Got my collar, got my details, got a few concerns

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REDSAM
Regular Member


Date Joined Feb 2007
Total Posts : 98
   Posted 3/16/2011 9:03 PM (GMT -6)   
Well I have my Miami J collar and less than 30 days now. Wow. I hope it fits better when they put it on for real. It seemed really loose to me. I haven't tried putting it on myself, maybe I will have some energy to try that over the weekend. She went over the post op restrictions and what happens on surgery day. The surgery is scheduled for 3-5 hours. And he works in combination with a nerve specialist who monitors the nerve activity and if he gets to close to the spinal cord an alarm will sound and they will stop and check to assure the cord was not injured. After the surgeon gets everything cleaned out they run nerve tests to assure the compression has been relieved and no nerves are injured, then he wraps it up.

Bless my hubby and he wanted her to assure him that they would take care of my pain and be sure that I do not wake up during the surgery as I did last year with my Upper GI Scope.

I will have to ask my pain doc some questions when I see him because I have some concerns. She said the surgeon will prescribe pain medication and if I need a refill all I have to do is call the office Monday thru Thursday and they will call a refill into the pharmacy??? I am already taking Dilaudid so what could they "call in" that will be equivalent to that? So they must be thinking of something that does not require a paper script because I didn't think they could call in anything other than Vicoden. So I will be asking my pain doc for some clarification when I see him in two weeks at my normal visit. He may need to do that part in cooperation with the surgeon. I wonder if I even can downgrade from the Dilaudid to Percocet or Vicoden.

I am so exhausted and my pain hovering in the 7-8.5 range.... I got alot of work to do to get ready for this... hugs all.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3689
   Posted 3/16/2011 9:25 PM (GMT -6)   
REDSAM
 
I am glad you checked into that, I had allot of problem after my last surgery, they had me on one pain med and it did not touch my pain and they finally had to give me a dilaudid PCA Pump and it worked out great but they had to wean me off of it before I left the hospital and they weaned me off to Perocets. But I had a heck of a time getting my pain under control, the surgeon and the staff on the surgical unint were not use to having a patient that was use to higher doses of pain medications, and thus they were under treating my pain. So it would be advisablle to talk to you surgeon about this, and make sure he understands that you have a certain tolerance to pain meds and it takes allot to keep your pain under controll!  I sure would not want you to have to go through what I did this last time, as it was a terrrible experience!
Good Luck to YOU  REDSAM~
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Draka
Regular Member


Date Joined Jun 2009
Total Posts : 256
   Posted 3/16/2011 9:28 PM (GMT -6)   
Read some of your older posts REDSAM.... I too got fitted for my Miami J collar today too!

Looks as if we are in the same boat..... I have a scheduled date for surgery two weeks from today.... I am really nervous and scared as I have never in my life had a hospital stay.

I'll keep a watch for your posts.

Best wishes!

REDSAM
Regular Member


Date Joined Feb 2007
Total Posts : 98
   Posted 3/19/2011 8:58 PM (GMT -6)   
Good luck Draka. I hope your surgery goes well. Alot of good information here. I will keep you in my prayers.

I have been reading quite a bit and preparing my list of things I will need when I get home.
Hugs again and good luck.

Draka
Regular Member


Date Joined Jun 2009
Total Posts : 256
   Posted 3/19/2011 9:00 PM (GMT -6)   
REDSAM said...

I have been reading quite a bit and preparing my list of things I will need when I get home.
Hugs again and good luck.


Best of luck to you too REDSAM.... if you don't mind sharing I would love to see your list.... I need ideas!

+++++ thoughts for you

nvrthesame98
Forum Moderator


Date Joined Jun 2008
Total Posts : 6706
   Posted 3/20/2011 5:04 AM (GMT -6)   
Best of luck to both of you then. Here is hoping your OPs are succesful and your pain is minimal.
I would ask if the hospital has a PM team as many do and they usually take care of inhouse post-op meds and any pumps you maybe using. If not make sure everyone is on the same page as far as post-op tx of your pain taking into consideration your accomadation to opiates via longterm PM.
They usually give you a B/T med as your reg. doses wont likely cover post-op pain. I have had them raise the amount of my PM meds for a few days along with a mild b/t med until I go home.

Try to relax and will keep you both in my good thoughts book.
Keep us updated and maybe have someone post here for you while in your in hospital to let us know your surgery went ok and how your doing? Just a note.
Disabled since 1999 from knee injury
DX: Bil knee meniscus removal with LTKR in 01. 6 knee arthroscopy for plica removal meniscus repair. Ank spondyl,ddd at L3-4 S1. disc collapse at L-3 with nerve impengement. legally deaf,copd,rt shoulder rotator cuff tear repair 06. some memory deficit post encephalitis,GERD
MEDS: methadone,xanax,cymbalta,zantac,maxide,K+,lasix,prempro,celebrex,combivent

purplereading
Regular Member


Date Joined Nov 2010
Total Posts : 108
   Posted 3/20/2011 12:28 PM (GMT -6)   
 Checking with your pm  dr. and trying to get them together on post op pain is a great idea. When I had my last surgery, I was promised that my pain would be taken care of post op. However, that did not happen, as I was in a new hospital, new surgeon, and new hospitalist, all of whom had no idea about my normal meds, let alone what it would take to control the post op pain. I guess they could not read, as we are all asked what are your daily meds, upon admission. Evidently post op in recovery, I began to scream, and carry on and my surgeon went out and told my friend waititng, that I needed to stop cursing at him. WELL< I did not know. What I found out later is they kept givin me versed, a hypnotic, instead of adequate pain meds. I woke up screaming from the placement of a knee revision with stems halfway up my leg to my thigh, and six inches into my calf. I had told them no blocks, as they never worked for me, but without my permission, evidently they put one in, that gave no pain relief. Eventually after SEVEN hours in the recovery unit, I was on a dilaudid pca, turned up enought after multiple IV pushes to get me to the room. The anesthisologist told me: "Do not worry, Ihave orderd enough breakthrough pain meds, and covered everything and you will not be in pain."  NEVER SAW HIM AGAIN>  AND no pain control . within two hours, I was begging my nurse for pain meds, and she told me: "YOU HAVE THE PUMP"< NOW remember I had not had my regular methadone, all day and they were givng me VERSED> Anyway, she was only conscerned that I could not move my foot. I finally screamed at her I WOULD IF I COULD> and she said you could right after surgery. WELL< then comes into play, that DA** block, they tried, It did not provide pain relief, but it sure as heck disabled me from moving the bottom of my leg, and foot. Imagine that nobody passed that info on. as because it was 8pm, everybody in recovery just wanted to dump me on the floor. I spend the majority of that night crying in pain. When the am nurse arrived, she bawled me out: YOU are a RN, you know that it is better to keep up with pain, and not let it get our of control, WHY did you not ask for pain control last night?"  DUHHHHHHHHHHHHHHHHH. She got a bolus of dilaudid, called my orthopod, got a days worth of meds, gave them all to me AT ONCE>  WELL needless to say I slept for three hours, and then it was back to pain. PLUS , I was to be dismissed the next am. I lived four hours away. I was given one oxycontin to take home and 30 percocet. The percocet said to take  every 4 hours. SO, in, one day, if I actually took two every four hours, twelve would be gone. and I was dismissed on a Friday. I tried to tell them that these would not last, and I would have to call and have a script mailed, but nobod listened. SO, on Monday I called, and they promised to get me some in the mail, but I got that script the next Sat., and my regular dr had tole me the surgeon would handle post op pain. SO, since I had used 2 three times a day, on Friday, Sat, and Sun. I had 12 or less for the entire week. IT WAS HELL
This is a reminder Please get it set up ahead of time. Promises do not mean alot. From now on I will always take meds with me, and NOT Tell the nurse.  I am a Nurse, but it takes what it takes to survive.

nvrthesame98
Forum Moderator


Date Joined Jun 2008
Total Posts : 6706
   Posted 3/20/2011 6:10 PM (GMT -6)   

Hey Purple I had a similiar experience also with my knee replacement and that was my reason for the advice. I too was on methadone and they didnt seem to realize nor care that the longer I went without it the harder it would be to get it built back up and the more pain I was going to get into,they had my meds listed as well and giving someone who isnt on 80mgs of methadone a day for 4 years 2 perc 5's every 4 hours probably would be ok I was NOT. One for the simple reason methadone actions dont allow 100 percent of any other opiate to distribute evenly in our system,and 2 it has to be at certain levels in the blood to allow for pain relief.

I would never ever go into surgery again without everyone being on the same page!! I have the right to not suffer needlessly as all of us do and especially in the hospital.

 


Disabled since 1999 from knee injury
DX: Bil knee meniscus removal with LTKR in 01. 6 knee arthroscopy for plica removal meniscus repair. Ank spondyl,ddd at L3-4 S1. disc collapse at L-3 with nerve impengement. legally deaf,copd,rt shoulder rotator cuff tear repair 06. some memory deficit post encephalitis,GERD
MEDS: methadone,xanax,cymbalta,zantac,maxide,K+,lasix,prempro,celebrex,combivent

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16019
   Posted 3/21/2011 2:18 PM (GMT -6)   
RedSam sounds like you have everything pretty much in order for your surgery. You are correct, the surgeon cannot call in a script of Dilaudid, it must be a written script for it. I take Dilaudid too. Talk to your PM dr about this before your surgery to make sure you have your bases covered for post op pain.

WhiteBeard had a devil of a time with his drs and his meds when he had his last neck surgery. Sure do not want to see the same thing happen to you. Take care.
Moderator Chronic Pain Forum

REDSAM
Regular Member


Date Joined Feb 2007
Total Posts : 98
   Posted 3/22/2011 6:44 PM (GMT -6)   
Thanks StrayDog. I am very concerned about it, and have been getting lots of advice from WhiteBeard. I don't feel it will be a difficult discussion with my pain doc. He knows me best.

Well I met with my new GP yesterday and I got good news and bad news. He does not have much bedside manner, but I believe he is a methodical thinker. We went over my extensive history (I now have a spreadsheet listing all my meds, all my surgeries, all my important tests and results and other important info) it makes the discussion easier. Knowing he will also have to clear me for surgery I brought him a copy of my abnormal ekg and the clearance I received from my cardiologist the last time I had surgery. He contemplated having me do it again, I groaned, so he did an EKG in the office and it was exactly the same as the last one, so he said that I did not need to go through another one unless the cardiologist had something in the report that I needed to repeat. There is not, so that was a relief. The bad news is he wants me to take a blood pressure med Bystolic because my heart rate was too high. shakehead . He wants it a precaution since surgery is stressful on the heart and if I go in already elevated that may not be good. I guess that makes sense. My blood pressure goes all over the place. This particular med is EXPENSIVE. So if this is going to be permanent, I want something cheaper. He ran some of his own blood work to see if the thyroid med I take may be too much. We will see, I have been on that particular dose since Feb and 4 weeks ago a different GP (did not care for her) ran blood work and said all med levels were fine. So not sure what to think and have some anxiety about starting a new med, especially one with so many "warnings".

I have to go see him the same day I see my pain doc. I may ask them to give me the last few months of readings so I can give it to my new GP for reference. But as far as I know there is nothing stopping me from getting the surgery. Today is another headache day... Ugggh.
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