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ahuffman
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 3/22/2011 3:21 PM (GMT -6)   
Hello everyone,


It's been quite a while since I have posted. I am going through a rough time right now and could use some support. My back pain had settled down for a while until recently, but now it is back with a vengeance and has moved to my upper back/neck. The last 2-3 weeks I have been waking up with horrible pain in my upper back/neck area, moving my neck makes it worse. I try to change positions but nothing helps, I cannot sleep like that. To make matters worse my insurance ran out in January and wont be reactivated until April 1. I have tried Flexeril, but I can only take that before bed cause it turns me into a zombie and it only works for about 6 hrs, so I still wake up in pain. I also am taking what Vicodin I have left, it helps but it still hurts badly and I am running low on it. I am going to see my pcp when my insurance kicks back in, but he has not been much help in the past. I am hoping he will send me to a pm doctor this time, after 3 tries it is obvious that physical therapy does not work for me. My parents are pretty understanding about it, but the rest of my family either does not understand or thinks that it is all in my head. Even my girlfriend does not understand, she keeps telling me to take some tylenol and rest. I am so frustrated right now, I am worried that I will never get the relief that I need.

Anniewhereugo
Regular Member


Date Joined Oct 2010
Total Posts : 46
   Posted 3/22/2011 5:17 PM (GMT -6)   
Sorry things are getting worse instead of better.  I can understand your frustration with doctors, family and friends....unless you are bleeding profusely or there is a bone protruding somewhere on your body it is hard for others to understand or relate to what you are going through.  I'm lucky in that I have a great doc who believes in me and really wants to try to find something that will work and help me get some relief.  I don't know what i would do if she blew me off.   I hope you can find something that works until you can get back into the doctors office.  have you tried the chiro?  massage?  anything like that?

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 3/22/2011 5:35 PM (GMT -6)   
I can certainly relate, as many here probably can. Myself I have had to, for many reasons at one time or another, go without any kind of medical treatment and muddle though with "at home" remedies to see me through until I could get to a doctor. At one time I had to go over a year dealing with my pain on my own. It is not fun, but it is possible and doable.

The main thing I have learned when trying to deal with pain without medical support is to look at relief in increments. I know, through trial and error, that there is nothing I can do or try will provide me with major relief, but there are things I can do that will provide some respite here and some there and when I combine things that do work, even slightly, it can and does add up to something noticeable.

The first, the biggest, and the hardest step is to relax. All tension and stress does is increase your pain. Do whatever you can, where ever you can to relax. Empty your mind, find a peaceful place inside yourself, and breathe slow, regular breaths. You may find doing this easiest sitting in a chair, in a warm bath, or while taking a shower. It does not matter what place you find it easiest to relax in, only that you do and once you do relax and find some peace other treatments may be found to further your goal of finding some relief.

As far as the merry-go-round bit with doctors, it is part of the process they go through and that we all are very familiar with. First there are the exams, then the tests, then the physical therapies, the climbing of the medication ladder, the referrals to other doctors and specialists who seems to if ever actually read your medical file and see what you have already tried and want you to go start from square one. A few get lucky and only go through, what is for them, worthless treatments once, but many end up doing it at least twice if not more. It sucks, it is unfair, but sadly it is part of the "game".

One more thing I suggest you do is to keep a pain journal/log. Make entries as many times each day as needed to rate your pain levels, what medications and treatments you are using, how effective they are, etc and take that journal with you to your doctor's appointments. It may help you and your doctors pinpoint and tailor treatment to meet your needs sooner rather than later.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.

JCG32
Regular Member


Date Joined Dec 2010
Total Posts : 62
   Posted 3/23/2011 6:01 AM (GMT -6)   
I am sorry but can relate to all your feelings and struggles. A few things. Have you told the people in your life who are not understanding how it makes you feel and how they can help you? I know sometimes even with that people don't understand but sometimes it can help.
I hope you can get into a pain doc in April asap. Seeing a pain doc may help to find the right med or other type of treatment. Try to hold to hope. It just takes 1 doc or 1 treatment to give you relief.

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 3/23/2011 6:23 AM (GMT -6)   
I am sorry that your pain returned. Many of us know how you feel. I will be praying for you to find a doctor and get some relief quickly.
As JC said, try to hold on to hope.
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw


Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, arthritis, kidney stones, depression, 7 pelvic surgeries for pain, ovarian cysts, adhesions. Fentanyl patch, Vicodin, remeron, trazodone, dicyclomine, Miralax, Colace, Multivitamin

ahuffman
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 3/23/2011 11:36 AM (GMT -6)   
Thanks to all of you for the kind words and well wishes. It is so nice to have a community of people who can understand me and what I am going through.

Annie, I have not tried a chiropractor. I hate to admit it but they scare me. I get the occasional back rub from the gf but that is as close to a message as I have got.

Jim, great suggestions there. I try to relax as best as I can, but it can be very hard at work. IT can get pretty stressful sometimes. I can see what you are saying with the process we all go through with the doctors, but it still frustrates me when I know that pt will not work but they send me anyway. The last time it actually made the pain worse. I never though about a pain journal but that is a great idea. I will start one and bring it with me next time at the doctor.

JCG, I have tried to explain to many of them how I feel, but admittedly I am not very good at describing things in general. Most of the people outside my immediate family and friends still don't get it. They think that I am lazy, exaggerating or just a drug seeker. I even have an uncle who has chronic pain himself, who keeps telling me I am too young to hurt that bad and I don't need pain medicine at my age. He seems to think that having cp for a long time makes him an expert on pain.

I am hoping that a pain management doctor can help me get my pain under control, but I have been disappointed so many times by doctors that I have become rather skeptical. Thanks again for all the kind words and I hope everyone has a great day.

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 3/25/2011 10:30 AM (GMT -6)   
 
 
  Good Morning Aaron!!
 
    *warm hugg* It was nice getting to know you better last night. I really hope you can make it again next week too.. though come to think of it there are a few of us that trickle in and out of chat every evening :-)
 
     I hear you about the flexiril, I really do... but. At this point you will need something stronger. Your pain is far beyond what a vicoden or a flexiril can help with. The tiredness you feel could very well be because you are finally getting relief from the constant spasms. You really need around the clock care and management. I will be the first to tell you that the stronger meds knocked me flat on my #2 the first few months! It is just that I reached a point where I could no longer struggle with the light meds and avoid the stronger ones due to side effects. You will likely need to try other, much stronger, medications. In my case, I was started out painfully slow with very small increases in dosage and frequency. I had to slowly become accustomed to the medications over about a month. Then from that point I was slowly worked up a bit higher in dosage. I wanted so much to never have to take stronger medications! I fought so long to stay at low doses... but the truth is my pain and my deformities required much more aggressive treatment and I had to do my best to become accustomed to the medications. I think that at this point, for you aswell, it is time to start being open about more stronger medications. A great analgesic, muscle relaxant, sleep aide and antidepressant together will make a world of difference. The first month will always be hard. It will be worth it. A Pain Management doctor is trained in all aspects and will slowly work your tolerance up.
 
      I am so sorry you have hard such a hard time. It sounds like you have been through the ringer this last year. It would be so nice if you finally got the care you deserve. Try to rest as much as your body will let you.
 
*hugg*
  dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

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ahuffman
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 3/25/2011 12:31 PM (GMT -6)   
Thanks Dani and Pebbles for the kind words. I am having a very scary day here, this morning my back felt for a while but then it kicked in but for the first time I also had pain in my left ankle and within a couple minutes both my feet and ankles went numb. Now my right wrist is acting up also, normally I would chalk it up to my computer usage but combined with my ankle/foot issues it has me afraid. I am almost having a panic attack, I don't know what is going on and it worries me. Anyone have any ideas what could be going on? I am almost wondering if something new has developed, sigh.

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 3/25/2011 1:28 PM (GMT -6)   
hey ahuffman, i know where your coming from. you have some kind of pain generating problem causing this and i don't think a PCP could make the diagnosis. your doctor can just treat the symptoms. if you are having lower spine pain and starting to get mid-spine and neck pain you need to go to a neurosurgeon(that does not jump to surgery) and have them get a MRI when your insurance kicks in and go from there. you may even need a rheumatologist to help find the problem. when you find a diagnosis then get aggressive with it because sometimes you may have a little window of time to get ahead of it. i wish you the best, good luck.

ahuffman
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 3/29/2011 8:49 AM (GMT -6)   
Just to update everyone, my neck hurt so bad Sunday night that I decided to go to the walk in clinic down the road yesterday morning. They ran me through the normal process, the doctor was actually pretty good. She tested the feeling in my feet and found several areas that have decreased feeling which unnerved me to say the least. They wanted me to have a nerve test, but I will wait until I see my neurologist first. They gave me a shot of Toradol to help the pain and gave me a different muscle relaxer Skelaxin, which is supposed to be less drowsy than the Flexeril. I also got a refill of the Vicodin and was told to take 2 if necessary. That hopefully will hold me over until I can see my primary on Friday afternoon (hopefully). I found a pain management center nearby that looks promising. There is 3 board certified pm's and they state that they treat with medication as well as injections. Hopefully this will all work out soon. Thanks again to everyone for your support. Hope everyone has a low pain day! :-)

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 3/29/2011 11:53 AM (GMT -6)   

 

  

  Dear Aaron,

     Good morning :-)   I have to say I was really glad to hear your update. I know the pain must have been unbearable to make you go to the clinic. For that I am so sorry you had to go though. I am relieved though that you were able to find a doctor who truly listened to your concerns. That is a rarity. Also, I hope the Metaxalone works better for you. I think some other members her take it, so you might want to ask around. I personally take baclofen and it really works well for me.

     The nerve response is very concerning. You are right to be anxious about those findings. I would be too. I really hope the neurologist is able to help. That may indicate some serious problems.

     Hopefully you are able to rest a bit better. I know you have been through a lot and you desperately need some quiet days. Hang in there and stay strong!

*hugg*
  dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

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