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chatters
New Member


Date Joined Mar 2011
Total Posts : 17
   Posted 3/15/2011 3:42 AM (GMT -6)   
I just turned 44 on March 9. I have been fighting pain since 2000. Diagnosed with malabsorption disorder caused by abdominal infection requiring approx 60% of abdomen and intestinal tract to be removed. Massive hole left extensive abdominal scar tissue. Vitamin deficiencies have caused me to develop osteoporosis, osteomalacia, hyperparathyrodism, hypothyroidism, hypertension, anemia, 14 broken or fractured bones, vitamin d, calcium, potassium, sodium,vitamin b, magnesium, and other deficiencies depending on the blood levels for the month, but those are the most predominant ones. I am in pretty constant pain from broken bones, horrible muscle cramping, massive abdominal scar tissue, leg pain from knees on down. I have all but lost the ability to walk now. I have an electric wheelchair, but only at home, because I have no way to transport it. I can only take meds in a liquid or patch form due to malabsorption, which greatly limits my options. I have been referred by my pain management dr to receive an implanted pain pump. I am greatful you allowed me to participate in your group. Thank you and nice to meet you all.

desert
Regular Member


Date Joined Feb 2011
Total Posts : 93
   Posted 3/15/2011 3:53 AM (GMT -6)   
Hi chatters and welcome. I'm sorry for the pain that brought you here. You have found a great place though. There are a lot of knowledgeable people here who can understand what living with pain is like. I hope you find this place as helpful as I have.

-Jeff

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 3/15/2011 3:54 AM (GMT -6)   
Welcome to HW. Everyone here has helped me so much. I'm happy that you joined. I am sorry that you have so much pain. Thank you for writing an introduction. It's nice to meet you. :)

Hugs,

Flower

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 3/15/2011 4:50 AM (GMT -6)   
Welcome to HW. I can't say I have any experience with your primary condition, but I'll gladly give you some support and someone vent to.

Hope you enjoy the company.
Failed fusion L5-S1, Pituatary damage, HGH Def, Fibro, Bladder surgery failure, Nissen Failure, GERD, OCPD, GAD, MDD, CTS (Bilateral Surgery completed), CFS, TMJ, Migraines, Vit D, A, Magnesium deficiency, Pre-glaucomic (sp?), HBP, Idiopatic Reactive Hypoglycemia, Edema, too many Drug/Food allergies, sensitivites, and current meds to list.

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 3/15/2011 5:17 AM (GMT -6)   
Hi Chatters and welcome to HW. I am new here as well, but this is such a friendly and welcoming community that I feel at home here already and hope you soon do as well.

I have a implanted pump - though mine is primarily to manage dystonia and pain management as far as the pump goes is secondary - so if you have any questions about the procedure or the pumps please go right ahead and ask.

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 3/15/2011 5:43 AM (GMT -6)   
Chatters,
 
Nice to meet you and welcome... I'm sorry for all you are going through.  I'm 37 years old and have long-term health issues and pain.  This board is very supportive; I hope you'll find it this way, too.

There are a couple of people here w/ intrathecal pain pumps.  Given your issues - especially w/ the malabsorption disorder - an intrathecal pain pump might be a really good solution. 
 
I've had the intrathecal pain pump trial in '08, but for various reasons, have decided to delay for as long as possible.

Anyway, welcome and hope to get to know you more.
--Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

nvrthesame98
Forum Moderator


Date Joined Jun 2008
Total Posts : 6706
   Posted 3/15/2011 6:23 AM (GMT -6)   
Welcome Chatters. This is a great place and loaded with helpful people who take time out of their pain to help others. Each day I come here and even if I dont post I always take something away with me.

Glad to see your Docs are working for better pain control for you as we see so so many who are left with none at all.

Looking forward to seeing you around and chatting!!

_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 3/15/2011 7:18 AM (GMT -6)   
Welcome. I am pretty new here too. I hope you find it as helpful as I have.

solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 3/15/2011 8:03 AM (GMT -6)   
Hi chatters. I don't mean to restate the obvious but you do have a lot going on- wow. I am so sorry that you are going through all that. I don't have a pain pump but I agree with Tina when she said that it may be the best option for you due to your malabsorption problems. May I ask how your belly got infected so badly?

The people on this board are wonderful and very supportive so please feel free to post any time. Even though we all have different problems, we are all in this together and together we can do this crazy thing called chronic pain. OK I'm done being philosophical for today-LOL Lee
Hope and attitude are everything. Never, never, ever give up.

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 3/15/2011 1:19 PM (GMT -6)   
Hey Chatters! So glad you found us. Again, sorry for the reasons but this is a great place. We are like one big family here.

I hope you keep coming back and once again, welcome. Take care.
Gentle Hugs,
Shannon

Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Percocet, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

rhondamac
Regular Member


Date Joined Feb 2011
Total Posts : 58
   Posted 3/15/2011 1:47 PM (GMT -6)   
Welcome Chatters! I am a newbie as well. I am so sorry about your pain! I hope that you find comfort here at HW.
Connective Tissue Disease and Fibromyalgia.

Meds include; Mobic, Plaquenil, Tramadol, Prevacid, OTC Sleep Aid.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3694
   Posted 3/15/2011 2:45 PM (GMT -6)   
chatters
 
I to would like to Welcome you to Healing Well Chronic Pain Forum!  Boy what can I say! You have really been through the wringer haven't you!  I am really really glad you have found us and came to this site! I hope that you will find this site as comforting and helpfull as I have! People really are compassionate and caring here, ( I personally think these are the most caring and compassionate folks that you will find any where on the internet!) we certainly can not fix you or give you professional medical advice! But we can give you our ears and listen to you, ( so when you are frustrated and need to vent, or rant and rave) we are here for you!, and when you also need support we are also here for you! and  when you need some just plain caring friendly advice well we are here for you for that too!  Your no longer alone with your pain when you are here! Hopefully you  will find ( like I have) that the folks here, become family to you!  I do hope that you stick around and become an active part of our family! I am sure that we can all benefit from your knowledge and experience too!  Share with us what you are comfortable with, and again I Welcome you  "chatters" to our Chronic Pain Family!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 3/15/2011 4:51 PM (GMT -6)   
Hello Chatters!

I also wanted to jump in on the fun and welcome you to the forum! smilewinkgrin


SE wink

chatters
New Member


Date Joined Mar 2011
Total Posts : 17
   Posted 3/15/2011 11:30 PM (GMT -6)   
solar powered said...
Hi chatters. I don't mean to restate the obvious but you do have a lot going on- wow. I am so sorry that you are going through all that. I don't have a pain pump but I agree with Tina when she said that it may be the best option for you due to your malabsorption problems. May I ask how your belly got infected so badly?

The people on this board are wonderful and very supportive so please feel free to post any time. Even though we all have different problems, we are all in this together and together we can do this crazy thing called chronic pain. OK I'm done being philosophical for today-LOL Lee


Thank you all for the wonderful welcome. My problems started when I went in for a tummy tuck. They made and incision above pubic line from hip to hip to do a tummy tuck. I had 2 c sections with my children and could not get my tummy back in shape, so opted for the tummy tuck. It went horribly wrong after about 5 days post op I developed an infection called Pseudomonas maltophilia. It is a rare nasty infection that is antibiotic resistant. It ate my skin, tissue muscle, and stomach. I was hospitalized for months and sent home with round the clock IV treatment. They did 2 reconstructive surgeries to take out damaged areas. I have been left with abdominal hole the size of a bowling ball. Due to the massive abdominal damage, I cannot absorb most vitamins and receive massive doses to compensate, but my levels are still barely detectable. Thank you again for the welcome and your interest in me and medical nightmare.

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 3/16/2011 12:56 AM (GMT -6)   
I wanted to welcome you to the board too Chatters. I'm so sorry for what you've been through and the daily pain that you have to go thru. Like others have said, the pain pump would probably be a real good option for you since you have throuble absorbing the vitamins and minerals.

The people here are like family. I have gotten so much support and love from all the lovable and supportive people since i've been here. Take care.

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
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