Dani, How was your appointment?

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flower123
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Date Joined Apr 2009
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   Posted 3/24/2011 4:53 AM (GMT -6)   
Hi Dani. I couldn't figure out if you gave an update, so I wanted to ask...how was your appointment? I hope that it went well.

Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 3/24/2011 6:52 PM (GMT -6)   


 

   Hehe, no I am not one to not talk when things are bad. I'm too honest and have been told so many times :-)   I do not have my appointment until next Monday, thank goodness. I had a couple of scheduling mishaps. Turned out better all the way around because they ended up needing a general metabolic panel anyway. I will let you know though, no worry.

*hugg*
     dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

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flower123
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Date Joined Apr 2009
Total Posts : 856
   Posted 3/24/2011 7:23 PM (GMT -6)   
Thanks for the reply. I'm sorry that you had to get more tests. I'll be thinking of you.

Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 3/29/2011 5:39 PM (GMT -6)   
 
     Went down to the office. My doctor has a new nurse that is a hoot! Real down to earth and very friendly. I was immediately comfortable with her. I had asked my doctor later, you know at the sit down part of the visit, if he she was going to stay. He said everyone asks and he is trying hard to keep her. I hope she stays. Its really rare to find nurses like that. I haven't met anyone like her, ever. She made me laugh so hard, bless her. I needed it, I have been so stressed.
 
     Oh yes, to the point. So he wanted a full physical exam. No problem, I don't mind. I haven't had such a complete physical since I was getting ready to begin conceiving the girls. Usually just basic. It is done a little earlier than usual, a little more complete than I am used to, but done for the year none the less. I will just have to try hard to remember to get my vaccination in early fall. Normally I do both yearly physical and vaccinations at the same time. No big deal though. Basic testing for my age. Again kidney function, creatinine and a general metabolic.
 
     On to the important stuff.. I have had tenderness in my right kidney region for over 6 months. I have struggled with problems regarding my urine and infections most of last year. Last fall my kidney function and creatinine was off. Kidney function abnormal, creatinine was up. Again in winter same thing, kidney function a little worse and creatinine a little higher too. At the start of this year it was tested yet again. Yet again a little worse. Then no more than a few weeks later both were looking worse. A little over a week ago, again same thing. Apparently one of the extra tests they have been running the last 3 weeks is called a general metabolic panel and it showed problems as well. I never did ask if the 6 cm "cystic mass" that the CT scan found on my left kidney is adversely effecting any of these kidney problems. Ill try to remember later. I wouldn’t think so, cysts are a pretty normal thing in the body. It was just an "accidental" finding when I had my normal series of imagery updates for the year. 
 
     The next step is for me to see a Nephrologist. They have a Nephrologist picked out. He has all the important information and testing (history) about me. I am to see him as soon as I can and he is expecting me. A receptionist at his office will try to work me in on his schedule. I am weary of strangers but my Endocrinologist and my Primary Care are very insistent. Its so hard to meet new doctors. It is just that the new doctors are always curious and all want to know about the last 2 years even though they have records. I feel so self conscious with new doctors.
 
*hugg*
  dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

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Chartreux
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Date Joined Aug 2006
Total Posts : 9664
   Posted 3/29/2011 7:42 PM (GMT -6)   
Awe Dani, I'm the same with new doctor's you ain't alone on that...
Healing hugz and well wishes coming to you...keep us posted...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

damouthy1
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Date Joined Sep 2009
Total Posts : 663
   Posted 3/30/2011 8:26 AM (GMT -6)   
I had to see a Nephrologist when I was 16 and was having some kidney problems. They never found anything and the problems went away. When do you go see him? I hope soon.

Once again Mrs. Dani, I am simply amazed by you! No matter what you are dealing with you always remember others and check on them. I do hope they can figure out what is going on. You really deserve some peace and calmness in your life right now.

I sure hope you can get a break soon! As always, love ya bunches!
Gentle Hugs,
Shannon

Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Percocet, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 3/30/2011 6:13 PM (GMT -6)   
 
     I am concerned that something more serious is happening. They were very clear that the blood work was not good and indicates a larger problem. So, I have a sinking feeling this Nephrologist will put me through many tests and images.
 
     I know that seeing a new specialist doesn't seem like much, it is just that my 6 month testing and imagery for my spine begins the end of May and beginning of June. When we measure the cobb angle of my levoscoliosis and dextroscoliosis. See how much I have progressed. Order new images and test for the new round of "possible causes". I have a sinking suspicion I have more genetic testing. The "Beginning of year" & "6 month check" are very busy and tiring. Not to mention costly.
 
     I don't want to be stuck with a new specialist still putting me through the ringer when my 6 month testing and imagery begins. I desperately need to be left alone for a little bit. My "beginning year" testing and imagery never really stopped so far. MRIs of the length of my spine to look at the damage within each deformity (Compensatory tilt, T2-T9 Dextro & T10-SI Levo). Then CT series. X ray series. Then new blood work, new assessment. Then Endocrinologist beginning of the year. His testing. My oral surgeon. Even the otologist for measurement. Mixed in with everything was this whole kidney and creatinine mess. I just need to be left alone for a little bit. All he said was, "I know but this is very important.". I have to see my eye surgeon in 2 weeks and tell him my vision has gotten much much worse...  and I am whining.. Sorry.
 
     Ugh, I sound like an adult throwing a fit. Bleh. I guess I just gotta take a deep breath and roll with it and try to keep up. Maybe I should ask my husband if we can take that vacation to for my birthday instead. Hopefully, I will get the house stripped down to basics by then too. I only have a few rooms to go and the garage. We still need to find a new home while all of this is going on. Goodness, I sure could use a break.   sad  
 
*hugg*
  dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

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momtofourangels
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Date Joined Apr 2010
Total Posts : 2265
   Posted 3/30/2011 10:30 PM (GMT -6)   
Oh dear Dani. I wish I could come there and give you a big hug. Here's a cyber one ((((((((((((((((hugs))))))))))))))))). I want to come there and give you my shoulder to cry on. You come here and vent any time you need to. God knows I've done enough of it lately. Please be careful with the housework. I didn't realize you were having to look for a new house. I noticed that you were doing some major cleaning, but it didn't dawn on my why. Please take care of yourself. Come here and let us worry with you. Our shoulders are available anytime my dear friend. I may be going back and forth, but please know I do love you Dani, and I want to be here for you like you have been here for me. You take care, and I hope you're having as low a pain night as is possible and that you're getting some sleep.

love you my dear friend,

Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees

MIKEL99
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Date Joined Feb 2010
Total Posts : 914
   Posted 4/1/2011 5:55 PM (GMT -6)   
Oh Dani Girl , Your not whining at all , just talking with your family here , we love you so much . It was such great fun talking with you in chat , as it always is , but it had been awhile and I missed you . You are dealing with so much and you handle it so well , venting is just part of that so don't apologize . I'm very honored to be a part of the family you come to when you want to really talk , you are so special ! Meeting a new doctor is uncomfortable for sure , your so right ! But you'll get thru it Dani , I know you will and I'll be thinking and praying for you .I know you want to be just left alone for awhile and that time will come soon , try to be patient my good friend , nothing is as important as taking care of YOU ! Love you lots , Mikel
HIV+. meds - epzicom, Kaletra . oxycontin as needed , Hip replacement has been a total sucess , I feel blessed and thankful and happy most of the time . Everyone in the CP Forum shares in my sucess , thank you all !!

flower123
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Date Joined Apr 2009
Total Posts : 856
   Posted 4/2/2011 1:52 PM (GMT -6)   
Dani...please don't feel like you're whining. You're not. Thank you so much for sharing everything that is going on with you. You are so strong. If I were in your shoes, I am sure that I would need a break too. I went through a time for a few years where I was getting tons of tests, and getting treatment about four times a week, and each night the sessions would be about three or four hours. And then the driving, or getting someone to drive me...etc., etc., etc. I know it's not the same thing, but that really wore me down, and I felt like I needed to be left alone. We can only take so much. I'll keep you in my prayers, and I'll be thinking of you. It would be great if you could take that vacation!

Hugs,

Flower
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