Thanks so much for sharing with me and everyone else exactly what that treatment was. I tried to do a quick search but was falling asleep...lol It must be so frustrating to have such pain and so far the medical and research community can't do much for it except control the symptoms. It's the same way with Fibromyalgia that many of us suffer from.
As far as adding sections/sub-sections go, you would have to ask the owner/admin about
that. For a long time we all offered suggestions for forums when he was thinking of expanding but since space/money is limited he carefully chose the ones he thought would serve the most people. I will ask about
sub-categories because I know some software does work that way. If nothing else we could try to keep a thread going on it and if you'd like to help just let me know.
I was curious just how many cases of LPHS there are world-wide so I went hunting for facts. Here's some of what I found and a link to the source. I hope this helps others understand what LPHS is and just how serious and miserable it makes your life..
ChutzLoin Pain Hematuria Syndrome (LPHS) is an extremely rare disease, where there is unexplained flank pain and Haematuria. Often misdiagnosed as a hypermobile kidney has the same symptoms. This is poorly understood condition for which specific diagnostic criteria are lacking.
Here are some facts about LPHS:
# LPHS was first identified in England in 1967 among women who were taking birth control pills.
# Approximately 90% of the reported cases of LPHS are female.
# LPHS was first noted in men in the 1980′s.
# LPHS was first noted in the USA in the 1980′s.
# The first renal autotransplatation for LPHS was done in 1982.
# Cases of LPHS have been reported from England, Canada, USA, India, Australia, Ireland, Scotland and Germany.
# The age range for LPHS is from 6 to 50 years.
# There are approximately 200 cases of LPHS in the world; no doubt, there are more undocumentated cases. lifeinpain.org/node/376?q=node/376