Being sent to Physical Therapy...again?

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zabumafu
New Member


Date Joined Feb 2011
Total Posts : 18
   Posted 3/8/2011 5:39 PM (GMT -6)   
My rheumatologist today has put me into a physical therapy program without really explaining what she hopes will come of it. I know reading that you must think I am stupid for wondering but the thing is I just completed a 5 month program before.

I suffer from unexplainable widespread pain including joint pain and migraines(from an arachnoid cyst). I am in very good shape and run and swim 3-5x a week. 16 months ago when all my problems started, I still was the captain of the mens varsity swim team and lax team and played soccer in the season between the two. The pain was unbearable but being a captain and a man I tried my best not to show it. Following the seasons I was glued to my bed/couch because the pain was unbearable. I knew I had to stay active and my doctor put me in a physical therapy routine along with a chiropractor. I did minimal cardio exercises along with some very strange stretches, acupuncture, pinpoint therapy, electro stimulation, ultrasound, you name it. I did this for 5 months until it got to the point I could do most of this without the help of my therapist (minus the ultrasounds and acupuncture etc. which didn't seem to help). So I have continued these stretches mainly and continued to exercise despite the terrible pain it caused me. By the end of the treatment I was in worse pain than I was when I started. I stopped working out and the pain never went away so I tried to get back into it very slowly.

I wanted to be able to try out for Lax at my new school and knew I had to get back into shape. 4 months prior to tryouts I started walking half a mile, and swimming 10 laps every other day. I continued this slowly picking up intensity. If the pain became unbearable I'd take as many days off until I felt I was able to try it again, but Id go lower than last time. I fought through this until I was able to run 5 miles a day and swim up to 1000m after. It felt great the 30 seconds after I finished a workout but still no pain relief. I made the lax team but my doctor refuses to allow me to play and notified my coaches and school to not let me even practice. Its depressing but atleast I have more time to spend with my girlfriend.

My question is, why would I need to go back to a physical therapist when I already went through months of physical therapy which ended off worse than before? Why would something that not only made things worse once, even be considered to be done again? If you pull a brick from a wall and the wall falls down, would you pull the same brick again once its built? I know I am young and only 18 but I'm not stupid.

Also another question about these forums, are there any other young users (ages 16-24) present? More specifically males? I have yet to see a male user at this site and was just curious.

desert
Regular Member


Date Joined Feb 2011
Total Posts : 93
   Posted 3/9/2011 4:04 AM (GMT -6)   
Hi zabumafu. I'm sorry you're having to deal with all this. Not knowing what's going on is hard. And so is being prevented from doing the things you love and have done in the past.

I of course don't know what your doctor might be thinking. I can tell you that I've been to PT at least a half dozen times over the years, often with little to no effect. I think I was sent so many times because it was a safe treatment to try before the doctors had a strong idea of what was wrong. Maybe yours is something similar. But I would definitely recommend that you talk to your doctor about it. Especially since your last set didn't work out so well. I'd hate to think you'd gone through more pain just for lack of asking.

I may not be 24 anymore, but I wouldn't call myself old, I haven't even broken 30 yet :-). And I am a guy. I hurt myself just shortly after my 18th birthday. In fact it was on a birthday trip specifically given to me for making some healthy choices. How's that for irony...

I can empathize with the difficulty of hiding pain. It's a subject I've been dealing with recently in my own life when I found myself unable to do so around my colleagues and friends for a while. I cannot say I've found an answer to it, although the responses I have received here have been more helpful than I could have imagined. The best I can say is that you are an extremely strong person. I can tell from having read your posts. Understand though that no one can ever fault you for showing your pain. Only you have experienced it and only you can know it's intensity and effect.

Everyone on these forums has been extremely helpful and caring to me and I feel quite certain they will extend the same help to you. In the short time I've been here I've found that age or gender or even specific condition has mattered little in people's ability to understand and relate to the effects CP can have on a person's life. That said, I understand the desire to be able to identify with someone as close to your own situation as possible. Searches for that is what eventually lead me here. If I can ever be of help or just listen to something you need to share, do not hesitate to contact me.

-Jeff

JCG32
Regular Member


Date Joined Dec 2010
Total Posts : 62
   Posted 3/9/2011 5:46 AM (GMT -6)   
I am sorry for all you are going through. I think you should ask them what you asked here why you would do more PT if you were worse last time? What will be different? Also if it does make you worse what will be in place to make you as comfortable as you can be at that time? When I am suggested a treatment for example I ask what happens if it makes me worse and how will I be kept comfortable or the next step. I know this is hard and lonely. When I developed this I was 28 and even at that age it was so hard. We all have a common bond though and it is how pain impacts our life. Have you looked into support groups in your hometown? Sending better thoughts

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16768
   Posted 3/9/2011 5:18 PM (GMT -6)   
Z why not call the drs office and ask the nurse to speak with the dr about this. If you don't feel its something that will help then you need to be letting them know this. There is no point in wasting your time and money for something that is not going to help. Your dr may think this is a way of keeping you some what active without you doing any injury to yourself, but you need to hear your answer to this from the dr.

Take care and hang in there.
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