I do not have Malabsorption. There are a few ways to get this problem. Low Magnesium. Extensive radiation. Auto Immune. Accidental injury from surgeries in the neck. The last is congenital (born with abnormalities). I have "Inherited Hypoparathyroidism". It is congenital. It went on for many years before it was diagnosed so I was / am left with the more extreme complications and damage.
I was born with my first cataract, my second when I was 7, you can guess how the rest went... I had my first synthetic lens implant by the time I was 21. I have since lost my vision 2 more times. This last time there was nothing they can do. The tissue is softening.
The paraesthesia caused me to learn how to write with my left hand. I am now ambidextrous. The seizures are not so bad. I just wish everyone would calm down while they are happening, and stop trying to get me to talk. I cant talk. Also, they make me tired. The tetany isn't so bad... but the tetanic contractions in my throat are difficult and make my doctors nervous....
A little over a year ago I bit into a piece of sausage and a tooth crumbled out of my mouth like chalk. The next day 2 more crumbled out like chalk. By the time I got into my dentist the next week I had lost 10. By the time they were able to begin my dental reconstruction surgery I had 6 teeth left. 2 of those 6 were not viable. I had complete oral reconstruction done. It was a huge undertaking. It took 3 months for initial recovery. 6-8 months for complete recovery. On the plus side I have a georgous man-made smile now.
During that time my doctors were scrambling and an endocrinologist with extensive experience was called into the team. He had seen it 2 other times before in the "inherited" form.
I do have extensive problems with my spine that began when I was 27. I am 30 now. I have progressive spinal deformities. There is no cause to be found, yet. Idiopathic. I have a primary progressive Levoscoliosis that spans T10-SI. Lower thoracic through all lumbar. It is moderate classification of cobb angle. As a result my right hip is rotated towards the rear of my body and up into my ribs on the right hand side. My left hip is being crushed. I have a Dextroscoliosis T2-T9 (contained within the thoracic only). It pushes out my shoulder blade, pushes my ribs out on the side and makes my collar bone "seem" uneven. A compensatory "tilt" that forms as a "defense mechanism" to the spine trying to realign itself above that.
Hope that kinda help with a little history. Hope I didn't confuse you.
With regards to the blood.. they always take blood. I don't normally mind. I know my doctors mean well, they just get.. they just check every last thing, all the dang time. I am very used to labs where fasting is required, but I am usually atleast allowed water. Not this time.
It isn't like them to make me wait until finding appointments. Well, "findings appointments" do happen about 2 times per year since all the crazyness started. That is where they all group up and discuss annual testing / imagry. Don't normally have to wait so long for communication though. I hope what ever is happening, that they can treat it. I already have a lot on my plate.
...I am so greatful to finally get some medication in me! It was a long morning.
TWO roads diverged in a yellow wood And sorry I could not travel both And be one traveler, long I stood Chronic Pain ModeratorMail
Post Edited (Mrs. Dani) : 3/17/2011 8:11:19 PM (GMT-6)