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straydog
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Date Joined Feb 2003
Total Posts : 16290
   Posted 3/25/2011 10:08 AM (GMT -6)   
Hey Sandi, are you out there, I wanted to check on you. I am thinking you had an MRI done on your back and were waiting on a return visit to your dr to get the results. How did the appt go, let us know.

I hope that you haven't already posted on this and maybe I missed it.
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mrsm123
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Date Joined Dec 2007
Total Posts : 1235
   Posted 3/25/2011 2:44 PM (GMT -6)   
Hi Susie,
Thanks for asking for/about me.  I did go to the appointment with my original surgeon. He decided to act like a first class jerk.  We have had a difficult relationship since he missed my onset of Cauda Equina Syndrome after my first surgery and he blew me off basically for the next almost 18 months. Anyway, I wasn't thrilled about seeing him and I'm sure he wasn't that thrilled about seeing me, but while I wasn't willing to let him do any surgery on me, I wasn't looking for that, I only wanted to know how bad all of this is, and what my alternatives were. Anyway, I went to the appointment, and sat /stood waiting for the next almost 2 hours. Finally I got called back into one of the examining rooms and his med tech came in to tell me that he would only see me for the lumbar but not the cervical or thoracic issues. eyes   Okay, I am most concerned about the lumbar anyway. Then she comes back in almost a half hour later and now he wants me to have an xray before he will see me. rolleyes   Okay, I agree to that too. Then I ask how much longer he is going to be......and she comes back and says that he will be at least another hour , but probably longer......now I am getting a bit frustrated. I don't blame the man  if he doesn't want to see me, I am not thrilled about seeing him either but the PM doctor wanted me to see him as soon as possible, so let's just do this and get it over with for both of our sakes. If he flat out doesn't want to see me , then he could have called or had his med staff call and tell me instead of making me go through all I have to go through  to even come there in the first place. I had told them all that before making the appointment.  Anyway, at that point, I decide I am done playing games with him, so I opt to cancel the appointment and leave. smhair
Anyway, I finally found a new neurosurgeon in NYC and call to make the appointment for the consult. The office lady asks about the findings on the MRI's and I read the summaries to her from all three levels. Anyway, she actually consulted the neurosurgeon , who told me that he wanted me to see the ortho surgeon in his same building since any surgery would need both of them, the ortho to handle the hardware and the neuro to handle the spinal cord stuff.
I saw the ortho on Thursday, and will see the neuro this coming Thursday.
The ortho was very, very nice, and went over the lumbar issues with the MRI with my husband and I . Then he saw something on the films, excused himself for a few minutes .  I suspect that it is a second occurrence of Cauda Equina Syndrome. In fact, I know that it is. sad
Anyway, he came back in and you could see that he was obviously worried about what he saw and in fact, had the same images that I was worried about up on the viewer.  I asked him about Cauda Equina and while he didn't lie to me, he did kind of circumvent the question and said the neuro would need to take care of the neuro issues.  And that he would send his recommendations to the neuro and would call him later.
 
Anyway, since both surgeons are in the same building, we went to the neuro's office to make the appointment and the woman remembered my calling. She told us that the ortho and neuro spoke not once but twice during my visit with the ortho. I think that she believed we already knew that they had called each other. I also know that most surgeon's , especially ones that you have not been seen by, don't necessarily get phone calls right away from another doctor, unless there is something important to be concerned about shakehead confused I suspect that when I see the neuro on Thursday, there will be a push for surgery and rather quickly.
 

Blessedx8
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Date Joined Aug 2008
Total Posts : 3193
   Posted 3/26/2011 1:43 AM (GMT -6)   
Thanks, Susie, for asking about Sandi.... hope you don't mind if I post something here. 
 
Sandi - I think of you often, raising your kiddos and having all the health stuff you do...and how helpful you've always been to me.  I'm so sorry for the stress of these latest appointments.  I didn't know about Cauda Equina Syndrome until this board and the info you've provided to others.... it's very serious and I hate to hear that this may be an issue again.  Please let us know what happens at this upcoming appointment (on Thursday, is that right?)... I'll be thinking of you.
 
It's just always something, isn't it?  There are days - and I'm sure we all have them - where I want to shout - "when does it end?".  This is trivial compared to so many things.... but I tripped in our laundry room, while tackling "Mt. Laundry".... and I basically fractured my elbow (the radial head) of my dominant hand.  The pain is excruciating and I have yet another appointment w/ yet another doc (ortho) this next week.  So... along w/ my 100 other things, I'm in a sling trying to figure out how to manage a household and two 6 month olds w/ one arm.  I guess if I didn't laugh, the crying wouldn't stop, right???
 
In all seriousness...you're in my prayers and please keep us updated. my friend.  Love, Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1235
   Posted 3/26/2011 7:30 AM (GMT -6)   
Hi Tina,
You do exactly what I do honey, take care of your family as best you can, and try to get through another day. We all do that, each one of us. I'm no different than you . You want to hear something funny, it never occurred to me that I might have to go through this a second time. Once was enough in my book but when you stop to think that there are 5 vertebre in the lumbar area, it would make perfect sense , right? Well, it didn't occur to me until this latest MRI that it was even a possibility. Ahh, the powers of denial.....LOL
I will post after my Thursday appointment, at least unless I am in the hospital. I may take my lap top with me just in case, that way I don't have to wait for my husband to come home and get it.
I know exactly what you mean about the wanting to shout when does it end.......I have been feeling that a lot lately. OUCH Tina!!!! Now, you need a mommy helper! Do you have a college student in your neighborhood who can come and give you a hand? Or an older teen? If you lived near me, I'd send one or both daughters over to give you a hand. Most of them get out of school earlier in the day and could come and give you a hand with the kids, especially the babies and after school stuff with the boys until your arm comes out of the cast it's probably going to be in......I am cringing just thinking about it :o(
What about family members? Any near by that can give you a hand? Want me to come and visit? I'll give you a hand and it will give me the perfect excuse not to go to that appointment.
Love and really gentle hugs,
Sandi

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16290
   Posted 3/26/2011 10:48 AM (GMT -6)   
Hi Sandi, wow, what an experience with the ortho, all I can think or say is thank goodness you have some new drs in your corner. It sounds like you may have a very good chance at getting some real help with some very good drs that can help you get some better quality life going on even though it will mean more surgery. But, you know as bad it sounds more surgery, I think I would have to take the gamble and go for it. You are still young and you have a lot of living left to do and why not do it feeling better than you do now. It may sound crazy but I am very excited for you with these new drs. My two favorite drs were an ortho and neuro that did all of their back surgeries together, the ortho did his part and the neuro took over and did his. You cannot imagine the wonderful work they did together. They were the top surgeons here and I live in a large city. In fact, they were the only two that worked together like this. Both of those guys had a gift. I have a feeling you have found a gifted pair too.

Will be on the lookout for a post from you later on the week. Take care.
Moderator Chronic Pain Forum

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1235
   Posted 3/26/2011 11:04 AM (GMT -6)   
Hi Susie,
When I say that my original first surgeon is a first class jerk, I mean it. I don't usually get into calling doctors derogatory names, but he ticked me off.
I did like the ortho, but his feeling was that he was the consult, so he was going to let the neuro tell me the bad news.....LOL I don't blame him, I wouldn't want to have to tell me either...
If I like the neuro, I may have found a winning team. The ortho was not happy that I am not getting better pain relief than I am getting but I can't see how medication is going to fix this.....if that were the case, any of the myriad of other pain meds that I have been on would have done wonders.....
I do agree that an ortho should take care of the ortho part and the neuro should take care of the neuro part, it makes far more sense to do it that way, especially since there is so much riding on the outcome.
I will make sure to get here and post, one way or another. I will take my blackberry if nothing else and then I will have some way of getting here to let you know what they had to say. I can't wait to see the report from the ortho.....should make for some interesting reading.
Sandi
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