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contranigma
New Member


Date Joined Mar 2011
Total Posts : 14
   Posted 3/26/2011 11:49 PM (GMT -6)   
Hi,
 
I hope some people on this forum could give me some guidance as to what my pain could be caused by....
 
I've had chronic pain for a little over a year, now. It is in my back, shoulders, and neck. Sometimes it feels like pain in the muscles but a lot of times it feels deeper than that, but not my actual spine, maybe ligaments? Other joints give me problems too. I have stiffness and excessive cracking in my neck, hands, toes, and ankles. I'm 23 years old. My dad has chronic back pain, too, but I'm not sure how similar his is to mine.
 
I have been to a chiropractor for many visits, to my family doctor 2x, and to a neurologist once. None have helped at all. They have prescribed a few drugs, like nortriptyline and lexapro, taken an MRI of my neck (it was "normal") and done an x-ray of my back (which was not very clear because of a faulty machine at the chiropractor's office). They have also done blood work, but there has been no diagnoses. They only suggest that it could be something similar to fibromyalgia.
 
I am training to be a sleep technologist, a job which will have me sitting for about 8 hours a night. Already during clinicals sitting for this long makes my pain nearly unbearable.
 
Please, do you have any suggestions on what this could be or what I can do about it?

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16779
   Posted 3/27/2011 12:29 AM (GMT -6)   
Hello and welcome to Healing Well's chronic pain forum. I am sorry that the drs have not been able to come up with a clear cut diagnosis for you. That is so frustrating, it works on your mind so much, sometimes you wonder if its real or all in your head. Been there and done that. Believe me, its real. It may very well be Fibro, if so there are medications that can help with that. None of us are drs here, we can speak from what we have experienced. One dr that could help you out is a rheumatologist, they are the drs to see if Fibro is a possibility, at least you could find out one way or the other. If Fibro is ruled out then the next step would be to see a pain mgt dr.They are trained to work with all types of pain and know what medications are used to keep the pain under control. The key is not to give up and push for these appts.

Everyone's pain is so different, it is truly a very individual type of a situation. I do hope you will consider moving on and getting some answers you so badly need. Please keep us posted on how you are coming along.

Again welcome aboard. Take care.
Moderator Chronic Pain Forum

contranigma
New Member


Date Joined Mar 2011
Total Posts : 14
   Posted 3/27/2011 12:57 AM (GMT -6)   
Thanks for the welcome, Straydog

It is hard, because it seems like there are so many possible treatments but all of the them cost money, so I feel like I am flipping a coin on which next step to take.

A family friend has recommended a different chiropractor than the one I was seeing. Do you think I would be better off seeing a rheumatologist?
How would they rule out fibro? I was told it was diagnosed based on whether or not you have certain tender points.

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 3/27/2011 6:42 AM (GMT -6)   
Hi, and welcome :)

I'm sorry that you're having chronic pain issues at such a young age (I'm 26). There are a few people here who have fibro who can probably explain better than I, but my understanding is that it's mainly a diagnosis of exclusion (i.e., after blood tests, scans, etc., have come up with nothing) combined with having a certain number of tender points.

If fibro is already suspected, I'd agree with Straydog that your best bet is to see a rheumatologist. They are the main doctors who deal with fibro. You might also think about a general pain management specialist.

Best of luck

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Somac, Cipramil. Have a spinal cord stimulator, intrathecal pump with baclofen & bupivacaine and doing physio.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16779
   Posted 3/27/2011 9:37 PM (GMT -6)   
I am not against chiropractic care at all, but in your case I think it would be a waste of good money spent for nothing. One thing I see with chiropractors is one leg is always longer than the other, one shoulder sits higher than the other, blah, blah. If you had an ache here and there they could help, but your problem has gone on too long to mess around with one of those guys. Of course, it is your decision if you prefer to go that route.

Since Fibro has been discussed and some of yours does sound like it, this is why I suggested seeing a rheumatologist since they are the ones to handle that type of situation. We do have a Fibro forum here at HW and you may want to take a peek over there. It is a very strange and difficult condition at times and can be very debilitating. The tender point theory is one of the many things used to dx Fibro.

Even if you seek pain mgt care, that dr will want a dx so he knows why the person would need medication. You need to find out why you are feeling as you are. Eventually your PCP will stop giving you any pain meds because they don't like to rx them long term to patients.

I do wish you the best and hope you can find some answers.
Moderator Chronic Pain Forum
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