And welcome to the Chronic Pain forum! Wow, you are suffering so much and you shouldn't have to. I would suggest that you get another opinion on your health problems....start fresh and see what's going on. Do you go to a family doctor, PCP? That's where I'd start if you haven't already done that. I'm guessing that you have already gone that route since you go to a rheumy.
The other suggestion I have is to get yourself to the nearest university/teaching hospital. This is where the majority of research in our country comes from so if you go there for health care you are getting the very best. They won't put you out the door because they "just don't know". You have a wonderful one in Providence. In the Chronic Pain 101 thread there is a link to a listing of university hospitals around the world. Below is a link to the one nearest you. You can call them and ask for a referral to a doctor that best suits your needs.
In the mean time, there's no reason to be in this much pain without some sort of pain control offered to you. Ask your doctor about
something to help ease your pain. It's a very reasonable request and it's also his responsibility to help you find a solution. I hope you get some relief soon.
Moderator on the Fibromyalgia and Chronic Pain forums
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.
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