Please Help, Looking for TMJ

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samandkennasmom
Regular Member


Date Joined Mar 2011
Total Posts : 24
   Posted 3/13/2011 10:29 PM (GMT -6)   
Hello,
I'm obviously new here.  I've posted in the fibro section but another member mentioned I could maybe find you here.  I have constant headaches, have had them pretty much since I was told about my fibro which has been about 15-16 years now.  Any suggestions you could give me would be so appreciated, more than you would ever know!:)
 
Hugs
Michele

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 3/13/2011 11:25 PM (GMT -6)   

 

   I just sent Suzane (TMJPain) an email alerting her to your post. Hopefully, she will find it soon.

*hugg*
  dani



TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

Chutz
Forum Moderator


Date Joined Jan 2005
Total Posts : 9250
   Posted 3/13/2011 11:58 PM (GMT -6)   
Hi Michele~

Welcome to the CP forum...nice to meet you. I'm sure tmjpain will get on ASAP. She's a wonderful lady and will do all she can to help you. She has lots of experience dealing with htis type of pain, sad to say, but with that experience comes her knowledge.

Warm hugs and stay in touch~
Chutz
Moderator on the Fibromyalgia and Chronic Pain forums
~*~*~*~*~*~*~
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.

"Gravitation is not responsible for people falling in love." Albert Einstein

samandkennasmom
Regular Member


Date Joined Mar 2011
Total Posts : 24
   Posted 3/14/2011 12:40 AM (GMT -6)   
Thankyou girls so much! I'll just keep on checking on this post.  I look so forward to meeting and talking with her.  I feel so bad that she has gone thru so much with these headaches like myself.
 
Hugs
Michele

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 3/14/2011 7:44 AM (GMT -6)   

 

        tmjpain will be back on Tue. I'm sure she will respond to you as soon as she see's Chutz's email.

              She went to stay with her mother for a week.

       SE wink


samandkennasmom
Regular Member


Date Joined Mar 2011
Total Posts : 24
   Posted 3/16/2011 9:01 AM (GMT -6)   
Still waiting for her to find me....
 
Hugs
Michele

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 3/16/2011 9:51 PM (GMT -6)   
Hi Michele. here I am hon.
sorry that you have been suffering so long with headaches. I can feel your pain.
Go ahead with your questions, or if you want to email me, my address is in my profile.

Hope to connect soon.
Hugs,
Suzane
SUZANE

One day at a time!!

samandkennasmom
Regular Member


Date Joined Mar 2011
Total Posts : 24
   Posted 3/19/2011 7:24 PM (GMT -6)   

HI,

MY CAP LOCKS DON'T WORK VERY GOOD SO YOU KNOW I'M NOT SHOUTING.  I'M SO GLAD I FOUND YOU. I'M PRAYING BIG TIME THAT MAYBE SOMETHING THAT HAS HELPED YOU CAN HELP ME.  I'VE HAD PRETTY MUCH NON STOP HEADACHES FOR 16 YEARS.  LAST WEEK AFTER READING ON HERE about TOPAMAX, SHE GIVE THAT TO ME 25 MG AT NIGHT, DON'T SEEM TO BE DOING ANYTHING THO. DO YOU TAKE THAT?  IS THERE ANYTHING ELSE THAT YOU CAN THINK OF I COULD MAYBE TRY? I ONLY TAKE PAXIL RIGHT NOW AND A BLOOD PRESSURE PILL. IN JANUARY, I HAD A GRAND MAL SEIZURE, THE FIRST ONE I EVER HAD AND I PRAY TO GOD THE LAST, IT HORRIBLE. HAD A BUNCH OF TEST AND THEY CAME BACK GOOD, THE DR. DOESNT' KNOW WHY IT HAPPENED EITHER.  I'VE HAD THE FIBRO FOR 16 YEARS ALSO.  I FEEL SO BAD FOR MY KIDS, THEY ARE 11 AND 5, ALL THEY WANT IS A MOM, THEY PRAY EVERY NIGHT WHEN WE HAVE SUPPER THAT GOD WILL FIX THEIR MOM.  MAKES ME CRY ALL THE TIME.  SO MANY BAD THINGS HAVE HAPPENED TO ME AND MY FAMILY IN THE LAST YEAR, I LOST MY BROTHER, HE WAS MY HERO AND THEN MY MOM, SHE WAS MY BEST FRIEND WITHIN 2 WEEKS OF EACH OTHER.  THE LIST GOES ON AND ON.  I'M SORRY YOU GET THESE ROTTEN THINGS TO, THEY ARE SO HORRIBLE.  I HAVEN'T BEEN OUT OF BED IN A COUPLE DAYS WITH A BAD ONE SO THAT'S WHAY I HAVEN'T WROTE TO YOU YET, I'LL KEEP CHECKING BACK AND THANKING SO MUCH FOR RESPONDING BACK TO ME.  GOD BLESS YOU~

HUGS

MICHELE


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 3/19/2011 10:41 PM (GMT -6)   
Hi Michele
So nice to meet you. Where do you live. I am in Ottawa, Ontario. I am 53, married to my soul mate, and have two boys, 20 and 22. I am a paediatric nurse in a children s hospital but on disability for two and a half years now . Tell me something about you.
My headaches started in 2000. The headaches have always been the same, bilateral temples and continous, mostly severe pain. I had a tmj disorder worked up. Had braces then and again right now and many appliances and mouthguards. Make sure you see a dentist who has expertise in tmj disorders, not just a regular dentist. I have seen every kind of doctor it seems. Certainly see a neurologist who specializes in headaches. I have tried all kinds of meds. I have tried many forms of treatments, massage, chiro, head, neck and jaw therapist. acupuncture, and more but i canèt remember it all, i would have to get my journals out for the specifics, which i can if you want. I have ten journals. I would never be able to remember this horrible journey iève been on. Certainly get a pain management doc. I did get better after a while of being done the braces and being on methadone. I got back to work after being off for a year and a half. and now everything is back and no one knows why. i have gone out of town to pain clinics and a natural pain relief clinic. I have tried botox for two sessions with no help. I have had nerve blocks, no help. ketamine infusions at a home with no help. i am on methadone again, since Dec. but no effect on my pain. i too am in bed quite a bit. my depression is terrible lately. Doing lots of crying. I am Christian and so i do a lot of praying, asking for strength and courage to continue this journey until we find an answer.
Well there is a start for you michele. What have you dono so far andwhat meds have you tried. If you want more specifics just go ahead and ask me questions. I can look up all my meds i have tried in my journal.
You can email me too if you prefer, my email address is under my name
 
i sure hope you get a good night sleep
 
Talk soon
 
SUZANE

One day at a time!!

samandkennasmom
Regular Member


Date Joined Mar 2011
Total Posts : 24
   Posted 3/22/2011 1:58 PM (GMT -6)   
OH MY GOODNESS SUZANE...I SENT SOMEONE AN EMAIL, TELLING THEM MY WHOLE LIFES STORY, THINKING IT WAS YOU AND IT WASN'T.  I FEEL LIKE THE BIGGEST DORK.  WOW, I'VE NEVER DID THAT BEFORE.  I USED THE EMAIL THAT IS IN YOUR PROFILE SO WHAT COULD OF HAPPENED?
 
GENTLE HUGS
MICHELE

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 3/22/2011 5:00 PM (GMT -6)   

it was me hon so no worries that you gave your life story to a stranger

you should have introduced yourself as i didn't know it was you

now we are good to go

lol


SUZANE

One day at a time!!
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