoundation.org/learn/publications/files/TargetDailyLog.pdf

     And here is the pain scale chart:

         http://www.wemsi.org/painscale.html

       SE wink

Post Edited (Screaming Eagle) : 3/10/2011 11:12:05 AM (GMT-7)


Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 3/10/2011 1:20 PM (GMT -6)   
Thankyou so much, so far all of the information has been very informative!

kim9807
Regular Member


Date Joined Mar 2011
Total Posts : 39
   Posted 3/13/2011 12:43 PM (GMT -6)   
are you 3 weeks post op from the hyster? if you are thats too soon for pain relief you are still healing from the surgery.

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 3/14/2011 9:01 PM (GMT -6)   
wow , this brings back memories. I did same thing. had hysterectomy for fibroids, huge pain and the pelvic thing. I thought I was gonna die. i hope you are getting some kind of hormone replacement. I didn't and used to be on the floor with psychotic depression. What i really found out and it wasn't until 4 yrs after the hysterectomy was that the real culprit all along was lyme disease. I had all these other so called conditions like the fiber and the bipolar and the chronic pain and the shoulders and the pelvic and the feet burning. It just all got worse after my hysterectomy because it is not a light weight operation. Even if you keep the ovaries you still loos a lot of estrogen in when they take the uterus out.
I hope you stay on top of your hormones and stay strong. You just lost a MAJOR part of your body. serratonin drops and it effects other brain chemistry. I could not believe how I completely fell apart and never recovered so much from that hysterectomy.
20 yrs of doctors . DEC. 2009 tested positive for lyme, bartonella, ehrichiosis, HHPV6, chlamadyal pneumonia .
parasites :strongylides, diaoebia fragialis, hook worm.

Hep C ....fibro, rhumatoidal,depression,

yankee girl
Regular Member


Date Joined Nov 2008
Total Posts : 125
   Posted 3/15/2011 4:32 PM (GMT -6)   
When I was 44 (that was 12 years ago), I had a hysterectomy due to heavy bleeding and unrelenting pain. It took about 6 weeks to heal.

Having a hysterectomy was the best thing I could have done for my medical issues...I've been pain free (in that area anyway!) since.

My ovaries were also removed (due to risk of ovarian cancer), and I was placed on HRT. Each year it has been decreased and I am now on the smallest dose.

So give yourself more time, don't do any physically strenuous activities...everyone heals at a different rate... Hope you feel better very soon!

Yankee girl
severe nerve damage/several surgeries on wrist, fibro, had jaw discs replaced due to TMJ, PTSD
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